Child Brain Injury Trust

What Child Brain Injury Trust does

The Child Brain Injury Trust (CBIT) is a UK-registered charity founded in 1991 and headquartered near Bicester, Oxfordshire, that delivers support, information, and advocacy services to families and professionals affected by childhood-acquired brain injury (ABI). The organisation addresses a documented market of approximately 40,000 children in the UK who sustain an ABI each year — equivalent to one child every 15 minutes, with 1 in 30 children affected by age 17. Services are delivered through a hybrid model combining a network of 13 regional ABI Coordinators embedded in NHS hospitals and Major Trauma Centres, in-house and partner-based counselling, a Legal Support Service linking families to vetted regional law firms, and community-based events. CBIT employs 11–50 staff and operates across all four UK nations (England, Wales, Scotland, Northern Ireland).

CBIT's product surface combines digital and human-delivered services. Its flagship digital offering is "CBIT in Hand," a free mobile application on iOS and Android that consolidates information, wellbeing resources, and a curated Marketplace connecting families with therapy providers, rehabilitation services, assistive technology, and specialist organisations. Complementary digital products include the Learning Hub (hosting CPD-accredited online courses for parents, early years practitioners, and professionals), an E-Learning Library covering brain anatomy and self-care, the Community Hub and Young People's Hub, a Brain Injury Information Card, and the "Voices That Inspire" podcast. Human-delivered services include Early Intervention support in hospitals, Family Support Services, a Counselling Service providing 6–8 sessions per family, the "Give a Child a Chance" small grants programme (up to £125), sibling resources, and annual awareness campaigns including GloWeek (road safety) and Action for Brain Injury Week (in collaboration with Headway UK). Technical architecture is a collection of independent content platforms rather than an integrated software stack.

The business model is donation-funded with no government support in England or Wales. Revenue streams comprise individual donations and challenge-event fundraising, corporate partnerships and payroll giving, trust and foundation grants (notably the Eden Dora Trust for professional training and the Genia Marzec Trust Fund for general services), and legacy bequests. All family-facing services and the mobile app are free; some professional training is funded by third-party trusts. The go-to-market motion is community-led (hospital partnerships, professional referral networks, self-referral from families) supplemented by event-driven awareness campaigns and content marketing across social media, email, and owned channels.

Name

Child Brain Injury Trust

Legal name

Child Brain Injury Trust

Website

https://childbraininjurytrust.org.uk

Company type

Private

Founded year

1991

Operating status

Operating

Headcount range

11–50 employees

Short description

The Child Brain Injury Trust is a UK charity founded in 1991 providing free support, resources, education, and advocacy to families and professionals affected by childhood acquired brain injury, delivered via 13 regional coordinators, a mobile app, and hospital and legal partnerships.

Ownership category

akta.pro rank

Product category

Charitable Family Support Services

NAICS

Child and Youth Services (62411), Other Individual and Family Services (624190), Child and Youth Services (624110)

SIC

Services-Social Services (8300), Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Family Coaching, Parent-Mediated & Home Visiting EI Services (EDACAFAJ)

akta.pro secondary industries

Service Coordination / Case Management (IDEA Part C) (EDACAFAK), Parent Mental Health, Stress Management & Wellness Programs (EDACALAJ), Parent & Caregiver Training for LD/Dyslexia Support (EDAKAJAJ), Mental Health & Emotional/Trauma-Informed Childcare (anxiety, PTSD) (HSAAAIAI)

Keywords

• Childhood brain injury support
• Family support services
• ABI coordinator services
• Professional brain injury training
• Paediatric rehabilitation charity

Headquarters

HQ city

Bicester

HQ country

United Kingdom

HQ region

Europe

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Individual Donations and Fundraising: The charity relies entirely on public donations and fundraising activities in England where they receive no government funding. This includes individual fundraising through challenge events (running, cycling, swimming, hiking), workplace fundraising, and school fundraising.
2. Corporate Partnerships and Giving: Corporate partnerships including charity of the year arrangements, campaign sponsorships, employee engagement programs, payroll giving schemes, and strategic alliances with businesses.
3. Trusts and Foundations Grants: Funding from charitable trusts and foundations to support specific programs including regional services, community-based support, preventative campaigns, and accessible online learning. Examples: £20 for information packs, £125 for family grants, £1000 for hospital coordinator support.
4. Legacies and Bequests: Legacy gifts in Wills to support long-term sustainability of services. Legacies help fund early intervention support, family guidance, national campaigns, and prevention efforts.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels9 records

Core offering

Child Brain Injury Trust provides free, UK-wide support services for families of children (birth to 18, with transition support to 25) affected by acquired brain injury. Core offerings include the Early Intervention Service via hospital-based ABI Coordinators, family support and counselling, a regional legal support network, CPD-accredited professional training, the Learning Hub e-learning platform, and the CBIT in Hand mobile application with a curated marketplace. All family-facing services are provided free of charge, funded entirely through donations, corporate partnerships, trust and foundation grants, and legacy gifts.

Product overview

The Child Brain Injury Trust operates as a service-based charity rather than a unified software product. Its core offerings include CBIT in Hand (a free mobile app available on Apple App Store and Google Play featuring information, guidance, wellbeing resources, and a Marketplace for discovering support services) and the Learning Hub (an educational platform hosting courses for parents, carers, and professionals including the Self-Guided Parent/Carer Course, Safe Starts Early Years Programme, and Understanding Childhood ABI Workshop). The organization provides direct support services including Family Support Services, Early Intervention Service (ABI Coordinators in hospitals), Legal Support Service (regional legal partnerships), Counselling Service (nationwide for families), and the Community Hub (connecting families with peer support and resources). Additional offerings include the Brain Injury Information Card, Give a Child a Chance Grants (up to £125), Sibling Resources, Young People's Hub, and awareness campaigns (Action for Brain Injury Week and GloWeek). These services function independently rather than as an integrated platform architecture.

Differentiator

Problem solved

Functional benefit

Products and services

• CBIT in Hand Mobile App
• Family Support Services
• Early Intervention Service
• Legal Support Service
• Counselling Service
• Learning Hub
• Child Brain Injury: A Self Guided Course for Parents and Carers
• Safe Starts: Making Sense of Brain Injury in the Early Years
• Understanding Childhood Acquired Brain Injury Workshop
• Community Hub
• Young People's Hub
• Sibling Resources
• Brain Injury Information Card
• Give a Child a Chance Small Grants Programme
• Bush & Co Kids Case Management
• Benefits Advice Reviews
• Property Advice Service
• E-Learning Library
• Camp In The Cloud

Quantifiable outcome

• Support provided every 15 minutes to a child with brain injury
• +2 more outcomes

Named customers6 records

Segments4 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Six partnerships are on record, tiered core and supporting.

• Bush & Co KidscoreStrategic or Co-development PartnerBush & Co Kids provides specialist child-centred case management services for children with acquired brain injury from birth to 18. For every child supported through this service, charitable funding is directed to CBIT. The partnership helps ensure more families receive vital information, emotional support, and practical guidance.
• Headway UKcoreStrategic or Co-development PartnerAnnual collaboration on Action for Brain Injury Week, creating the UK's biggest brain injury awareness campaign. Joint efforts amplify voices of families affected by childhood ABI while raising crucial funds and building a more compassionate, better-informed world.
• Chase De VeresupportingStrategic or Co-development PartnerSpecialist welfare advisers providing benefits advice reviews for CBIT families. They help families understand entitlements, review current benefits, and provide tailored guidance on next steps.
• PLG ConsultantssupportingStrategic or Co-development PartnerProperty advice partnership helping families create safe, accessible homes. Guidance includes adaptive living spaces, specialist equipment suppliers, and signposting to trusted agencies.
• Regional Legal Firms NetworkcoreChannel Partner/ Reseller/ DistributorNetwork of vetted regional legal partnerships across England, Wales, Northern Ireland, and Scotland. Firms have demonstrated ability in handling complex children's brain injury legal cases and have made donations to support CBIT's ongoing work.
• Major Trauma Centres and HospitalscoreStrategic or Co-development PartnerEarly Intervention Service partnerships with hospitals and clinical teams across the UK. ABI Coordinators work directly with families at point of injury, bridging gap between hospital and home.

Scale indicators6 records

Recent moves6 records

Expansion highlights4 records

Others

• Mind: UK mental health charity. Adjacent peer because CBIT provides counselling and mental-health support to ABI families; competes for mental-health-focused donor pounds.

Emerging players

• Sibs (for brothers and sisters of disabled children): UK charity supporting siblings of disabled children. Directly comparable to CBIT's Sibling Resources programme and shares a sibling-support mission.

Broad incumbents

• Together for Short Lives: UK charity for children with life-limiting and complex conditions, including neurological conditions. Comparable UK children's-specialist charity model, though palliative-care focused.
• Brain Injury Association of America (BIAA): US national brain injury advocacy and support organisation. Functionally equivalent role to CBIT at national scale, with comparable awareness, support and policy work.
• Stroke Association: Large UK stroke charity offering broader stroke and ABI support, research, and campaigning. Comparable ABI cause area but broader, adult-focused and significantly larger.

Direct peers

• The Children's Trust: UK charity providing rehabilitation and support for children with brain injury and other complex needs. Closely comparable in mission (paediatric brain injury), specialist services and UK family-support model.
• Different Strokes: UK charity supporting younger stroke survivors (many children/young adults) with rehabilitation and peer support. Comparable ABI-focused support and community model for younger survivors.
• SameYou: Brain injury recovery charity founded by Emilia Clarke; supports rehabilitation and emotional recovery after ABI. Comparable cause area and fundraising/community-led model, though focused on older patients.
• Headway UK: UK brain injury charity that campaigns and supports people affected by acquired brain injury. Direct peer as CBIT's annual awareness partner and the closest UK counterpart operating in adjacent brain-injury territory.
• UK Acquired Brain Injury Forum (UKABIF): Umbrella forum raising awareness of ABI across the UK and influencing policy. Comparable advocacy and awareness mission focused on the same population CBIT serves.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/cbituk
• Facebookfacebook.com/childbraininjurytrust
• LinkedInlinkedin.com/company/child-brain-injury-trust
• Instagraminstagram.com/cbituk

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Child Brain Injury Trust