Netherlands Autism Register (NAR)

Name

Netherlands Autism Register (NAR)

Website

https://autismeregister.nl

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

The Netherlands Autism Register (NAR) is an Amsterdam-based non-profit founded in 2013 that operates a national registry collecting longitudinal data from autistic individuals and families in the Netherlands to support autism research, staffed by a team of six.

Ownership category

akta.pro rank

Product category

Health Research Registry

NAICS

Other Services (except Public Administration) (81)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Autism Diagnostic & Educational Assessment Services (EDAKAKAA)

akta.pro secondary industry

Autism Early Intervention (Educational) (EDAKAKAB)

Keywords

• Autism research registry
• Clinical data collection
• Patient registry services
• Autism prevalence research
• Health data research

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Infrastructure, Others

Core offering

The Netherlands Autism Register (NAR) is a non-profit organization that maintains a registry collecting data on individuals with autism and their families across the Netherlands. The register aggregates longitudinal self-reported and proxy-reported information to support scientific research into the lives, needs, and outcomes of autistic individuals. Data is gathered to enable researchers, policymakers, and advocacy organizations to better understand autism prevalence, comorbidities, and quality-of-life factors.

Differentiator

Problem solved

Functional benefit

Products and services

• Netherlands Autism Register (NAR) Data Registry

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Direct peers

• Autistica: UK autism research non-profit funding and aggregating research. Comparable to NAR as a country-level research-focused non-profit driving autism science forward.
• Autism Research Institute: A US-based non-profit focused on autism research and data collection. Comparable to NAR as a long-running research-focused organization that aggregates information to advance understanding of autism.
• Organization for Autism Research (OAR): US non-profit that funds and disseminates autism research. Comparable to NAR's research-focused mission within a national scope.
• Autism-Europe: European-level umbrella organization representing people with autism and their families. Comparable to NAR in advocating and coordinating autism initiatives across the European continent.
• Interactive Autism Network (IAN): An online registry connecting autism families with researchers, operated by the Kennedy Krieger Institute. Directly comparable to NAR as a national-scale autism participant registry feeding research.

Broad incumbents

• National Autistic Society: The UK's leading autism charity, much larger than NAR. Comparable as a long-established national autism non-profit, though broader in scope (services + advocacy + research).
• Autism Society of America: One of the oldest autism non-profits in the US. Comparable to NAR as a national-scale autism organization, although broader in scope than a pure research register.
• Simons Foundation Autism Research Initiative (SFARI): A major autism research funding and data platform. Comparable to NAR in driving autism science, but with far greater scale and resources.

Market position

Customer concentration

• LinkedInlinkedin.com/company/nederlands-autisme-register

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Netherlands Autism Register (NAR)