ANZMES (Associated NZ ME Society Inc.)

What ANZMES (Associated NZ ME Society Inc.) does

ANZMES (Associated New Zealand Myalgic Encephalomyelitis Society Incorporated) is a registered New Zealand charity (Charity No. 30391), founded in 1980 and headquartered at 43 Princes Street, Dunedin Central, that operates as the national advisory body for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID. The organization serves four constituencies: people living with ME/CFS, their families and carers, health professionals (GPs, specialists, nurses, allied health), and ME/CFS researchers. Its core offerings are content, education, and advocacy products rather than a unified technology platform: the quarterly M.E. Time Magazine (rebranded April 2026 from 'Meeting Place'), the Know M.E. Podcast/Video Series distributed on Spotify, iHeartRadio, Apple Podcasts, and YouTube, the RNZCGP-accredited Know M.E. Clinical Education Programme for health professionals, patient information packs (notably the Long COVID Patient Information Pack launched March 2026), clinical guides (Key Red Flags for GPs, Guide to Navigating Research, DecodeME Study resources), an annual research Grants & Scholarships Programme ($25,000 grants and $10,000 scholarships), a network of affiliated support groups across New Zealand, and awareness campaigns (World ME Day on May 12, Severe ME Day on August 8).

Underlying technology is intentionally light: a WordPress-based website, an infoodle.com-hosted online membership form, a Give a Little donation integration, and standard podcast distribution channels. ANZMES does not develop proprietary technology, has no app, no public APIs, and no AI/ML systems.

The business model is a hybrid charity revenue stack rather than a conventional commercial model. Membership subscriptions at NZ$10/year standard (with $5 family and reduced rates and free memberships available) provide a small recurring base, supplemented by tax-deductible donations via bank transfer, Give a Little, payroll giving, and bequests. Ancillary revenue comes from unit-priced publications (magazine at NZ$5/issue for non-members, Long COVID pack at NZ$2.50 members / NZ$5 non-members) and the Hāpai Access Card (NZ$30 for three years). Non-monetary value is generated through advocacy alliances (founding membership in the World ME Alliance plus membership in Neurological Alliance NZ, Long COVID Alliance, Disabled Persons Assembly NZ, and Carers Alliance NZ) and NZ Lottery Grants Board funding. Go-to-market is community-led and event-driven, leveraging the support group network, annual awareness days, and CME-accredited health professional channels rather than paid acquisition. Revenue is not publicly disclosed.

Name

ANZMES (Associated NZ ME Society Inc.)

Legal name

Associated New Zealand Myalgic Encephalomyelitis Society Incorporated

Website

https://anzmes.org.nz

Company type

Private

Founded year

1980

Operating status

Operating

Headcount range

1–10 employees

Short description

ANZMES is a New Zealand registered charity, founded 1980 and headquartered in Dunedin, that serves as the national advisory body for ME/CFS and Long COVID, providing membership, clinical education, publications, research grants, and advocacy to patients, families, health professionals, and researchers.

Ownership category

akta.pro rank

Headquarters

HQ city

Dunedin

HQ country

New Zealand

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Subscriptions: Annual membership fees providing access to quarterly M.E. Time Magazine, informational resources, and support services. Standard subscription $10/year, family membership $5/year per additional member, reduced rate $5/year for those with financial constraints.
2. Donations and Bequests: Tax-deductible donations accepted via bank transfer, Give a Little platform, payroll giving, and bequests. Donations over $5 are tax deductible. Legacy gift programs through wills are also offered.
3. Publications and Information Products: Sale of publications including the quarterly M.E. Time Magazine to non-members ($5/issue), Long COVID Patient Information Pack ($2.50 members, $5 non-members), and other information sheets through the online shop.

Pricing tiers

Go-to-market motion3 records

Distribution channels5 records

Marketing channels7 records

Core offering

ANZMES provides support, information, education, advocacy, and research funding for New Zealanders affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID. Core sellable offerings include annual subscription memberships ($10/year), the quarterly M.E. Time Magazine, the digital Long COVID Patient Information Pack, the Hāpai Access Card, CME/CPD-accredited clinical education for health professionals, and an annual research grants and scholarships programme.

Product overview

ANZMES is a non-profit patient advocacy organization serving New Zealanders with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since 1980. It offers a portfolio of education, support, and advocacy services rather than a unified technology product. Core offerings include: the quarterly M.E. Time Magazine (available to members and for purchase by non-members), the Know M.E. Clinical Education Programme (CME/CPD accredited for health professionals), the Know M.E. Podcast distributed across Spotify/iHeartRadio/Apple/YouTube, Information Sheets and patient resources including the Long COVID Patient Information Pack, clinical guides such as the Key Red Flags for GPs and Guide to Navigating Research, annual World ME Day campaigns, Severe ME Day advocacy, a network of support groups, the Hāpai Access Card, and an annual Grants & Scholarships Programme funding ME/CFS research in New Zealand. Membership is available at $10/year with family and reduced-rate options.

Differentiator

Problem solved

Functional benefit

Products and services

• ANZMES Online Membership

Quantifiable outcome

• Supporting 180,000-185,000 estimated ME/CFS cases in New Zealand as of 2025
• +1 more outcomes

Named customers4 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration5 records

Partnerships

Five partnerships are on record, tiered core.

• World ME AlliancecoreStrategic or Co-development PartnerANZMES is a founding member of the World ME Alliance, a global coalition of ME organizations working to improve understanding, diagnosis, and care for people with ME/CFS worldwide. ANZMES resources are featured on the World ME Alliance Medical Education Hub.
• Neurological Alliance NZcoreStrategic or Co-development PartnerANZMES is a member of the Neurological Alliance NZ, a collective working to improve outcomes for people with neurological conditions in New Zealand.
• Long COVID AlliancecoreStrategic or Co-development PartnerANZMES is a member of the Long COVID Alliance, collaborating on advocacy and support for people affected by Long COVID and its overlap with ME/CFS.
• Disabled Persons Assembly NZcoreStrategic or Co-development PartnerANZMES is a member of the Disabled Persons Assembly NZ, advocating for the rights and access needs of people with disabilities including those with ME/CFS.
• Carers Alliance NZcoreStrategic or Co-development PartnerANZMES is a member of the Carers Alliance NZ, supporting caregivers and families of people with chronic illnesses including ME/CFS.

Scale indicators5 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• World ME Alliance: Global coalition of ME/CFS patient organisations of which ANZMES is a founding member. Operates a shared Medical Education Hub that hosts ANZMES clinical resources.
• Solve ME/CFS Initiative: US-based nonprofit organisation funding ME/CFS research and advocating for patients, with a comparable mission of research, education, and advocacy in the ME/CFS space.
• ME Association: UK-based patient charity supporting people with ME/CFS, providing information, helpline services, and political advocacy. Closest direct analogue to ANZMES in a different national market.
• Open Medicine Foundation: Global nonprofit driving ME/CFS and Long COVID research and clinician education, with overlapping interests in research funding and provider training.
• ME/CFS Research UK (DecodeME): Patient-led genetic study partner organisation that produced the world's largest genetic study of ME/CFS (15,579 participants). ANZMES now publishes DecodeME resources on its site.
• Long COVID Alliance: US-led coalition of organisations and researchers advocating for Long COVID patients, with significant overlap with ME/CFS — ANZMES is a member.

Regional players

• Long COVID Support Aotearoa: New Zealand-based Long COVID patient support organisation. Operates in the same geography as ANZMES with a closely related but distinct patient population.

Others

• Royal New Zealand College of General Practitioners (RNZCGP): Professional body through which ANZMES is registered as a CME/CPD provider. Enables ANZMES to deliver accredited education to GPs — a critical channel for clinical influence.

Broad incumbents

• Disabled Persons Assembly NZ: New Zealand's national disability rights organisation. ANZMES is a member; DPA operates a broader disability mandate with advocacy, policy, and membership infrastructure.
• Carers Alliance NZ: Coalition supporting unpaid carers in New Zealand. ANZMES participates via this alliance, addressing the family/carer segment of its ME/CFS community.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCoHPLvzmvhutN-qVEW32WgA
• Facebookfacebook.com/cfs.anzmes
• LinkedInlinkedin.com/company/anzmes

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about ANZMES (Associated NZ ME Society Inc.)