Prikkelbare Darm Syndroom Belangenvereniging

Name

Prikkelbare Darm Syndroom Belangenvereniging

Legal name

Prikkelbare Darm Syndroom Belangenorganisatie

Website

https://pdsb.nl

Company type

Private

Founded year

2000

Operating status

Operating

Headcount range

11–50 employees

Short description

Prikkelbare Darm Syndroom Belangenvereniging (PDSB) is a Dutch non-profit patient association founded in 2000 that supports the estimated 2 million people in the Netherlands living with Irritable Bowel Syndrome through information, peer community, and decision-support tools.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Chronic Disease Support Services

akta.pro primary industry

Community Health, Health Promotion & Behavior Change (SBCC) (BPADAIAL)

Keywords

• Patient advocacy services
• Irritable bowel support
• Patient health education
• Peer support community
• Nonprofit healthcare association

Headquarters

HQ city

Amersfoort

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership/Donation Contributions: PDSB generates revenue through annual donations and membership contributions. Minimum donation is €25 per year, which includes a quarterly printed magazine (Prikkels), a toilet pass, discounts, and other member benefits. The organization notes that many supplemental health insurers reimburse the membership fee.
2. Event Participation Fees: Revenue from paid events such as the annual PDS-infodag, where non-members pay €24.50 and members pay €13.50, including a lunch buffet.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels11 records

Core offering

PDSB is a Dutch patient interest association that provides information, peer support, and self-management tools for individuals living with Irritable Bowel Syndrome (PDS). It publishes the Prikkels magazine, offers an online PDS self-test and a Keuzehulp PDS decision aid, produces a podcast and brochures, and organises regional meetings and an annual PDS-infodag.

Product overview

Prikkelbare Darm Syndroom Belangenvereniging (PDSB) is a Dutch patient interest organization for Irritable Bowel Syndrome (IBS), not a technology company. The organization provides a comprehensive suite of information and support services for IBS patients. Its offerings include the Prikkels Magazine (quarterly publication), the PDS Infomagazine (special publication), an online IBS self-assessment test, the Keuzehulp PDS decision support tool, educational video portraits, a podcast series, regional meetings, annual IBS Information Days, free downloadable brochures, and a toilet pass membership benefit. The PDSB connects patients with healthcare professionals, provides scientifically-grounded treatment information, and facilitates peer support through community events.

Differentiator

Problem solved

Functional benefit

Brands

• Prikkels: Quarterly magazine of the PDSB containing medical announcements, interesting articles, news for IBS patients, experience stories, medical developments, backgrounds, tips and advice for IBS patients.
• Keuzehulp PDS
• PDS-infodag
• Podcast: ik heb PDS en nu

Products and services

• Prikkels Magazine

Quantifiable outcome

• 2 million people affected by IBS in the Netherlands served by a single dedicated patient organization
• +1 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Seven partnerships are on record, tiered core and minor.

• Maag Lever Darm Stichting (MLDS)coreStrategic or Co-development Partner · 19 April 2024PDSB collaborates with MLDS on World IBS Day (Wereld PDS Dag), including joint awareness activities such as illuminating the Huis van de Gezondheid in purple, organizing webinars, and producing video content. MLDS also produces the documentary 'Mooie Meisjes Poepen Niet' featuring PDS patients.
• Toiletalliantie (iederewctelt.nl)coreStrategic or Co-development Partner · 19 April 2024The Toiletalliantie (Toilet Alliance) partners with PDSB and MLDS for World IBS Day activities, advocating for better toilet accessibility which is a significant concern for IBS patients.
• MDL FondsminorGTM or Marketing PartnerPDSB participates in the Buik Klassieker event organized by MDL Fonds, setting up an information stand and assembling a dedicated PDSB cycling/walking team (PDS-peloton) to raise awareness and funds for research into digestive diseases.
• Stichting SeptemberminorStrategic or Co-development PartnerPDSB features videos produced by Stichting September about workplace adaptations for people with IBS, covering topics such as disclosing IBS at work and using the Arbeidsparticipatietool (Work Participation Tool) and Mijn Re-integratieplan.
• Monash University (FODMAP Research)coreTechnology or IntegrationPDSB references and promotes the FODMAP diet developed by Monash University in Australia, recommends the official Monash FODMAP app, and directs patients to Monash-certified dietitians for guided FODMAP treatment.
• NHG (Nederlands Huisartsen Genootschap)coreStrategic or Co-development PartnerPDSB collaborated on the NHG Standard for IBS (NHG-standaard PDS) and the Multidisciplinary Guideline for Diagnosis and Treatment of IBS. PDSB also contributed a patient summary of these clinical guidelines, making evidence-based recommendations accessible to patients.
• Richtlijnendatabase (Multidisciplinary Guidelines)coreStrategic or Co-development PartnerPDSB collaborated on the Multidisciplinary Guideline for Diagnosis and Treatment of IBS published on the Richtlijnendatabase, contributing patient-centered materials including practical guidance for dietitians.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Emerging players

• Zemedy: Digital therapeutic for IBS based on CBT protocols. Comparable to PDSB as an IBS-focused intervention channel and a potential disruptor to traditional patient-association educational content.
• Maag Lever Darm Stichting (MLDS): Dutch foundation focused on stomach, liver, and intestinal diseases. Comparable to PDSB as a Dutch GI patient-facing organization and a current strategic partner on World IBS Day, though broader in disease scope.
• Cara Care: Digital digestive-health platform offering an IBS-focused app with symptom tracking, FODMAP guidance, and personalized coaching. Comparable as a digital IBS self-management tool and potential competitor to PDSB's online IBS test and decision-aid offerings.

Broad incumbents

• Thuisarts.nl: NHG-endorsed Dutch online platform providing GP-validated patient information. Comparable to PDSB as a trusted Dutch digital source of medical information for patients and a parallel channel that GPs use for IBS guidance.
• Nederlandse Patientenfederatie (Dutch Patient Federation): Umbrella organization representing Dutch patient associations at the national policy level. Comparable to PDSB as a Dutch patient-advocacy umbrella, though broader in scope and likely involved in PDSB's policy advocacy pathways.

Others

• Monash University (FODMAP research team): Original developers of the low-FODMAP diet and the official Monash FODMAP app. Relevant ecosystem partner referenced by PDSB for FODMAP content and dietitian referrals; represents the upstream clinical evidence generator in the same patient information chain.

Direct peers

• The IBS Network: UK national charity dedicated to supporting people with Irritable Bowel Syndrome. Directly comparable to PDSB as a national IBS patient advocacy organization providing information, peer support, and healthcare-professional resources.
• IFFGD (International Foundation for Gastrointestinal Disorders): US-based nonprofit patient advocacy organization for gastrointestinal disorders including IBS. Closely mirrors PDSB's mission of providing patient education, supporting research, and representing IBS patients to clinicians and policymakers.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/results?search_query=PDSB+prikkelbare+darm+syndroom
• Facebookfacebook.com/PrikkelbareDarmSyndroomBelangenvereniging
• LinkedInlinkedin.com/company/prikkelbare-darm-syndroom-belangenorganisatie
• Xx.com/PDSB

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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