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Friends for Fragile X

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uuid003e8yp

Namestring
Friends for Fragile X
Legal namestring
Friends for Fragile X
Company typeenum
Private
Founded yearint
2010
Short descriptiontext

Friends for Fragile X is a non-profit founded in 2010 by Dave Justus to support children and families affected by Fragile X syndrome and autism through research advancement. The organization's website is currently inactive.

Operating statusenum
Operating
Ownership categoryenum
akta.pro rankint
Markets served

Serves global market

Keyword5 values
fragile x syndrome, autism research funding, genetic disorder support, nonprofit advocacy services, rare disease community
Industry3 codes
1Rare Disease & Special Needs Support Organizations
CodeBPAGACAMPrimaryYes
2Autism Social Skills & Peer-Mediated Programs
CodeEDAKAKAFPrimaryNo
3Disability Services & Independent Living Support
CodeBPAGACAGPrimaryNo
NAICS code2 codes
  • Social Assistance624
  • Other Individual and Family Services624190
SIC code1 code
  • Services-Social Services8300
Product category
Genetic Disorder Nonprofit Support Services
No data
Cost components3 values
Personnel, Marketing or Sales, Operations
GTM typeB2C
B2C
Offering typeServices
Services
Core offering1 text field

Friends for Fragile X is a nonprofit organization that assists children and families impacted by Fragile X syndrome and Autism. Its fundamental activity is advancing research toward a cure for these conditions while providing support, resources, and community connection for affected families and individuals.

Differentiator
Functional benefit
Problem solved
No data
Peers8 records
TypeBroad incumbent
Description

A national autism advocacy and support organization. Overlaps with the autism-support component of the company's stated mission.

TypeBroad incumbent
Description

One of the largest autism advocacy and research organizations in the U.S. Comparable to the autism portion of Friends for Fragile X's mission, though operating at vastly greater scale and breadth.

TypeEmerging player
Description

A rare-disease patient advocacy organization that supports small disease-specific foundations with tools, education, and network access. Comparable as a peer in the rare-disease advocacy ecosystem.

TypeBroad incumbent
Description

Umbrella organization representing the rare-disease community, including Fragile X. Comparable as a parent-advocacy and policy organization serving the same rare-disease population.

TypeEmerging player
Description

A nonprofit focused on individuals with autism and their families, with emphasis on safety, advocacy, and family support. Overlaps with the autism-support portion of the company's mission.

TypeDirect peer
Description

The leading U.S. patient-advocacy and research-funding organization focused on Fragile X syndrome. Directly comparable to Friends for Fragile X in mission, target population (Fragile X families), and advocacy/research orientation.

TypeDirect peer
Description

A nonprofit dedicated to funding Fragile X research toward treatments and a cure. Operates in the same rare-disease, research-advancement niche as Friends for Fragile X.

8Fragile X Research Foundation (Canada)
TypeRegional player
Description

A Canadian counterpart organization focused on Fragile X research and family support. Comparable mission and target population, but operating primarily in Canada rather than the U.S.

Market position
Customer concentration

Classification, Details

Segment1 record

Each record includes

Title, Type, Primary, Description, Pain point addressed, Use case, Source

Ideal customer profile1 record

Each record includes

Profile, Firmographic size, Sales motion, Sales cycle length, Buying structure, Purchase trigger, Buyer persona, Geography, Industry vertical, Primary use case, Description, Pain points, Evidence proof points, Target buyer

Technology focused
No
API detail
Has APIbool
No

Docs URL, Description

AI maturity
App detail

Has app

Core technology
Revenue estimate
Valuation estimate
Number of profiles
Profiles1 record

Each record includes

Name, Designation, Designation category, Overview, Profile commentary, Source

No data
No data
Funding overview

Funding stage, Last funding date, Total funding USD

Funding rounds

Each record includes

Round, Amount USD, Date, Pre money valuation, Total investors, Investors, News

Investors

Each record includes

Name, Type, Date of entry, Rounds participated, Website

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Each record includes

Name, Acquisition type, Announced date, Completed date, Status, Website, News

Investment

Each record includes

Name, Round, Announced date, Lead investor, Website, News

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Friends for Fragile X

Genetic Disorder Nonprofit Support Servicesfriendsforfragilex.org

Friends for Fragile X is a non-profit founded in 2010 by Dave Justus to support children and families affected by Fragile X syndrome and autism through research advancement. The organization's website is currently inactive.

Friends for Fragile X firmographics

Firmographics
Name
Friends for Fragile X
Legal name
Friends for Fragile X
Website
https://friendsforfragilex.org
Company type
Private
Founded year
2010
Operating status
Operating
Short description
Friends for Fragile X is a non-profit founded in 2010 by Dave Justus to support children and families affected by Fragile X syndrome and autism through research advancement. The organization's website is currently inactive.
Ownership category
akta.pro rank

Friends for Fragile X industry classification

Industry
Product category
Genetic Disorder Nonprofit Support Services
NAICS
Social Assistance (624), Other Individual and Family Services (624190)
SIC
Services-Social Services (8300)
akta.pro primary industry
Rare Disease & Special Needs Support Organizations (BPAGACAM)
akta.pro secondary industries
Autism Social Skills & Peer-Mediated Programs (EDAKAKAF), Disability Services & Independent Living Support (BPAGACAG)

Keywords

  • Fragile x syndrome
  • Autism research funding
  • Genetic disorder support
  • Nonprofit advocacy services
  • Rare disease community

Friends for Fragile X business model

Business model
GTM type
B2C
Offering type
Services
Cost components
Personnel, Marketing or Sales, Operations

Friends for Fragile X product offering

Product offering

Core offering

Friends for Fragile X is a nonprofit organization that assists children and families impacted by Fragile X syndrome and Autism. Its fundamental activity is advancing research toward a cure for these conditions while providing support, resources, and community connection for affected families and individuals.

Differentiator

Problem solved

Functional benefit

Companies that use Friends for Fragile X

Customer profile

Segments1 record

Ideal customer profiles1 record

Friends for Fragile X technology and API

Technology

Technology focussed No

API detail

Has API
No
API docs
API detail

Core technology

AI maturity

App detail

Friends for Fragile X competitors and assessment

Company assessment

Broad incumbents

  • Autism Society of America: A national autism advocacy and support organization. Overlaps with the autism-support component of the company's stated mission.
  • Autism Speaks: One of the largest autism advocacy and research organizations in the U.S. Comparable to the autism portion of Friends for Fragile X's mission, though operating at vastly greater scale and breadth.
  • National Organization for Rare Disorders (NORD): Umbrella organization representing the rare-disease community, including Fragile X. Comparable as a parent-advocacy and policy organization serving the same rare-disease population.

Emerging players

  • Global Genes: A rare-disease patient advocacy organization that supports small disease-specific foundations with tools, education, and network access. Comparable as a peer in the rare-disease advocacy ecosystem.
  • National Autism Association: A nonprofit focused on individuals with autism and their families, with emphasis on safety, advocacy, and family support. Overlaps with the autism-support portion of the company's mission.

Direct peers

  • National Fragile X Foundation: The leading U.S. patient-advocacy and research-funding organization focused on Fragile X syndrome. Directly comparable to Friends for Fragile X in mission, target population (Fragile X families), and advocacy/research orientation.
  • FRAXA Research Foundation: A nonprofit dedicated to funding Fragile X research toward treatments and a cure. Operates in the same rare-disease, research-advancement niche as Friends for Fragile X.

Regional players

  • Fragile X Research Foundation (Canada): A Canadian counterpart organization focused on Fragile X research and family support. Comparable mission and target population, but operating primarily in Canada rather than the U.S.

Market position

Customer concentration

Friends for Fragile X financial estimates

Financial estimate

Revenue estimate

Valuation estimate

Friends for Fragile X leadership team

Management profile

Number of profiles

Profiles1 record

Friends for Fragile X funding detail

Funding detail

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

Friends for Fragile X M&A and investment

M&A and investment

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Friends for Fragile X

What does Friends for Fragile X do?

Friends for Fragile X is a nonprofit organization that assists children and families impacted by Fragile X syndrome and Autism. Its fundamental activity is advancing research toward a cure for these conditions while providing support, resources, and community connection for affected families and individuals.

Is Friends for Fragile X a public or private company?

Friends for Fragile X is a private company. It is classified as nonprofit foundation owned and is currently operating.

When was Friends for Fragile X founded?

Friends for Fragile X was founded in 2010.

Who are Friends for Fragile X's main competitors?

Broad incumbents on record are Autism Society of America, Autism Speaks and National Organization for Rare Disorders (NORD). Emerging players are Global Genes and National Autism Association. Direct peers are National Fragile X Foundation and FRAXA Research Foundation. Fragile X Research Foundation (Canada) is listed as a regional player.

Does Friends for Fragile X have an API?

No public API is recorded for Friends for Fragile X.

What industry is Friends for Fragile X in?

Friends for Fragile X's product category is Genetic Disorder Nonprofit Support Services. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations, with a secondary code of EDAKAKAF, Autism Social Skills & Peer-Mediated Programs. Its NAICS code is 624 and its SIC code is 8300.

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