European Reference Network

What European Reference Network does

European Reference Network is a healthcare organization headquartered in Amsterdam, Netherlands, founded in 2017 with a workforce of 11-50 employees. Its described function is to support patients with rare hormonal disorders through education and training, operating under the domain endo-ern.eu. The entity falls within the broader category of European Reference Networks, which are formalized cross-border healthcare coordination bodies in Europe focused on rare and complex conditions where patient numbers at any single national level are insufficient to develop meaningful clinical expertise.

The source data does not disclose revenue model, pricing, products, technology stack, customer list, funding rounds, management team, partnerships, regulatory actions, or geographic scope beyond the Amsterdam base. The supplied webpage content is a non-substantive loader/verification page containing no extractable product, service, or operational detail. Consequently, the underlying mechanics of how the organization is structured (member hospital network versus service provider), how it is funded (EU grant versus commercial), and how it delivers its education and training function are not established by the available evidence.

Given the absence of commercial signals and the explicit educational/coordinating mission, the organization's business character is more consistent with a publicly funded or quasi-public coordination entity than a venture-backed commercial venture, though the input characterizes it as for_profit. The 11-50 employee scale is small but plausible for a network coordination hub, and the 2017 founding aligns with the first operational wave of formally designated European Reference Networks across the EU. Until primary-source disclosure of revenue model, customer relationships, and funding structure becomes available, the investable profile of this entity cannot be rigorously characterized.

Name

European Reference Network

Website

https://endo-ern.eu

Company type

Private

Founded year

2017

Operating status

Operating

Headcount range

11–50 employees

Short description

European Reference Network is an Amsterdam-based healthcare organization, founded in 2017, that supports patients with rare hormonal disorders across Europe through education and training of clinical providers.

Ownership category

akta.pro rank

Product category

Rare Disease Healthcare Networks

NAICS

Other Individual and Family Services (62419)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Rare disease networks
• Endocrine disorder care
• Medical education training
• Healthcare referral networks
• Rare hormonal disorders

Headquarters

HQ city

Amsterdam

HQ country

Netherlands

HQ region

Europe

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Core offering

European Reference Network is a healthcare network that supports patients with rare hormonal disorders. It operates by connecting specialists and reference centers, and delivers education and training to clinicians managing rare endocrine conditions. The core service is healthcare network coordination combined with clinical education on rare hormonal disorders.

Differentiator

Problem solved

Functional benefit

Products and services

• Education and Training Programs on Rare Endocrine Disorders

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Recent moves1 record

Expansion highlights1 record

Regional players

• EuroHealthNet: European partnership of public health bodies and NGOs; comparable as a Brussels-anchored health-network coordinator that operates across multiple EU member states, though with a broader public-health remit than the subject company.

Direct peers

• Rare Diseases International: Global alliance of rare-disease patient organizations; comparable as a coordinating and policy-advocacy body serving rare-disease communities with a similar mission profile to Endo-ERN.
• European Society of Endocrinology: Pan-European specialty society for endocrinology; highly comparable as an educator and convenor for the same clinical community the subject company's training programs serve.
• Orphanet: Reference portal and knowledge base for rare diseases including rare endocrine conditions; directly comparable as a European rare-disease information and classification network serving clinicians and patients.
• Global Genes: US-based rare-disease advocacy and education non-profit; comparable as a content, education, and patient-support organization focused on rare-disease awareness and clinician resources.
• ERN-EuroBloodNet: A sister European Reference Network focused on rare hematological diseases; structurally identical in setup, EU funding model, and clinician-coordination mandate, making it the closest like-for-like comparator.
• European Society for Paediatric Endocrinology: Subspecialty society covering pediatric endocrine disorders, a core area of the subject company's scope; competes for the same clinician training and guideline authority in overlapping rare pediatric conditions.
• RareConnect: Moderated online community for rare-disease patients and families; comparable as a peer-led rare-disease support and educational platform overlapping the patient-community mission.
• EURORDIS: European Organisation for Rare Diseases umbrella advocacy group; comparable as a pan-European non-profit operating across many rare disease communities with overlapping patient and policy stakeholders.

Broad incumbents

• NORD (National Organization for Rare Disorders): Larger, well-established US-based rare-disease umbrella organization; comparable mission and patient-support model but broader disease scope and larger operating footprint than the subject company.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights5 records

Customer concentration

• Xx.com/RareEndoERN
• Facebookfacebook.com/rareendoern
• LinkedInlinkedin.com/company/rareendoern

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about European Reference Network