Wylder Nation Foundation
- Company typePrivate
- Founded2012
- HeadquartersScottsdale, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
Wylder Nation Foundation firmographics
Firmographics- Name
- Wylder Nation Foundation
- Legal name
- Wylder Nation Foundation
- Website
- https://wyldernation.org
- Company type
- Private
- Founded year
- 2012
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Ownership category
- akta.pro rank
Wylder Nation Foundation industry classification
Industry- Product category
- Nonprofit Patient Advocacy
- NAICS
- Business Associations (813910), Other Similar Organizations (except Business, Professional, Labor, and Political Organizations) (813990), Research and Development in Biotechnology (except Nanobiotechnology) (541714)
- SIC
- Services-Membership Organizations (8600), Services-Commercial Physical & Biological Research (8731)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where Wylder Nation Foundation is headquartered
LocationHeadquarters
- HQ city
- Scottsdale
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Wylder Nation Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Charitable Contributions: The foundation generates revenue primarily through donations from individuals, families, and corporate sponsors who support the mission of accelerating research for Lysosomal Storage Diseases and ASMD.
- Merchandise Sales (WN Shop): Sales of Wylder Nation branded merchandise including Hurley Hope gear, with proceeds supporting foundation operations and research funding.
Go-to-market motion1 record
Distribution channels3 records
Marketing channels5 records
Wylder Nation Foundation product offering
Product offeringCore offering
Wylder Nation Foundation is a patient-family-founded nonprofit that accelerates research and treatment development for Acid Sphingomyelinase Deficiency (ASMD/Niemann-Pick Disease Types A & B) through fundraising, awareness, and a remote patient research program (ASMD Accelerate, in partnership with Picnic Health). It also offers a branded merchandise storefront (WN Shop / Shop to Give), a Create-a-Campaign tool for honoring affected children, and educational resources and scientific publications for the ASMD/LSD community.
Product overview
Wylder Nation Foundation operates as a nonprofit patient advocacy organization focused on accelerating research and treatment development for Lysosomal Storage Diseases, particularly Acid Sphingomyelinase Deficiency (ASMD/Niemann Pick Disease Types A & B). The foundation's primary offerings include the ASMD Accelerate research study conducted in partnership with Picnic Health, along with resources such as scientific publications, patient stories ('Warriors'), and community engagement tools including donation portals, merchandise shops, and campaign creation platforms.
Differentiator
Problem solved
Functional benefit
Products and services
- ASMD Accelerate Study A remote patient research study that allows patients with Acid Sphingomyelinase Deficiency (ASMD) to advance research without leaving their homes, enabling longitudinal data collection through Picnic Health's platform; intended for ASMD-affected patients and families.
- WN Shop (Shop to Give) An online storefront selling Wylder Nation and Hurley Hope branded merchandise, with proceeds directed toward foundation operations and ASMD research funding; intended for supporters and the general consumer public.
Companies that use Wylder Nation Foundation
Customer profileSegments2 records
Ideal customer profiles3 records
Wylder Nation Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Wylder Nation Foundation partnerships and signals
Strategic signalPartnerships
Five partnerships are on record, tiered core and minor.
- Picnic HealthcoreWylder Nation Foundation partnered with Picnic Health to launch the ASMD Accelerate study, enabling patients to advance ASMD research from home by enrolling through Picnic Health's platform. This partnership enables longitudinal patient data collection for research purposes.
- PerlaracorePerlara PBC signed patient advocacy partnerships including with Wylder Nation Foundation, enabling collaborative rare disease research efforts. The partnership connects foundation families with Perlara's research platform.
- Grace ScienceminorMentioned alongside Perlara as part of a pact agreement for patient advocacy partnerships in rare disease research.
- BioVistaminorBioVista sponsored Wylder Nation Foundation, providing financial support for the foundation's mission and activities.
- UCSFminorUCSF sent a letter of gratitude to Wylder Nation Foundation, indicating collaborative relationship in research or patient support activities.
Scale indicators4 records
Recent moves6 records
Expansion highlights4 records
Wylder Nation Foundation competitors and assessment
Company assessmentEmerging players
- EveryLife Foundation for Rare Diseases: Policy-focused rare-disease advocacy nonprofit. Comparable in patient-advocacy orientation but with a public-policy rather than research-funding emphasis; relevant peer for benchmarking rare-disease advocacy effectiveness.
Regional players
- Acid Maltase Deficiency Association (AMDA): Patient-advocacy and research-funding nonprofit for Pompe disease, another Lysosomal Storage Disease. Highly comparable LSD-focused mission and small-team operating structure, providing a useful adjacent peer for benchmarking.
Broad incumbents
- National Organization for Rare Disorders (NORD): Umbrella advocacy organization for all rare diseases. Comparable in advocacy and patient-support scope, but operates at a much larger scale and serves as a meta-organization rather than a disease-specific nonprofit.
- Cystic Fibrosis Foundation: Mature patient-advocacy and therapeutics-funding nonprofit for cystic fibrosis. Comparable patient-advocacy-plus-research-funding model, with a long track record of drug-development partnership that Wylder Nation aspires to replicate at smaller scale.
- Cure SMA: Large-scale rare-disease patient advocacy and research-funding nonprofit for Spinal Muscular Atrophy. Comparable patient-advocacy-plus-research-funding model, but at materially greater scale and organizational maturity.
Direct peers
- Children's Fund for Glycogen Storage Disease Research: Small family-founded nonprofit funding research for ultra-rare glycogen storage diseases. Closely comparable structure, scale, and disease-specific research-funding mission.
- Hide & Seek Foundation for Lysosomal Storage Disease Research: Parent-driven nonprofit funding research across multiple Lysosomal Storage Diseases. Comparable mission, donor base, and small-team operating model to Wylder Nation.
- National Niemann-Pick Disease Foundation (NNPDF): The largest US patient-advocacy and research-funding nonprofit dedicated to Niemann-Pick Disease (Types A, B, and C). Direct peer serving the same disease community Wylder Nation targets, but with a broader multi-type scope.
- Ara Parseghian Medical Research Foundation: Family-founded nonprofit funding Niemann-Pick Type C research. Highly comparable origin story, LSD-adjacent focus, and patient-advocacy-plus-research-funding model.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Wylder Nation Foundation social profiles
Digital presenceWylder Nation Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
Wylder Nation Foundation leadership team
Management profileNumber of profiles
Profiles2 records
Wylder Nation Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Wylder Nation Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Wylder Nation Foundation
What does Wylder Nation Foundation do?
Wylder Nation Foundation is a patient-family-founded nonprofit that accelerates research and treatment development for Acid Sphingomyelinase Deficiency (ASMD/Niemann-Pick Disease Types A & B) through fundraising, awareness, and a remote patient research program (ASMD Accelerate, in partnership with Picnic Health). It also offers a branded merchandise storefront (WN Shop / Shop to Give), a Create-a-Campaign tool for honoring affected children, and educational resources and scientific publications for the ASMD/LSD community.
Is Wylder Nation Foundation a public or private company?
Wylder Nation Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Wylder Nation Foundation founded?
Wylder Nation Foundation was founded in 2012. It employs 1 to 10 people.
Where is Wylder Nation Foundation based?
Wylder Nation Foundation is headquartered in Scottsdale, United States, in the North America region.
How does Wylder Nation Foundation make money?
Two revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are merchandise Sales (WN Shop).
Who are Wylder Nation Foundation's main competitors?
EveryLife Foundation for Rare Diseases is listed as an emerging player. Acid Maltase Deficiency Association (AMDA) is listed as a regional player. Broad incumbents are National Organization for Rare Disorders (NORD), Cystic Fibrosis Foundation and Cure SMA. Direct peers are Children's Fund for Glycogen Storage Disease Research, Hide & Seek Foundation for Lysosomal Storage Disease Research, National Niemann-Pick Disease Foundation (NNPDF) and Ara Parseghian Medical Research Foundation.
Does Wylder Nation Foundation have an API?
No public API is recorded for Wylder Nation Foundation.
What industry is Wylder Nation Foundation in?
Wylder Nation Foundation's product category is Nonprofit Patient Advocacy. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813910 and its SIC code is 8600.