Epilepsy Foundation Eastern Pennsylvania

What Epilepsy Foundation Eastern Pennsylvania does

The Epilepsy Foundation Eastern Pennsylvania (EFEPA) is a 501(c)(3) nonprofit voluntary health organization founded in 1972 by Charley Roach and headquartered in Philadelphia, Pennsylvania. It serves approximately 110,000 people living with epilepsy across an 18-county region in Eastern Pennsylvania, along with their families and caregivers. Its core offerings include Camp Achieve (a week-long overnight summer camp for children and teens ages 8-17, staffed by nurses and neurologists at Camp Green Lane), Epilepsy Education Exchange conferences held annually for over 20 years in Northeast PA and Greater Philadelphia, support groups in 8+ localities, the HOBSCOTCH mental health program, adult and young adult retreats, seizure first-aid training for schools and first responders, scholarships, medication assistance navigation, and advocacy initiatives such as Haley's Law (HB 1975) and House Bill 1045.

The organization does not develop proprietary technology products; it operates a standard website (efepa.org) and uses the third-party GiveSmart platform for online donations and event registrations. Its business model is entirely donation-funded, with four principal revenue streams: individual donations, event-based fundraising (Walk for Epilepsy series, Charley Roach Golf Invitational at RiverCrest Golf Club, Mardi Gras Gala, Sparking Hope Gala), corporate sponsorships (Eisai, Greenwich Biosciences, Sunovion, UCB, Supernus, LivaNova, Lancaster County Motors Subaru), and Pennsylvania state government funding allocated through the Department of Health epilepsy support services line item (~38% of $576,315, approximately $219,000 annually). EFEPA maintains long-standing partnerships with the Epilepsy Foundation of America (renewed August 2018 after 45 years), University of Pennsylvania, Children's Hospital of Philadelphia, Jefferson Comprehensive Epilepsy Center, and Geisinger, and holds visibility partnerships with the Philadelphia Eagles and Phillies.

Name

Epilepsy Foundation Eastern Pennsylvania

Legal name

Epilepsy Foundation Eastern Pennsylvania

Website

https://efepa.org

Company type

Private

Founded year

1972

Operating status

Operating

Headcount range

11–50 employees

Short description

Epilepsy Foundation Eastern Pennsylvania is a 501(c)(3) nonprofit founded in 1972 serving ~110,000 people with epilepsy across 18 counties in Eastern Pennsylvania through education, support, advocacy, and community programs funded by donations, events, corporate sponsorships, and state funding.

Ownership category

akta.pro rank

Product category

Nonprofit Epilepsy Support Services

NAICS

Educational Support Services (611710)

SIC

Services-Educational Services (8200)

akta.pro industry

PRIMARYEDAAAFAJ

Public Safety & Emergency Preparedness Education (CPR/First Aid/Disaster Readiness)

Education/Adult & Continuing Education/Community & Public Education Programs (Libraries, Community Centers)

SECONDARYEDACAIAF

Inclusion, Special Needs & Early Intervention Training (IEPs/IFSPs, Neurodiversity)

Education/Early Childhood Education/Early Childhood Teacher Training & Professional Development

SECONDARYEDACAIAB

In-Service Professional Development (Workshops/Institutes/Short Courses)

Education/Early Childhood Education/Early Childhood Teacher Training & Professional Development

Keywords

• Epilepsy support services
• Seizure first aid training
• Patient advocacy programs
• Community health education
• Voluntary health organization

Headquarters

HQ city

Philadelphia, Pennsylvania

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others, Infrastructure

Revenue model

1. Individual Donations: The organization accepts individual donations through its website fundraising platform (GiveSmart). Contact: [email protected] or (215) 629-5003 ext. 804.
2. Event-Based Fundraising: Major annual fundraising events include the Walk for Epilepsy, Charley Roach Golf Invitational, Mardi Gras Gala, and Sparking Hope Gala. The inaugural Walk to End Epilepsy in Lancaster raised over $30,000 from 350 walkers in 2019. The first Strides Against Seizures 5K was held in 2019.
3. State Government Funding: The organization receives state funding allocated through Pennsylvania's Department of Health epilepsy support services line item. Total PA funding is around $576,315, with EFEPA receiving approximately 38% (~$219,000/year). They advocate for increased proportional funding representing 57% of the state population served.
4. Corporate Sponsorships: Corporate sponsors support events such as the Walk to End Epilepsy (sponsors include Eisai, Greenwich Biosciences, Sunovion, UCB, Lancaster County Motors Subaru, Supernus Pharmaceuticals, VNS Therapy by LivaNova) and the golf invitational.

Go-to-market motion2 records

Distribution channels5 records

Marketing channels12 records

Core offering

Epilepsy Foundation Eastern Pennsylvania (EFEPA) is a nonprofit voluntary health organization providing free education, support, advocacy, and community programs to the approximately 110,000 people living with epilepsy across an 18-county service area in Eastern Pennsylvania. The organization delivers direct programs including Camp Achieve (overnight summer camp), annual Epilepsy Education Exchanges (conferences), peer support groups, the HOBSCOTCH mental health program, seizure first aid training for schools and first responders, adult retreats, scholarships, and medication assistance resources.

Product overview

The Epilepsy Foundation Eastern Pennsylvania is a nonprofit voluntary health organization that provides a comprehensive suite of programs and services for people with epilepsy and their families across 18 counties in Eastern Pennsylvania. The organization offers direct service programs including Camp Achieve (summer camp for children with epilepsy), Epilepsy Education Exchanges (annual conferences), Support Groups, HOBSCOTCH mental health services, Adult Retreats, and Seizure First Aid Training programs. Additional offerings include advocacy initiatives like Haley's Law/Seizure Safe Schools legislation, research funding, medication assistance programs, medical marijuana information resources, scholarships, and community fundraising events including the Walk for Epilepsy, Summer Stroll, and Charley Roach Golf Invitational. The organization operates as a decentralized network with resource coordinators across multiple counties providing localized support.

Differentiator

Problem solved

Functional benefit

Products and services

• Camp Achieve A week-long overnight summer camp for children and teens ages 8-17 with a primary diagnosis of epilepsy, staffed with nurses and neurologists at Camp Green Lane, PA. Provides recreational activities including swimming, canoeing, and peer connections for young people living with epilepsy.
• Epilepsy Education Exchange Conferences Annual free educational conferences held in Northeast PA and Greater Philadelphia featuring keynote speakers, workshops on research, treatment, insurance navigation, transition preparation, and self-care management. Attended by over 100 people annually for more than 20 years.
• Epilepsy Support Groups Peer support groups organized across 18 counties including Bucks County, Delaware County, Hazleton, Lancaster, Lehigh Valley, Philadelphia, Scranton, Wilkes-Barre, and Berks County. Regular meetings provide community connections for individuals and families affected by epilepsy.
• HOBSCOTCH Mental Health Program Mental health program specifically designed for people with epilepsy addressing depression, anxiety, and quality of life issues through evidence-based interventions.
• Seizure Recognition and First Aid Training Training programs for schools (school personnel training), first responders (EMTs and police with 90-minute courses), and the general public on seizure recognition and proper first-aid response.
• Adult Retreats (Young Adult Retreat, Adult Wellness Weekend) Wellness programs including Young Adult Retreat and Adult Wellness Weekend offering social engagement and educational activities for adults living with epilepsy.
• Walk for Epilepsy / Walk to End Epilepsy / Summer Stroll Annual walking fundraising events including the Walk to End Epilepsy Philadelphia, NEPA Walk, Lancaster Walk to End Epilepsy, and Summer Stroll at Fairmount Park. Events raise awareness and funds for the epilepsy community.
• Medications and Prescription Assistance Program Information and resources about anti-seizure medications, seizure rescue therapies (benzodiazepines), and connections to patient assistance programs from pharmaceutical companies, PACE/PACENET for Pennsylvania seniors, and discount drug programs.
• Epilepsy Research Funding and Clinical Trial Navigation Funding for epilepsy research through the Epilepsy Foundation Research Program, with annual contributions from Julia's Angels Walk team exceeding $65,000 since 2003. Provides information on clinical trials and research studies recruiting participants.
• Scholarships and Transition Resources Financial assistance and resources to support educational advancement and life transitions for individuals with epilepsy, including programs for teens and young adults.
• Epilepsy Advocacy Program Legislative advocacy efforts including support for House Bill 1045 (Seizure Safe Schools), state funding advocacy, and training individuals to contact legislators on epilepsy-related issues.
• Charley Roach Golf Invitational Annual golf tournament fundraiser held at RiverCrest Golf Club & Preserve, honoring the organization's founder Charley Roach. Major fundraising event supporting the foundation's programs and services.
• Seizure Action Plans Seizure Action Plans and individualized emergency response plans for people with epilepsy, available through the organization to ensure proper care during seizure events.

Quantifiable outcome

• 70% of people with epilepsy achieve seizure control with medication (national statistic cited by EFEPA)
• +2 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

19 partnerships are on record, tiered core, minor and flagship.

• State Representative Carol KazeemcoreStrategic or Co-development Partner · 1 January 2025State Representative Carol Kazeem introduced House Bill 1045 (amendment to the DOMinate Epilepsy Law) in collaboration with EFEPA to require Pennsylvania school personnel to receive seizure recognition and first aid training every two years.
• Tim Roach / CrossCountry Mortgage, Inc. (Golf Event Chairperson)coreGTM or Marketing Partner · 1 January 2024Tim Roach of CrossCountry Mortgage, Inc. serves as Chairperson of the Charley Roach Golf Invitational, bringing business leadership to the fundraising event.
• State Representative Brandon MarkosekcoreStrategic or Co-development Partner · 1 January 2020State Representative Brandon Markosek is the drafter of Haley's Law (House Bill 1975) introduced January 2020 to ensure school personnel can recognize and respond appropriately to students experiencing seizures.
• Plum FamilycoreStrategic or Co-development Partner · 1 January 2020The Plum family partnered with EFEPA to announce Haley's Law (House Bill 1975) in memory of Haley, to ensure all school personnel can recognize and respond appropriately to students experiencing seizures.
• Eisai (Walk Series Sponsor)coreGTM or Marketing Partner · 1 January 2019Eisai sponsored the Walk to End Epilepsy - Lancaster as a Walk Series Sponsor, providing financial support for the inaugural walk event.
• Greenwich Biosciences (Walk Series Sponsor)coreGTM or Marketing Partner · 1 January 2019Greenwich Biosciences sponsored the Walk to End Epilepsy - Lancaster as a Walk Series Sponsor.
• Sunovion (Walk Series Sponsor)coreGTM or Marketing Partner · 1 January 2019Sunovion sponsored the Walk to End Epilepsy - Lancaster as a Walk Series Sponsor.
• UCB (Walk Series Sponsor)coreGTM or Marketing Partner · 1 January 2019UCB sponsored the Walk to End Epilepsy - Lancaster as a Walk Series Sponsor.
• Supernus Pharmaceuticals (Vendor Sponsor)minorGTM or Marketing Partner · 1 January 2019Supernus Pharmaceuticals was a vendor sponsor at the Walk to End Epilepsy - Lancaster.
• VNS Therapy by LivaNova (Vendor Sponsor)minorGTM or Marketing Partner · 1 January 2019VNS Therapy by LivaNova was a vendor sponsor at the Walk to End Epilepsy - Lancaster.
• Philadelphia EaglesflagshipStrategic or Co-development Partner · 1 January 2018EFEPA was selected as an official Community Red Zone Organization by the Philadelphia Eagles. The partnership includes Eagles tailgate events during November Epilepsy Awareness Month, purple awareness shirts, and community visibility at home games.
• Philadelphia PhilliesflagshipStrategic or Co-development Partner · 1 January 2018Philadelphia Phillies host Epilepsy Awareness Nights at Citizens Bank Park. The team serves as charity partner for awareness and fundraising, with ticket sales benefiting EFEPA programs.
• University of PennsylvaniacoreStrategic or Co-development Partner · 1 January 2018UPenn epileptologists and researchers participate in EFEPA's Epilepsy Education Exchanges as keynote speakers and workshop presenters. UPenn is also a designated study center for the Human Epilepsy Project (HEP2).
• Children's Hospital of Philadelphia (CHOP)coreStrategic or Co-development Partner · 1 January 2018CHOP medical staff (including Dr. Dennis Dlugos and Barbara Beck CRNP) serve on EFEPA's Professional Advisory Board, present at conferences, and provide medical staffing for Camp Achieve. CHOP is a world-class research institution in Pennsylvania.
• Jefferson Comprehensive Epilepsy Center / Thomas Jefferson UniversitycoreStrategic or Co-development Partner · 1 January 2018Jefferson neurologists (Dr. Christopher Skidmore, Dr. Mercedes Jacobson) serve on the Professional Advisory Board and present at Epilepsy Education Exchanges as keynote speakers and workshop leaders.
• Human Epilepsy Project / Epilepsy Study ConsortiumcoreStrategic or Co-development Partner · 1 January 2018The Epilepsy Foundation launched the Human Epilepsy Project (HEP2) in collaboration with the Epilepsy Study Consortium, with UPenn as one of eight recruiting study centers. EFEPA helps recruit and promote trial participation among its community.
• Geisinger Health SystemcoreStrategic or Co-development Partner · 1 January 2018Geisinger's epileptologists (including Dr. David Ortiz) participate in Northeast PA Epilepsy Education Exchanges, providing expertise on new treatments and technologies in epilepsy.
• Epilepsy Foundation of AmericaflagshipStrategic or Co-development Partner · 1 January 2018EFEPA renewed its longstanding affiliation with the Epilepsy Foundation of America (EFA) in August 2018 after 45 years of partnership. Supports EFA's nationwide efforts in advocacy, awareness, research, and education.
• Philadelphia MarathoncoreGTM or Marketing Partner · 1 January 2014The Epilepsy Foundation of America and Epilepsy Foundation Eastern PA are charity partners for the Philadelphia Marathon. Participants can join team Epilepsy to run the 8k, half marathon, or full marathon and raise funds for epilepsy services.

Scale indicators7 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• American Heart Association (Great Rivers Affiliate): National voluntary health nonprofit with strong CPR/first-aid training portfolio. Closely comparable mission emphasis on emergency preparedness education, CPR/First Aid training programs, state-government advocacy, and signature Heart Walk events.
• American Lung Association of the Mid-Atlantic: National voluntary health nonprofit with regional affiliate delivering education, advocacy, and signature fundraising events (LUNG FORCE walks, gala) in Pennsylvania. Same voluntary health model with comparable revenue mix of individual donations, corporate sponsorships, and event fundraising.
• Cystic Fibrosis Foundation (Northeast PA Chapter): National disease-specific voluntary health organization with strong pharmaceutical sponsorship model, signature galas and walks, research funding pipeline, and clinical center partnerships similar to EFEPA's UPenn/CHOP relationships.
• American Cancer Society (Pennsylvania Region): National voluntary health organization with regional Pennsylvania presence running education, advocacy, and signature fundraising events. Comparable scale of multi-county community delivery and event-based donor acquisition.

Direct peers

• Epilepsy Foundation of America: National umbrella organization that EFEPA is affiliated with. Directly comparable as the parent network coordinating affiliate-level epilepsy services, advocacy, and research funding across the country.
• National Multiple Sclerosis Society (Greater Delaware Valley): Disease-specific voluntary health organization serving Pennsylvania. Operates a similar model of support groups, education conferences, advocacy for state funding, pharmaceutical sponsorships, and signature walks/runs for a chronic neurological condition.
• Easterseals Eastern Pennsylvania: Regional disability-services nonprofit serving children and adults across Eastern Pennsylvania. Comparable in geographic footprint, free program delivery, advocacy engagement, and mix of state funding and donor revenue.
• Epilepsy Foundation of Greater Chicago: Regional Epilepsy Foundation affiliate serving the Chicago metropolitan area. Closely comparable operating model: education, support groups, summer camps, advocacy, and donor-driven event fundraising in a defined multi-county region.
• Epilepsy Foundation of Metropolitan New York: Another Epilepsy Foundation affiliate serving a multi-county region in the Northeast. Comparable mission delivery, advocacy footprint, and corporate sponsorship structure (pharmaceutical underwriters, professional sports partnerships).
• ALS Association Greater Philadelphia Chapter: Regional chapter of a neurological-disease voluntary health nonprofit. Direct comparable in mission, multi-county service area, walk-based fundraising, and dependence on pharmaceutical partnership dollars.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/EFEPA
• Facebookfacebook.com/BeWellPhilly (Health Hero voting page for Dr. Ignacio Valencia)
• LinkedInlinkedin.com/company/efepa

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Foundation Eastern Pennsylvania