The Danny Did Foundation
The Danny Did Foundation is a 501(c)(3) nonprofit founded in 2010 that works to prevent deaths from seizures by funding seizure-detection device grants, advancing SUDEP awareness, supporting affected families, and advocating for policies expanding device access for epilepsy patients.
- Company typePrivate
- Founded2010
- HeadquartersChicago, Illinois, United States
- Headcount11–50
- GTM typeB2C
- OfferingServices
What The Danny Did Foundation does
The Danny Did Foundation is a 501(c)(3) nonprofit organization founded in January 2010 by Mike and Mariann Stanton following the December 2009 SUDEP (Sudden Unexpected Death in Epilepsy) death of their son Danny. The organization is headquartered in Evanston, Illinois, and operates with a small staff (in the 11–50 range) to advance its mission of preventing seizure-related deaths, raising awareness of epilepsy and SUDEP, providing grants for seizure detection and prediction devices, supporting families and clinicians through education, and advocating for public-policy change. Its core "products" are programmatic rather than commercial: device-access grants for families, professional education, family travel-assistance subsidies, and policy advocacy, including the 2024 Danny Stanton SUDEP Act in Illinois and companion legislation mandating Medicaid and private-insurance coverage of qualifying seizure detection devices.
The foundation sustains operations through a diversified mix of individual donations, community fundraising (notably the multi-year Team Danny Did marathon program, which has cumulatively raised $1.5M+ since 2010), corporate sponsorship, and events such as the annual Hearts & Hugs Gala. It holds Gold-level Candid/GuideStar transparency recognition and is a founding member of Partners Against Mortality in Epilepsy (PAME). Programmatic reach extends across all 50 U.S. states and 18+ countries. The organization is not a technology developer; any seizure-detection or prediction technology referenced in its grant-making is produced by third-party medical-device vendors. The foundation is also a co-host of the Epilepsy Innovators Accelerator Course, positioning it as a convener in the SUDEP-innovation ecosystem in addition to its grant-maker and advocacy roles.
The Danny Did Foundation firmographics
Firmographics- Name
- The Danny Did Foundation
- Legal name
- The Danny Did Foundation
- Website
- https://dannydid.org
- Company type
- Private
- Founded year
- 2010
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- The Danny Did Foundation is a 501(c)(3) nonprofit founded in 2010 that works to prevent deaths from seizures by funding seizure-detection device grants, advancing SUDEP awareness, supporting affected families, and advocating for policies expanding device access for epilepsy patients.
- Ownership category
- akta.pro rank
The Danny Did Foundation industry classification
Industry- Product category
- Epilepsy Advocacy and Patient Support
- NAICS
- Voluntary Health Organizations (813212), Grantmaking Foundations (813211)
- SIC
- Services-Social Services (8300), Services-Health Services (8000)
- akta.pro primary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
Keywords
Where The Danny Did Foundation is headquartered
LocationHeadquarters
- HQ city
- Chicago, Illinois
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
The Danny Did Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Charitable Contributions: Tax-deductible donations from individuals, corporations, and foundations supporting the foundation's mission to prevent seizure-related deaths.
- Merchandise Sales: Sale of branded merchandise including sweatshirts, t-shirts, bracelets, and lapel pins through the online gift shop.
- Event Fundraising: Revenue generated from event sponsorships, gala tickets, and fundraising at events like the Hearts & Hugs Gala and Chicago Marathon.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| One time/ perpetual license | Monthly | Danny Did merchandise available for purchase |
Go-to-market motion2 records
Distribution channels3 records
Marketing channels8 records
The Danny Did Foundation product offering
Product offeringCore offering
The Danny Did Foundation is a 501(c)(3) nonprofit that provides financial grants to help families afford FDA-cleared seizure detection and monitoring devices, advances public awareness and education about epilepsy and SUDEP (Sudden Unexpected Death in Epilepsy), and supports families through bereavement resources, travel assistance programs, and advocacy initiatives. The foundation does not manufacture or sell devices; it serves as an advocate, educator, and grant provider connecting families with third-party seizure detection technologies.
Product overview
The Danny Did Foundation is a nonprofit organization providing education, advocacy, and financial assistance programs for families affected by epilepsy and SUDEP. The foundation's core offerings include a Device Grant Program that helps families afford seizure detection and monitoring devices, along with comprehensive device selection resources. The foundation supports access to a portfolio of seizure detection technologies including nighttime monitors (Emfit, SAMi, NightWatch+), wearable devices (EpiWatch, EpiMonitor, BoundaryCare), smartphone apps (Inspyre, EpiPal, CAPTUREPROOF, Seizure Tracker), implanted technologies (VNS Therapy, NeuroPace RNS), surgical options (Visualase), and safety products (SleepSure Pillow, PATI). Additional programs include travel assistance for families attending epilepsy conferences, an accelerator course for epilepsy startups, the Hearts & Hugs annual gala, Team Danny Did athletic fundraising, and a merchandise shop. The foundation does not manufacture or sell devices but connects families with resources and provides grant funding to offset device costs.
Differentiator
Problem solved
Functional benefit
Products and services
- Device Grant Program
- Epilepsy Innovators Accelerator Course
- PAME Travel Assistance Program
- EADDW Travel Assistance
- EADDL Travel Assistance
- Hearts & Hugs Gala
- Team Danny Did
- Danny Did Gift Shop
Quantifiable outcome
- Supported families in all 50 states and 18+ countries
- +1 more outcomes
Companies that use The Danny Did Foundation
Customer profileNamed customers3 records
Segments3 records
Ideal customer profiles3 records
The Danny Did Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature1 record
The Danny Did Foundation partnerships and signals
Strategic signalPartnerships
Nine partnerships are on record, tiered core and minor.
- Partners Against Mortality in Epilepsy (PAME)coreDDF is a founding member of PAME, a collaboration among healthcare providers, researchers, public health officials, patient advocates, caregivers, and bereaved families working to prevent epilepsy-related mortality including SUDEP. PAME holds annual conferences and educational webinars.
- American Epilepsy Society (AES)corePAME is housed within AES which provides pro-bono fiscal and administrative support. DDF collaborates on position statements regarding SUDEP counseling and device coverage.
- Epilepsy Foundation of AmericacorePartner in PAME collaboration and joint position statement on non-invasive seizure detection devices as part of comprehensive epilepsy care. Co-host of Epilepsy Innovators Accelerator Course.
- CURE: Citizens United for Research in EpilepsycoreMajor contributing organization to PAME collaborative effort to advance understanding and prevention of SUDEP and epilepsy-related mortality.
- Child Neurology FoundationcoreDDF co-created patient education materials on SUDEP with the Child Neurology Foundation. Partner in CHICA initiative for SUDEP screening in pediatric care.
- North American SUDEP Registry (NASR)coreDDF worked with Illinois State Senator Dan Kotowski to pass the Danny Stanton SUDEP Act requiring coroners and medical examiners in Illinois to report SUDEP instances to NASR at NYU.
- National Association of Epilepsy CentersminorDDF references NAEC as resource for patients and caregivers to find epileptologists and locate epilepsy centers.
- The Charlie FoundationminorReferenced as resource for ketogenic diet information for epilepsy treatment.
- Chelsea Hutchison FoundationminorReferenced as resource for seizure dog funding support.
Scale indicators4 records
Recent moves5 records
Expansion highlights5 records
The Danny Did Foundation competitors and assessment
Company assessmentRegional players
- SUDEP Action: UK-based charity dedicated to Sudden Unexpected Death in Epilepsy, directly comparable in mission focus on SUDEP awareness, bereavement support, and research advocacy, but operating primarily in the United Kingdom.
- Epilepsy Foundation of Greater Chicago: Regional Chicago-area epilepsy nonprofit where board member Kurt Florian previously served as President and Chairman. Shares DDF's geographic base and patient-services orientation but at a localized scale.
Broad incumbents
- Epilepsy Foundation of America: The largest US epilepsy advocacy and patient-services nonprofit; co-hosts the Epilepsy Innovators Accelerator Course with DDF and is a PAME partner. Both organizations serve epilepsy families and advance SUDEP awareness, but Epilepsy Foundation operates at much greater scale and across broader epilepsy topics.
- American Epilepsy Society: Professional society of clinicians and researchers that houses PAME and provides pro-bono fiscal/administrative support to the initiative. Engages with DDF on SUDEP counseling and device coverage position statements but serves a professional rather than patient-facing audience.
- SUDEP Institute: Program of the Epilepsy Foundation of America dedicated to SUDEP awareness, bereavement support, and research funding. Operates as a broader incumbent with overlapping SUDEP-focused mission but embedded within a larger organization.
Direct peers
- Child Neurology Foundation: DDF co-created patient SUDEP education materials with Child Neurology Foundation and partners in the CHICA pediatric SUDEP screening initiative. Both serve pediatric neurology families and produce clinician-facing education resources.
- Chelsea Hutchison Foundation: Referenced by DDF as a peer resource for seizure dog funding support. Both foundations provide direct financial assistance to epilepsy families for safety devices and seizure-response services.
- CURE: Citizens United for Research in Epilepsy: Major contributing organization in the PAME collaborative alongside DDF, focused on epilepsy research funding and SUDEP awareness. Shares the SUDEP-prevention mission but funds scientific research rather than device grants.
- The Charlie Foundation: Referenced by DDF as a content partner for ketogenic-diet information in epilepsy treatment. Both are parent-founded epilepsy nonprofits providing patient/family educational resources and direct support programs.
Others
- North American SUDEP Registry (NASR): Research registry at NYU that receives mandatory SUDEP case reporting enabled by the Danny Stanton SUDEP Act. Ecosystem partner rather than direct competitor; advances the same SUDEP-mortality mission through data rather than family grants.
Market position
Strengths1 record
Weaknesses1 record
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
The Danny Did Foundation social profiles
Digital presenceThe Danny Did Foundation compliance and trust
Trust signalCompliance2 records
The Danny Did Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
The Danny Did Foundation leadership team
Management profileNumber of profiles
Profiles15 records
The Danny Did Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
The Danny Did Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about The Danny Did Foundation
What does The Danny Did Foundation do?
The Danny Did Foundation is a 501(c)(3) nonprofit that provides financial grants to help families afford FDA-cleared seizure detection and monitoring devices, advances public awareness and education about epilepsy and SUDEP (Sudden Unexpected Death in Epilepsy), and supports families through bereavement resources, travel assistance programs, and advocacy initiatives. The foundation does not manufacture or sell devices; it serves as an advocate, educator, and grant provider connecting families with third-party seizure detection technologies.
Is The Danny Did Foundation a public or private company?
The Danny Did Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was The Danny Did Foundation founded?
The Danny Did Foundation was founded in 2010. It employs 11 to 50 people.
Where is The Danny Did Foundation based?
The Danny Did Foundation is headquartered in Chicago, Illinois, United States, in the North America region.
How does The Danny Did Foundation make money?
Three revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are merchandise Sales and event Fundraising.
Who are The Danny Did Foundation's main competitors?
Regional players on record are SUDEP Action and Epilepsy Foundation of Greater Chicago. Broad incumbents are Epilepsy Foundation of America, American Epilepsy Society and SUDEP Institute. Direct peers are Child Neurology Foundation, Chelsea Hutchison Foundation, CURE: Citizens United for Research in Epilepsy and The Charlie Foundation. North American SUDEP Registry (NASR) is listed as an others.
Does The Danny Did Foundation have an API?
No public API is recorded for The Danny Did Foundation.
What industry is The Danny Did Foundation in?
The Danny Did Foundation's product category is Epilepsy Advocacy and Patient Support. Its primary akta.pro industry code is BPAGAKAL, Health & Medical Research Grantmaking Foundations. Its NAICS code is 813212 and its SIC code is 8300.