Nationaal AYA 'Jong & Kanker' Zorgnetwerk

What Nationaal AYA 'Jong & Kanker' Zorgnetwerk does

Nationaal AYA 'Jong & Kanker' Zorgnetwerk, recently rebranded to AYA Zorg Nederland, is a Dutch national non-profit network that coordinates specialized oncology care for Adolescents and Young Adults (AYA) aged 18-39 with cancer. Founded in 2013 and headquartered at Plesmanlaan 121 in Amsterdam, the organization operates as the unifying infrastructure connecting six regional AYA healthcare structures across the Netherlands. Its institutional anchors are the eight Dutch University Medical Centers (UMCs) and the Antoni van Leeuwenhoek ziekenhuis (AVL), with additional integration into primary and secondary care networks.

The network's core offerings are built around three proprietary frameworks. The AYA-anamnese is an 18-theme structured diagnostic conversation tool used clinically to surface the age-specific needs of young cancer patients. AYA Kompas is a patient-facing information package — described as "reisinformatie" — that supports AYAs through their care journey. The AYA Zorg Academy is an educational program that trains healthcare professionals to deliver AYA-tailored care. These tools function as codified clinical and educational IP rather than software products. The network also co-organizes the SPACE4AYA international congress with Stichting Jongeren en Kanker, positioning itself as a convening authority in the field.

As a non-profit, AYA Zorg Nederland does not generate revenue through commercial pricing; its operations are sustained through the Dutch healthcare system, institutional contributions from its UMC and AVL partners, and donor support including involvement with KWF Kankerbestrijding. Distribution and patient reach are reinforced through integration with the Verwijsgids Kanker referral directory and the patient advocacy community. The organization employs approximately 19 people and operates without disclosed funding rounds, M&A activity, or commercial AI/ML capability, functioning structurally as a coordinating backbone for AYA oncology care in the Netherlands rather than as a commercial enterprise.

Name

Nationaal AYA 'Jong & Kanker' Zorgnetwerk

Legal name

Nationaal AYA 'Jong & Kanker' Zorgnetwerk

Website

https://ayazorgnetwerk.nl

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

AYA Zorg Nederland is a Dutch national non-profit network coordinating specialized oncology care for Adolescents and Young Adults (ages 18-39) with cancer across six regional structures anchored by Dutch UMCs and AVL.

Ownership category

akta.pro rank

Product category

Adolescent and Young Adult Oncology Care Network

NAICS

Ambulatory Health Care Services (621), General Medical and Surgical Hospitals (6221)

SIC

Services-Hospitals (8060), Services-Specialty Outpatient Facilities, Nec (8093)

akta.pro primary industry

Oncology Remote Symptom Monitoring & Care Navigation (HLALAFAD)

akta.pro secondary industry

Clinical & Translational Informatics (Clinical Data Integration/Real-World Data for R&D) (HLAGAJAF)

Keywords

• Adolescent oncology care
• Cancer care network
• Clinical assessment tools
• Healthcare professional training
• Young adult cancer support

Headquarters

HQ city

Amsterdam

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Healthcare System Funding: As a national healthcare network in the Netherlands, AYA Zorg Nederland operates within the Dutch healthcare system, providing specialized oncology care services for adolescents and young adults. Funding is derived from healthcare system mechanisms rather than direct patient billing.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

AYA Zorg Nederland coordinates a national network that delivers age-appropriate cancer care for adolescents and young adults (18-39) across six regional healthcare structures in the Netherlands. Its central deliverable is the AYA-anamnese, a proprietary structured clinical assessment covering 18 life themes, complemented by the AYA Kompas information package for newly diagnosed patients and the AYA Zorg Academy education program for clinicians.

Product overview

AYA Zorg Nederland operates as a national healthcare network focused on providing specialized, age-appropriate care for young adults aged 18-39 diagnosed with cancer. The organization offers a coordinated platform of products and services including the AYA-anamnese (a diagnostic tool covering 18 life themes), the AYA Kompas (post-diagnosis information package), and the AYA Zorg Academy (professional education programs). The network connects healthcare providers across 6 regions in the Netherlands to ensure consistent, comprehensive care that addresses not only the tumor but also the broader life impact of cancer on young adults.

Differentiator

Problem solved

Functional benefit

Products and services

• AYA-anamnese

Quantifiable outcome

• AYA's have higher chance of hospitalization later in life compared to peers without cancer (late effects research)

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Three partnerships are on record, tiered core.

• Verwijsgids KankercoreStrategic or Co-development PartnerStrategic referral partnership with Verwijsgids Kanker, a healthcare professional directory. AYA-trained professionals are separately listed in this directory, facilitating referrals and collaboration among healthcare providers.
• Stichting Jongeren en Kanker (Jongeren en Kanker Foundation)coreStrategic or Co-development PartnerPartnership for peer support (lotgenotencontact), connecting AYAs with others who have experienced cancer at a young age. Provides emotional support and shared experiences for young adults with cancer.
• University Medical Centers (UMCs) and Antoni van Leeuwenhoek ziekenhuis (AVL)coreStrategic or Co-development PartnerRegional healthcare network anchored by UMCs and AVL as knowledge centers, with surrounding general hospitals and primary care providers forming the 6 regional healthcare structures across the Netherlands.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• CanTeen Australia: Australian organization supporting young people (12-25) affected by cancer, providing peer support, advocacy, and care coordination. Comparable mission and AYA-focused service model, though operating in a different geography.
• Teenage Cancer Trust: UK charity dedicated to improving cancer care for teenagers and young adults. Directly comparable to AYA Zorg Nederland as both operate national networks providing age-specific oncology care, peer support, and professional education for the AYA population.
• Young Adult Cancer Canada: Canadian charity supporting young adults (15-39) with cancer through peer connection, resources, and education. Comparable AYA-focused mission and non-profit network model.
• Stupid Cancer: US non-profit focused on young adults affected by cancer, providing advocacy, community, and resources. Comparable AYA-focused mission with similar age range and support services.
• Stichting Jongeren en Kanker: Dutch foundation specifically for young adults with cancer, providing peer support and connection. Direct peer in the same Dutch market and same AYA population, and listed as an explicit partner of AYA Zorg Nederland.

Broad incumbents

• KWF Dutch Cancer Society: Dutch national cancer research and support organization funding research, prevention, and patient support across all cancer types. Comparable as a Dutch cancer non-profit, but broader in scope than AYA-specific care coordination.
• Macmillan Cancer Support: Large UK cancer support charity covering all age groups with broad services including financial, emotional, and clinical support. Comparable as a cancer-focused non-profit but covers a much wider population than AYAs specifically.

Others

• European Cancer Organisation: Pan-European umbrella organization covering all cancer types and age groups, including policy and quality initiatives. Adjacent ecosystem participant with potential to influence AYA-specific standards across Europe.

Regional players

• Princess Máxima Center: Dutch pediatric oncology center (0-18). Adjacent in serving young cancer patients in the Netherlands, but focused on children/adolescents rather than the 18-39 AYA population that AYA Zorg Nederland targets.

Emerging players

• AYA Cancer Alliance: US-based coalition focused on improving AYA oncology care through collaboration across institutions. Comparable focus on AYA-specific oncology quality frameworks, though operating at a coalition rather than direct-care level.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/ayazorgnetwerk

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Nationaal AYA 'Jong & Kanker' Zorgnetwerk