Maladie à corps de Lewy - A2MCL

What Maladie à corps de Lewy - A2MCL does

A2MCL (Association des Aidants et Malades à Corps de Lewy) is a French non-profit association (loi 1901) founded in 2015 and headquartered at 16 rue Marx Dormoy in the 18th arrondissement of Paris. The organization is the only major French association specifically dedicated to Lewy Body Disease (Maladie à corps de Lewy), serving an estimated 200,000+ patients in France, along with their caregivers, healthcare professionals, and former caregivers. Its service portfolio spans an online training platform (Lewyformation.fr), a research observatory (L'Observatoire Lewy) running national studies such as one on general practitioners' role in MCL care pathways, in-person support groups (Café Lewy), therapeutic workshops (Ateliers Lewy), a recurring annual symposium (Colloque A2MCL, now in its 7th edition), and comprehensive French-language documentation and advocacy campaigns.

Technically, A2MCL operates conventional web infrastructure: a public website, an intranet member portal (intranet.a2mcl.org), an online training platform, and a 7-day telephone helpline, with social channels on Facebook, Instagram, X, YouTube and LinkedIn. There is no disclosed proprietary technology, AI/ML, API, SDK, or mobile application in the source data. The association is led by President Philippe de Linares, with a Scientific Committee overseeing research and a board partially renewed at the May 5, 2026 General Assembly held at Hôpital Lariboisière.

The business model is donations-and-membership-based: core services (support groups, educational webinars, documentation, advocacy) are provided free of charge to members and the public. Revenue streams include membership fees, individual donations, patron/mécène contributions, likely institutional grants, and partnership-driven event revenue. The association does not sell products or charge for its core services, and there is no public pricing, revenue disclosure, or funding round history in the input data.

Name

Maladie à corps de Lewy - A2MCL

Legal name

Association des Aidants et Malades à Corps de Lewy

Website

https://a2mcl.org

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

A2MCL is a French non-profit association (loi 1901) founded in 2015 and based in Paris, dedicated to supporting patients with Lewy Body Disease, their caregivers, and healthcare professionals through education, support groups, research, and advocacy.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Individual and Family Services (6241), Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (62419)

SIC

Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYBPADAIAK

Non-Communicable Diseases (NCDs) & Mental Health Programs

Business & Public Services/International Organizations & Development/Global Health & Population Programs

SECONDARYBPAIAJAI

Non-Communicable Disease Prevention & Chronic Disease Programs

Business & Public Services/Public Sector & Government Administration/Public Health Administration & Regulation

SECONDARYHLAJANAG

Chronic Disease & NCD Program Evaluation (e.g., diabetes/CVD/cancer)

Healthcare & Life Sciences/Public Health, Government & Regulators/Health Program Evaluation & Surveillance

Keywords

• Lewy body disease support
• Patient advocacy services
• Caregiver support programs
• Neurological disease education
• Nonprofit healthcare association

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership fees and donations: The association operates on membership fees and voluntary donations from patients, caregivers, and supporters. Members can join, make donations, become patrons/mécènes, or volunteer their time.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

A2MCL is a French nonprofit association that provides support, education, advocacy, and research coordination for people affected by Lewy Body Disease and their caregivers. Its offerings include in-person support groups (Café Lewy), therapeutic workshops for caregivers (Ateliers Lewy), an annual multidisciplinary conference (Colloque A2MCL), an online training platform (Lewyformation.fr), a research observatory (L'Observatoire Lewy) running national studies, and petition-driven advocacy campaigns. These services are delivered free of charge to patients, caregivers, former caregivers, and healthcare professionals across France, where an estimated 200,000 people are affected by Lewy Body Disease.

Product overview

A2MCL (Association des Aidants et Malades à Corps de Lewy) is a French non-profit association providing a portfolio of support services, educational resources, and advocacy for people affected by Lewy Body Disease. The core offerings include Lewyformation.fr (an online training platform), L'Observatoire Lewy (a research observatory conducting national studies), Café Lewy and Ateliers Lewy (support groups and therapeutic workshops), an annual conference (Colloque A2MCL), comprehensive documentation resources, and advocacy campaigns. These services are designed for patients, caregivers, former caregivers, and healthcare professionals, with the goal of reducing medical wandering and improving care pathways for the approximately 200,000 people affected by MCL in France.

Differentiator

Problem solved

Functional benefit

Products and services

• Lewyformation.fr (Plateforme de formation en ligne sur la MCL) Online training platform dedicated to Lewy Body Disease, offering courses, webinars, and information sessions accessible to caregivers, patients, healthcare professionals, and former caregivers.
• L'Observatoire Lewy Research observatory run by A2MCL and its Scientific Committee that conducts national studies (including on the role of general practitioners in MCL patient care pathways), issues calls for research projects, and gathers data to advance understanding of Lewy Body Disease.
• Café Lewy Peer support group meetings (café-style exchanges) connecting caregivers with other caregivers and patients with other patients to share experiences and provide mutual support around Lewy Body Disease.
• Ateliers Lewy Structured therapeutic workshops (Ateliers Lewy) for caregivers that deliver training and activities to help manage the day-to-day challenges of caring for someone with Lewy Body Disease.
• Colloque annuel A2MCL Annual one-day symposium (in-person and videoconference) bringing together researchers, healthcare professionals, caregivers, and patients for round tables, experience feedback, and perspectives on living with Lewy Body Disease.
• Documentation sur la MCL French-language documentation library covering Lewy Body Disease, including brochures, scientific articles, publications, books, conference replays, and dedicated resources on diagnosis, symptoms, and treatments.
• Plaintes et plaidoyers (Advocacy Campaigns) Petition-driven advocacy campaigns (plaidoyers) aimed at ending medical wandering for the estimated 200,000 Lewy Body Disease patients in France and improving diagnosis and care pathways.

Quantifiable outcome

• 55,000+ petition signatures gathered to advocate for ending medical wandering for Lewy Body Disease patients
• +1 more outcomes

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Others

• Orphanet: European reference portal and database for rare diseases. Comparable as an information and care-coordination resource for rare-disease communities; A2MCL serves as the disease-specific community complement to Orphanet's broader database, and they are natural partners rather than competitors.

Direct peers

• ARSLA: French nonprofit supporting patients with amyotrophic lateral sclerosis (ALS) and their caregivers. Comparable as a French rare neurodegenerative disease patient/caregiver association with a similar operating model (support, advocacy, research funding).
• France Alzheimer: French national association providing support, advocacy, and education for Alzheimer's patients and caregivers under the same loi 1901 nonprofit framework. Most directly comparable peer given parallel neurodegenerative focus, identical stakeholder groups (patients, caregivers, professionals), and matching service mix (support groups, training, conferences, documentation).
• France Parkinson: French national patient and caregiver association for Parkinson's disease. Closely comparable given the well-documented diagnostic confusion between Lewy Body Disease and Parkinson's, overlapping demographic (typically elderly patients with movement and cognitive symptoms), and similar association structure, support groups, and training programs.
• Huntington France: French national association supporting Huntington's disease patients and their families. Comparable as a French rare neurodegenerative disease patient/caregiver association delivering a similar mix of support, information, advocacy, and research involvement.

Regional players

• Parkinson's UK: UK-based charity providing support, research funding, and advocacy for Parkinson's patients. Comparable by closely related disease focus and parallel service portfolio (support, training, research, advocacy) but operates in a different geography than A2MCL.
• Lewy Body Dementia Association: US-based patient advocacy organization dedicated to Lewy Body Dementia. The most directly comparable peer by disease focus, operating the same mission (support, education, research, advocacy), but serving a different geography (US vs. France) without direct competition in A2MCL's home market.

Broad incumbents

• EURORDIS - Rare Diseases Europe: European umbrella organization representing over 1,000 rare disease patient organizations across Europe. Comparable as a related advocacy body in the rare disease space; broader in scope than A2MCL but aligned in mission and a natural partner for European-level policy engagement.
• AFM-Téléthon: Major French nonprofit focused on neuromuscular diseases with the iconic annual Telethon fundraising model. Comparable in scale ambition, structure (major French nonprofit association with research and patient support programs), and disease focus on rare neurological conditions, though broader in disease scope.
• Alzheimer's Association: US-based large-scale Alzheimer's patient advocacy and research organization. Comparable as the dominant advocacy body for the closest related neurodegenerative disease, offering a relevant benchmark for program scale, fundraising sophistication, and research partnerships.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/a2mcl
• YouTubeyoutube.com/channel/UCNUds_cAWEN3hbb5p0JKa1w
• Facebookfacebook.com/a2mcl
• LinkedInlinkedin.com/company/aidantsmcl
• Instagraminstagram.com/a2mcl

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Maladie à corps de Lewy - A2MCL