Voksne med medfødt hjertefeil

What Voksne med medfødt hjertefeil does

Voksne med medfødt hjertefeil (VMH) is a Norwegian non-profit patient organization founded in 2010 and headquartered in Oslo, dedicated to adults (18+) living with congenital, genetic, or early-acquired heart defects, as well as their families and caregivers. The organization operates through a national headquarters and five regional branches covering all of Norway (Region Øst, Sør, Vest, Midt, Nord) and delivers a portfolio of community, information, and advocacy services. Core offerings include the "Mitt korrigerte hjerte" brochure series of ten diagnosis-specific guides co-developed with OUS Rikshospitalet's GUCH (Grown-Up Congenital Heart) team, the "Åpent hjerte" podcast, a peer-support program with approximately 30 trained volunteers and a dedicated telephone hotline (Likepersonstelefonen), the "Opp og stå" 15-week physical activity campaign, the annual "Hjerteløpet" charity run, the youth program "Unge hjerter inn i fremtiden," and educational courses and webinars. VMH also maintains a webshop (via Spreadshirt) and publishes the VMH-nytt member newsletter.

VMH's business model is non-profit and membership-based, funded through a combination of annual membership fees (300 NOK for adults, 100 NOK for youth aged 18-30), donations via Vipps and Spleis (including testamentary gifts arranged through Jurio), participation in Norsk Tipping's Grasrotandelen lottery program across five regional organization numbers, and merchandise royalties. Distribution occurs through direct online enrollment, healthcare-provider referrals (notably from OUS Rikshospitalet and rehabilitation centers such as Lovisenberg, Feiringklinikken, and LHL-sykehuset Gardermoen), the peer-support phone line, and a multi-channel engagement stack comprising the website, podcast, newsletter, events, and Pride Oslo participation. Strategic partnerships include the European-level ECHDO alliance and FFO membership (Funksjonshemmedes Fellesorganisasjon), which bundles third-party member benefits (hotels, legal services, fitness, sports watches). The organization runs on a tiny administration of 1-10 employees supported by a national volunteer network.

Name

Voksne med medfødt hjertefeil

Legal name

Voksne med medfødt hjertefeil

Website

https://vmh.no

Company type

Private

Founded year

2010

Operating status

Operating

Headcount range

1–10 employees

Short description

VMH is a Norwegian non-profit patient organization, founded in 2010 and based in Oslo, that provides information, peer support, advocacy, and rehabilitation referrals for adults with congenital, genetic, or early-acquired heart defects across Norway through five regional branches.

Ownership category

akta.pro rank

Headquarters

HQ city

Oslo

HQ country

Norway

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Membership fees: Annual membership fees: 300 NOK for regular members, 100 NOK for youth members (18-30 years), and 300 NOK for family/supporting members. Part of the fee goes to support regional activities.
2. Donations and gifts: VMH receives one-time and recurring donations via Vipps (16200), bank transfer (1503 40 36168), Spleis fundraising platform, and fixed giving arrangements. Donations between 500-25,000 NOK qualify for tax deduction.
3. Grasrotandelen (Norwegian Tipping): VMH participates in Norsk Tipping's Grasrotandelen program where 5% of lottery winnings from supporters go to regional branches of the organization.
4. Online merchandise store: VMH operates an online store (nettbutikk) through partnership with Spreadshirt, selling clothing and products with VMH logo.
5. Rehabilitation participant contributions: Some rehabilitation offerings may have participant costs, while others are covered in full. The organization facilitates access to rehabilitation services at centers like Lovisenberg Rehabilitering and Feiringklinikken.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels7 records

Core offering

Voksne med medfødt hjertefeil (VMH) is a Norwegian non-profit patient organization that provides information, peer support, community, rehabilitation referrals, and advocacy services for adults (18+) living with congenital, genetic, or early-acquired heart defects. Its core offerings include a brochure series of 10 diagnosis-specific guides co-developed with OUS Rikshospitalet's GUCH team, a peer support program with approximately 30 trained volunteers and a dedicated phone line, the 'Åpent hjerte' podcast, and various courses, gatherings, and a youth program.

Product overview

Voksne med medfødt hjertefeil (VMH) is a Norwegian patient organization — not a technology company — that provides information, peer support, community, and advocacy services for adults (18+) with congenital, genetic, or early-acquired heart defects. The organization operates a portfolio of educational and community-building products and services, centered around the 'Mitt korrigerte hjerte' brochure series (10 diagnosis-specific guides developed with OUS Rikshospitalet), the 'Åpent hjerte' podcast, the peer support program (likepersonsarbeid) with ~30 trained volunteers and a dedicated phone line, and the 'Opp og stå' physical activity campaign. VMH also organizes courses, rehabilitation programs, youth gatherings ('Unge hjerter inn i fremtiden'), the annual Hjerteløpet charity run, and publishes the VMH-nytt member newsletter. Member benefits include discounts on fitness chains (Feel24), sports watches (Polar, Garmin), hotels, and legal documents via third-party partners (Jurio, Spreadshirt). The organization does not offer a software product or technology platform.

Differentiator

Problem solved

Functional benefit

Products and services

• Mitt korrigerte hjerte (Brochure Series) Series of 10 diagnosis-specific educational brochures co-developed with OUS Rikshospitalet's GUCH team, covering common congenital heart defects (Fallot's Tetralogy, TGA, Fontan circulation, ASD/VSD/PDA, ccTGA) with illustrations and practical guidance. Available to patients, families, and healthcare providers.
• Likepersonsarbeid (Peer Support Program) Structured peer support service connecting members with approximately 30 trained volunteers across Norway who share similar experiences with congenital heart defects. Includes a dedicated peer support phone line (907 91 076) available every Tuesday 19:00-21:00, covering topics such as disability, fear of operations, pregnancy, anxiety, living with pacemakers/ICDs, education, and career choices.
• Hjerterehabilitering (Cardiac Rehabilitation Facilitation) Facilitation of access to specialized cardiac rehabilitation programs for adults with congenital heart defects, including dedicated GUCH groups at Lovisenberg Rehabilitering on Gardermoen and Feiringklinikken, offering 4-week residential stays.
• Åpent hjerte (Podcast) VMH's own podcast featuring episodes on topics such as pregnancy with heart defects, personal member stories, and medical advice for adults with congenital heart disease.
• Hjerteløpet (Heart Run) Annual charity run event held in Oslo, raising funds for VMH and Stiftelsen Organdonasjon.
• Unge hjerter inn i fremtiden (Youth Program) Youth program for members aged 18-30 offering weekends, social gatherings, and activities designed to build community among young adults with congenital heart conditions.
• Kurs og samlinger (Courses and Gatherings) Educational courses and gatherings organized by VMH, including arrhythmia courses at Rikshospitalet, GUCH courses, and topic-specific events on women's health, pregnancy, genetics, and rehabilitation.
• VMH-nytt (Member Newsletter) Regular member newsletter providing news, research updates, member stories, and information about events and services for the VMH community.
• Informasjonsfilmer (Information Films) Educational video content produced by VMH covering topics related to living with congenital heart disease.
• Nettbutikk (Webshop) Online merchandise store operated via partnership with Spreadshirt, offering clothing and other products branded with the VMH logo.

Quantifiable outcome

• Partnership with OUS Rikshospitalet's GUCH team for medical expertise
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration10 records

Partnerships

Eleven partnerships are on record, tiered core and minor.

• ECHDO (European Congenital Heart Disease Organisation)coreStrategic or Co-development Partner · 9 May 2025VMH participates in ECHDO, the European organization for congenital heart disease patients. VMH attended and contributed to the annual meeting held in Split, Croatia in May 2025, including participating in the General Meeting.
• OUS Rikshospitalet - GUCH teamcoreStrategic or Co-development PartnerVMH collaborates with the GUCH (Grown Up Congenital Heart) team at Oslo University Hospital Rikshospitalet to develop educational materials including 10 diagnosis brochures about common congenital heart defects, pregnancy, and general advice for living with congenital heart defects. The GUCH team also provides medical expertise for patient education and courses.
• Foreningen for hjertesyke barn (FFHB)coreStrategic or Co-development PartnerFFHB is VMH's sister organization serving children with heart defects and their families. VMH refers members under 18 to FFHB, and the two organizations collaborate on advocacy and share information resources. FFHB has created comprehensive information about diagnoses that VMH links to from its website.
• Lovisenberg Rehabilitering / LHL-sykehuset GardermoencoreStrategic or Co-development PartnerThis rehabilitation center runs specialized GUCH rehabilitation programs for adults with congenital heart defects, including dedicated groups starting in week 4. The center has been awarded the 'GUCHelov og takk-prisen' for its work. VMH promotes these rehabilitation opportunities to its members.
• Norsk Tipping - GrasrotandelenminorGTM or Marketing PartnerVMH participates in Norsk Tipping's Grasrotandelen program where 5% of supporters' lottery winnings go to VMH regional branches. Each region has its own organization number for this program (Region Øst: 895 917 362, Region Sør: 996 012 972, Region Vest: 996 031 225, Region Midt: 996 166 880, Region Nord: 895 997 722).
• Funksjonshemmedes Fellesorganisasjon (FFO)coreChannel Partner/ Reseller/ DistributorThrough VMH membership, members are also members of FFO and gain access to member benefits including hotel discounts (Thon Hotels, Strawberry Hotels, Scandic), the Rights Center (Rettighetssenter), and other FFO member benefits.
• JuriominorGTM or Marketing PartnerVMH has partnered with Jurio to offer members access to customized legal documents online, including options for including VMH in wills (testamentary gifts).
• Radiant HealthminorGTM or Marketing PartnerOffers 20% discount on infrared health products to VMH members. Members contact the association for discount codes.
• Polar and GarminminorGTM or Marketing PartnerSports watch companies offering special pricing to VMH members. Members contact [email protected] for discount codes (Garmin discount valid through 2026).
• Feel24 TreningskjedenminorGTM or Marketing PartnerFitness chain offering 30 NOK discount on monthly price (regular price 399 NOK with commitment) to VMH members. Provides access to approximately 75 centers across Norway.
• SpreadshirtminorChannel Partner/ Reseller/ DistributorVMH operates its online merchandise store through partnership with Spreadshirt, selling clothing and products with VMH branding.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• European Congenital Heart Disease Organisation (ECHDO): The pan-European umbrella for congenital heart disease patient organizations, of which VMH is an active member. ECHDO provides the international coordination layer for VMH's advocacy and knowledge exchange with peer organizations across Europe.
• Foreningen for hjertesyke barn (FFHB): VMH's sister Norwegian patient organization serving children with heart defects and their families. Operates the same non-profit, membership-based, community-and-advocacy model for the pediatric counterpart of VMH's GUCH population, with shared referrals and joint advocacy.

Broad incumbents

• American Heart Association: The largest US voluntary health organization focused on cardiovascular disease, with patient support, advocacy, and research programs. Comparable non-profit patient-advocacy model for heart patients but with vastly broader scope and resources than VMH.
• British Heart Foundation: The UK's largest heart-related charity, funding research and providing patient information. Operates at far greater scale than VMH and includes congenital heart disease within a broad cardiovascular mandate rather than as a dedicated focus.
• LHL (Landsforeningen for hjerte- og lungesyke): The largest Norwegian patient organization for heart and lung patients, operating rehabilitation clinics (including LHL-sykehuset Gardermoen that VMH refers members to). Much larger scope and resources but serves a broader population; a potential incumbent that could expand into GUCH-specific programming.

Others

• Kreftforeningen (Norwegian Cancer Society): Norway's largest patient/disease charity, operating peer support, fundraising, and advocacy at national scale. While focused on cancer rather than cardiac conditions, it shares VMH's non-profit, community-driven model and serves as a benchmark for large-scale Norwegian patient organization operations.
• Diabetesforbundet (Norwegian Diabetes Association): Norwegian patient organization for people with diabetes. While focused on a different chronic condition, it operates the same national membership organization structure, peer support model, and advocacy role that VMH uses, providing a benchmark for Norwegian chronic-disease patient orgs.
• Astma- og Allergiforbundet (NAAF): Norwegian patient organization for asthma and allergies. Operates a comparable national membership model with peer support, information resources, and policy advocacy for a chronic disease population — directly analogous to VMH's structural model in a different therapeutic area.

Regional players

• HeartKids Australia: Australian patient organization for children and adults with congenital heart disease, operating peer support, advocacy, and research funding programs. Comparable non-profit, community-led model serving a similar GUCH population but focused on the Australian market.
• Children's Heart Foundation: US-based non-profit funding congenital heart defect research and supporting affected families. Operates a similar niche-focused patient advocacy model for the congenital heart population in a different geography.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Facebookfacebook.com/vmh.no

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Voksne med medfødt hjertefeil