Bailey Baio Angel Foundation

What Bailey Baio Angel Foundation does

Bailey Baio Angel Foundation (BBAF) is a 501(c)(3) non-profit organization founded in 2008/2009 and headquartered in Woodland Hills, California. It serves families of children diagnosed with Glutaric Aciduria Type 1 (GA-1) and other Organic Acidemias, which are rare inherited metabolic disorders in which a metabolic crisis triggered by illness or fever can cause irreversible neurological damage if not detected early. The foundation operates three service lines: a Family Assistance Program that directly provides food, vitamins, and supplements to enrolled families at no cost; a Community Connection Program that links newly diagnosed families with peer support networks; and a Newborn Screening Advocacy program pushing for mandatory comprehensive screening in all 50 U.S. states to enable early intervention before metabolic crises occur.

BBAF's revenue model is donation-based, with the organization stating that 100% of contributions go to families in need. There is no fee-for-service, no premium tier, and no commercial product. Distribution is direct: families apply through an online form, the board personally reviews each request, and approved families receive material assistance coordinated through partnerships with suppliers. Outreach is driven by a community-led go-to-market motion: Facebook/social media presence, email, and word-of-mouth referrals from medical providers and other BBAF families. The organization claims reach into the United States, Canada, the United Kingdom, Ireland, Germany, France, and Australia.

The foundation is governed by a volunteer board of directors consisting of President Renee Baio, Vice President Megan Norman, and Secretary/Treasurer Milton Bartley, with both Renee Baio and Scott Baio listed as founders. It has no parent company, no subsidiaries, no venture or PE backing, and no disclosed technology platform, app, or API. There are no patents, no third-party partnerships on record, and no formal funding rounds. The organization is not publicly traded and is structured as an independent charitable entity focused on advocacy and direct material support.

Name

Bailey Baio Angel Foundation

Legal name

Bailey Baio Angel Foundation

Website

https://bbaf.org

Company type

Private

Founded year

2009

Operating status

Operating

Headcount range

11–50 employees

Short description

Bailey Baio Angel Foundation is a 501(c)(3) non-profit that provides food, vitamins, supplements, and community support to families of children affected by GA-1 and other Organic Acidemias, while advocating for expanded newborn screening in all U.S. states.

Ownership category

akta.pro rank

Product category

Rare Disease Patient Support and Advocacy

NAICS

Child and Youth Services (624110), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Maternal, Child & Family Health Organizations (BPAGACAF)

akta.pro secondary industry

Family & Parenting Support Services (BPAGAEAC)

Keywords

• Metabolic disorder support
• Newborn screening advocacy
• Nonprofit family assistance
• Rare disease foundation
• Organic acidemia support

Headquarters

HQ city

Woodland Hills

HQ country

United States

HQ region

North America

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: BBAF is a 501(c)(3) registered non-profit organization that raises funds through donations to support families affected by GA-1 and Organic Acidemias. Donations are tax-deductible, with 100% of contributions supporting families in need.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels3 records

Core offering

Bailey Baio Angel Foundation is a 501(c)(3) nonprofit that provides direct material assistance (specialized low-protein food, vitamins, and supplements) to families of children diagnosed with GA-1 and Organic Acidemias. The foundation also advocates for mandatory expanded newborn screening in all U.S. states and operates a community connection program linking affected families for peer support.

Product overview

BBAF operates as a non-profit foundation providing a suite of support services for families affected by GA-1 and Organic Acidemias. The core offerings include an Assistance Program that directly provides food, vitamins, and supplements to enrolled families; Newborn Screening Advocacy to promote mandatory comprehensive screening in all states; and Community Connection services that link families with peer support networks. These services are delivered through the organization's website and direct family engagement rather than a software product platform.

Differentiator

Problem solved

Functional benefit

Products and services

• Family Assistance Program
• Newborn Screening Advocacy
• Community Connection Program

Quantifiable outcome

• 80–90% of brain injury preventable with early newborn screening
• +1 more outcomes

Segments1 record

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Scale indicators3 records

Recent moves5 records

Expansion highlights4 records

Broad incumbents

• National Organization for Rare Disorders (NORD): Umbrella rare-disease advocacy organization covering 7,000+ conditions including organic acidemias. Offers broader advocacy infrastructure and policy reach, but less disease-specific family support depth than BBAF.
• Global Genes: Large rare-disease patient advocacy nonprofit providing toolkits, community programs, and policy advocacy that overlap with BBAF's newborn screening advocacy and community connection work, though across all rare conditions rather than metabolic disorders specifically.
• EveryLife Foundation for Rare Diseases: Federal policy advocacy nonprofit focused on accelerating rare-disease therapeutic development. Directly overlaps with BBAF's newborn screening policy work and competes for the same corporate and high-net-worth rare-disease donor segment.
• March of Dimes: Established maternal and infant health nonprofit with deep newborn screening advocacy history. Operates a much larger footprint but with a broader mission that competes for donor mindshare in the family/child health category BBAF targets.
• Children's Miracle Network Hospitals: Large pediatric charity funding family assistance and treatment at children's hospitals. Competes for corporate partnerships and consumer donations in the same family/children's health giving segment.
• Children's Hospital foundations (e.g., Boston Children's, CHOP): Major pediatric hospital foundations operating family assistance, newborn screening, and metabolic disorder programs with substantially larger infrastructure and donor bases, competing for the same disease-specific philanthropy and family referrals.

Emerging players

• Rare Disease Foundation: Community-focused rare disease nonprofit providing direct family support grants similar to BBAF's Family Assistance Program, but operating across all rare conditions rather than specializing in metabolic disorders.
• Expecting Health: Smaller nonprofit focused on newborn screening education and family support for various genetic conditions, with mission overlap on early detection advocacy and family navigation services similar to BBAF's screening advocacy and community connection programs.

Direct peers

• Save Babies Through Screening Foundation: Niche newborn screening advocacy nonprofit with a mission nearly identical to BBAF's Newborn Screening Advocacy pillar. Direct peer competing for the same policy wins and donor base focused specifically on comprehensive state-level screening mandates.
• Organic Acidemia Association: Disease-specific patient advocacy nonprofit serving the same Organic Acidemia / GA-1 family population as BBAF. Direct competitor for donor dollars and family engagement in the same rare metabolic disorder niche.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat3 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/BBAngelFoundation
• LinkedInlinkedin.com/company/bailey-baio-angel-foundation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Bailey Baio Angel Foundation