Stichting HIV Monitoring

What Stichting HIV Monitoring does

Stichting HIV Monitoring (SHM) is a Dutch nonprofit foundation headquartered in Amsterdam that operates the ATHENA national observational HIV cohort, a longitudinal registry covering approximately 24,057 people with HIV in care in the Netherlands, with continuous data collection dating back to 1996. SHM collects clinical data from all Dutch HIV treatment centres and publishes the annual HIV Monitoring Report on commission from the Dutch Ministry of Health, Welfare and Sport (VWS), functioning as the country's designated national HIV surveillance body. Its core outputs include the public HIV Dashboard (dashboard.hiv-monitoring.nl), a professional version enriched with data from CBS (Statistics Netherlands), the annual Monitoring Report, scientific publications, and a formal research data access service that provides pseudonymised patient data to approved researchers.

SHM's underlying technology comprises the ATHENA cohort database and statistical/epidemiological analysis methodologies, including mathematical modelling and viral phylogenetics, supported by data integrations with CBS, PALGA (pathology), IKNL (cancer registry), and SFK (pharmaceutical dispensing). The organization participates in 16 international research consortia, including ECDC, RESPOND, EuroSIDA, COHERE, D:A:D, CASCADE, IeDEA, and a long-standing collaboration with Imperial College London (DIDE), contributing Dutch cohort data to multi-country epidemiological studies. Its core technology is therefore population-scale longitudinal data infrastructure rather than a commercial software product.

SHM's revenue model is structurally nonprofit: it operates under a structural institute grant awarded by CIb-RIVM and is commissioned by VWS to produce the annual Monitoring Report. No commercial pricing is applied to the dashboard, the report, or research data access; access to the professional dashboard is provided to qualified professionals at no cost. SHM's go-to-market is research- and publication-driven rather than sales-led, with visibility generated through peer-reviewed publications, conference presentations (CROI, IAS, EACS), the annual report, webinars, and an animated explainer film. The organization has 11-50 employees and is governed by a Supervisory Board and Scientific Advisory Board, with Prof. Peter Reiss (Amsterdam UMC) serving as principal investigator on multiple international collaborations.

Name

Stichting HIV Monitoring

Legal name

Stichting HIV Monitoring

Website

https://hiv-monitoring.nl

Company type

Private

Founded year

2001

Operating status

Operating

Headcount range

11–50 employees

Short description

Stichting HIV Monitoring is a Dutch nonprofit foundation that operates the ATHENA national observational HIV cohort and publishes the annual HIV Monitoring Report on commission from the Dutch Ministry of Health, serving government, treatment centres, and researchers in the Netherlands.

Ownership category

akta.pro rank

Product category

Public Health Surveillance

NAICS

Medical and Diagnostic Laboratories (6215)

SIC

Services-Commercial Physical & Biological Research (8731)

akta.pro primary industry

Disease & Condition Surveillance Programs (HLAJANAB)

akta.pro secondary industries

Infectious Disease Program Evaluation (e.g., HIV/TB/Malaria/STIs) (HLAJANAF), HIV/AIDS Medicine (HLAKAGAB)

Keywords

• HIV monitoring
• Clinical data registry
• Epidemiological surveillance
• Cohort research
• Public health reporting

Headquarters

HQ city

Amsterdam

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations, Others

Revenue model

1. Government Commission: SHM publishes the annual HIV Monitoring Report on commission from the Dutch Ministry of Health, Welfare and Sport (Ministerie van Volksgezondheid, Welzijn en Sport). This constitutes the core funding mechanism for SHM's operations, including data collection, research, and reporting.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

Stichting HIV Monitoring operates the ATHENA national observational HIV cohort, collecting longitudinal clinical data from all Dutch HIV treatment centres to monitor HIV epidemiology, treatment outcomes, comorbidities, and care quality in the Netherlands. It publishes the annual HIV Monitoring Report on commission from the Dutch Ministry of Health, Welfare and Sport, and provides the interactive HIV Dashboard for public and professional use. The foundation also facilitates pseudonymised research data access for national and international research collaborations.

Product overview

Stichting HIV Monitoring (SHM) operates as a national HIV monitoring foundation that maintains the ATHENA National Observational HIV Cohort, the primary data collection infrastructure for tracking HIV in the Netherlands. The core product portfolio centers on the HIV Dashboard for public and professional data visualization, the annual HIV Monitoring Report for epidemiological analysis, and facilitating research data access for scientific studies. These offerings are interconnected: the ATHENA cohort provides the underlying data which feeds both the HIV Dashboard (interactive visualization) and the published Monitoring Report (comprehensive annual analysis). Research data access services enable national and international research collaborations using pseudonymised patient data. Supplementary services include patient information resources, webinars, and scientific publications.

Differentiator

Problem solved

Functional benefit

Products and services

• HIV Dashboard Interactive online data dashboard providing regional insights on people with HIV in the Netherlands, including HIV prevalence, care continuum statistics, and treatment outcomes. Publicly accessible at no cost.
• HIV Monitoring Report Annual comprehensive report on HIV in the Netherlands, published on commission from the Dutch Ministry of Health, Welfare and Sport (VWS), providing epidemiological data and analysis of HIV trends, treatment outcomes, comorbidities, and care quality.
• ATHENA National Observational HIV Cohort National observational cohort that collects longitudinal clinical data from people with HIV in care across all Dutch HIV treatment centres, serving as the foundational data infrastructure for SHM's research and monitoring activities.
• HIV Dashboard for Professionals Extended version of the HIV Dashboard with additional data from CBS (Statistics Netherlands), accessible to qualified professionals upon request, providing deeper analytical capabilities for HIV-related research.
• Research Data Access Service Formal service enabling researchers to submit research proposals and access pseudonymised SHM patient data for scientific research projects in collaboration with national and international partners.

Quantifiable outcome

• 25,690 people with HIV registered in the Netherlands
• +2 more outcomes

Named customers1 record

Segments4 records

Ideal customer profiles3 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration4 records

Feature3 records

Partnerships

28 partnerships are on record, tiered key, supporting and core.

• RESPOND (International Cohort Consortium of Infectious Disease)keyStrategic or Co-development Partner · 1 January 2018A non-interventional, multi-cohort observational study launched as a successor to EuroSIDA. In 2018, SHM began contributing pseudonymised ATHENA data for designated RESPOND projects.
• Pilot Registration and Monitoring of Hepatitis C Mono-infectionkeyStrategic or Co-development Partner · 1 January 2016A working group comprising representatives from NIV, NVMDL, NVHB, and SHM established a pilot registration of individuals with hepatitis C mono-infection receiving direct-acting antiviral treatment, with SHM implementing the data collection.
• HarmonickeyStrategic or Co-development Partner · 1 January 2014Harmonic is a collaboration between UMC Utrecht, Rijnstate Arnhem, and SHM to compare patients with hepatitis B (HBV) mono-infection with HIV/HBV co-infection, studying the natural course and treatment effects of HBV.
• HIV in EuropesupportingStrategic or Co-development Partner · 1 January 2007A pan-European initiative begun in Brussels in 2007, providing a platform for exchange of information to improve early diagnosis and earlier care of HIV across Europe.
• IeDEA (International epidemiologic Databases to Evaluate AIDS)keyStrategic or Co-development Partner · 1 January 2005An international research consortium established 2005 by the National Institute of Allergy and Infectious Diseases. IeDEA collects HIV/AIDS data from seven international regional data centers spanning Africa, Asia-Pacific, Central/South America/Caribbean, and North America.
• ACHIEV2E (A Collaboration on HIV-2 Infection)supportingStrategic or Co-development Partner · 1 January 2005Established 2005 as a collaboration of 13 observational cohort studies in 10 European countries, Gambia, and North America studying HIV-2 infection, which is mainly found in Western Africa.
• Imperial College London — DIDE (Department of Infectious Disease Epidemiology)coreStrategic or Co-development Partner · 1 January 2002A scientific collaboration since 2002 between SHM and DIDE (part of Imperial College London's Faculty of Medicine). Focus on mathematical modelling, viral phylogenetics, and analysis of HIV epidemic dynamics and interventions including Treatment as Prevention and PrEP. Prof. Christophe Fraser coordinated the collaboration. The BEEHIVE project involves viral genome-wide association studies.
• CASCADE (Concerted Action on SeroConversion to AIDS and Death in Europe)keyStrategic or Co-development Partner · 1 January 1997Established 1997 as a collaboration of 25 cohorts of documented HIV seroconverters from 15 European countries, Australia, Canada, and Africa. CASCADE monitors the course of HIV infection from time of infection onwards.
• HIV Treatment CentrescoreStrategic or Co-development PartnerSHM collaborates with all Dutch HIV treatment centres, which submit clinical data to SHM's ATHENA cohort. These centres are the primary source of SHM's nationwide monitoring data.
• CBS (Statistics Netherlands)coreTechnology or IntegrationSHM merges its HIV registry data with data from CBS (Centraal Bureau voor de Statistiek) to provide additional demographic and socioeconomic insights in the professional version of the HIV Dashboard.
• RIVM-CIb (Centre for Infectious Disease Control, Netherlands)coreStrategic or Co-development PartnerRIVM-CIb coordinates national infectious disease control and HIV registration. SHM works closely with RIVM-CIb on HIV surveillance and fulfills ECDC reporting requirements through data exchange.
• Amsterdam UMCcoreStrategic or Co-development PartnerSHM collaborates with Amsterdam UMC (location AMC) on multiple projects including the AGEhIV cohort study, COBRA programme, and HIV Transmission Elimination Amsterdam (H-TEAM) project. Prof. Peter Reiss leads several collaborations from Amsterdam UMC.
• GGD AmsterdamkeyStrategic or Co-development PartnerSHM contributes to the MOSAIC study (MSM Observational Study of Acute Infection with Hepatitis C) coordinated by GGD Amsterdam, and collaborates on the Amsterdam Cohort Studies (ACS).
• NVHB (Dutch Association of HIV-Treating Physicians)keyStrategic or Co-development PartnerSHM and NVHB collaborated on a 2011 report examining the Quality of HIV Care in the Netherlands, evaluating overall quality of HIV care at treatment centre level.
• PALGAsupportingTechnology or IntegrationSHM links with PALGA (Dutch Pathology Registry) as one of its data source integrations for supplementary clinical data.
• IKNL (Netherlands Comprehensive Cancer Organisation)supportingTechnology or IntegrationSHM links with IKNL for data integration related to cancer outcomes among people with HIV.
• SFK (Foundation for Pharmaceutical Statistics)supportingTechnology or IntegrationSHM links with SFK (Stichting Farmaceutische Kengetallen) for data on pharmaceutical dispensing related to HIV treatment.
• ECDC (European Centre for Disease Prevention and Control)coreStrategic or Co-development PartnerSHM has led a collaboration since 2015 to estimate HIV prevalence in Europe and individual European countries, conducted on behalf of ECDC in Stockholm. SHM works with researchers from Imperial College London, UCL, University of Cambridge, and University of Bern on this project.
• D:A:D Study (Data Collection on Adverse events of Anti-HIV Drugs)keyStrategic or Co-development PartnerA prospective multi-cohort study examining the relationship between antiretroviral drug use and cardiovascular disease, liver/renal disease, and non-AIDS-defining malignancies. Prof. Peter Reiss is the principal investigator from SHM/ATHENA.
• EuroCoord (European Coordinating Committee for the Integration of Ongoing Coordination Actions Related to Clinical and Epidemiological HIV Research)coreStrategic or Co-development PartnerEuroCoord was a 5-year EU FP7-funded collaboration (2011-2015) bringing together CASCADE, COHERE, EuroSIDA, and PENTA. Its virtual database contained data from over 250,000 HIV-positive individuals. Funding ended December 2015; some collaborations secured alternative funding.
• EuroSIDAcoreStrategic or Co-development PartnerA prospective observational cohort study of more than 16,500 individuals in 103 hospitals across 32 European countries, plus Israel and Argentina. The Netherlands participates through the AMC. Prof. Peter Reiss is the principal investigator. EuroSIDA secured alternative funding after EuroCoord ended.
• COHERE (Collaboration of Observational HIV Epidemiological Research in Europe)keyStrategic or Co-development PartnerA collaboration of 33 cohorts in Europe conducting epidemiological research on prognosis and outcome of HIV-positive populations including children, pregnant mothers, and adults.
• EPPICC (European Pregnancy and Paediatric HIV Cohort Collaboration)keyStrategic or Co-development PartnerEPPICC conducts epidemiological research on prognosis and outcome of HIV-infected pregnant women and children across Europe. Part of PENTA (Paediatric European Network for Treatment of AIDS). EPPICC secured alternative funding after EuroCoord ended.
• COBRA (Comorbidity in Relation to HIV/AIDS)keyStrategic or Co-development PartnerEU FP7-funded programme investigating whether comorbidities are more common and occur at younger ages in people living with HIV. SHM provides data collection infrastructure for monitoring incidence and prevalence of comorbidities. EU funding ended March 2017.
• ART-CC (Antiretroviral Therapy Cohort Collaboration)keyStrategic or Co-development PartnerAn international collaboration of 19 cohort studies in Europe and North America, coordinated by Prof. Jonathan Sterne (University of Bristol), conducting prognostic studies on the effect of cART in therapy-naive patients. Prof. Peter Reiss and Dr Ard van Sighem represent SHM.
• HIV-CAUSAL (HIV Cohorts Analyzed Using Structural Approaches to Longitudinal data)keyStrategic or Co-development PartnerA multinational collaboration of prospective studies from six European countries, Brazil, Canada, and the United States. HIV-CAUSAL uses causal inference methods to study when to start ART, what regimen to use, and when to switch regimens.
• RDI (HIV Resistance Response Database Initiative)supportingTechnology or IntegrationRDI is a UK-based research team developing computational models (HIV-TRePS) to predict HIV treatment outcomes. SHM contributes data to support these predictive models.
• Amsterdam Health and Technology B.V. (AHT BV)keyTechnology or IntegrationAHT BV collaborated with SHM to develop the HIV Dashboard, with funding from TKI Health Holland and support from Amsterdam UMC, AIDS Fonds, and SOAIDS Nederland.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• U.S. Centers for Disease Control and Prevention (CDC): The U.S. federal public health agency conducting national HIV surveillance through the NHSS and epidemiological research. Comparable as the global reference for national HIV surveillance infrastructure, though operating at much greater scale and scope than SHM.
• Public Health Agency of Canada (PHAC): Canada's national public health agency, responsible for HIV/AIDS surveillance and epidemiological reporting. Comparable as a national public health body monitoring HIV and other infectious diseases with similar surveillance and reporting functions to SHM's Dutch mandate.
• UK Health Security Agency (UKHSA): The UK government agency responsible for public health protection and infectious disease surveillance. Comparable as a national-level body conducting HIV and STI surveillance, epidemiological reporting, and public health monitoring, though with a broader portfolio than SHM's HIV-specific mandate.
• Robert Koch Institute (RKI): Germany's federal government agency for disease control and prevention. Comparable as a national public health institute conducting infectious disease surveillance and epidemiological research, including HIV, in a neighbouring European country.
• ECDC (European Centre for Disease Prevention and Control): The EU agency coordinating infectious disease surveillance and response across member states. Comparable as a higher-level infectious disease surveillance coordinator; SHM has led ECDC-commissioned HIV prevalence estimation since 2015.

Direct peers

• COHERE (Collaboration of Observational HIV Epidemiological Research in Europe): A collaboration of 33 European HIV cohorts conducting epidemiological research on HIV-positive populations. Directly comparable as a multi-cohort HIV research consortium with which SHM collaborates and shares methodological standards.
• CASCADE (Concerted Action on SeroConversion to AIDS and Death in Europe): A collaboration of 25 cohorts of documented HIV seroconverters from 15+ countries. Directly comparable as a multi-country HIV cohort infrastructure with similar longitudinal monitoring and epidemiological research mission; SHM is a participating partner.
• ANRS CO3 Aquitaine Cohort (France): One of the major French ANRS-sponsored HIV cohorts that has prospectively followed HIV-positive patients since the 1980s. Directly comparable as a national longitudinal HIV cohort study with clinical data collection from treatment centres and epidemiological research output.
• EuroSIDA: A prospective observational cohort study of more than 16,500 HIV-positive individuals in 103 hospitals across 32+ countries. Comparable in scope, longitudinal clinical data collection, and contribution to international HIV outcomes research; SHM/ATHENA contributes data and PI representation.
• Swiss HIV Cohort Study (SHCS): A Swiss national observational HIV cohort study collecting longitudinal clinical data from HIV-positive individuals across Switzerland. Highly comparable to SHM in mandate, cohort design, government-affiliated research role, and collaboration with international HIV networks.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks2 records

Key highlights4 records

Customer concentration

• Xx.com/HivStichting
• LinkedInlinkedin.com/company/stichting-hiv-monitoring

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Stichting HIV Monitoring