Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz

What Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz does

Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz (DAlzG) is a registered nonprofit association headquartered in Berlin (Keithstraße 41), founded in 1989 and operating across Germany as the country's central self-help and advocacy body for dementia. Its mission is to support and counsel people with dementia and their families, inform the public about the disease, and advocate for better diagnosis, treatment, care, and a dementia-friendly society. The organization is governed by 1st Chairman Swen Staack (elected November 2024) and 2nd Vice-Chair Lilja Helms, with Saskia Weiß serving as Managing Director and Susanna Saxl-Reisen as Deputy Managing Director.

DAlzG operates a diversified service and content portfolio spanning direct support channels (the Alzheimer-Telefon hotline at 030 259 37 95 14, email counseling, and moderated online forums), information products (the nine-language Demenz und Migration multilingual portal, the semi-annual Alzheimer Info magazine, and the 19th-edition Leitfaden zur Pflegeversicherung), and community-facing programs (the Initiative Demenz Partner B2B training initiative, regional awareness walks, and the annual congress, with the 13th scheduled for October 15-16, 2026 in Magdeburg). The organization also distributes a bimonthly podcast in partnership with medhochzwei Verlag and the Alzheimer&YOU 'Aktiv im Alltag' mobile app via the Apple App Store and Google Play.

The business model is a hybrid nonprofit structure funded by four revenue streams: recurring membership fees from a federation of more than 140 regional member societies (Landesverbände), donations and bequests solicited through an SSL-encrypted online form, public grants (notably GKV-Spitzenverband self-help funding and project-based support from the Deutsche Postcode Lotterie), and modest publication sales through the organization's online shop, where journals are priced at EUR 4 per issue or EUR 8 per annual subscription and brochures are distributed free of charge up to specified volume thresholds. Distribution is owned end-to-end via the central website (www.deutsche-alzheimer.de), online shop, app stores, mail order, and the member-society network; no third-party resellers are used.

Name

Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz

Legal name

Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz

Website

https://deutsche-alzheimer.de

Company type

Private

Founded year

1989

Operating status

Operating

Headcount range

11–50 employees

Short description

German nonprofit self-help association founded in 1989 in Berlin, providing counseling, information, and advocacy for people with dementia and their families through a hotline, online forums, publications, training programs, and a federation of over 140 regional member societies.

Ownership category

akta.pro rank

Product category

Dementia Care Support and Advocacy

NAICS

Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (624190), Social Assistance (624)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Dementia/Alzheimer’s In-Home Care (Non-Medical) (HLADAGAG)

akta.pro secondary industry

Post-Diagnosis Transition & Hospital-to-Home Dementia Support (HSABAEAL)

Keywords

• Dementia care education
• Caregiver support services
• Dementia awareness advocacy
• Patient information services
• Nonprofit member network

Headquarters

HQ city

Berlin, BE

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Membership fees: The organization has member societies (Landesverbände) affiliated with the DAlzG. Membership fees from individuals and organizations form a revenue stream, though details are not explicitly quantified.
2. Publication sales: Sale of publications including the Alzheimer Info journal (4 EUR per issue, 8 EUR annual subscription), the Leitfaden zur Pflegeversicherung (5 EUR for digital edition), and other guides and brochures.
3. Donations and bequests: The organization actively solicits donations and bequests (Spenden, Zustiftungen, Nachlässe) to support its information and counseling work. A donation form is available on the website with SSL-encrypted processing.
4. Public funding and self-help support: Funding from public sources including GKV-Spitzenverband (self-help funding), and project-based support such as the Postcode Lottery funding for the 'Demenz und queer' brochure project.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels8 records

Core offering

Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz is a nonprofit self-help association that provides information, counseling, peer support, publications, caregiver education, and advocacy for people with dementia and their families. Its services include the Alzheimer-Telefon, email counseling, online forums, seminars, public-awareness initiatives, professional resources, and a nationwide network of regional member organizations.

Product overview

The Deutsche Alzheimer Gesellschaft e.V. is a non-profit self-help organization providing a comprehensive suite of support services for people with dementia and their families. The core offering is the central website portal (www.deutsche-alzheimer.de) which serves as the hub connecting users to direct support services (Alzheimer-Telefon, E-Mail-Beratung), peer exchange platforms (Foren), and information resources (Demenz und Migration multilingual portal). The organization publishes the semi-annual Alzheimer Info magazine and various brochures including the widely-used Leitfaden zur Pflegeversicherung. Additional digital offerings include the Demenz-Podcast (bimonthly, co-published with medhochzwei Verlag), the Initiative Demenz Partner training materials, and the Alzheimer&YOU Aktiv im Alltag mobile app. The Online-Shop distributes publications and the organization hosts regular congresses (13th scheduled for October 2026 in Magdeburg). The portfolio is unified around the mission of improving life with dementia through information, counseling, community building, and advocacy.

Differentiator

Problem solved

Functional benefit

Brands

• Initiative Demenz Partner: An initiative of DAlzG providing training materials and awareness programs for dementia-friendly communities.
• Demenz-Podcast
• Alzheimer-Telefon
• Alzheimer Info
• Alzheimer &YOU Aktiv im Alltag

Products and services

• DAlzG Membership Formal membership affiliation for member societies (Landesverbände) of DAlzG; membership fees are paid by individuals and organizations.
• Alzheimer Info (Zeitschrift) Semi-annual membership journal covering dementia in society, research, legal matters, and news from member organizations. A printed issue costs EUR 4, a PDF costs EUR 2.50, and an annual printed subscription costs EUR 8 for two issues.
• Leitfaden zur Pflegeversicherung Comprehensive guide to long-term care insurance covering application procedures, assessment processes, appeals, and available services. The 19th edition, published in 2026, is a 250-page barrier-free digital PDF priced at EUR 5 and authored by Günther Schwarz and Susanna Saxl-Reisen.
• Alzheimer&YOU Aktiv im Alltag Mobile application for people with dementia and their relatives, providing activity tips and support through push notifications with activity suggestions.

Quantifiable outcome

• Annual congresses with thousands of participants including people with dementia, family caregivers, and professionals
• +1 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Seven partnerships are on record, tiered core.

• medhochzwei VerlagcoreStrategic or Co-development PartnerCo-publisher of the Demenz-Podcast with the Deutsche Alzheimer Gesellschaft. The podcast is published bimonthly with expert discussions on dementia-related topics including communication, self-care, and legal matters.
• GRÜN Software Group GmbHcoreTechnology or IntegrationProvides the donation form technology (spendino platform) used on the organization's website. Data is transmitted via encrypted SSL connection directly to GRÜN GmbH and its technical service providers.
• Hetzner Online GmbHcoreTechnology or IntegrationWeb hosting provider for the organization's online presence, delivering the website and online services from German data centers.
• Alzheimer EuropecoreOthersThe DAlzG is a member of Alzheimer Europe, the European umbrella organization connecting national Alzheimer associations. This membership provides international networking, policy advocacy at EU level, and access to European research and best practices.
• Alzheimer's Disease International (ADI)coreOthersThe DAlzG is a member of ADI, the international federation of 105 Alzheimer associations worldwide in official relationship with WHO. ADI coordinates World Alzheimer's Day and publishes the annual World Alzheimer's Report.
• Kompetenzzentrum Demenz Schleswig-HolsteincoreStrategic or Co-development PartnerCollaborated with the DAlzG to revise and expand the 'Demenz und queer' brochure for nationwide distribution. The original project was developed by the Kompetenzzentrum Demenz due to strong demand from practice.
• Alzheimer Gesellschaft Hamburg e.V.coreChannel Partner/ Reseller/ DistributorRegional member society that organizes local events such as walks for people with dementia and relatives, including the walk through Hagenbeck's Tierpark.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Kompetenzzentrum Demenz Schleswig-Holstein: Regional dementia competence center in Schleswig-Holstein collaborating directly with DAlzG on the Demenz und queer brochure and other content. Operates in the same dementia information/counseling category at a sub-national level.
• Alzheimer's Society (UK): UK national dementia charity providing helpline, information services, local services, and policy advocacy. Closely comparable to DAlzG in offering mix, country-level scope, and beneficiary segments, serving people with dementia and their families.
• Alzheimer Europe: European umbrella organization for national Alzheimer associations. DAlzG is a member and operates in the same dementia self-help and advocacy space at the pan-European level, with overlapping mission, governance structure, and policy advocacy function.
• Alzheimer's Disease International (ADI): Global federation of 105 Alzheimer associations in official WHO relation. DAlzG is a member and ADI coordinates World Alzheimer's Day. Both organizations share an identical mission of supporting people with dementia and their families through advocacy, awareness, and information.

Regional players

• Alzheimer Forschung Initiative e.V. German non-profit focused specifically on funding dementia research and public education about research progress. Operates in the same Germany-based dementia non-profit ecosystem as DAlzG but with a narrower, research-funding mandate.
• Alzheimer Schweiz: Swiss national Alzheimer association. DACH-region peer offering the same helpline, information, advocacy, and member society model as DAlzG, but serving Switzerland rather than Germany.

Broad incumbents

• Caritas Deutschland: Large German social services confederation providing elderly care, counseling, and family support including for families affected by dementia. Comparable in non-medical care-adjacent services and German footprint, but operating much more broadly across social welfare.
• Alzheimer's Association (US): The largest national Alzheimer advocacy, research, and care support organization globally. Comparable to DAlzG in mission and service mix (24/7 helpline, publications, advocacy, research funding), but operates at much larger scale and with substantially broader resources in the US.

Others

• Deutsche Stiftung Patientenschutz: German foundation focused on patient rights, palliative care, and advocacy for seriously ill and elderly people. Comparable in non-profit advocacy and information provision for vulnerable populations in Germany, though with a broader healthcare scope.
• BAG Selbsthilfe: German umbrella organization for self-help groups, of which DAlzG is a member. Both operate in the German self-help/patient advocacy ecosystem and share funding mechanisms such as GKV self-help promotion funds.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@DAlzG
• LinkedInlinkedin.com/company/deutschealzheimergesellschaft

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz