What Stichting Melanoom does

Stichting Melanoom is a Dutch nonprofit foundation (stichting) headquartered in Amstelveen, Netherlands, founded in 1995 and operating under ANBI (Algemeen Nut Beogende Instelling) public benefit status. It functions as the national patient organization for both skin melanoma and the rarer ocular (uveal) melanoma, serving diagnosed patients, their families, and caregivers across the Netherlands with free information, peer support, and advocacy services. The foundation is led by a Bestuur (board) that includes Voorzitter Koen van Elst and Secretaris Martina Rooijakkers, supported by a Raad van Advies composed of medical specialists who provide clinical oversight.

The organization's core product surface is educational and community content rather than technology: it publishes the Melanoom Nieuws newsletter on a quarterly basis, produces downloadable folders and books, maintains an FAQ covering diagnosis, treatment, and prognosis questions, operates a curated Verwijsgids (referral guide) of Dutch hospitals and patient organizations, and runs two peer contact programs — Lotgenotencontact for skin melanoma patients and OOG in OOG for ocular melanoma patients. It hosts the annual national Melanoma Infodag (most recently 28 March 2026), with recorded lectures from medical specialists made available as video content. Distribution runs through the stichtingmelanoom.nl website, social channels on Instagram, Facebook, YouTube, X, and LinkedIn, a newsletter, and the printed/online Melan magazine.

The business model is donation- and membership-funded: Stichting Melanoom generates revenue through individual donations, recurring memberships (donateur/lid), one-off gifts, bequests (nalatenschap), and volunteer support. All services are provided at no cost to beneficiaries. No revenue figures, headcount counts beyond the 11–50 range, partnership revenue, or grant income are disclosed in the input. The organization has no disclosed funding rounds, M&A activity, patents, certifications, or commercial partnerships, and operates as a single-country domestic Dutch entity.

Name

Stichting Melanoom

Legal name

Stichting Melanoom

Website

https://stichtingmelanoom.nl

Company type

Private

Founded year

1995

Operating status

Operating

Headcount range

11–50 employees

Short description

Stichting Melanoom is a Dutch ANBI-registered nonprofit foundation that provides free information, peer support, and advocacy for skin and ocular melanoma patients, families, and caregivers across the Netherlands. It publishes educational content, a quarterly newsletter, and runs an annual national information day.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

SIC

Services-Health Services (8000)

akta.pro primary industry

Mohs Surgery & Skin Cancer (Dermatologic Oncology) (HLAKACAD)

Keywords

• Patient support services
• Melanoma awareness
• Peer support networks
• Patient education resources
• Ocular melanoma information

Headquarters

HQ city

Amstelveen

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Membership: As a Dutch ANBI (Algemeen Nut Beogende Instelling) public benefit organization, Stichting Melanoom is funded primarily through donations and membership fees from supporters.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

Stichting Melanoom is a Dutch nonprofit foundation that provides free information, education, peer support, and advocacy services for patients affected by melanoma and ocular (uveal) melanoma, including their families. Its core offerings include educational content on skin and eye melanoma, the OOG in OOG peer contact program for eye melanoma patients, a quarterly newsletter (Melanoom Nieuws), an annual national Melanoma Information Day with recorded lectures, a referral guide to specialized Dutch healthcare providers, FAQs, and downloadable brochures and books.

Product overview

Stichting Melanoom is a Dutch patient organization offering a comprehensive suite of information and support services for melanoma patients. The organization provides educational content about skin melanoma and eye melanoma through its website, quarterly newsletter (Melanoom Nieuws), downloadable brochures, and an annual national information day with video recordings. Core services include peer support (lotgenotencontact) connecting patients with shared experiences, a referral guide (Verwijsgids) directing patients to specialized healthcare providers, and an extensive FAQ section addressing diagnosis, treatment options, and prognosis. The organization also advocates for patient interests and funds research initiatives.

Differentiator

Problem solved

Functional benefit

Products and services

• Melanoom Informatie (Melanoma Information) Comprehensive educational content about melanoma (skin melanoma) and ocular melanoma, covering symptoms, diagnosis, treatment options, prevention, and living with the condition. Provided free of charge to patients, families, and the broader Dutch public via the foundation's website.
• Lotgenotencontact (Peer Support) Peer support service linking patients with others who have experienced melanoma, including a dedicated OOG in OOG program for eye melanoma patients. Includes personal experience stories and contact opportunities for both skin and ocular melanoma patients.
• Melanoom Nieuws (Newsletter) Quarterly newsletter publication containing articles about melanoma research, treatments, patient experiences, and organizational updates. Freely downloadable as PDF for members and the public.
• Melanoom Infodag Video's Recorded lectures and presentations from the annual national Melanoma Information Day, featuring expert speakers on the latest treatments, research developments, and patient care topics.
• Verwijsgids (Referral Guide) Directory of recommended healthcare providers, hospitals, and patient organizations for melanoma and eye melanoma patients in the Netherlands.
• FAQ's Frequently asked questions covering melanoma recognition, eye operations, immunotherapy, radiation, chemotherapy, genetic factors, and treatment outcomes for patients and families.
• Folders & Boeken (Brochures and Books) Educational brochures and books about melanoma available for download or order, supporting broader patient and public education efforts.

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Recent moves4 records

Expansion highlights4 records

Direct peers

• Stichting Huidkanker (Dutch Skin Cancer Foundation): A Dutch nonprofit foundation dedicated to skin cancer broadly (including melanoma), offering patient information, awareness, and support — closely mirroring Stichting Melanoom's skin-melanoma mission and competing for the same Dutch donor and patient audiences.
• AIM at Melanoma Foundation: U.S.-based melanoma-specific foundation providing patient education, peer support, and research grants; directly comparable to Stichting Melanoom's combination of patient information, community, and research advocacy within the same disease focus.
• Melanoma Research Foundation: A leading U.S.-based nonprofit focused specifically on melanoma research, education, and patient advocacy, with a mission structure (research funding + patient support + awareness) nearly identical to Stichting Melanoom's, making it a comparable reference peer for programming and donor model benchmarking.

Broad incumbents

• Patient Advocate Foundation: A broader U.S. patient advocacy nonprofit that, while not melanoma-specific, offers comparable peer-support, education, and case-management services to seriously ill patients — a useful structural peer for benchmarking non-profit patient navigation programs.
• Cancer Research UK: Large cancer-focused charity funding research and providing cancer information across all tumor types — relevant peer for understanding how general cancer charities support melanoma patients and compete for charitable giving in major European markets.
• KWF Kankerbestrijding (Dutch Cancer Society): The Netherlands' largest cancer-focused public-benefit charity, funding cancer research, providing patient information, and advocating across all cancer types — including melanoma — and therefore the most direct counterpart for donations, patient support, and national advocacy reach in the same Dutch market.
• Nederlandse Federatie van Kankerpatiëntenorganisaties (NFK): Dutch umbrella federation of cancer patient organizations representing member groups including melanoma-specific organizations; relevant peer because of its shared patient-advocacy model, donor-base overlap, and national policy influence in oncology.

Others

• Huidkankervragen.nl / Dutch Dermatology patient information platforms: Dutch dermatology information resources that overlap with Stichting Melanoom on patient education content, serving as adjacent informational peers rather than direct service competitors.

Emerging players

• A Cure In Sight / Ocular Melanoma Foundation: A patient-oriented organization focused on ocular (uveal) melanoma education, support, and research advocacy — the international counterpart to Stichting Melanoom's OOG in OOG program and the closest direct peer in the niche of eye melanoma patient support.

Regional players

• Euro Melanoma (European melanoma patient and professional network): Pan-European melanoma awareness and screening initiative bringing together clinicians and patient advocates across countries — directly comparable to Stichting Melanoom's Infodag awareness model but operating at European rather than national scope.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/stmelanoom
• YouTubeyoutube.com/user/StichtingMelanoom
• Facebookfacebook.com/StichtingMelanoom
• LinkedInlinkedin.com/company/melanoom
• Instagraminstagram.com/stichtingmelanoom

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Stichting Melanoom