Mesothelioma Applied Research Foundation

What Mesothelioma Applied Research Foundation does

The Mesothelioma Applied Research Foundation (operating as the Meso Foundation and curemeso.org) is a 501(c)(3) nonprofit organization founded around 2000 and headquartered in Washington, D.C., with a donations mailing address in New York. It self-describes as the only nonprofit charity organization dedicated to ending mesothelioma and the suffering caused by this asbestos-linked cancer. The foundation operates with a small team of 1–10 employees and serves mesothelioma patients, caregivers, bereaved families, researchers, and healthcare providers.

The foundation's offerings are service-based rather than technology-based. Core deliverables include patient support services (specialist referrals, diagnosis guidance, second opinions, clinical trial planning, financial aid navigation, and support group enrollment), educational programming (MesoTV video content, the Meet the Mesothelioma Experts podcast/broadcast series, blog content), peer-to-peer support via the Meso Connect program, professionally moderated support groups for patients, caregivers, and bereaved families, financial assistance programs (Bret A. Rosenthal Patient Assistance Fund and Travel Grant Program), peer-reviewed research grant funding, advocacy for federal research funding, and the annual International Symposium on Malignant Mesothelioma.

The foundation is funded through charitable donations, fundraising events, law firm sponsorships (Belluck & Fox, Maune Raichle Hartley French & Mudd, ELS Law, Gori Law, Dobbs Legal), pharmaceutical educational grants (Merck, Bristol Myers Squibb, Novocure, Trizell Ltd.), and a formal partnership with the Department of Defense Congressionally Directed Medical Research Programs (CDMRP). All services are provided free of charge to patients and families. The foundation is incorporated in the District of Columbia as The Mesothelioma Applied Research Foundation, Inc., and is governed by a Board of Directors, Science Advisory Board, and Community Advisory Board.

Name

Mesothelioma Applied Research Foundation

Legal name

The Mesothelioma Applied Research Foundation, Inc.

Website

https://curemeso.org

Company type

Private

Founded year

2000

Operating status

Operating

Headcount range

1–10 employees

Short description

The Mesothelioma Applied Research Foundation is a 501(c)(3) nonprofit that funds peer-reviewed mesothelioma research, provides free patient support services, and convenes an annual international symposium for the mesothelioma community.

Ownership category

akta.pro rank

Product category

Disease-specific cancer research and patient support nonprofit

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Health & Medical Research Grantmaking Foundations (BPAGAKAL), Research & Science Grantmaking Foundations (BPAGAKAI)

Keywords

• Mesothelioma research funding
• Cancer patient support
• Nonprofit health advocacy
• Medical research grants
• Rare disease support

Headquarters

HQ city

Washington

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Fundraising: The organization generates revenue primarily through charitable donations from individuals, sponsors, and fundraising events. The foundation hosts fundraising campaigns, events, and accepts online donations through its website.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels10 records

Core offering

The Mesothelioma Applied Research Foundation funds peer-reviewed scientific research into mesothelioma, provides direct support services to patients and families (including specialist referrals, clinical trial matching, peer connections, support groups, and financial assistance), delivers educational programming such as MesoTV and the Meet the Mesothelioma Experts broadcast, and advocates at the federal level for increased mesothelioma research funding.

Product overview

The Mesothelioma Applied Research Foundation (Meso Foundation) operates as a nonprofit patient support and research advocacy organization rather than a technology product company. Its offerings include patient support services (specialist referrals, clinical trial guidance, financial aid), educational programming (MesoTV video content, the Meet the Mesothelioma Experts broadcast series, the annual International Symposium), peer-to-peer support through Meso Connect, and professionally moderated support groups for patients, caregivers, and bereaved individuals. The foundation also funds peer-reviewed mesothelioma research through grant programs and advocates for federal research funding.

Differentiator

Problem solved

Functional benefit

Products and services

• Patient Support Services
• MesoTV
• Meet the Mesothelioma Experts
• Meso Connect
• Support Groups
• Mesothelioma Research Grants
• International Symposium on Malignant Mesothelioma
• Federal Research Advocacy

Quantifiable outcome

• Connects patients to medical specialists and clinical trials
• +1 more outcomes

Named customers1 record

Segments5 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration1 record

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Belluck & Fox, LLPcoreGTM or Marketing PartnerLaw firm sponsor of the Meso Foundation and the Meet the Mesothelioma Experts: Legal Edition series. Provides educational content about mesothelioma legal matters including law firm selection, settlement processes, and veteran legal issues.
• Maune Raichle Hartley French & Mudd, LLC (MRHFM)coreGTM or Marketing PartnerLaw firm sponsor providing educational content on asbestos litigation and mesothelioma legal processes through the Meet the Mesothelioma Experts: Legal Edition series.
• ELS LawminorGTM or Marketing PartnerLaw firm sponsor of the Mesothelioma Applied Research Foundation.
• Gori LawminorGTM or Marketing PartnerLaw firm sponsor of the Mesothelioma Applied Research Foundation.
• Dobbs LegalminorGTM or Marketing PartnerLaw firm sponsor of the Mesothelioma Applied Research Foundation.
• MerckcoreGTM or Marketing PartnerPharmaceutical company sponsor of the foundation, supporting patient education and research awareness efforts.
• Bristol Myers SquibbcoreGTM or Marketing PartnerProvided educational grant for the Present and Future of Immunotherapy Treatment for Mesothelioma program featuring experts from Memorial Sloan Kettering, NYU Langone, Cleveland Clinic, and UPMC.
• NovocurecoreGTM or Marketing PartnerProvided educational grant for Tumor Treating Fields device discussion with Dr. Zachary Horne on mesothelioma treatment technology.
• Trizell Ltd.coreGTM or Marketing PartnerProvided educational grant supporting the Phase 3 clinical trial discussion featuring Dr. Albelda and Dr. Sterman on adenovirus-mediated interferon alfa 2b gene therapy.
• Michigan State UniversityminorStrategic or Co-development PartnerCollaborating on mesothelioma caregiver experience research study.
• Department of Defense (CDMRP)coreStrategic or Co-development PartnerFederal research funding partner through the Congressionally Directed Medical Research Programs for mesothelioma research.

Scale indicators3 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• Cancer Research Institute: Immunotherapy-focused cancer research nonprofit; closely comparable grantmaking model and shares overlap with Meso Foundation's immunotherapy programming partnered with Bristol Myers Squibb.
• Lung Cancer Research Foundation: Funds lung cancer (including mesothelioma) research and runs patient education programs; a near-comparable disease-specific grantmaker and patient resource provider.
• LUNGevity Foundation: Disease-specific lung cancer nonprofit funding research and providing patient support; operates a similar research-grant plus patient-services model and competes for thoracic oncology philanthropic dollars.
• Asbestos Disease Awareness Organization (ADAO): Direct peer organization also dedicated to asbestos-related diseases including mesothelioma; shares the same disease-specific nonprofit space, advocacy for federal bans, and patient/community education mission.

Broad incumbents

• Stand Up To Cancer: Large entertainment-industry-aligned cancer research fundraiser funding translational team science; comparable grantmaking model but operating at much broader scale across many cancer types.
• American Cancer Society: Largest U.S. cancer nonprofit with research grants, patient services (including a 24/7 helpline), and advocacy; overlaps with Meso Foundation on patient support and federal research advocacy but at vastly greater scale.
• GO2 Foundation for Lung Cancer: Larger lung cancer nonprofit with research, screening, and patient-support programs; broader scope than mesothelioma-only but overlaps on patient navigation, support communities, and research funding.

Others

• National Cancer Institute: Federal funder of cancer research including mesothelioma; not a competitor but a peer institution in the mesothelioma research funding ecosystem and counterpart for advocacy.

Regional players

• International Mesothelioma Interest Group (iMig): International scientific society for mesothelioma researchers and clinicians; comparable on research convening and education mission, but membership-based rather than patient-facing.
• Mesothelioma UK: U.K.-based mesothelioma charity providing specialist nursing, research funding, and information; operates the same disease-specific patient-services-plus-research model in a different geography.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@MesoFoundation/featured
• Facebookfacebook.com/curemeso
• Xx.com/curemeso
• LinkedInlinkedin.com/company/meso-foundation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Mesothelioma Applied Research Foundation