Epilepsie-France

What Epilepsie-France does

Epilepsie-France is a French non-profit association, organized under the Loi 1901 and recognized as being of public utility, headquartered in Paris. Founded in 2006, the organization operates on roughly 22 employees and serves the estimated 700,000 people in France living with epilepsy (1% of the population), along with their families, caregivers, healthcare professionals, and the broader public. Its mission centers on supporting patients, fighting stigma, and advocating for improved care and recognition of epilepsy at the national level.

The association's service portfolio is non-technological and primarily informational and community-based. It includes a helpline and listening service, a Facebook peer-support community of 221,820 members, regional delegations and volunteer correspondents across France, a quarterly member magazine ('La Vie d'Abord'), thematic documentation and a White Paper, webinars on employment and other daily-life topics, an adapted youth vacation program (in partnership with UCPA), awareness campaigns, and the 'Tricky Life' pedagogical app for epilepsy-related domestic accident prevention. The organization also convenes the National Epilepsy Summit (currently in its 4th edition) and annually publishes advocacy material such as a manifesto.

Revenue is generated through three streams: individual membership fees (annual, billed through the Helloasso platform), tax-deductible donations (eligible for a 66% reduction under French law), and merchandise sales (t-shirts, accessories) through a Helloasso boutique. No membership pricing is publicly disclosed. Governance is led by President Christophe Lucas, with Patrick Baudru serving as Data Protection Officer and comedian Frédéric Bouraly acting as patron since 2021. The association holds no patents, has no funding rounds, and operates as a non-listed entity with no parent company or subsidiaries.

Name

Epilepsie-France

Website

https://epilepsie-france.com

Company type

Private

Founded year

2006

Operating status

Operating

Headcount range

11–50 employees

Short description

Epilepsie-France is a French non-profit association of public utility (Loi 1901) that supports the 700,000 people in France living with epilepsy through information, advocacy, regional delegations, a peer-support community, and educational programs.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Civic and Social Organizations (813410), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813), Business Associations (813910)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

Keywords

• Patient advocacy services
• Epilepsy support programs
• Nonprofit health association
• Patient information resources
• Epilepsy awareness campaigns

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership fees (Adhésion): Annual membership fees from individuals supporting the association. Members receive the magazine 'La Vie d'Abord' (3 issues per year) and other benefits.
2. Donations: Donations from individuals and organizations. Donors receive a 66% tax reduction on their contributions, making donations financially attractive for French taxpayers.
3. Merchandise sales: Sale of branded merchandise including t-shirts, tank tops, polos, bags, and accessories through the Helloasso boutique.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels8 records

Core offering

Epilepsie-France is a national non-profit association (Loi 1901) recognized as being of public utility that delivers support, information, and advocacy services for people affected by epilepsy in France. Its offerings include thematic documentation/brochures, the quarterly members' magazine 'La Vie d'Abord', a pedagogical game ('Tricky Life'), webinars on key topics, awareness/educational sessions, adapted vacation programs for youth, and a listening/information helpline supported by a Facebook peer forum. The association also operates regional delegations and volunteer correspondents across France and conducts national-level advocacy via its White Paper and Manifesto.

Product overview

Epilepsie-France is a national non-profit association (Loi 1901) recognized as being of public utility that provides support services, information, and advocacy for people with epilepsy in France. The organization offers a unified portfolio of services centered on patient support and education, including: documentation and publications (thematic brochures, the 'La Vie d'Abord' magazine), educational tools (the 'Tricky Life' pedagogical application), webinars on key topics, awareness programs, adapted vacation programs for youth, and community support through forums and helplines. Rather than a technology product platform, it operates as a service-based advocacy organization.

Differentiator

Problem solved

Functional benefit

Brands

• La Vie d'Abord: The official magazine of Epilepsie-France published 3 times per year, exclusively for members, featuring news, thematic dossiers, testimonials, and regional event information

Products and services

• Tricky Life (Educational Game) Pedagogical mobile or tablet game designed to prevent domestic accidents related to epilepsy, aimed at patients, families, and educators.
• Thematic Documentation and Brochures Free downloadable thematic brochures and flyers covering epilepsy basics, seizure first aid, pregnancy, treatments, and risk prevention, intended for patients, families, and the general public.
• La Vie d'Abord Magazine Quarterly members-only magazine (3 issues per year) featuring central dossiers, news, regional event calendars, thematic highlights, practical information, and testimonials for people with epilepsy and their families.
• Webinaires (Online Conferences) Online conferences/webinars on key topics such as epilepsy and employment, epilepsy and pregnancy, and epilepsy and sports, aimed at patients, families, and healthcare professionals.
• Séjours Vacances Adaptés (Adapted Vacation Programs) Adapted vacation programs designed for young people with epilepsy, offering supervised and tailored activities during school holiday periods.
• Sensibilisations (Awareness Programs) Awareness and educational sessions delivered to the general public, schools, and professionals to reduce stigma and improve understanding of epilepsy.
• Écoute et Informations (Listening and Information Helpline) Helpline and information service for people with epilepsy and their families, complemented by a moderated Facebook peer-support forum.

Quantifiable outcome

• Nearly 70% of people with epilepsy can achieve good seizure control with appropriate treatment
• +1 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Market position

Competitive moat4 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/c/%C3%89pilepsieFranceAsso
• Facebookfacebook.com/profile.php
• LinkedInlinkedin.com/company/epilepsie-france
• Instagraminstagram.com/epilepsiefrance?igsh=MWh4aDNnYWFqc3A0MA==

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsie-France