Daño Cerebral Estatal

What Daño Cerebral Estatal does

Daño Cerebral Estatal (legal name: Federación Española de Daño Cerebral, FEDACE) is a non-profit civil federation founded in 1995 and headquartered in Madrid, dedicated to defending the rights of people with Acquired Brain Injury (ABI) and their families across Spain. The federation groups 48 member associations covering all Spanish autonomous communities and represents over 12,000 individual members, within an addressable population of more than 435,400 people living with ABI in Spain and 104,071 new annual cases (predominantly stroke-related).

The organization operates a federated service delivery model rather than a proprietary technology platform. Its digital infrastructure comprises a public website (fedace.org), a searchable resource inventory (258 catalogued resources, 20,425 annual web consultations in 2023), a mobile application (Daño Cerebral APP), and a Moodle-based e-learning campus (Instituto Estatal de Formación) offering professional training on ABI topics. Core service offerings include family information and psychological support, school-inclusion programs, an Integral Employment Plan, community intervention, prevention campaigns (road safety, stroke), the Observatorio Estadual research body, and the Cuadernos FEDACE technical publication series. In 2024, the federation completed a multi-year rebranding to unify all member entities under the Daño Cerebral Estatal identity, strengthening cohesion and visibility.

The revenue model is non-commercial: services are provided free of charge to beneficiaries. Funding is sourced primarily from public subsidies and grants (77.87% of 2023 income, including IRPF and corporate-tax social allocations via the Ministry of Social Rights and Ministry of Education), private collaborations with foundations such as Fundación ONCE, Barrié, and GMP (16.99%), member-association dues (2.77%), and individual donations (2.37%). Total 2023 expense base of approximately €1.13M (personnel, operating, programs) implies annual revenue in the €1M–€2M range. The federation holds ICONG quality certification (2022), the 'Dona con Confianza' transparency seal (2026), and GDPR compliance certification (2025), and was awarded the Reina Letizia National Disability Award (2021) and the CERMI Especial prize (2025).

Name

Daño Cerebral Estatal

Legal name

Federación Española de Daño Cerebral

Website

https://fedace.org

Company type

Private

Founded year

1995

Operating status

Operating

Headcount range

1–10 employees

Short description

Daño Cerebral Estatal is a Madrid-based non-profit federation founded in 1995 that coordinates 48 member associations across Spain to defend the rights and deliver services to people with Acquired Brain Injury (ABI) and their families, serving over 12,000 members within a national ABI population of 435,400+.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industry

Federated Giving Organizations (e.g., United Way-type) (BPAGAKAG)

Keywords

• Brain injury services
• Neurorehabilitation support
• Disability day services
• Social health federation
• Family caregiver support

Headquarters

HQ city

Madrid

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Infrastructure, Marketing or Sales, Technology or R&D

Revenue model

1. Public Subsidies and Grants: The primary revenue stream, comprising approximately 77.87% of total income. Funding comes from national ministries (Ministry of Social Rights, Ministry of Education), regional governments, and assignments from IRPF (Personal Income Tax) and corporate tax (Impuesto sobre Sociedades) allocations earmarked for social purposes.
2. Private Collaborations and Donations: Approximately 16.99% of total income from private collaborations, donations from individuals, and project-based funding from private foundations (e.g., Fundación Barrié, Fundación ONCE, Fundación GMP, EDISA).
3. Membership Dues: Annual fees paid by the 48 member associations (entidades socias). Represents approximately 2.77% of total income.
4. Individual Donations: Donations from private individuals, complemented by the 'Casilla Empresa Solidaria' campaign allowing companies to allocate 0.7% of corporate tax to the organization.

Go-to-market motion1 record

Distribution channels5 records

Marketing channels9 records

Core offering

FEDACE is the national non-profit federation for Acquired Brain Injury (ABI) in Spain, founded in 1995, representing 48 member associations and over 12,000 members who collectively serve 435,400-plus people affected by ABI. The federation coordinates and delivers direct services including day centers, residential services, supported living, neurorehabilitation, early intervention, family support, and national advocacy/awareness campaigns. Beyond service coordination, FEDACE acts as the collective representative body for the ABI community in Spain.

Product overview

Daño Cerebral Estatal (formerly FEDACE - Federación Española de Daño Cerebral) is a non-profit federation representing and supporting the associative movement of people with acquired brain injury (ABI) and their families in Spain. Founded in 1995, the organization provides a comprehensive portfolio of services including information and family support, social inclusion programs, employment assistance, educational support, prevention initiatives, and training. The organization operates a network-based model with 48 federated entities serving over 12,000 members. Key digital offerings include the Daño Cerebral mobile application, a resource inventory database, an online training institute (Moodle-based), and the State Observatory on Acquired Brain Injury for research and data collection.

Differentiator

Problem solved

Functional benefit

Brands

• Instituto Estatal de Formación sobre el Daño Cerebral: State-level training institute providing specialized education and professional development on acquired brain injury.
• Observatorio Estatal de Daño Cerebral
• Daño Cerebral APP
• Proyecto RUMBO

Products and services

• Day Centers for People with ABI (Centros de Día) Daytime care and therapeutic activity services for people with Acquired Brain Injury, delivered through FEDACE's 48 member associations, focused on rehabilitation, social participation, and respite for families.
• Residential Services (Servicios Residenciales) Long-term residential accommodation with 24-hour care for individuals with Acquired Brain Injury who cannot live independently, delivered via member associations across Spain.
• Supported Living / Housing with Support (Vivienda con apoyo) Housing and supported independent living programs for individuals with Acquired Brain Injury, designed to maximize autonomy and community integration.
• Neurorehabilitation Services (Neurorrehabilitación) Specialized rehabilitation services addressing cognitive, motor, behavioral, and communication impairments resulting from Acquired Brain Injury.
• Early Intervention Services (Atención Temprana) Early intervention services for children and adolescents with Acquired Brain Injury, addressing developmental, cognitive, and rehabilitation needs at the earliest possible stage.
• Family Support Services (Apoyo a Familias) Counseling, training, peer support, and respite services for family members and caregivers of individuals living with Acquired Brain Injury.
• National Advocacy and Awareness Programs (Incidencia y Sensibilización) National awareness campaigns, policy advocacy, and representation of the ABI community before public authorities and civil society, led by FEDACE as the national federation.

Quantifiable outcome

• 93.79% satisfaction rate among member entities in 2024 (up from 78.50% in 2023)
• +4 more outcomes

Named customers1 record

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

14 partnerships are on record, tiered flagship, core and minor.

• CERMI (Comité Español de Representantes de Personas con Discapacidad)flagshipStrategic or Co-development Partner · 19 June 2026On June 19, 2026, CERMI presented its 'Amiga de las Personas con Discapacidad – Ciudadana Cermi' distinction to Inmaculada Gómez Pastor, Director of CEADAC. The President of Daño Cerebral Estatal, Ana Cabellos, delivered the laudatio. CERMI awarded its Premio Especial cermi.es 2025 to the federation.
• Dirección General de Tráfico (DGT)coreStrategic or Co-development Partner · 1 June 2026On June 1, 2026, the federation's President Ana Cabellos and Director Libertad Martínez met with DGT Director Pere Navarro and Deputy Director Montserrat Pérez to discuss procedures for driving license recovery for persons with Acquired Brain Injury. The DGT committed to sharing existing protocols and both parties agreed to work toward more homogeneous criteria across the Spanish territory.
• Congreso de los DiputadosflagshipStrategic or Co-development Partner · 27 October 2025On October 27, 2025, the federation held a commemorative event 'Viejas necesidades, nuevos enfoques. Hacia una mejor atención y reconocimiento del Daño Cerebral Adquirido' in the Sala Ernest Lluch of the Congress of Deputies, coinciding with National ABI Day and the 30th anniversary.
• Fiscalía de Seguridad VialcoreStrategic or Co-development Partner · 1 May 2023In May 2023, the federation signed a cooperation agreement with the Prosecutor's Office for Road Safety and other traffic accident victim entities to promote road safety and prevent traumatic brain injuries (the second leading cause of ABI).
• Fundación ONCEcoreStrategic or Co-development PartnerFundación ONCE collaborated in the State Program for active aging of people with ABI and provides meeting facilities at its headquarters in Madrid for the federation's General Assembly and institutional events.
• Fundación GMPminorStrategic or Co-development PartnerFundación GMP altruistically provided meeting space for the second professional workshop on active aging of people with ABI, contributing to the federation's training activities.
• RENFEminorGTM or Marketing PartnerDuring the second half of 2023, FEDACE collaborated with RENFE on accessibility initiatives for the National Day of Acquired Brain Injury, promoting train accessibility awareness.
• AtresmediaminorGTM or Marketing PartnerDuring the first half of April, FEDACE ran a public awareness spot (Spot Movimiento Asociativo) on Antena 3 and laSexta channels through Atresmedia, reaching a broad national audience.
• CEADAC (Centro de Referencia Estatal de Atención al Daño Cerebral - IMSERSO)flagshipStrategic or Co-development PartnerCEADAC is the State Reference Center for Acquired Brain Injury Care under IMSERSO. The federation maintains a close collaborative relationship with CEADAC, and its director (Inmaculada Gómez Pastor) was recognized by CERMI with the 'Amiga de las Personas con Discapacidad' award. CEADAC has accompanied more than 8,000 persons with ABI and their families since its creation.
• Plataforma del Tercer SectorcoreStrategic or Co-development PartnerThe federation participates in the 'Casilla Empresa Solidaria' campaign led by the Platform of the Third Sector, encouraging companies to allocate 0.7% of corporate tax (Modelo 200, Casilla 00073; Modelo 220, Casilla 069) to social causes, including ABI organizations.
• Fundación AequitascoreStrategic or Co-development PartnerThe legal guidance service (Servicio de orientación jurídica) is coordinated by Fundación Aequitas, which provides free legal advice to persons with ABI and their families as part of the RUMBO project.
• ADACEN (Asociación de Daño Cerebral de Navarra)coreStrategic or Co-development PartnerADACEN provided technical coordination for the second professional workshop on active aging of persons with ABI in Madrid, represented by Antonia Amorena García (social worker with 30+ years of experience) and hosts a Day Center for Elderly People in Pamplona.
• CEATE (Confederación Española de Aulas de la Tercera Edad)minorStrategic or Co-development PartnerCEATE (founded 1983), a national reference in gerontology and disability, participated in the active aging workshop through its president Gonzalo Berzosa Zeballos, contributing expertise in adult education and sociocultural animation.
• Real Patronato sobre DiscapacidadcoreStrategic or Co-development PartnerIn January 2023, the federation met with the Royal Board on Disability to cooperate in the implementation of the 'Código al Alta' (ABI diagnostic code at hospital discharge), a key policy goal of the movement.

Scale indicators7 records

Recent moves7 records

Expansion highlights6 records

Regional players

• CEADAC (Centro de Referencia Estatal de Atención al Daño Cerebral - IMSERSO): State reference center for ABI care operated by IMSERSO (Spain). The most direct operational peer because it provides direct ABI rehabilitation and has accompanied over 8,000 ABI persons; Daño Cerebral Estatal partners closely with CEADAC but does not compete for service delivery.

Broad incumbents

• COCEMFE (Confederación Española de Personas con Discapacidad Física y Orgánica): Spanish confederation of physical and organic disability organizations with a federated structure across autonomous communities. Directly comparable operating model (federation of regional associations, IRPF-funded programs, training and advocacy services).
• Fundación ONCE: Foundation of ONCE, the Spanish organization for the blind, that funds disability inclusion and employment programs. Comparable as a major disability funder and strategic partner that co-finances Daño Cerebral Estatal programs (e.g., active aging project).
• Plena Inclusión (Confederación Española de Organizaciones en favor de las Personas con Discapacidad Intelectual): Spain's largest disability confederation representing intellectual disability organizations. Comparable as a federated disability-services nonprofit that channels public subsidies and advocacy across regional associations, though its focus is intellectual rather than acquired brain disability.
• CERMI (Comité Español de Representantes de Personas con Discapacidad): The umbrella platform representing Spanish disability organizations at the national level. Comparable because Daño Cerebral Estatal is a member and partner of CERMI, sharing policy advocacy, awards, and institutional representation functions for disability rights.
• Plataforma del Tercer Sector: Spanish umbrella platform of the third sector that coordinates the 'Casilla Empresa Solidaria' corporate tax allocation campaign in which Daño Cerebral Estatal participates. Comparable as the coordinating body for solidarity-tax funding the federation depends on.

Direct peers

• FEDER (Federación Española de Enfermedades Raras): Spanish federation for rare diseases operating a similar model: federation of patient/family associations, IRPF-funded services, research/observatory activity, training programs, and national advocacy in Madrid.
• Confederación ASPACE (Confederación Española de Federaciones y Asociaciones de Atención a Personas con Parálisis Cerebral y Afines): Spanish confederation focused on cerebral palsy and related conditions. Comparable because it represents a specific neurological-disability population through a federated network of regional associations delivering direct services and advocacy.
• FIAPAS (Confederación Española de Familias de Personas Sordas): Spanish federation of families of deaf persons, with a closely parallel structure to Daño Cerebral Estatal: federation of regional family associations, IRPF-funded programs, training institute, observatory, advocacy, and prevention/awareness campaigns.

Others

• Fundación Lealtad: Spanish nonprofit that audits NGOs for transparency and best practices. The federation holds the 'Dona con Confianza' seal from Fundación Lealtad; comparable only as the certifying ecosystem rather than a service-delivery peer.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/fedace
• YouTubeyoutube.com/channel/UC
• Facebookfacebook.com/fedace
• LinkedInlinkedin.com/company/danocerebralestatal
• Instagraminstagram.com/fedace

Compliance4 records

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Daño Cerebral Estatal