Consejo Estatal sobre Deficiencias en el Desarrollo (CEDD)

What Consejo Estatal sobre Deficiencias en el Desarrollo (CEDD) does

CEDD (Consejo Estatal sobre Deficiencias en el Desarrollo / State Council on Developmental Disabilities) is an autonomous government council of the Puerto Rico government, established under Federal Law 106-402 — the Developmental Disabilities Assistance and Bill of Rights Act of 2000 — as the federally designated state council on developmental disabilities for the jurisdiction. Its mission is to advance the independence, productivity, inclusion, and integration of people with intellectual and developmental disabilities (I/DD) and their families. The council is composed primarily of councilors with lived experience, with 70% of seats held by persons with developmental disabilities, family members, or representatives; operational administration is handled by a small staff (~6-7 people) under Executive Director Liz M. Candelario García, with the Department of Economic Development and Commerce (DDEC) providing fiscal, legal, HR, and information-systems support since 2022.

CEDD does not develop or sell technology products or commercial services. Its core "offerings" are: a grant program distributing approximately $2.5 million per year sourced from a recurring U.S. Department of Health and Human Services (HHS) federal grant; a directory of over 90 Puerto Rico disability-serving organizations; a research publication set (transportation, employment, case management, public policy); the monthly CEDD Informa newsletter; the weekly podcast "Rompiendo Barreras, Nuestro Próximo Paso" (Spotify, Apple Podcasts, Amazon Music); a TV program; educational workshops on digital accessibility, Medicaid exemptions, and disability rights; video testimonials; and an Emergency Registration system shared with municipal emergency management. The 2022-2026 Five-Year State Plan mandates allocation of 70% of the budget to community integration projects.

The business model is single-source grant funding: CEDD receives ~$2.5M annually from HHS, of which 70% is passed through to sub-grantees (e.g., Puerto Rican Epilepsy Society, Institute for Developmental Disabilities (IDD/UCEDD), MAVI, Puerto Rico Paralympic Committee, Modesto Gotay Foundation, Compass Consulting Group, Lily's Angels Down Syndrome Awareness Foundation, Global Innovation Learning Services, Autonomous Municipality of Cidra) that deliver projects aligned with the state plan. There is no pricing model, no customer billing, and no GTM motion in the commercial sense. CEDD's primary go-to-market is a community-led, government-council model: open grant RFPs, multi-channel content distribution, and coalition engagement with the Puerto Rico disability community. Following three years of HHS oversight, CEDD was released from high-risk status effective October 1, 2024.

Name

Consejo Estatal sobre Deficiencias en el Desarrollo (CEDD)

Legal name

Consejo Estatal sobre Deficiencias en el Desarrollo (CEDD)

Website

https://cedd.pr.gov

Company type

Private

Founded year

1971

Operating status

Operating

Headcount range

1–10 employees

Short description

CEDD is Puerto Rico's federally mandated state council on developmental disabilities under Law 106-402, distributing an annual ~$2.5M HHS grant and operating a directory of 90+ disability-serving organizations, content channels (newsletter, podcast, TV, workshops), research publications, and an emergency registration system for people with I/DD and their families.

Ownership category

akta.pro rank

Product category

Disability Advocacy and Grant Services

NAICS

Grantmaking and Giving Services (81321), Voluntary Health Organizations (813212), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)

SIC

Services-Educational Services (8200)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Special Education, Disability Support & Inclusive Education Nonprofits (BPAGADAH), Disability Employment & Vocational Rehabilitation (VR) Programs (EDAAAOAI), Behavioral & Social-Emotional Support (ABA, PBIS, Counseling) (EDAJAKAE)

Keywords

• Disability advocacy services
• Developmental disabilities funding
• Grant-making programs
• Disability resource directory
• Community inclusion programs

Headquarters

HQ city

San Juan

HQ country

Puerto Rico

HQ region

Latin America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Others, Personnel, Operations, Technology or R&D

Revenue model

1. Federal Government Grant: CEDD receives an annual grant of approximately $2.5 million from the Department of Health and Human Services (HHS) to fund projects and initiatives for people with intellectual and/or developmental disabilities. The organization allocates 70% of its budget to projects promoting independence, productivity, inclusion, and integration of people with disabilities in their communities.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels6 records

Core offering

CEDD is a Puerto Rico government council that administers an annual federal grant of approximately $2.5 million from the U.S. Department of Health and Human Services, disbursing seed funding to agencies, non-profits, businesses, and municipal governments for projects that promote the independence, productivity, inclusion, and integration of people with intellectual and developmental disabilities (I/DD). Beyond grant-making, CEDD maintains a directory of 90+ Puerto Rico disability-serving organizations and produces educational content (newsletter, weekly podcast, TV program, workshops, research publications) and operates a voluntary emergency registration system for people with developmental disabilities.

Product overview

CEDD (Consejo Estatal sobre Deficiencias en el Desarrollo) is a government council in Puerto Rico that operates as an information and advocacy platform rather than a traditional technology product company. CEDD does not provide direct services but collaborates with agencies, businesses, and non-profit organizations to fund impactful projects. The organization's primary offerings include: the monthly 'CEDD Informa' newsletter, the 'Rompiendo Barreras, Nuestro Próximo Paso' podcast distributed via Spotify/Apple Podcasts/Amazon Music, educational workshops, research publications, an entity directory, grant funding programs (approximately $2.5 million annually), and an emergency registration system for people with disabilities.

Differentiator

Problem solved

Functional benefit

Products and services

• Programa de Subvenciones (Grant Program) Annual competitive grant program distributing approximately $2.5 million of federal HHS funding to individuals, public entities, and private entities (agencies, non-profits, businesses, and municipalities) developing projects aligned with CEDD's five-year State Plan areas of emphasis for the Puerto Rico I/DD community.
• Talleres Informativos (Educational Workshops) Educational workshops covering digital accessibility, healthy communities, Medicaid exemptions, social security, disability rights, public policy, housing, and other topics relevant to people with developmental disabilities, their families, and service providers in Puerto Rico.
• Investigaciones (Research Publications) CEDD-funded research publications providing information about the population with intellectual and developmental disabilities in Puerto Rico, including studies on transportation needs, case management system feasibility, sustained employment, and public policy for children with special needs.
• Directorio de Entidades (Entity Directory) Comprehensive directory of more than 90 government and non-profit organizations that support people with intellectual and developmental disabilities in Puerto Rico.
• Registro de Emergencias para Personas con Discapacidades (Emergency Registration) Voluntary, private, and secure registration system that identifies and supports people with developmental disabilities during natural disasters and emergencies, with data shared with municipal emergency management entities.
• CEDD Informa (Boletín Mensual) Free monthly email newsletter produced by CEDD featuring original articles on disability topics, reflections from councilors, podcast episodes, events, resources, and emerging opportunities for the developmental disabilities community in Puerto Rico.
• Podcast "Rompiendo Barreras, Nuestro Próximo Paso" Weekly podcast featuring discussions on inclusion, rights, and advocacy for people with developmental disabilities and their allies, distributed on Spotify, Apple Podcasts, and Amazon Music.
• Programa TV Television program featuring information about CEDD projects, advocacy work, and important topics for people with disabilities, including workshops on digital accessibility.
• Testimoniales (Testimonials) Video testimonials from STEM camp participants and other CEDD-funded project beneficiaries, sharing their experiences and the impact of CEDD's programs on the developmental disabilities community in Puerto Rico.

Quantifiable outcome

• 70% of budget allocated to community projects promoting independence, productivity, inclusion, and integration

Named customers8 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Ten partnerships are on record, tiered core and minor.

• Puerto Rican Epilepsy Society (SPE)coreStrategic or Co-development PartnerCEDD funds SPE's Leadership and Advocacy Academy, Internship for Leaders with Disabilities, and Days of Advocacy for Healthier Policies - initiatives supporting people with epilepsy and their communities.
• Institute for Developmental Disabilities (IDD)coreStrategic or Co-development PartnerIDD (UCEDD) receives CEDD funding for research on sustained employment, public policy for children with special needs, early intervention services, healthcare provider education, and expanded planning for families of adults with I/DD.
• Movement for the Achievement of Independent Living (MAVI)coreStrategic or Co-development PartnerCEDD funds MAVI's Network of Intercessors program, which trains advocates to support people with disabilities in achieving independent living.
• Autonomous Municipality of CidraminorStrategic or Co-development PartnerCEDD funds Cidra's community integration project supporting people with disabilities in the municipality.
• Puerto Rico Paralympic CommitteecoreStrategic or Co-development PartnerCEDD funds the 'Transforming Lives through Sport' initiative promoting sports participation among people with disabilities.
• Modesto Gotay Foundation (FMG)minorStrategic or Co-development PartnerCEDD funds technological training programs for adults with disabilities to support their community integration.
• Compass Consulting GroupminorStrategic or Co-development PartnerCEDD funds research on transportation needs and feasibility of creating a case management system for people with I/DD in Puerto Rico.
• Lily's Angels Down Syndrome Awareness FoundationminorStrategic or Co-development PartnerCEDD funds the Healthy Communities Project, promoting health awareness and access for people with Down syndrome.
• Global Innovation Learning ServicesminorStrategic or Co-development PartnerCEDD funds STEM Event Camp for adults and educational summits on expanded planning for elderly families with adult children with DID.
• Department of Development and Commerce (DDEC)coreOthersSince 2022, DDEC is the designated state agency supporting CEDD in fiscal, legal, human resources, and information systems processes through Executive Order 2022-017.

Scale indicators4 records

Recent moves7 records

Expansion highlights5 records

Emerging players

• Special Olympics International: Global disability-focused organization serving people with intellectual disabilities through sport. CEDD's Paralympic Committee grantee partnership overlaps with Special Olympics' mission, making it a thematically adjacent peer.
• Autism Society of America: National advocacy and resource organization focused on autism and developmental disabilities. Shares a portion of CEDD's beneficiary population and information/advocacy mission, though narrower in disability focus.

Direct peers

• National Association of Councils on Developmental Disabilities (NACDD): NACDD is the membership association representing all 56 state and territorial DD Councils, including CEDD. It is the closest peer as it directly supports and coordinates the same DD Council ecosystem that CEDD operates within.
• University of Puerto Rico – Institute for Developmental Disabilities (IDD/UCEDD): Puerto Rico's federally-designated UCEDD (University Center for Excellence in Developmental Disabilities). CEDD already funds IDD's research portfolio, and they share overlapping scope, territory, and beneficiary base.
• California State Council on Developmental Disabilities (SCDD): California's DD Council — directly comparable in mission, federal statutory basis (DD Act), grantmaking role, and lived-experience governance structure. SCDD operates with a substantially larger budget, providing a scale benchmark.
• Texas Council on Developmental Disabilities: Texas's DD Council — another large-state DD Council with identical federal mandate, council composition rules, and grantmaking function, offering a useful comparison on staffing and project portfolio.
• Florida Developmental Disabilities Council: Florida's DD Council — a directly comparable state council under the same DD Act, with similar responsibilities for grantmaking, advocacy, and 5-year state plan administration.
• The Arc of the United States: National disability advocacy and services nonprofit serving people with I/DD and their families — comparable target population and advocacy focus, though structured as a 501(c)(3) rather than a government council.
• Easterseals: National nonprofit providing disability services, advocacy, and community programs. Comparable in serving the I/DD population across a national footprint, with similar emphasis on community integration and independence.

Broad incumbents

• Administration for Community Living (ACL): The federal agency within HHS that administers DD Act funding to CEDD and oversees all state DD Councils. It is the upstream incumbent that funds and regulates CEDD's operations.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@CEDD_PR
• Facebookfacebook.com/ceddpr
• LinkedInlinkedin.com/company/ceddpr
• Instagraminstagram.com/ceddpr

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Consejo Estatal sobre Deficiencias en el Desarrollo (CEDD)