Youth-R-Well.com

What Youth-R-Well.com does

Youth-R-Well.com (legal entity: Stichting Youth-R-Well.com, also operating under 'Jong & Reuma') is a Dutch nonprofit foundation established in 2009 that serves young adults aged 18 and older living with rheumatic diseases in the Netherlands. The foundation operates a community platform spanning a central website, a Facebook group, Instagram, LinkedIn, YouTube, and a monthly newsletter, complemented by an in-person events program that includes spring events, autumn events, a summer youth vacation week, and weekend trips such as sailing weekends. Programs include the JEMT ('Jouw Ervaring, Mijn Toekomst') monthly online meeting series and YRW-Webinars on topics ranging from medication and fatigue to work, study, and relationships; personal columns authored by young rheumatism patients (Rebecca, Ilse, Linda, Marijn, Veerle, Heleen, Philine); and a 'Wetenschap' (science) section that surfaces research news.

The foundation is volunteer-led, organized through a board (Bestuur) and committees including an Advisory Committee, Events Committee, JEMT Committee, PR/Communication Committee, Website Committee, and Sponsors Committee. It maintains an active research-facilitation role through partnerships with Nivel, UMC Groningen, Sint Maartenskliniek, Amsterdam UMC, Utrecht University, and European bodies such as EULAR Young PARE, including participation in the FUTURE-project on medication use in juvenile rheumatic diseases.

The business model is donation- and sponsorship-funded rather than revenue-generating. The core platform is offered free of charge to end users; a small set of physical products (booklets) can be ordered through the website's shop module. Funding comes primarily from three core pharmaceutical sponsors (Sanofi, UCB Biopharma, AbbVie) plus ReumaNederland and several smaller Dutch health foundations (ARS Donandi, NSGK, IFZ). The foundation is not a technology company in any meaningful sense — it is a community-and-advocacy intermediary, with the website functioning as a content hub rather than a proprietary software platform.

Name

Youth-R-Well.com

Legal name

Stichting Youth-R-Well.com

Website

https://youth-r-well.com

Company type

Private

Founded year

2009

Operating status

Operating

Headcount range

11–50 employees

Short description

Stichting Youth-R-Well.com is a Dutch nonprofit foundation, founded in 2009, that runs a free community platform and events program for young adults (18+) with rheumatic diseases in the Netherlands, funded by pharmaceutical sponsorships and donations.

Ownership category

akta.pro rank

Product category

Patient Community & Chronic Disease Support Services

NAICS

Other Individual and Family Services (624190), Child and Youth Services (624110)

SIC

Services-Social Services (8300)

akta.pro primary industry

Youth Mentoring & Positive Youth Development Nonprofits (BPAGADAD)

akta.pro secondary industry

Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK)

Keywords

• Rheumatic disease support
• Patient community platform
• Nonprofit health foundation
• Youth chronic illness
• Peer support programs

Headquarters

HQ city

South Holland

HQ country

United States

HQ region

North America

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Sponsorships: The foundation operates primarily through donations and corporate sponsorships from pharmaceutical companies. The website shows a 'Steun ons' (Support us) section and acknowledges multiple pharmaceutical sponsors including Sanofi, UCB Biopharma, AbbVie, and others.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

Youth-R-Well.com is a Dutch nonprofit foundation (Stichting) that operates a community platform for young people (18+) living with rheumatic diseases in the Netherlands. The foundation provides free age-appropriate information, peer connection through an online community and Facebook group, monthly online JEMT meetings, webinars, seasonal offline events, and personal columns, and it facilitates research participation in collaboration with academic and medical institutions. Core activities are delivered through the website, social media, and recurring events, with no fee charged to end users.

Product overview

Youth-R-Well.com is a Dutch nonprofit foundation (Stichting Youth-R-Well.com) operating a unified online community platform for young people aged 18+ living with rheumatism. The platform combines informational content (columns, health articles, expert blogs), peer connection (Facebook group, events), and structured programs (JEMT online meetings, webinars, research participation) to help young rheumatism patients feel understood and supported. The core platform serves as the central hub, supplemented by in-person events and research initiatives.

Differentiator

Problem solved

Functional benefit

Products and services

• Youth-R-Well.com Platform A Dutch online community platform for young people (18+) with rheumatism, offering information, events, and peer connection through website content, forums, and Facebook groups.
• Jouw Ervaring, Mijn Toekomst (JEMT) Monthly online meeting series where young people with rheumatism discuss topics like medication, work, relationships, and fatigue through virtual gatherings.
• Events Program Annual events including voorjaarsevents (spring), najaarsevents (autumn), youth vacation week in summer, and weekend trips for young people with rheumatism to connect offline.
• YRW-Webinars Online webinar series covering topics related to rheumatism, featuring healthcare professionals and experienced specialists.

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered major, core and minor.

• Nivel (Institute for Health Services Research)majorStrategic or Co-development Partner · 12 December 2024Research partner involved in the FUTURE-project studying medication use in juvenile rheumatic diseases, collaborating with UMCG, Sint Maartenskliniek, Amsterdam UMC, and other institutions.
• ReumaNederlandcoreStrategic or Co-development PartnerNational rheumatism foundation in the Netherlands, collaborating on research initiatives and sharing resources for patients with rheumatic diseases.
• UMC Groningen (University Medical Center Groningen)majorStrategic or Co-development PartnerAcademic medical center conducting research on medication use in juvenile rheumatic diseases, partner in the FUTURE-project.
• Sint MaartenskliniekmajorStrategic or Co-development PartnerSpecialized clinic for rheumatic diseases involved in research collaboration on juvenile rheumatic conditions.
• Amsterdam UMCmajorStrategic or Co-development PartnerAcademic hospital participating in research on medication use and rheumatic disease management for young patients.
• Universiteit Utrecht (Utrecht University)minorStrategic or Co-development PartnerAcademic partner assisting with student-led research projects on rheumatism and sexuality.
• EULAR Young PAREmajorStrategic or Co-development PartnerEuropean alliance of rheumatology organizations for young people, presenting research on outcomes important to rheumatoid arthritis patients.
• Stichting Axiale SpAminorStrategic or Co-development PartnerDutch foundation for axial spondyloarthritis, collaborating on webinars about work and axial SpA.

Scale indicators2 records

Recent moves6 records

Expansion highlights4 records

Broad incumbents

• Arthritis Foundation: US national nonprofit serving all ages of arthritis patients including youth programs. Closest US-side incumbent peer with a similar community-and-research orientation.
• Versus Arthritis: UK's largest arthritis charity supporting all age groups, including young people with rheumatic conditions. Comparable mission but at much greater scale and broader scope.
• Arthritis Society Canada: Canada's national arthritis charity funding research and providing patient support across ages. Similar broad-incumbent profile to Versus Arthritis and the Arthritis Foundation.
• National Rheumatoid Arthritis Society (NRAS): UK-based national patient organization for rheumatoid arthritis and juvenile idiopathic arthritis. Larger, broader-scope incumbent operating in an adjacent market.
• EULAR Young PARE: European alliance for young people with rheumatic diseases and a current strategic partner of Youth-R-Well.com. Operates as a broader umbrella organization at the European level rather than a national service provider.

Emerging players

• Lupus Europe: European federation of national lupus patient organizations, including youth-focused programs. Comparable in being a chronic-illness youth patient-organization model operating across Europe.
• Stichting Axiale SpA: Dutch patient foundation specifically focused on axial spondyloarthritis; comparable niche patient-organization model and current webinar collaborator with Youth-R-Well.com.

Direct peers

• Cassie + Friends Society: Canadian nonprofit dedicated to children, youth, and families affected by juvenile rheumatic diseases. Closest international peer in terms of youth-focused rheumatism community-building model.
• ReumaNederland: Dutch national rheumatism foundation serving patients across all ages. Direct peer and current sponsor/partner of Youth-R-Well.com; comparable mission but broader age focus.

Regional players

• Reuma Liga (Belgium): Belgian patient organization for rheumatic diseases serving a neighboring market. Comparable community/advocacy model in a different geography.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/YouthRWell
• YouTubeyoutube.com/user/youthrwellcom
• Facebookfacebook.com/youthRwell
• LinkedInlinkedin.com/company/youth-r-well
• Instagraminstagram.com/youthrwell

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Youth-R-Well.com