BRCA-Netzwerk e.V. - Hilfe bei familiären Krebserkrankungen

What BRCA-Netzwerk e.V. - Hilfe bei familiären Krebserkrankungen does

BRCA-Netzwerk e.V. is a German non-profit self-help organization (eingetragener Verein) founded in 2010 and headquartered at Thomas-Mann-Str. 40, 53111 Bonn, inside the Haus der Krebs-Selbsthilfe building. It is the designated national self-help federation for people affected by hereditary cancer risks in Germany, serving three principal constituencies: previvors carrying mutations such as BRCA1, BRCA2, Lynch syndrome and other risk genes; individuals diagnosed with familial breast, ovarian, colorectal, prostate, pancreatic, or gastric cancer; and family members navigating hereditary risk communication and decisions. Core service offerings include nationwide in-person Gesprächskreise (discussion circles), virtual peer-support groups hosted on GoToMeeting and Zoom, a TYPO3-hosted website with extensive informational content, a podcast series ("Familiensache Krebs") distributed via Podigee, information films including a 45-minute documentary, a free brochure and decision-aid library, the ANSICHTSSACHE photo book and traveling exhibition, an annual newsletter, and the Aktionswoche Vererbbarer Krebs awareness week coordinated with the US FORCE Hereditary Cancer Week.

The organization employs approximately 5 staff, operates with volunteer-led local discussion circles across all German states, and is governed by a board chaired by Traudl Baumgartner with Steffi Stegen as second chair, Anne Müller as board member, and Ursel Wirz as Geschäftsführerin. Its revenue model is non-commercial: services are provided free of charge, and funding is derived primarily from a Deutsche Krebshilfe grant, supplemented by individual membership fees, public donations, and partnerships with national self-help umbrella organizations including Haus der Krebs-Selbsthilfe – Bundesverband e.V., BAG SELBSTHILFE e.V., and SPiG. The organization holds a formal patient-representation seat on the Deutsches Konsortium Familiärer Brust- und Eierstockkrebs and other scientific and political advisory bodies, giving it a governance role in the German hereditary-cancer care ecosystem that goes beyond direct service delivery.

The go-to-market motion is community-led: BRCA-Netzwerk acquires affected individuals through organic social media (Facebook, YouTube, Instagram, LinkedIn), educational content marketing, podcast distribution, awareness weeks, press releases, and word-of-mouth from clinical referrals. The value proposition is built on independence from commercial interests, peer empathy, and the credibility conferred by Deutsche Krebshilfe funding and federated membership. The organization is GDPR-compliant, processes personal data via a contracted data protection officer at dhpg IT-Services GmbH, and has concluded standard contractual clauses with Zoom to address US data-transfer requirements.

Name

BRCA-Netzwerk e.V. - Hilfe bei familiären Krebserkrankungen

Legal name

BRCA-Netzwerk e.V.

Website

https://brca-netzwerk.de

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

BRCA-Netzwerk e.V. is a German non-profit self-help organization delivering independent information, peer support, and patient advocacy for individuals and families affected by hereditary cancer risks, including BRCA1 and BRCA2 mutations. It operates nationwide through discussion groups, podcasts, and educational content, primarily funded by Deutsche Krebshilfe.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Other Individual and Family Services (62419), Individual and Family Services (6241)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Health Services (8000)

akta.pro primary industry

Maternal, Child & Family Health Organizations (BPAGACAF)

Keywords

• Hereditary cancer support
• Patient advocacy services
• Genetic cancer counseling
• Self-help organization
• Cancer peer support

Headquarters

HQ city

Bonn

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Fees: The organization generates revenue through membership fees from individuals who join the association.
2. Donations and Grants: BRCA-Netzwerk e.V. is funded by donations from the public and receives grants from the Deutsche Krebshilfe (German Cancer Aid), as evidenced by the funding statement on the website footer.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels8 records

Core offering

BRCA-Netzwerk e.V. is a registered non-profit self-help association that supports individuals and families affected by hereditary cancer, particularly BRCA-related breast and ovarian cancer. It provides independent information, peer-to-peer counseling, regional and online support groups, and advocates for the interests of previvors, patients, and relatives within the German healthcare system.

Product overview

BRCA-Netzwerk e.V. is a non-profit self-help organization (Bundesverband der Krebsselbsthilfe bei familiären Krebserkrankungen) providing independent information, exchange, and support for people with hereditary cancer risk. The organization operates as a unified service offering rather than a product portfolio, combining online and offline support services including discussion groups (Gesprächskreise), online discussion groups, educational podcasts, information films, publications, patient representation, and a traveling photo exhibition.

Differentiator

Problem solved

Functional benefit

Brands

• Familiensache Krebs Podcast: Podcast on hereditary cancer - Krauts is a long-standing topic in families: coincidence or are the genes behind it? We clarify and show why coincidence and genetics make a difference.

Products and services

• Peer Support Groups
• Educational Information & Counseling Referrals
• BRCA-Netzwerk Podcast
• Online Video Counseling & Meetings
• Patient Advocacy & Public Representation

Quantifiable outcome

• Funded by Deutsche Krebshilfe and embedded as patient representative in scientific and political advisory bodies

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration4 records

Feature3 records

Partnerships

Seven partnerships are on record, tiered core and minor.

• Deutsche Krebshilfe (German Cancer Aid)coreStrategic or Co-development PartnerDeutsche Krebshilfe is the primary funder of BRCA-Netzwerk e.V., providing financial support that enables the organization to operate and expand its services. This funding relationship is a core pillar of the organization's operational sustainability.
• Haus der Krebs-Selbsthilfe - Bundesverband e.V.coreStrategic or Co-development PartnerBRCA-Netzwerk e.V. is a member of the Haus der Krebs-Selbsthilfe (House of Cancer Self-Help - National Federation), the umbrella organization for cancer self-help groups in Germany. The network is headquartered in the Haus der Krebs-Selbsthilfe building in Bonn.
• BAG SELBSTHILFE e.V.coreStrategic or Co-development PartnerBRCA-Netzwerk e.V. holds a membership in BAG SELBSTHILFE e.V. (Federal Working Group Self-Help), the Dachverband of self-help groups in Germany, representing the interests of people with chronic diseases and disabilities.
• Netzwerk Selbsthilfefreundlichkeit und Patientenorientierung im Gesundheitswesen (SPiG)minorStrategic or Co-development PartnerBRCA-Netzwerk e.V. is a member of the SPiG network, which promotes self-help friendliness and patient orientation in the healthcare system.
• Deutsches Konsortium Familiärer Brust- und Eierstockkrebs (German Consortium for Familial Breast and Ovarian Cancer)coreStrategic or Co-development PartnerBRCA-Netzwerk e.V. collaborates closely with the German Consortium for Familial Breast and Ovarian Cancer, a network of specialized centers across Germany. The organization is involved as a patient representative in the consortium's scientific and advisory activities.
• Krebsinformationsdienst (KID) / Deutsches KrebsforschungszentrumcoreStrategic or Co-development PartnerThe Krebsinformationsdienst (Cancer Information Service) of the German Cancer Research Center provides a chat service for cancer-related questions. BRCA-Netzwerk references and links to this service, and they have collaborated on educational materials about hereditary cancer.
• Frauenselbsthilfe nach Krebs (Breast Cancer Self-Help Forum)minorChannel Partner/ Reseller/ DistributorBRCA-Netzwerk supports the forum of Frauenselbsthilfe nach Krebs (Breast Cancer Self-Help After Cancer), referring members to their discussion boards for additional peer support. The organization maintains a linked discussion board within the Frauenselbsthilfe forum.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• FORCE (Facing Our Risk of Cancer Empowered): US-based national nonprofit dedicated to individuals and families affected by hereditary breast, ovarian, and related cancers (BRCA and Lynch). Directly comparable as a hereditary-cancer-focused self-help/advocacy organization, and explicitly cited as BRCA-Netzwerk's international alignment partner via the joint Hereditary Cancer Week initiative.
• Bright Pink: US nonprofit focused on prevention and early detection of breast and ovarian cancer in high-risk young women, including previvors with BRCA mutations. Directly comparable mission (empowering high-risk/previvor women through education and community support) and a similar non-clinical, community-led GTM motion.
• Pink Hope: Australian nonprofit supporting families at high risk of hereditary breast and ovarian cancer. Comparable in scope (BRCA-focused education, peer support, and advocacy) and target audience, but operates primarily in Australia rather than Germany.
• Lynch Syndrome UK: UK charity providing information, peer support, and advocacy for people with Lynch syndrome and other hereditary cancer predispositions. Comparable peer because it addresses the same hereditary-cancer self-help/advocacy niche — covering genetic risk, screening, prevention, and family communication — as BRCA-Netzwerk does in Germany.

Others

• Krebsinformationsdienst (KID), Deutsches Krebsforschungszentrum: German Cancer Research Center's cancer information service providing evidence-based information to patients and relatives via phone, email, and chat. A reference partner of BRCA-Netzwerk; comparable as an information provider serving the same hereditary-cancer audience, though operated as a government-funded research institute rather than a patient-led self-help association.
• Deutsche Krebshilfe: Germany's leading non-governmental funder of cancer research, prevention, and patient-support projects. BRCA-Netzwerk's primary funder; comparable as a German cancer ecosystem stakeholder but operates as a funding umbrella rather than a direct service/peer-support provider.
• Haus der Krebs-Selbsthilfe – Bundesverband e.V. National umbrella federation for cancer self-help organizations in Germany, of which BRCA-Netzwerk is a member and co-located tenant in Bonn. Comparable as a cancer self-help ecosystem coordinator, but functions as an umbrella body rather than a hereditary-cancer-specific service provider.

Broad incumbents

• Living Beyond Breast Cancer: US nonprofit providing education, peer support, and resources to people affected by breast cancer, including those with hereditary risk. Comparable in mission and community-led delivery model, though broader in scope (all breast cancer, not exclusively hereditary) and US-focused.
• Frauenselbsthilfe nach Krebs (FSH): Germany's largest cancer self-help organization, addressing multiple cancer types rather than hereditary cancer specifically. BRCA-Netzwerk already operates a linked discussion board inside the FSH forum and refers members there; FSH is a broader incumbent in the German cancer self-help space within which BRCA-Netzwerk occupies a hereditary-cancer niche.

Regional players

• Pink Ribbon Deutschland: German breast cancer awareness and support initiative focused on awareness, education, and patient empowerment in Germany. Comparable regional peer in the German breast-cancer support ecosystem, but addresses general breast cancer rather than hereditary/familial risk specifically.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCFQElGCWOZWtM1DF4lG3jyQ
• Facebookfacebook.com/brcanetzwerk
• LinkedInlinkedin.com/company/brca-netzwerk
• Instagraminstagram.com/brca_netzwerk

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about BRCA-Netzwerk e.V. - Hilfe bei familiären Krebserkrankungen