Cystic Fibrosis Ireland
Cystic Fibrosis Ireland is a Dublin-based non-profit patient organization founded in 1963 that supports approximately 1,400 people living with cystic fibrosis in Ireland through grants, advocacy, wellbeing services, research funding, and community events.
- Company typePrivate
- Founded-
- HeadquartersDublin, Ireland
- Headcount11–50
- GTM typeB2C
- OfferingServices
What Cystic Fibrosis Ireland does
Cystic Fibrosis Ireland (CFI), legally the Irish National Association for Cystic Fibrosis (Charity No. CHY 6350, Company No. 449954), is Ireland's national non-profit patient organization for cystic fibrosis. Founded in 1963 and headquartered at CF House, 24 Lower Rathmines Road, Dublin, the organization serves approximately 1,400 people living with CF (pwCF) in Ireland — of whom 37.8% are under 18 and 44.8% are adults — together with their families. Its service portfolio spans an information and advocacy line, financial support grants, mental and physical wellbeing grants, monthly support groups, bereavement support, and clinical-facility and CF research investment, underpinned by a trained CF Ambassadors program and an annual national conference. Distribution is omnichannel: a member-services team handles direct enquiries ([email protected], 01 496 2433), flagship events such as 65 Roses Day, the Head2Head Walk, the 10th Annual Malin2Mizen Cycle4CF, and the Irish Life Dublin Marathon drive fundraising, and digital channels (Facebook, X/Twitter, LinkedIn, Instagram, YouTube, Bluesky, Spectrum newsletter, Shopify merchandise store) extend reach across Ireland's single-country operating geography.
CFI's operating model is built on a 25-person staff, an active volunteer and ambassador network, and partnerships with pediatric clinical centers (CHI at Crumlin and Temple Street) and academic researchers. There are no software products, API surfaces, or proprietary technology platforms in evidence; the 'core technology' stack consists of conventional information/advocacy services, grant management systems, and member-support platforms. Recent strategic emphasis has shifted toward evidence-based advocacy — CEO Sarah Tecklenborg presented 2025 research quantifying that 44.9% of pwCF struggle to meet monthly bills and 28.1% are unable to work — and toward PR-led awareness vehicles such as the touring photography exhibitions 'The Cost of Breathing' and 'Rewriting Tomorrow'. PPI in research, including 2026 pharmacy-education PPI opportunities and the UCC 'CF Telehealth Toolbox' study, signals a modest evolution from grant-maker to research co-investigator.
Because CFI is a registered charity with no core state funding, its revenue mechanics are entirely donation-driven. Income is generated through community fundraising events (Head2Head Walk, Malin2Mizen Cycle4CF, Dublin Marathon, CFI International Walk), corporate partnerships (workplace and matched giving), legacy giving, wedding-favour donations, and individual giving via cfireland.ie and the Shopify store. Recognized membership in the Charities Institute Ireland Triple Lock scheme (maintained through 2025) and self-attested GDPR compliance provide regulatory legitimacy that anchors fundraising performance. Revenue figures are not publicly disclosed in the input data, and the organization remains a single-jurisdiction, single-mission entity serving a structurally bounded Irish CF population.
Cystic Fibrosis Ireland firmographics
Firmographics- Name
- Cystic Fibrosis Ireland
- Legal name
- Irish National Association for Cystic Fibrosis
- Website
- https://cfireland.ie
- Company type
- Private
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Cystic Fibrosis Ireland is a Dublin-based non-profit patient organization founded in 1963 that supports approximately 1,400 people living with cystic fibrosis in Ireland through grants, advocacy, wellbeing services, research funding, and community events.
- Ownership category
- akta.pro rank
Cystic Fibrosis Ireland industry classification
Industry- Product category
- Cystic Fibrosis Patient Advocacy and Support Services
- NAICS
- Voluntary Health Organizations (813212), Individual and Family Services (6241), Other Individual and Family Services (624190), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)
- SIC
- Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industry
- Cystic Fibrosis & Bronchiectasis Care (HLAKANAK)
Keywords
Where Cystic Fibrosis Ireland is headquartered
LocationHeadquarters
- HQ city
- Dublin
- HQ country
- Ireland
- HQ region
- Europe
Offices1 record
Markets served
Cystic Fibrosis Ireland business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Fundraising: CFI relies completely on donations and public fundraising as it does not receive core state funding. Revenue is generated through various fundraising events, corporate partnerships, legacy giving, and individual donations.
Distribution channels4 records
Marketing channels8 records
Cystic Fibrosis Ireland product offering
Product offeringCore offering
Cystic Fibrosis Ireland is a national nonprofit charity that delivers financial support grants, information and advocacy, wellbeing and bereavement services, monthly support groups, and research funding to approximately 1,400 people living with Cystic Fibrosis (pwCF) and their families across Ireland. The organisation funds these services entirely through donations, fundraising events, corporate partnerships, legacy giving, and membership contributions, as it does not receive core state funding.
Product overview
Cystic Fibrosis Ireland (CFI) is a charitable patient organization (not a technology company) that provides support services to approximately 1400 people living with Cystic Fibrosis in Ireland. CFI's activities include: information and advocacy services; financial support grants to offset costs of living with CF; wellbeing support services including monthly support groups; clinical facilities and research investment; events and fundraising activities (Head2Head Walk, Malin2Mizen Cycle4CF, Irish Life Dublin Marathon); publications including the Spectrum newsletter; annual conferences; and member services. The organization does not offer a technology product in the traditional SaaS sense.
Differentiator
Problem solved
Functional benefit
Products and services
- Financial Support Grants Program A program of grants to facilitate mental and physical wellbeing for people living with Cystic Fibrosis, including support to offset the financial burden of CF management. Available to members of Cystic Fibrosis Ireland based on application and criteria meeting.
- Information and Advocacy Service A dedicated support line and information service for people living with CF and their families, providing advocacy on benefits, state supports, housing, insurance issues, and access to healthcare services.
- Wellbeing Support Services A range of wellbeing services for pwCF and their families, including monthly support groups for peer connection and emotional support, and bereavement support for families who have lost loved ones to CF.
- CF Research Funding Program Investment in clinical facilities and CF research to find new ways of managing and treating Cystic Fibrosis, with the ultimate aim of finding a cure. Includes research news updates and Public and Patient Involvement (PPI) opportunities for members.
- Membership Program An organisational membership program for people living with Cystic Fibrosis, their families, and supporters, providing access to member services, events, AGM participation, and grant eligibility.
- CF Ambassadors Program A community engagement program of trained volunteer ambassadors representing Cystic Fibrosis Ireland at events, campaigns, and community activities to raise awareness and share lived experiences of CF.
- Pregnancy Support and Advocacy Group A dedicated support and advocacy group for parents during pregnancy, providing information and peer support relevant to CF in the family or antenatal context.
- CFI Annual Conference An annual national conference run by Cystic Fibrosis Ireland that brings together people living with CF, their families, healthcare professionals, and researchers to share updates on research, treatments, and member services.
- Fundraising Events A portfolio of annual fundraising challenges including the Head2Head Walk, the Malin2Mizen Cycle4CF, the CFI International Walk, and participation places in the Irish Life Dublin Marathon, open to members, supporters, and corporate teams.
- Corporate Partnership Program A program through which businesses and corporations partner with CFI via workplace giving, matched giving, sponsorship of fundraising events, and corporate fundraising teams.
- Legacy Giving Program A program enabling supporters to leave legacy gifts to Cystic Fibrosis Ireland in their wills and to make donations in lieu of wedding favours.
Quantifiable outcome
- 44.9% of pwCF struggling to meet monthly bills - highlighting the ongoing need for financial support services
- +1 more outcomes
Companies that use Cystic Fibrosis Ireland
Customer profileSegments1 record
Ideal customer profiles3 records
Cystic Fibrosis Ireland technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Cystic Fibrosis Ireland partnerships and signals
Strategic signalScale indicators3 records
Recent moves6 records
Expansion highlights5 records
Cystic Fibrosis Ireland competitors and assessment
Company assessmentMarket position
Competitive moat5 records
Key risks5 records
Key highlights6 records
Customer concentration
Cystic Fibrosis Ireland social profiles
Digital presenceCystic Fibrosis Ireland compliance and trust
Trust signalCompliance2 records
Cystic Fibrosis Ireland financial estimates
Financial estimateRevenue estimate
Valuation estimate
Cystic Fibrosis Ireland leadership team
Management profileNumber of profiles
Profiles1 record
Cystic Fibrosis Ireland funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Cystic Fibrosis Ireland M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Cystic Fibrosis Ireland
What does Cystic Fibrosis Ireland do?
Cystic Fibrosis Ireland is a national nonprofit charity that delivers financial support grants, information and advocacy, wellbeing and bereavement services, monthly support groups, and research funding to approximately 1,400 people living with Cystic Fibrosis (pwCF) and their families across Ireland. The organisation funds these services entirely through donations, fundraising events, corporate partnerships, legacy giving, and membership contributions, as it does not receive core state funding.
Is Cystic Fibrosis Ireland a public or private company?
Cystic Fibrosis Ireland is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Cystic Fibrosis Ireland founded?
Cystic Fibrosis Ireland was founded in -1. It employs 11 to 50 people.
Where is Cystic Fibrosis Ireland based?
Cystic Fibrosis Ireland is headquartered in Dublin, Ireland, in the Europe region.
How does Cystic Fibrosis Ireland make money?
One revenue line is on record: donations and Fundraising.
Does Cystic Fibrosis Ireland have an API?
No public API is recorded for Cystic Fibrosis Ireland.
What industry is Cystic Fibrosis Ireland in?
Cystic Fibrosis Ireland's product category is Cystic Fibrosis Patient Advocacy and Support Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of HLAKANAK, Cystic Fibrosis & Bronchiectasis Care. Its NAICS code is 813212 and its SIC code is 8300.