Endometriosis Australia

What Endometriosis Australia does

Endometriosis Australia is a registered Australian nonprofit charity (ABN 17 161 605 750) founded in 2013 and headquartered in Sydney, operating as the country's national advocacy body for endometriosis. It serves women and people presumed female at birth (PFAB), including transgender, intersex, non-binary, and gender-diverse individuals living with endometriosis, alongside healthcare professionals, employers, and supporters. The organization addresses systemic failures in endometriosis care, including an average 6.4-year diagnostic delay, chronic invalidation of patients, limited treatment pathways, workforce exclusion, and insufficient research funding, operating across awareness, education, clinical guidance, research funding, and policy advocacy.

Its product portfolio spans digital and offline offerings: the CHARLI App (a co-launched hybrid period and reproductive health tracking platform), the Living with Endo Podcast hosted by Ellie Angel-Mobbs, the EndoThrive Workplace Accreditation Program launched at Parliament House, the Endo Academy for Nurses scholarship, an Annual Research Grant Program, multilingual educational fact sheets (seven languages), specialist clinic referrals, community-led support groups, and the EndoVoices stakeholder engagement forums. Distribution is primarily digital (website, app stores, six social media platforms, email, podcast) with event-based activations including EndoMarch, High Tea events, Parliament House launches, and the Women's Asian Cup partnership.

The revenue model is donation-driven and non-commercial: one-time and recurring donations, bequests, community fundraising events (capped at 40% expense ratio), merchandise affiliate partnerships (Francesca Bracelets since 2017 donating AU$20 per bracelet, SABO donating 100% of profits from a specific tee, Kat The Label donating 20% of collection sales), workplace accreditation fees, and likely government support through the National Action Plan. The organization employs approximately 23 staff, has no disclosed revenue figures, and is led by Medical Director A/Prof Anusch Yazdani (subspecialist in reproductive endocrinology and infertility).

Name

Endometriosis Australia

Legal name

Endometriosis Australia

Website

https://endometriosisaustralia.org

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Endometriosis Australia is a registered nonprofit and national advocacy body, serving people with endometriosis, healthcare professionals, and employers in Australia through awareness campaigns, educational resources, research grants, community support, the CHARLI health-tracking app, and the EndoThrive workplace accreditation program.

Ownership category

akta.pro rank

Product category

Health Advocacy Non-Profit

NAICS

Other Individual and Family Services (624190), Social Assistance (624), Other Grantmaking and Giving Services (813219)

SIC

Services-Health Services (8000), Services-Social Services (8300)

akta.pro primary industry

Fertility, Reproductive Endocrinology & IVF Centers (HLAFAJAD)

Keywords

• Endometriosis advocacy
• Patient support services
• Womens health awareness
• Medical research grants
• Health education resources

Headquarters

HQ city

Sydney

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: One-time donations, regular gifts, and bequests from individual donors. Endometriosis Australia is registered as a charity with the Australian Charities and Not-for-Profits Commission and can provide official receipts for approved donations of $2 or more. All donations are stated in Australian Dollars (AUD).
2. Merchandise - Shop for Good: Partnership with Francesca Bracelets (AU$20 per bracelet donated), SABO Her Pain Has a Name Tee (100% of profits donated), and Kat The Label Limoncello Collection (20% of collection sales donated). Layercake provides digital services pro-bono.
3. Community Fundraising: Community members organize fundraising events on behalf of Endometriosis Australia, requiring written application and approval. Funds must be returned within four weeks of the event, with expenses capped at 40% of total proceeds.

Go-to-market motion3 records

Distribution channels3 records

Marketing channels9 records

Core offering

Endometriosis Australia is a registered charity that provides patient education, awareness campaigns, community support, research grants, and workplace accreditation programs for endometriosis across Australia. It funds research, advocates for systemic healthcare reform, and runs the EndoThrive Workplace Accreditation Program, the Endo Academy for Nurses scholarship, the Living with Endo Podcast, and multilingual educational resources for patients, healthcare professionals, employers, and policymakers.

Product overview

Endometriosis Australia operates as a non-profit advocacy and support organization offering a portfolio of digital and offline products and services. The core offerings include the CHARLI App (a hybrid technology period/reproductive health tracking platform developed in partnership), the Living with Endo Podcast, the EndoThrive Workplace Accreditation Program, the Endo Academy for Nurses scholarship program, and an Annual Research Grant Program. Supporting offerings include educational resources in seven languages, access to specialist endometriosis clinics, community-led support groups, EndoVoices stakeholder forums, and annual awareness campaigns. The organization does not operate a unified software platform but rather provides interconnected programs and resources for patients, healthcare professionals, employers, and researchers.

Differentiator

Problem solved

Functional benefit

Brands

• Endo Academy for Nurses: Scholarship program for nurses to improve endometriosis education and care
• EndoThrive for Workplaces
• Living with Endo Podcast

Products and services

• CHARLI App

Quantifiable outcome

• 1 in 7 women and those PFAB affected by endometriosis by age 49
• +1 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Eight partnerships are on record, tiered flagship, core and minor.

• Francesca BraceletsflagshipGTM or Marketing Partner · 1 January 2017Francesca has proudly supported Endometriosis Australia since 2017. AU$20 from every awareness bracelet sold is donated to help fund vital research, education, advocacy, and national support services. The 2026 bracelet is crafted in sterling silver, rose gold, and gold as a symbol of strength and solidarity.
• CHARLI AppflagshipTechnology or IntegrationEndometriosis Australia partnered with the CHARLI app to launch Australia's first hybrid technology and real-world period and reproductive health tracking platform. CHARLI helps Australians identify abnormal patterns earlier and take control of diagnosing and managing conditions like endometriosis.
• LayercakecoreTechnology or IntegrationLayercake provides pioneering digital services to Endometriosis Australia, applying the power of digital strategy, cloud-agnostic technologies, data, and digital engineering to deliver meaningful outcomes.
• SABO (Her Pain Has a Name Tee)coreGTM or Marketing PartnerLimited-edition 'Her Pain Has a Name' tee created to raise awareness for endometriosis. 100% of profits are donated to Endometriosis Australia to fund research, education, and advocacy.
• Kat The LabelcoreGTM or Marketing PartnerInspired by founder and Endo Ambassador Kate's personal journey with endometriosis, Kat The Label donates 20% of its Limoncello collection to Endometriosis Australia during Endometriosis Awareness Month. The campaign reflects a commitment to increasing awareness and advocating for stronger support.
• Australian Government - Endometriosis and Pelvic Pain GP ClinicsflagshipStrategic or Co-development PartnerThe Australian Government has Endometriosis and Pelvic Pain Clinics across all states and territories offering expert, multidisciplinary care. Endometriosis Australia provides educational resources, clinical guidance, and program support to complement these clinics as part of the National Action Plan for Endometriosis.
• World Congress of Endometriosis (WCE Sydney)coreStrategic or Co-development PartnerEndometriosis Australia conducted researcher interviews at WCE Sydney covering cultural diversity in endometriosis care, priority populations, transgender and gender diverse communities, holistic multidisciplinary care in federally funded clinics, and social media's role in research.
• Women's Asian CupminorGTM or Marketing PartnerEndometriosis Australia partnered with the Women's Asian Cup, including the Period Pain Challenge and ambassador Tameka Yallop, to raise awareness about endometriosis and period pain at sporting events.

Scale indicators4 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Endometriosis UK: The UK's leading endometriosis charity delivering awareness, support services, research funding, and healthcare-professional engagement. Most directly comparable as a national, non-clinical advocacy body operating in the same disease category with a similar program mix (helpline, support groups, research grants, employer engagement).
• PCOS Challenge: Largest PCOS support and advocacy organization globally. Comparable as a non-clinical women's reproductive health advocacy body running awareness campaigns, support networks, healthcare provider engagement, and policy advocacy — analogous operating model for a different reproductive condition.
• Pelvic Pain Foundation of Australia: Australian non-profit focused on pelvic pain, including endometriosis-related pelvic pain, with awareness, education, and clinical training programs. Closely comparable as a national, non-clinical body addressing overlapping patient populations and clinician education.
• QENDO: Australian endometriosis and pelvic pain support organization providing patient support, advocacy, and education. Directly comparable as a domestic peer operating in the same country and disease category with overlapping support group, awareness, and clinic referral activities.
• Endometriosis Foundation of America: US-based endometriosis advocacy and research organization co-founded by Dr. Tamer Seckin. Comparable as a leading national endometriosis body running research funding, awareness campaigns (EndoMarch), clinical education, and government advocacy.

Broad incumbents

• Ovarian Cancer Australia: Australia's peak national body for ovarian cancer, providing support, research funding, awareness, and advocacy. Comparable as an Australian women's health charity with a similar mix of community support, government engagement, research grants, and corporate partnerships.
• Jean Hailes for Women's Health: Australia's largest non-profit dedicated to women's health across the lifespan, including endometriosis. Comparable as a nationally-funded women's health advocacy and education body, but broader in scope (menopause, PCOS, cardiovascular) than the disease-specific focus of Endometriosis Australia.
• Cancer Council Australia: Australia's peak national non-governmental cancer control organization. Comparable as a national health charity combining research funding, prevention/awareness campaigns, advocacy, and stakeholder forums, but operating at a vastly larger scale and across multiple cancer types.
• Breast Cancer Network Australia: Australia's leading breast cancer consumer advocacy organization. Comparable as a national non-clinical women's health charity running peer support, advocacy, and policy engagement — a useful analogue for organizational maturity and operating model, though much larger in scale.

Emerging players

• World Endometriosis Research Foundation: Global research-focused endometriosis foundation supporting the World Congress of Endometriosis and collaborative research initiatives. Comparable as an endometriosis-specific research and convening body, but narrower in scope (research only) than Endometriosis Australia's broader advocacy and support mandate.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/EndometriosisAu
• YouTubeyoutube.com/@endometriosisaustralia
• Facebookfacebook.com/EndometriosisAustralia
• LinkedInlinkedin.com/company/endometriosis-australia
• Instagraminstagram.com/endometriosisaustralia
• TikToktiktok.com/@endometriosisaustralia

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Endometriosis Australia