Fédération Française de la Peau

What Fédération Française de la Peau does

The Fédération Française de la Peau (FFP) is a non-profit patient advocacy federation founded in February 1999 and reorganized/relaunched in 2018, registered under French law of July 1, 1901 (SIREN 890 509 177). It is headquartered at 10 Rue Lacuée in the 12th arrondissement of Paris and operates exclusively in France. The federation unites 26 patient associations representing an estimated 20 million French people affected by approximately 6,500 recognized skin diseases and conditions, organized into three colleges representing high prevalence (>1%), reduced prevalence (<1%), and rare diseases. Its core mission spans four pillars: moral support and informed listening for patients; public sensitization to the emotional and social impact of skin diseases; institutional representation of patients and families with public authorities to legitimize care pathways; and stimulation and support of scientific research through collaboration and funding facilitation.

The federation's service portfolio includes three pedagogical brochures for primary, secondary, and university students developed with scientific support from the Société Française de Dermatologie; a Service d'Écoute Médico-Social offering specialized case assistance for up to five complex cases per year per member association; documentation and guides on dermatological handicaps and MDPH evaluation forms; an annual National Conference (7th edition in December 2025); and active participation in awareness days such as National Eczema Day and World Vitiligo Day. Its technology stack is limited to a standard informational website (francepeau.com), social media presence on Facebook, LinkedIn, and YouTube, and email/donor communications — no proprietary software, app, API, or AI capabilities. The federation published a Télé-expertise report in March 2026 on remote dermatology consultation practices, signaling engagement with digital health policy.

FFP generates revenue through individual and corporate donations (eligible for French tax deductions under Article 200 of the General Tax Code) and recurring membership fees from associations, healthcare professionals, and institutions. Strategic partnerships include the Société Française de Dermatologie (scientific reference), Incyte and Fédération Française Sports pour Tous (sports inclusion program), FIMARAD (national rare dermatological disease health sector, PNMR2), and VIPOC (international vitiligo patient organizations committee). Governance is led by President Stéphanie Merhand, with no parent company, no equity investors, and no disclosed funding rounds.

Name

Fédération Française de la Peau

Legal name

Fédération Française de la Peau

Website

https://francepeau.com

Company type

Private

Founded year

1999

Operating status

Operating

Headcount range

1–10 employees

Short description

The Fédération Française de la Peau is a French non-profit patient federation uniting 26 associations to represent, support, and advocate for an estimated 20 million people affected by skin diseases across France, offering educational tools, awareness events, and institutional representation.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYBPAIAJAI

Non-Communicable Disease Prevention & Chronic Disease Programs

Business & Public Services/Public Sector & Government Administration/Public Health Administration & Regulation

SECONDARYBPADAIAL

Community Health, Health Promotion & Behavior Change (SBCC)

Business & Public Services/International Organizations & Development/Global Health & Population Programs

SECONDARYBPADAIAK

Non-Communicable Diseases (NCDs) & Mental Health Programs

Business & Public Services/International Organizations & Development/Global Health & Population Programs

Keywords

• Patient advocacy services
• Skin disease support
• Dermatology awareness
• Patient federation
• Healthcare advocacy

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: Individual and corporate donations fund the federation's activities including research support, awareness campaigns, and patient support programs. Donations are eligible for tax receipts under French law (Article 200 of the General Tax Code).
2. Membership fees: Associations, healthcare professionals, and institutions can become members of the federation, contributing annual fees that support the organization's operations and advocacy work.

Go-to-market motion2 records

Distribution channels3 records

Marketing channels5 records

Core offering

The Fédération Française de la Peau (FFP) is a French non-profit patient advocacy federation representing 26 member associations and approximately 20 million French people affected by skin diseases. It provides moral support and attentive listening to patients, delivers disease and research information, advocates for patient recognition and legitimate care pathways, stimulates scientific research on skin diseases, and develops educational tools (brochures, listening services, therapeutic patient education programs).

Product overview

The Fédération Française de la Peau is a patient advocacy federation offering a portfolio of information services, educational tools, and support programs for people affected by skin diseases. The core offering centers on the federation itself as a unified platform representing 26 member associations. Supporting products include educational brochures for children, adolescents, and adults on skin health; a Medical-Social Support Service for member associations managing complex cases; various guides and documentation on dermatological diseases and handicaps; annual conferences and events; and partnerships for sports inclusion of skin disease patients. The organization does not operate a software product but provides a comprehensive ecosystem of patient support, education, and advocacy services.

Differentiator

Problem solved

Functional benefit

Products and services

• Fédération Française de la Peau (FFP) - Patient Advocacy Federation A national federation uniting 26 patient associations representing approximately 20 million French people affected by skin diseases. Provides advocacy, support, education, and research promotion for dermatological conditions across three prevalence-based colleges (high prevalence, reduced prevalence, rare diseases).
• Brochures Pédagogiques (Educational Brochures) Three pedagogical brochures created for primary school, secondary school, and university students explaining skin health, hygiene practices, disease prevention, and seasonal protection. Developed with scientific support from the Société Française de Dermatologie.
• Service d'Écoute Médico-Social (Medical-Social Support Service) A support service for member associations managing complex medical and social cases, offering personalized assistance from specialized social workers for up to five cases per year per association.
• Documentation and Guides Collection of documents including the FFP plaidoyer (advocacy document), MDPH evaluation forms, guides on handicaps related to dermatological diseases, and educational materials.
• Annual National Conference Annual national conference (currently in its 7th edition) bringing together experts, researchers, patient partners, and associations to discuss dermatological advances and care pathway challenges, including topics on therapeutic innovations, patient experience, and medical desertification.
• Member Association Network Network of 26 patient associations covering various skin conditions including eczema, vitiligo, psoriasis, lupus, burns, epidermolysis bullosa, ichthyosis, Verneuil disease, and rare skin diseases.

Quantifiable outcome

• 26 patient associations united under one federation
• +2 more outcomes

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• FIMARAD (Filière Santé Maladies Rares Dermatologiques)coreStrategic or Co-development Partner · 1 January 2015FIMARAD is the national health sector for rare dermatological diseases, established under the 2nd National Rare Disease Plan (PNMR2). The FFP participates in FIMARAD's governance and working groups, representing patient associations alongside CRMRs and CCMRs.
• Société Française de Dermatologie (SFD)coreStrategic or Co-development PartnerThe Société Française de Dermatologie provides scientific support for the federation's educational brochures and resources. The federation cites SFD as its scientific reference source for data on skin disease prevalence and statistics.
• IncyteminorStrategic or Co-development PartnerIncyte, a pharmaceutical laboratory, partnered with the FFP and Fédération Française Sports pour Tous to develop a program sensitizing and training sports professionals to welcome people with skin diseases.
• Fédération Française Sports pour TousminorStrategic or Co-development PartnerA tripartite partnership with Incyte and the FFP focused on removing barriers to sports participation for people with skin diseases. FFP and Sports pour Tous organized a webinar for sports animators on the impact of skin diseases and best practices for accompaniment.
• VIPOC (Vitiligo International Patient Organizations Committee)minorStrategic or Co-development PartnerInternational network of vitiligo patient associations that launched the VPV (Vitiligo Patient Views) survey. The Association Française du Vitiligo, an FFP member, participates in VIPOC to gather patient experiences for advocacy purposes.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• GlobalSkin: International alliance of skin disease patient organizations that federates national and disease-specific groups worldwide, directly comparable to FFP's role as an umbrella federation for French dermatology patients.
• France Psoriasis: FFP member association dedicated to psoriasis patient support; a direct peer in the French dermatology patient advocacy space with comparable structure, fundraising, and awareness-campaign activities.
• Debra International: Global federation for epidermolysis bullosa patient organizations, including Debra France (an FFP member); directly comparable as a rare skin disease umbrella organization with national chapters.
• European Federation of Skin Diseases Patient Associations (EUROPSO): Pan-European coalition of psoriasis and dermatology patient organizations, structurally analogous to FFP but operating at a continental level across multiple disease areas.
• Vitiligo International Patient Organizations Committee (VIPOC): International network of vitiligo patient organizations, of which Association Française du Vitiligo (an FFP member) is part; directly comparable as a disease-specific patient federation structure.
• Association Française de l'Eczéma: A leading member association of FFP, focused on eczema patient support; comparable as a single-disease dermatology patient organization in France with a similar advocacy and education model.

Broad incumbents

• EURORDIS – Rare Diseases Europe: European umbrella for rare disease patient organizations, including rare dermatological conditions represented by FFP through FIMARAD; comparable federating role but at supranational scale.
• Ligue contre le cancer: France's largest patient advocacy federation for cancer, including skin cancer; a broader and better-resourced national federation with an overlapping mission and a comparable association loi 1901 structure.

Regional players

• National Eczema Association (US): US-based patient advocacy organization for eczema and atopic dermatitis, a direct analog of one of FFP's largest member associations (Association Française de l'Eczéma) but operating in a different geography.
• National Psoriasis Foundation (US): US patient advocacy and research funder for psoriasis, parallel to FFP member France Psoriasis; offers a benchmark for how a single-disease skin organization can professionalize advocacy and research funding.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCvbExcayClnIRh7Vw99itLg
• Facebookfacebook.com/francepeau
• LinkedInlinkedin.com/company/f%C3%A9d%C3%A9ration-fran%C3%A7aise-de-la-peau

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Subsidiaries23 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fédération Française de la Peau