The Association of Genetic Nurses and Counsellors

What The Association of Genetic Nurses and Counsellors does

The Association of Genetic Nurses and Counsellors (AGNC) is a UK-based professional membership association representing approximately 330 genetic counsellors, genetic nurses, and non-medical patient-facing staff working in Clinical Genetics, NHS Genomic Medicine Centres, and wider healthcare settings in the UK and Ireland. Founded as a legal entity in 2018 (The Association of Genetic Nurses and Counsellors Ltd, registered in England and Wales, company number 13891146), AGNC operates as one of five constituent groups of the British Society for Genetic Medicine (BSGM). Membership is administered through BSGM and requires nomination by two existing AGNC members. The organisation provides professional representation, education forums, scientific meetings, career development resources, CPD support, and a Code of Ethics for the genetic counselling profession.

AGNC's core offerings include professional guidance documents, training resources, networking groups organised around specialty subgroups (New Genetic Counsellors, Specialist Nurses/Midwives in Genomics, Genomic Associates and Practitioners, Prenatal Genetic Counsellors, Research/Academic Counsellors, Eye Genetics, and PGT-Virtual Group), a jobs board, £50 travel awards and £100 administrative bursaries, and an EDI Sub-Committee established in 2021. It is not a technology company and develops no proprietary software products; its technology footprint consists of a website (agnc.org.uk), a Twitter account (@theAGNC), a Google Groups email list, and YouTube video content including the "Voices of Genetic Counsellors" series. AGNC works closely with the Genetic Counsellor Registration Advisory Board (GCRAB) on registration standards, and the GCRB was accredited by the Professional Standards Authority in 2016, providing an independent quality mark for Registered Genetic Counsellors.

AGNC's revenue model rests on two streams. The primary stream is membership fees, channelled through BSGM, where professionals must join BSGM and be nominated by two existing members to participate in AGNC. The secondary commercial stream is job advertising on the AGNC website: postings are free for NHS, government-funded academic institutions, and charities, while commercial entities are charged £300, reduced to £100 for corporate members. Ancillary commercial partnerships include 20% book discounts for members through Oxford University Press and Scion Publishing via the BSGM Book Club. Distribution is single-country/domestic (UK and Ireland), with go-to-market executed through community-led recruitment, the website, social media, email groups, annual conferences (the 2026 conference carries the theme "One Team"), and the parent BSGM's communications infrastructure. Headcount is reported at 1–10, reflecting an association run primarily by an elected volunteer committee.

Name

The Association of Genetic Nurses and Counsellors

Legal name

The Association of Genetic Nurses and Counsellors Ltd

Website

https://agnc.org.uk

Company type

Private

Founded year

2018

Operating status

Operating

Headcount range

1–10 employees

Short description

The Association of Genetic Nurses and Counsellors is a UK professional membership association representing ~330 genetic counsellors, genetic nurses, and non-medical patient-facing staff across the UK and Ireland, operating as a constituent group of the British Society for Genetic Medicine.

Ownership category

akta.pro rank

Product category

Professional Healthcare Association

NAICS

Professional Organizations (813920), Business Associations (813910)

SIC

Services-Membership Organizations (8600)

akta.pro industry

PRIMARYHLAGAKAM

Training & Competency Programs for GxP Compliance

Healthcare & Life Sciences/Life Science Tools & Services (CRO/CDMO/Lab Services)/Regulatory Affairs, Quality & Compliance Services (GxP)

SECONDARYHLAAALAD

Genetic & Genomic Testing (germline, somatic, carrier, pharmacogenomics)

Healthcare & Life Sciences/Biotechnology & Biologics/Diagnostics (Biotech-related)

Keywords

• Genetic counselling services
• Professional nursing membership
• Clinical genetics education
• Genomic medicine training
• Healthcare professional standards

Headquarters

HQ city

London

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership Fees: AGNC operates as a constituent group of the British Society for Genetic Medicine (BSGM). Professionals must join BSGM and be nominated by two AGNC members to become members. Membership fees support the association's operations.
2. Job Advertising: The AGNC website advertises genomic and genetic counselling jobs free of charge to NHS, government-funded academic institutions, and charities. Commercial entities are charged £300 for job postings, reduced to £100 for corporate members.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

The AGNC is a professional membership association that represents genetic counsellors, genetic nurses, and non-medical patient-facing staff working in Clinical Genetics, NHS Genomic Medicine Centres, and wider healthcare settings across the UK and Ireland. It provides professional representation, education forums, scientific meetings, training and career development resources, a Code of Ethics, advocacy on registration standards (with GCRAB), and a job advertising platform for genetic counselling roles.

Product overview

The Association of Genetic Nurses and Counsellors (AGNC) is a professional membership organisation representing genetic counsellors, genetic nurses, and non-medical patient-facing staff in the UK and Ireland working within Clinical Genetics, NHS Genomic Medicine Centres, and wider healthcare settings. The AGNC is one of five constituent groups of the British Society for Genetic Medicine (BSGM). As a professional association rather than a product company, the AGNC provides membership services, professional guidance documents, training resources, networking groups, awards, and advocacy for its members rather than commercial software products or platforms.

Differentiator

Problem solved

Functional benefit

Products and services

• AGNC Professional Membership Recurring professional membership for genetic counsellors, genetic nurses, and non-medical patient-facing staff working in Clinical Genetics, NHS Genomic Medicine Centres, and wider healthcare settings in the UK and Ireland. Membership is administered through BSGM and requires nomination by two existing AGNC members, providing access to professional representation, education forums, training resources, a Code of Ethics, and CPD opportunities.
• AGNC Jobs Database / Job Advertising Online job advertising platform advertising genomic and genetic counselling positions. Free for NHS, government-funded academic institutions, and charities; £300 per posting for commercial organisations; £100 per posting for corporate members. Targets employers recruiting genetic counsellors and nurses across the UK and Ireland.
• AGNC Annual Conference Annual scientific conference for genetic counsellors, genetic nurses, and associated professionals in the UK and Ireland, providing education, networking, and professional development opportunities.
• AGNC Genetic Counsellor Training Pathway Information Service Information and guidance service for prospective genetic counsellors covering training pathways, including the Cardiff University MSc Genetic and Genomic Counselling programme and the NSHCS STP in Genomic Counselling, and pathways to GCRAB registration. Also includes the Genetic Counsellor Training Panel, which supports non-STP Genetic Counsellors new to their role and working towards GCRAB Registration.
• AGNC Travel Awards and Administrative Bursaries Member-only financial support awards. AGNC Travel Awards of £50 are available to members to attend training and conferences virtually. An administrative bursary of £100 is available for working parties.
• AGNC Code of Ethics and Professional Guidance Documents Members-only professional guidance documents including the AGNC Code of Ethics, the AGNC Vision, Mission and Values Statement (2023), and the document 'The Genetic Counsellor Role in the UK' (endorsed by GCRAB and AHCS), setting standards of clinical practice for genetic counsellors and nurses.

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered core and minor.

• British Society for Genetic Medicine (BSGM)coreStrategic or Co-development PartnerAGNC is one of five constituent groups of the BSGM, which is the umbrella society for UK Professional Organisations for Human Genetics. AGNC committee members serve as representatives on BSGM Council. Membership is administered through BSGM and AGNC events are promoted through BSGM channels.
• Genetic Counsellor Registration Advisory Board (GCRAB)coreStrategic or Co-development PartnerAGNC recommends all genetic counsellors register with GCRAB and works closely with GCRAB on professional registration, training standards, and the Genetic Counsellor Training Panel. AGNC and GCRAB jointly developed a decision aid for trainees and managers considering registration.
• Cardiff UniversitycoreStrategic or Co-development PartnerCardiff University offers the MSc in Genetic and Genomic Counselling programme, a 36-month part-time distance learning course that meets GCRAB Set 'A' educational requirements for registration. AGNC provides information about this training pathway to prospective members.
• National School of Healthcare Science (NSHCS)coreStrategic or Co-development PartnerThe NSHCS runs the Scientific Training Programme (STP) in Genomic Counselling, a 3-year traineeship combining MSc studies with work-based training. AGNC provides information about STP eligibility and application processes on its website.
• NHS Genomic Medicine CentrescoreStrategic or Co-development PartnerAGNC represents genetic counsellors and nurses working within NHS Genomic Medicine Centres. The association liaises with NHS partners on workforce planning, professional standards, and the integration of genetic counselling services.
• Oxford University PressminorGTM or Marketing PartnerAGNC members receive 20% discount on academic books from Oxford University Press through the BSGM Book Club partnership.
• Scion PublishingminorGTM or Marketing PartnerAGNC members receive 20% discount on books from Scion Publishing through the BSGM Book Club partnership.
• Wellcome Connecting ScienceminorStrategic or Co-development PartnerAGNC recommends the Wellcome Connecting Science YouTube channel for information about the history of AGNC and the evolution of the genetic counselling profession.
• National Child Mortality Database (NCMD)minorStrategic or Co-development PartnerAGNC has written a response to NCMD's thematic report on consanguinity-related child deaths, advocating for culturally competent, evidence-based approaches to improve care and reduce harm in affected communities.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Regional players

• Australasian Society of Genetic Counsellors (ASGC): Australia and New Zealand's professional body for genetic counselors. Closest functional analog to AGNC operating in a different geographic region, with similar membership and representation model.
• National Society of Genetic Counselors (NSGC): The US professional membership association for genetic counselors. Operates as a direct functional counterpart to AGNC in a different geography, serving the same professional community with similar services (advocacy, education, resources, annual conference).
• Canadian Association of Genetic Counsellors (CAGC): Canadian national association for genetic counselors. Very similar in structure, mission, and activities to AGNC, serving a single country's genetics workforce with membership, advocacy, and professional standards.

Others

• British Society for Genetic Medicine (BSGM): Umbrella parent organization of AGNC and four other UK constituent groups. Administers AGNC membership and is the broader professional society under which AGNC operates, making it more of a parent/allied body than a peer.
• Genetic Counsellor Registration Board (GCRAB): UK body responsible for genetic counselor registration. Operates as a close regulatory partner to AGNC rather than a direct peer, but shares the same professional community and a formal collaboration agreement on training and registration.

Broad incumbents

• Clinical Genetics Society (CGS): UK professional society for clinical geneticists (physicians). Sister constituent group of BSGM alongside AGNC, operating in the same UK clinical genetics ecosystem with overlapping membership and shared events.
• European Society of Human Genetics (ESHG): European-wide professional organization for human genetics. Comparable to AGNC in mission (advancing genetics workforce) but operates at a broader geographic and disciplinary scope, including all human genetics professionals.
• Human Genetics Society of Australasia (HGSA): Broader Australasian professional society covering the full human genetics workforce, including genetic counselors. Functions as a regional counterpart to BSGM in which ASGC operates as a constituent group.
• Association for Clinical Genomic Science (ACGS): UK professional body for clinical genomic scientists and laboratory staff. Sister constituent group of BSGM, addressing a different but adjacent profession within the UK clinical genetics ecosystem.

Direct peers

• International Society of Nurses in Genetics (ISONG): International nursing organization dedicated to genetics. Comparable to AGNC in representing the genetic nursing sub-specialty of the healthcare workforce, with similar education and advocacy missions.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/theagnc
• LinkedInlinkedin.com/company/the-association-of-genetic-nurses-and-counsellors-agnc

Revenue estimate

Valuation estimate

Number of profiles

Profiles27 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about The Association of Genetic Nurses and Counsellors