The Dysautonomia Project

What The Dysautonomia Project does

The Dysautonomia Project, Inc. (TDP) is a 501(c)(3) nonprofit organization founded in 2014 and headquartered in Clearwater, Florida, that operates as the self-described global leader in dysautonomia education. The organization produces educational content and programming targeted at two primary constituencies: dysautonomia patients (undiagnosed, recently diagnosed, experienced, and pediatric) and clinicians/medical residents seeking training in autonomic medicine. TDP's product portfolio centers on a foundational book authored by founder Kelly Freeman with Dr. Randy Thompson and Dr. David Goldstein, the Autonomic Education online video library (a free, self-serve platform hosted at autonomiceducation.com), a Patient Assessment Tool for symptom screening and tracking, and structured training programs including The Residents Course (a three-day mini-fellowship for 36 medical residents per year presented with the American Autonomic Society), The Clinician Program (CME-accredited via joint providership with the Florida Medical Association), and DysCourse (a five-session virtual patient and caregiver education series).

TDP is governed by a board led by Carlton Ward (President) and advised by a medical advisory committee drawing from Mayo Clinic, Harvard/Mass General Brigham, UT Southwestern, Johns Hopkins All Children's, the Uniformed Services University, and Wellstar. Operationally, the staff is small, with an Executive Director (Angela Devlen), Director of Education (Cheryl Faber), and Development and Events Manager (Ashleigh Goforth) identified by name. TDP's distribution is digital-first and global, with free patient-facing resources distributed via the website, social media (Facebook, Instagram, YouTube), and email, while the Residents Course requires in-person attendance in Florida. There are no AI/ML products, APIs, or mobile applications in the portfolio.

The business model is donation- and event-driven rather than commercial. Revenue streams include individual and corporate donations, book sales, corporate event sponsorships with tiered pricing ($1,500 Friend to $15,000 Presenting for DysCourse), and proceeds from the annual Under the Umbrella Gala and Pi Day Give Day. Core patient resources are provided at no cost, and the Residents Course is fully funded by TDP; only the Clinician Program charges registration fees for CME credits. The organization relies on sponsors including CAC-HFF, Network People, Pinellas Community Foundation, JVK Foundation, Adtalem, Raymond James, AdventHealth, and Johns Hopkins All Children's, among others.

Name

The Dysautonomia Project

Legal name

The Dysautonomia Project, Inc.

Website

https://thedysautonomiaproject.org

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

The Dysautonomia Project is a 501(c)(3) nonprofit that educates dysautonomia patients, clinicians, and medical residents through an award-winning book, a free online video library (Autonomic Education), CME-accredited training, and the annual Residents Course mini-fellowship. Founded in 2014 and headquartered in Clearwater, Florida.

Ownership category

akta.pro rank

Product category

Patient and Clinician Health Education

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Health Services (8000)

akta.pro primary industry

Autonomic Disorders (Dysautonomia) (HLAKAIAN)

akta.pro secondary industry

Movement Disorders (Parkinson’s, Tremor, Dystonia) (HLAKAIAC)

Keywords

• Patient health education
• Medical provider training
• Continuing medical education
• Autonomic disorder resources
• Nonprofit health awareness

Headquarters

HQ city

Clearwater

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: The organization relies on donations from individuals and corporate sponsors to fund its educational programs and initiatives.
2. Book Sales: Sale of The Dysautonomia Project book, a cornerstone educational resource for providers and patients.
3. Event Sponsorships: Corporate sponsorship tiers for DysCourse event ranging from $1,500 (Friend) to $15,000 (Presenting), providing marketing exposure and brand association.
4. Gala and Annual Events: Under the Umbrella Gala serves as the premier annual fundraiser with sponsorship packages and auction items.

Go-to-market motion2 records

Distribution channels2 records

Marketing channels4 records

Core offering

The Dysautonomia Project is a non-profit organization that educates patients, healthcare providers, and communities about dysautonomia and autonomic nervous system disorders. It delivers this through an award-winning educational book, a free online video library (Autonomic Education), CME-accredited clinician training programs, a resident mini-fellowship (The Residents Course), virtual patient education events (DysCourse), and a free online patient symptom assessment tool.

Product overview

The Dysautonomia Project is a non-profit organization offering a portfolio of educational products and programs centered on dysautonomia awareness and training. The core offerings include an award-winning book (The Dysautonomia Project Book) that serves as the foundational educational resource, DysCourse as a virtual patient and caregiver education event, The Clinician Program as a CME-accredited training program, and The Residents Course as a mini fellowship for medical residents. Supporting these are Autonomic Education (a free online video library) and a free Patient Assessment Tool for symptom screening. The organization also hosts the annual Under the Umbrella Gala and Pi Day Give Day fundraising events.

Differentiator

Problem solved

Functional benefit

Products and services

• The Dysautonomia Project Book

Quantifiable outcome

• Reduced average diagnosis time from 6 years to several months

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Four partnerships are on record, tiered core, major and minor.

• American Autonomic Society (AAS)coreStrategic or Co-development PartnerJoint partnership presenting The Residents Course mini-fellowship program for medical residents. AAS provides faculty and evidence-based content while TDP provides funding and administration.
• Florida Medical AssociationcoreStrategic or Co-development PartnerJoint providership of CME-accredited medical training for the Clinician Program. FMA is accredited by ACCME to provide continuing medical education for physicians.
• JVK FoundationmajorGTM or Marketing PartnerSponsor and grantor supporting The Residents Course and other TDP programs.
• Clearwater Beach Marriott Resort on Sand KeyminorOthersVenue partner for The Residents Course (February 2027) and Under the Umbrella Gala events.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• The EDS Society (Ehlers-Danlos Society): Disease-specific nonprofit providing patient and clinician education, CME programs and research grants for Ehlers-Danlos syndromes, which are frequently comorbid with dysautonomia. Closely comparable model: education-first nonprofit with CME, conferences, and clinical community building.
• Dysautonomia Support Network: Patient-centered nonprofit providing resources, advocacy and education across the dysautonomia spectrum. Direct peer with overlapping patient education, support directory and awareness missions.
• Dysautonomia International: Patient advocacy and education nonprofit focused on autonomic disorders, including POTS. Most directly comparable peer — same disease category, similar patient/clinician education mission, and competes for the same donor and awareness pool as TDP.
• Standing Up to POTS: Nonprofit focused on POTS (Postural Orthostatic Tachycardia Syndrome), a core dysautonomia subtype. Comparable mission of accelerating diagnosis, funding education, and supporting patients and clinicians in the same autonomic disorder space.

Emerging players

• Inspire: Digital health community platform connecting patients and caregivers across conditions, including autonomic disorders. Comparable online patient-education and peer-support mission delivered through a technology platform model rather than nonprofit events.

Broad incumbents

• National Organization for Rare Disorders (NORD): Large US umbrella nonprofit for rare diseases including dysautonomia subtypes. Comparable in nonprofit patient/physician education model but operates at much broader scope across 7,000+ rare diseases rather than a single condition.
• American Autoimmune Related Diseases Association (AARDA): National nonprofit advocating for and educating across autoimmune-related diseases, which often overlap with autonomic dysfunction. Comparable education, advocacy and clinician engagement model at a broader disease category.

Regional players

• POTS UK: UK-based charity dedicated to POTS and dysautonomia awareness, education and patient support. Mirrors TDP's disease focus and education-first nonprofit model but serves a primarily UK patient and clinician base.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/@dysproject
• Facebookfacebook.com/thedysautonomiaproject
• Instagraminstagram.com/thedysautonomiaproject
• Xx.com/dys_project
• LinkedInlinkedin.com/company/the-dysautonomia-project-inc

Revenue estimate

Valuation estimate

Number of profiles

Profiles15 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about The Dysautonomia Project