Name

Burning Nights CRPS Support

Legal name

Burning Nights CRPS Support

Website

https://burningnightscrps.org

Company type

Private

Founded year

2016

Operating status

Operating

Headcount range

11–50 employees

Ownership category

akta.pro rank

Product category

Chronic Pain Patient Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300)

akta.pro primary industry

Peer Support, Recovery Coaching & Sober Living Services (HLAFACAN)

Keywords

• Chronic pain support
• CRPS patient services
• Peer support groups
• Counselling and befriending
• Health charity advocacy

Headquarters

HQ city

Chinley, High Peak

HQ country

United Kingdom

HQ region

Europe

Offices4 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: Primary revenue source through online donations, monthly giving, text-to-donate, payroll giving, Facebook birthday fundraisers, and fundraising events. Includes corporate partnerships and charitable trusts and foundations.
2. Membership Subscriptions: Annual membership providing exclusive benefits including members-only webinar recordings, The Warriors Lifeline magazine, quarterly fireside chats, and early access to research opportunities.
3. Shop Sales: Sale of CRPS awareness merchandise including clothing, accessories, Christmas cards, information leaflets, self-care packs, and downloadable resources.
4. Legacies and In Memory Donations: Legacy giving programme allowing supporters to remember the charity in wills, plus in-memory donation options for commemorations.

Pricing tiers

Go-to-market motion1 record

Distribution channels8 records

Marketing channels8 records

Core offering

Burning Nights CRPS Support is a UK-registered patient-led charity that delivers free support services to people affected by Complex Regional Pain Syndrome (CRPS) and their families. Its core offerings include a helpline, live web chat, email support, online and face-to-face peer support groups, free counselling and psychotherapy, a virtual befriending service, an online community forum, an annual membership programme with exclusive content, an annual national CRPS conference, CRPS awareness training for healthcare professionals, and an online shop selling CRPS awareness merchandise and self-care packs.

Product overview

Burning Nights CRPS Support is a UK-wide, patient-led charity offering a comprehensive suite of support services and educational resources for those affected by Complex Regional Pain Syndrome. The organization's core offerings include information and education resources about CRPS (covering symptoms, treatments, diagnosis, and management), multiple support channels (helpline, live chat, email support), peer support groups (both online via Zoom and face-to-face), counselling and therapy services, and a virtual befriending service. The charity also provides membership programs with exclusive webinars, publications, and resources; CRPS awareness campaigns; fundraising events; an online merchandise shop; a legal panel; research participation opportunities; and an online community forum. The organization is distinguished by its patient-led approach, with volunteers who themselves live with CRPS or care for someone with the condition.

Differentiator

Problem solved

Functional benefit

Products and services

• Helpline Support Service Free telephone helpline offering emotional support, CRPS information, and signposting for patients, families, and caregivers. Available via 01663 795055.
• Live Chat Support Service Free and confidential live web chat support staffed by volunteers with lived CRPS experience, providing evidence-based information on living with CRPS, treatments, and specialist care.
• Online Support Groups Regular online peer support group sessions via Zoom, enabling CRPS patients, carers, families and friends to connect, share experiences and provide mutual support from home.
• Face-to-Face Support Groups In-person CRPS support groups in Manchester, Central London, and the Bristol/Bath area, currently suspended with plans to resume and expand to Gatwick, Leicester and Sheffield.
• CRPS Counselling and Therapy Service Free counselling and psychotherapy service for adults, children, and families affected by CRPS, providing emotional and psychological support.
• Virtual Befriending Service Befriending service that pairs CRPS-affected individuals with trained volunteers to reduce loneliness and isolation.
• Online Community Forum 24/7 moderated digital community platform enabling CRPS patients, families and caregivers to connect, share experiences, seek advice and support each other.
• Annual Membership Programme Annual paid membership providing CRPS members card, access to members-only webinar recordings, quarterly online Members' Fireside Chats, two editions yearly of The Warriors Lifeline magazine, early research opportunities, and exclusive resources.
• Annual National CRPS Conference Annual conference bringing together CRPS patients, caregivers, healthcare professionals and researchers for education, networking and awareness raising.
• CRPS Information and Education Resources Comprehensive educational resources covering what CRPS is, its types, symptoms, causes, diagnosis and treatments (physiotherapy, medications, nerve blocks, neuromodulation, neurostimulation, Calmare therapy, psychological therapies, alternative therapies, sympathectomy, diets).
• CRPS Education Webinars Educational webinar series featuring leading pain specialists, researchers and healthcare professionals, covering CRPS treatments, disability aids, sleep hygiene, neurodiversity, NHS navigation, carer support and related topics.
• CRPS Awareness Training for Healthcare Professionals Awareness training sessions for doctors, pain specialists, physiotherapists, occupational therapists and other healthcare professionals on CRPS, patient experience, and condition management.
• CRPS Awareness Merchandise Shop Online shop selling CRPS awareness merchandise (clothing, accessories, Christmas cards, leaflets, wristbands, badges, home collection boxes) and curated self-care packs (Phoenix for Adults, Sunflower for Teens, Sunshine for Children), plus downloadable resources.
• CRPS Legal Panel Directory of law firms with experience handling CRPS-related legal claims, connecting patients with appropriate legal representation.
• Research Study Opportunities Database Curated database of CRPS clinical trials and research study opportunities, plus sign-up to research opportunities news for patients who want to participate in studies.
• CRPS Awareness Campaign Programme Awareness programme including CRPS Awareness Month, awareness talks, public campaigns, and an MP contact programme to raise public and policymaker understanding of CRPS.

Quantifiable outcome

• Free counselling and psychotherapy services for adults, children and families
• +2 more outcomes

Named customers5 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Ten partnerships are on record, tiered minor.

• Patient WorthyminorGTM or Marketing PartnerBurning Nights CRPS Support is a Partner of Patient Worthy, an online publication providing news, information and support for people with rare conditions including CRPS.
• Benefits and WorkminorStrategic or Co-development PartnerBurning Nights CRPS Support is a professional member of Benefits and Work, an organisation providing specialist guides to claiming disability benefits including DLA, PIP, ESA.
• Ingham Graham Wealth Management LtdminorOthersPartner Practice of St. James Place providing financial advice services. Listed as a partner for finance-related support resources.
• Abbey Therapy PracticeminorStrategic or Co-development PartnerSamantha Denney at Abbey Therapy Practice is a verified and fully registered UK SFTR CBT therapist and fellow CRPS sufferer. Contact is recommended by the charity for counselling services.
• Medico-Legal AssociatesminorStrategic or Co-development PartnerMedico-legal firm working with leading experts in Pain and Anaesthesia, experienced in handling CRPS cases. Dr C. Jenner is a CRPS specialist.
• Fiona Ashworth, BarristerminorOthersBarrister at Kings Chambers, Manchester, Leeds and Birmingham, specialising in chronic pain conditions like CRPS for over 10 years. Also serves as the charity's Patron.
• Leva ClinicminorStrategic or Co-development PartnerPrivate pain and cannabis clinic partnered with Burning Nights for a webinar on medical cannabis for CRPS. Provides medical cannabis prescriptions for chronic pain patients.
• Irwin Mitchell SolicitorsminorStrategic or Co-development PartnerManchester-based law firm that provided office space for the charity's first CRPS support group held 4th March 2016 at their Manchester City Centre offices.
• CRPS UK NetworkminorStrategic or Co-development PartnerGroup of health professionals and researchers interested in Complex Regional Pain Syndrome with information for both patients and healthcare professionals.
• RSDSAminorStrategic or Co-development PartnerAmerican charity for CRPS established over 40 years ago. Resource for USA and worldwide patients affected by CRPS, formerly known as Reflex Sympathetic Dystrophy (RSD).

Scale indicators4 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Versus Arthritis: Large UK charity covering musculoskeletal conditions including chronic pain. Broad incumbent in the chronic pain patient-support and research space, overlapping with Burning Nights' fundraising pool and volunteer base.
• Carers Trust: Major UK charity supporting unpaid carers. Comparable through Burning Nights' families/carers/caregivers segment, with overlap in caregiver support, respite-adjacent services and carer wellbeing content.
• Mind: Large UK mental health charity. Comparable through Burning Nights' counselling, befriending and psychological support services for people affected by chronic pain, with overlapping peer-support and helpline operating models.
• Pain UK: UK umbrella alliance of chronic pain charities. Broad incumbent representing and convening pain-focused charities; comparable through shared chronic-pain patient audience and policy advocacy.

Others

• Benefits and Work: UK specialist publisher of disability benefits guides. Burning Nights is a professional member; comparable as an ecosystem partner helping CRPS patients navigate PIP/DLA/ESA benefits and disability support.

Direct peers

• CRPS UK Network: UK group of health professionals and researchers focused on CRPS, providing information for patients and professionals. Direct peer in CRPS-specific awareness, education and patient engagement.
• RSDSA (Reflex Sympathetic Dystrophy Syndrome Association): American CRPS/RSD charity established over 40 years ago. Direct peer in the same patient-led, condition-specific support and awareness mission; Burning Nights lists RSDSA as a strategic partner.

Regional players

• Rare Diseases UK: UK national alliance for people with rare diseases. Comparable as a UK-based rare-condition umbrella providing policy advocacy and patient community building relevant to CRPS as a rare condition.
• Chronic Pain Australia: Australian chronic pain patient advocacy and support organisation. Comparable patient-led peer-support and education model, serving a distinct geography but with overlapping chronic pain support mission.

Emerging players

• The Pain Toolkit: UK-based chronic pain self-management resource and social enterprise. Comparable in providing self-management, education and peer support for chronic pain patients, though less condition-specific.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/BNightsCRPS
• YouTubeyoutube.com/channel/UCkf0h_qXXz8VY3Gq2xJyy_A
• Facebookfacebook.com/chronicpainCRPS
• LinkedInlinkedin.com/company/burning-nights-crps-support
• Instagraminstagram.com/burningnightscrps
• Pinterestpinterest.co.uk/bncrps
• TikToktiktok.com/@burningnightscrps

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Burning Nights CRPS Support