ESGO ENGAGe

What ESGO ENGAGe does

ESGO ENGAGe is the European Network of Gynaecological Cancer Advocacy Groups, a non-profit patient advocacy network founded in 2012 and operating as a formal network within the European Society of Gynaecological Oncology (ESGO). Headquartered in Brussels, Belgium, ENGAGe represents over 80 member patient advocacy groups across 33 European countries and serves women affected by gynecological cancers (ovarian, endometrial, cervical, vulvar, vaginal, and rare cancers) along with their families, patient advocates, and collaborating clinicians. The network is governed by the ENGAGe Executive Group (EEG), comprising 6 patient experts and 4 ESGO clinicians under a dual Co-Chair model.

The organization's core product portfolio centers on three digital patient pathway guides: Olivia (ovarian cancer, launched 2020), Emilia (endometrial cancer, launched 2025), and Cecilia (cervical cancer, launched January 2026), each providing diagnosis-to-follow-up educational journeys. Supporting products include 30+ brochures translated into 26 languages, up to 4 webinars annually, the annual Patient Advocacy Seminar (now in its 15th iteration, scheduled for London in February 2027), the global World GO Day awareness campaign (291 events across 64 countries in 2025), the ENGAGe TEENs youth program on HPV awareness, the Purple Flower of Quality of Life initiative, the Clinical Trials Project, and structured involvement in ESGO guideline development with 1-2 patient representatives per working group.

ENGAGe operates a non-commercial model: membership is free of charge for European patient advocacy groups, and the organization is funded through corporate partnerships with pharmaceutical and medical device companies including AstraZeneca (core partner), Genmab, AbbVie, Incyte, Pharma&, Daiichi Sankyo, Gilead Sciences, GSK, Intuitive, MSD, and Roche. The network provides full grants covering travel, accommodation, and registration for member attendance at Patient Advocacy Seminars. Strategic alliances with ENGOT (clinical trials), EURACAN (rare cancers), and the World Ovarian Cancer Coalition extend ENGAGe's reach into research and global advocacy, while the January 2026 European Parliament event marked its first formal entry into EU-level policy advocacy.

Name

ESGO ENGAGe

Legal name

European Society of Gynaecological Oncology (ESGO)

Website

https://engage.esgo.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

1–10 employees

Short description

ESGO ENGAGe is a non-profit European patient advocacy network founded in 2012 within ESGO, connecting 80+ gynecological cancer advocacy groups across 33 countries. It delivers digital patient pathway guides, educational brochures in 26 languages, and global awareness campaigns serving women with gynecological cancers.

Ownership category

akta.pro rank

Headquarters

HQ city

Brussels

HQ country

Belgium

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Non-profit Network Model: ENGAGe is a non-profit European network founded within the European Society of Gynaecological Oncology (ESGO). It operates as a patient advocacy network without commercial revenue generation. The organization is funded through corporate partnerships, supporters, and contributors in the pharmaceutical and healthcare industry.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels10 records

Core offering

ESGO ENGAGe is a non-profit European network of patient advocacy groups dedicated to women affected by gynecological cancers (ovarian, endometrial, cervical, vulvar, vaginal, and rare cancers). It delivers digital patient pathway guides, multilingual educational brochures, webinars, the annual Patient Advocacy Seminar, and global awareness campaigns such as World GO Day. Membership and core resources are provided free of charge to patient advocacy organizations across Europe.

Product overview

ESGO ENGAGe operates as a European patient advocacy network offering a portfolio of digital patient pathway guides and educational/advocacy programs. The core digital products include Olivia (ovarian cancer), Emilia (endometrial cancer), and Cecilia (cervical cancer) - three virtual guides that support women through every step of their cancer journey. These digital guides provide comprehensive information, practical guidance, and emotional support. Beyond digital guides, the organization offers educational resources including brochures (30+ titles in 26 languages), webinars, and the annual Patient Advocacy Seminar. Awareness initiatives include World GO Day (global awareness campaign reaching 64 countries) and the TEENs youth program. Quality of life programs encompass the Purple Flower initiative, To My Soul psychological support project, and Sexual Health program. Research involvement includes Clinical Trials Project and ESGO Guidelines patient participation. The portfolio is designed to serve patients, advocates, and healthcare professionals across the entire gynecological cancer care continuum.

Differentiator

Problem solved

Functional benefit

Brands

• Olivia: Digital information platform guiding patients through the ovarian cancer pathway
• Cecilia
• Emilia
• World GO Day
• ENGAGe Purple Flower of QoL
• ENGAGe TEENs

Products and services

• Olivia - Digital Ovarian Cancer Patient Pathway A comprehensive digital pathway guide for ovarian cancer patients providing reliable, accessible information from diagnosis through treatment and follow-up care, with educational resources, practical guidance, and support information for patients, families, and healthcare professionals.
• Emilia - Digital Endometrial Cancer Patient Pathway Digital guide providing specialized support for women navigating endometrial cancer, featuring a fictional patient character who guides users through diagnosis, treatment, and survivorship via social media campaigns and a dedicated brochure.
• Cecilia - Digital Cervical Cancer Patient Pathway Virtual guide through the cervical cancer pathway featuring a fictional character based on real patients' experiences, highlighting information and interviews about symptoms, treatment, and follow-up care through social media campaigns.
• Patient Advocacy Seminar (PAS) Annual European event specifically designed for patient experts and patient advocates from across Europe, providing a platform for education, networking, and collective empowerment. The 15th PAS is scheduled for February 25-27, 2027 in London, UK.
• ENGAGe Brochures Over 30 specialized brochures providing reliable, easy-to-understand information on gynecological cancers in 26 languages to help women recognize symptoms, navigate care, and feel supported at every stage of the patient pathway.
• ENGAGe Webinars Educational webinars delivered up to 4 times each year, covering topics such as personalized cancer care, virtual onco-care units, and sexual health after gynecological cancer.
• World GO Day (World Gynaecologic Oncology Day) Global awareness initiative held every September 20th that raises awareness about gynecologic cancer prevention and reduces stigma surrounding these cancers. In 2025, reached 291 events organized by 167 organizations across 64 countries.
• ENGAGe TEENs A youth engagement program using motivated young people from different countries to drive HPV awareness through social media campaigns on TikTok and Instagram and comic books to educate teenagers about HPV risks and prevention.
• ENGAGe Award Annual recognition initiative that celebrates innovation, creativity and excellence in gynecological cancer patient advocacy and action among ENGAGe member organizations.
• ENGAGe Purple Flower of Quality of Life Awareness initiative focused on life after gynecological cancer, supporting women living with and beyond diagnosis and encouraging open conversations between patients and healthcare professionals about survivorship.
• To My Soul Project Campaign providing emotional and psychological support to women navigating the challenges of cancer throughout their entire cancer pathway, from diagnosis shock to life after treatment.
• ENGAGe Clinical Trials Project Research support initiative involving around 30 trained patient experts from 13 countries who ensure clinical studies are designed with the patient perspective from the beginning and strengthen connections between ENGOT trial groups and ENGAGe members.
• ESGO Guidelines Patient Involvement Program in which 1-2 ENGAGe patient expert representatives join each ESGO guidelines working group, with 10-20 patient expert reviewers providing feedback on every guideline produced.
• ENGAGe Sexual Health Program Supportive care initiative addressing sexual health and intimacy after gynecological cancer through dedicated brochures and webinars designed to break taboos and foster open discussions.
• ENGAGe Patient Committees Four cancer-specific patient committees (Cervical Cancer, Endometrial Cancer, Ovarian Cancer, and Rare Cancer) that provide structured patient perspectives on care and participate in ESGO guideline development.

Quantifiable outcome

• World GO Day 2025 reached 291 events across 64 countries on 5 continents
• +3 more outcomes

Named customers9 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Four partnerships are on record, tiered minor and core.

• EURACANminorStrategic or Co-development PartnerCooperating partner - European network for rare adult solid cancers, collaboration on rare cancer patient advocacy.
• World Ovarian Cancer CoalitionminorStrategic or Co-development PartnerCooperating partner - global coalition dedicated to ovarian cancer awareness and advocacy.
• RISCC ConsortiumminorStrategic or Co-development PartnerFour-year Horizon 2020 European research consortium that developed risk-stratified approach to cervical cancer screening. ENGAGe co-authored position paper endorsing HPV DNA testing and self-sampling.
• ENGOT (European Network of Gynaecological Oncology Trials)coreStrategic or Co-development PartnerStrengthening connections between ENGOT trial groups and ENGAGe Clinical Trials members at local level for patient involvement in clinical study design.

Scale indicators11 records

Recent moves6 records

Expansion highlights6 records

Emerging players

• Lymphoma Coalition: Global network of lymphoma patient organizations that pioneered the disease-specific global awareness day model (World Lymphoma Day). Strongly comparable in operating model: global umbrella network, awareness day, multilingual resources, and pharma-funded sustainability.
• EURACAN: European network for rare adult solid cancers, and an existing cooperating partner of ENGAGe. Overlapping in rare cancer advocacy and European research collaboration, with ENGAGe extending into rare gynecological cancers.

Broad incumbents

• European Cancer Patient Coalition (ECPC): Umbrella organization representing European cancer patient groups across all cancer types. A broader incumbent in the same European cancer advocacy space where ENGAGe specializes in gynecological cancers.
• American Cancer Society: Largest voluntary health organization in the US, covering all cancer types with patient support, research funding, and policy advocacy. A broad incumbent whose operating model (events, research grants, awareness campaigns) parallels ENGAGe's portfolio at significantly larger scale.

Direct peers

• World Ovarian Cancer Coalition: Global coalition dedicated to ovarian cancer awareness and advocacy, and an existing strategic partner of ENGAGe. Highly comparable in mission focus (ovarian cancer patient advocacy), awareness campaign model (World Ovarian Cancer Day), and stakeholder engagement.
• The Eve Appeal: UK gynecological cancer awareness charity and ENGAGe member organization. Comparable in scope (all gynecological cancers), digital awareness campaigns (Get Lippy), and advocacy model. Winner of ENGAGe Award 2026.
• Ovarian Cancer Research Alliance (OCRA): Largest ovarian cancer advocacy organization in the US, combining research funding, patient support, and policy advocacy. Comparable in ovarian cancer focus, digital patient education resources, and clinical trial patient engagement programs.
• Europa Donna: European Breast Cancer Coalition, the closest analog to ENGAGe in model and structure — a pan-European network of national patient advocacy groups with rotating annual conferences, policy advocacy at the EU level, and corporate pharma partnerships. Operates in an adjacent oncology vertical with a near-identical operating model.
• Foundation for Women's Cancer (FWC): US-based gynecological cancer education and advocacy organization linked to the Society of Gynecologic Oncology. Comparable in mission (gynecological cancer awareness, education, and patient-provider engagement) and event-based programming.
• Target Ovarian Cancer: UK-focused ovarian cancer advocacy charity providing patient information, professional training for GPs, and policy advocacy. Directly comparable in disease-specific advocacy, awareness campaigns, and clinical pathway engagement.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/esgo-engage
• Instagraminstagram.com/engage.esgo

Revenue estimate

Valuation estimate

Number of profiles

Profiles19 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ESGO ENGAGe