Asociación de Esclerosis Lateral Amiotrófica de Castilla y León (ELACyL)

What Asociación de Esclerosis Lateral Amiotrófica de Castilla y León (ELACyL) does

Asociación de Esclerosis Lateral Amiotrófica de Castilla y León (ELACyL) is a Spanish nonprofit patient association founded in 2016 and headquartered in Burgos, serving people with Amyotrophic Lateral Sclerosis (ALS) and their families throughout the autonomous community of Castilla y León. The organization is led by founder and president Jesús Gómez together with other affected individuals and family members, operates with approximately 5 employees, and is registered under CIF G47779459. Its mission is to improve quality of life, visibility, and care for the ALS community in the region.

ELACyL generates revenue through four complementary streams: (1) sales of solidarity merchandise (apparel, accessories, stationery, housewares, and a book) priced €1.50–€20 via a WooCommerce storefront on elacyl.org, (2) annual memberships (Sociedad) with a discounted €150/year rate for affected members (Socio Afectado), (3) one-time donations, and (4) corporate and institutional partnerships under the 'Empresas Amigas' program, which encompasses payroll micro-donations, percentage-of-sales programs, event sponsorship, and project-specific support from a network of 45+ businesses, foundations, and public administrations.

On the service side, ELACyL delivers specialized respiratory physiotherapy for ALS patients, operates the 'ELA en marcha' adapted transport service across the province of Burgos, and runs an annual educational jornadas event at CREER in partnership with national rare-disease and disability organizations (ADELA, COCEMFE, FEDER). The association actively engages the Junta de Castilla y León on regional dependency policy, contributing to the Grado III+ aid framework. Distribution is anchored in direct-to-consumer e-commerce, multi-platform social media (Facebook, Instagram, X, YouTube, WhatsApp), email newsletter, and physical fundraising events such as the Aurora Music Fest. The technology stack is intentionally lean (WordPress/WooCommerce, Google Analytics, Google Maps) with no proprietary AI/ML layer.

Name

Asociación de Esclerosis Lateral Amiotrófica de Castilla y León (ELACyL)

Legal name

ASOCIACIÓN DE ESCLEROSIS LATERAL AMIOTRÓFICA DE CASTILLA Y LEÓN (ELACYL)

Website

https://elacyl.org

Company type

Private

Founded year

2016

Operating status

Operating

Headcount range

1–10 employees

Short description

ELACyL is a small Burgos-based nonprofit association founded in 2016 that serves people with ALS and their families in Castilla y León, Spain, through solidarity merchandise sales, membership fees, donations, corporate partnerships, and direct services including adapted transport and respiratory physiotherapy.

Ownership category

akta.pro rank

Product category

ALS Patient Advocacy and Support Services

NAICS

Voluntary Health Organizations (813212), Civic and Social Organizations (813410)

SIC

Services-Membership Organizations (8600), Services-Social Services (8300)

akta.pro industry

PRIMARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYMPAKACAH

Disability & Adaptive Sports Organizations (Paralympic, Special Olympics)

Media, Entertainment & Sports/Sports (Leagues, Teams, Events, Venues)/Collegiate & Amateur Sports Organizations (NCAA, Federations, Clubs)

Keywords

• ALS patient support
• Neurodegenerative disease advocacy
• Caregiver support services
• Respiratory physiotherapy care
• Adapted transport services

Headquarters

HQ city

Burgos

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Supply Chain, Others

Revenue model

1. Merchandise Sales: Sale of solidarity merchandise (t-shirts, hoodies, bracelets, caps, pens, bags, notebooks, books, car sunshades, mugs, hand fans, piggy banks, metal bottles, table clocks, hourglass clocks) through the ELACyL online store at fixed unit prices ranging from €1.50 to €20.00. Products are sold directly via the website's WooCommerce storefront.
2. Membership Fees: Annual membership (Socio) with a minimum annual quota, granting members active participation in association decisions, access to exclusive information, and the right to vote in assemblies. A discounted rate of €150/year is available for affected members (Socio Afectado). Both types provide tax benefits.
3. Donations: One-time or sporadic monetary donations from individuals and organizations without fixed commitment. Donations carry tax benefits under Spanish non-profit legislation.
4. Corporate and Institutional Partnerships: Collaborations with businesses and institutions including economic/material donations, payroll micro-donations, solidarity event sponsorship, percentage-of-sales programs, visibility in campaigns, and support for specific ELACyL projects. The 'Empresas Amigas' program offers fiscal benefits and internal/external visibility to participating companies.

Pricing tiers

Go-to-market motion2 records

Distribution channels3 records

Marketing channels8 records

Core offering

ELACyL is a nonprofit regional association that supports people affected by Amyotrophic Lateral Sclerosis (ALS) and their families in Castilla y León, Spain. It provides direct care services including specialized respiratory physiotherapy and the "ELA en marcha" adapted transport program in Burgos province, alongside awareness, advocacy, and training. To fund its mission, the association sells solidarity merchandise (apparel, accessories, housewares, stationery, books), annual memberships, and accepts donations, while cultivating a network of corporate and institutional partners.

Product overview

ELACyL is a non-profit association for people affected by Amyotrophic Lateral Sclerosis (ALS) in Castilla y León, Spain. Its offering consists of two main pillars: (1) solidarity merchandise sold through its online store, including apparel (Sudadera Oficial ELACyL, Camiseta Verde Oficial ELACyL, Camiseta 'Un guerrero jamás se rinde', Gorra Solidaria ELACyL), accessories (Parasol de Coche ELACyL, Tote Bag ELACyL, Pulsera Solidaria ELACyL, Neceser Solidario ELACyL, Abanico de Mano ELACyL), stationery and housewares (Libreta Solidaria ELACyL, Bolígrafo Solidario ELACyL, Taza Solidaria ELACyL, Botella Metálica ELACyL, Hucha Cerdito ELACyL, Reloj de Mesa ELACyL, Reloj de Arena Solidario ELACyL), a book (Libro 'Cartas a un desconocido'), and memberships/donations; and (2) direct support services including the 'ELA en marcha' adapted transport service in Burgos province and specialized respiratory physiotherapy. All merchandise proceeds fund ELACyL's programs of support, awareness, and care for people with ELA.

Differentiator

Problem solved

Functional benefit

Products and services

• Official ELACyL Hoodie (Sudadera Oficial ELACyL)

Quantifiable outcome

• New Grado III+ monthly benefit of €5,000–€9,900 for persons with extreme ALS-related dependency, with up to 100% cost coverage for low-income beneficiaries
• +2 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration2 records

Partnerships

Eleven partnerships are on record, tiered core and secondary.

• Junta de Castilla y LeóncoreStrategic or Co-development PartnerRegional government of Castilla y León. ELACyL maintains an active institutional relationship with the Junta, including meetings with the Director General of Personas Mayores, Personas con Discapacidad y Atención a la Dependencia (Eduardo García Brea) to advance the Grado III+ dependency aid and other policy initiatives benefiting ALS patients in the region.
• Ayuntamiento de BurgoscoreStrategic or Co-development PartnerThe Burgos municipal government is listed as a key institutional partner and supporter. The collaboration includes support for ELACyL activities, visibility, and participation in the solidarity network. The escudo of the Ayuntamiento de Burgos is featured on official merchandise.
• SACyL (Sanidad Castilla y León)coreStrategic or Co-development PartnerThe public health service of Castilla y León is listed as an institutional partner, supporting ELACyL's mission and integrated within the regional healthcare ecosystem for ALS patient care.
• ADELA (Asociación de ELA de España)coreStrategic or Co-development PartnerThe national ALS association in Spain. ELACyL is affiliated with ADELA as the regional member representing Castilla y León, contributing to national ALS advocacy and coordination.
• COCEMFE Castilla y LeónsecondaryStrategic or Co-development PartnerConfederación de Personas con Discapacidad Física y Orgánica de Castilla y León. ELACyL participates in this umbrella disability organization, contributing to broader disability rights advocacy at the regional level.
• CREER (Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras)coreStrategic or Co-development PartnerThe national reference center for rare diseases in Burgos hosts the annual ELACyL jornadas (May 19–24, 2026), providing the venue for educational and community events for ALS patients and families from across Castilla y León.
• Fundación Mahou San MiguelsecondaryGTM or Marketing PartnerCorporate foundation listed as part of the ELACyL solidarity network, supporting the association's activities and visibility.
• Fundación iberCajasecondaryGTM or Marketing PartnerRegional savings bank foundation listed as a supporting institutional partner in ELACyL's solidarity network.
• Fundación La CaixasecondaryGTM or Marketing PartnerMajor Spanish banking foundation listed as an institutional supporter of ELACyL's solidarity network.
• FEDER (Federación Española de Enfermedades Raras)secondaryStrategic or Co-development PartnerSpanish federation of rare diseases. ELACyL is affiliated, contributing to rare disease advocacy and networking at the national level.
• Diputación Provincial de BurgossecondaryStrategic or Co-development PartnerProvincial government of Burgos. Listed as an institutional partner supporting ELACyL's activities and mission within the Burgos province.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Market position

Competitive moat4 records

Key highlights6 records

Customer concentration

• Xx.com/ELA_CyL
• YouTubeyoutube.com/channel/UC76ScT36NEVwsCP7e0_cxGQ
• Facebookfacebook.com/asociacionelacyl
• Instagraminstagram.com/asoc_elacyl/?hl=en
• LinkedInlinkedin.com/company/asociaci%C3%B3n-de-esclerosis-lateral-amiotr%C3%B3fica-de-castilla-y-le%C3%B3n-elacyl

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Asociación de Esclerosis Lateral Amiotrófica de Castilla y León (ELACyL)