Frauenselbsthilfe Krebs Bundesverband e.V.

What Frauenselbsthilfe Krebs Bundesverband e.V. does

Frauenselbsthilfe Krebs Bundesverband e.V. (FSH) is a registered German non-profit association (eingetragener Verein, Amtsgericht Bonn, VR 9192) founded in 1976 and headquartered at Thomas-Mann-Str. 40, 53111 Bonn. It is one of Germany's largest cancer self-help organizations, providing free peer support, counseling, and information services for women affected by cancer, with dedicated networks extending coverage to metastatic patients, men with breast cancer, young adults, and family caregivers.

The organization operates a multi-channel service ecosystem: 350+ local self-help groups across all German states (organized through 10 state-level associations), telephone counseling, moderated online forum (forum.frauenselbsthilfe.de), weekly online self-help meetings via video conference (capped at ~20 participants and supported by psycho-oncologists), and specialized networks (Netzwerk Leben mit Metastasen, Netzwerk Männer mit Brustkrebs, FSH Onliner). Content assets include the quarterly magazine 'perspektive', a Wiki knowledge base, brochures, YouTube clips, and clinic/psycho-oncologist directories. Technology is a standard community-platform stack — website, forum, video conferencing, content library — with no proprietary AI or data infrastructure. Distribution includes direct-to-consumer channels plus rehabilitation-clinic partnerships for institutional referrals.

The business model is donation- and grant-funded under the patronage of Stiftung Deutsche Krebshilfe since 1978; additional project funding comes from entities such as BKK Dachverband e.V. All services are free to end users. Governance rests with an elected Bundesvorstand chaired by Elke Naujokat, with a small Bundesgeschäftsstelle staff of roughly 10–15 supporting nationwide operations and an extensive volunteer moderator/coach base trained through the FSH Selbsthilfe-Coach qualification program.

Name

Frauenselbsthilfe Krebs Bundesverband e.V.

Legal name

Frauenselbsthilfe Krebs - Bundesverband e. V.

Website

https://frauenselbsthilfe.de

Company type

Private

Founded year

1976

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Patient Support Services (Cancer Self-Help)

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190), Other Individual and Family Services (62419), Social Assistance (624)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Mental Health & Crisis Support Services (BPAGACAD)

akta.pro secondary industries

Community Health, Prevention & Health Education (BPAGACAC), Financial Assistance & Benefits Navigation Services (BPAGAEAK)

Keywords

• Cancer self-help groups
• Patient support services
• Peer support networks
• Cancer patient advocacy
• Psychosocial oncology support

Headquarters

HQ city

Bonn

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: Free services funded entirely through donations from the public
2. Deutsche Krebshilfe Funding: Financial support under the patronage of Stiftung Deutsche Krebshilfe since 1978
3. BKK Dachverband Web Development Funding: Website development funding from BKK Dachverband e.V. for accessibility improvements

Pricing tiers

Go-to-market motion1 record

Distribution channels6 records

Marketing channels7 records

Core offering

Frauenselbsthilfe Krebs Bundesverband e.V. provides free psychosocial peer support, counseling, and self-help group services to cancer patients (primarily women) and their families across Germany. Its offering is delivered through 350+ local self-help groups, telephone counseling, online forums, condition-specific peer networks (metastatic cancer, male breast cancer, young adults), the published magazine "perspektive," educational brochures, and a self-help coach qualification program. All services are offered free of charge to individuals affected by cancer.

Product overview

Frauenselbsthilfe Krebs Bundesverband e.V. is a German non-profit cancer self-help organization offering a comprehensive ecosystem of support services for cancer patients and their families. The organization provides local support groups (Gruppen vor Ort), telephone counseling, specialized networks for metastatic cancer (Netzwerk Leben mit Metastasen) and male breast cancer (Netzwerk Männer mit Brustkrebs), an online network (FSH Onliner), and a moderated forum. Their offerings include the quarterly magazine 'perspektive', educational brochures and guides, a Wiki knowledge base, and qualification programs for self-help coaches. The organization hosts annual federal congresses and provides online self-help meetings for women with metastases. Additional resources include clinic search tools, psycho-oncologist directories, rehabilitation clinic services, and extensive information on social law topics such as disability rights, rehabilitation, nursing care insurance, and financial support.

Differentiator

Problem solved

Functional benefit

Brands

• FSH Onliner: A network of the Frauenselbsthilfe Krebs for online self-help engagement.
• Netzwerk Leben mit Metastasen
• Netzwerk Männer mit Brustkrebs
• Netzwerk Leben mit Metastasen – Online-Selbsthilfetreffen
• Qualifizierung zum Selbsthilfe-Coach FSH

Products and services

• Local Self-Help Groups (Gruppen vor Ort) Free, in-person peer support groups for cancer patients and family members, with 350+ locations across Germany.
• Telephone Counseling Free telephone-based counseling and information for cancer patients and their families.
• FSH Onliner (Online Network) Online self-help network enabling cancer patients and families to participate remotely and connect via digital channels.
• Online Self-Help Meetings (Online-Selbsthilfe-Treffen) Recurring online group meetings for cancer patients and family members who cannot attend in-person groups.
• Network "Leben mit Metastasen" (Life with Metastases) Specialized peer support network for individuals living with metastatic cancer and their families.
• Network "Männer mit Brustkrebs" (Men with Breast Cancer) Specialized peer support network for male breast cancer patients, addressing the gender gap in breast cancer support.
• Network "Junger Erwachsener mit Krebs" (Young Adults with Cancer) Peer support network for young adults (aged 18–30) with cancer, addressing life-stage challenges such as fertility, career, and relationships.
• Magazine "perspektive" Periodical magazine covering cancer-related topics, personal stories, and medical information for members and the public.
• Brochures and Information Guides Free informational brochures and guides covering cancer types, treatment options, and coping strategies.
• Self-Help Coach Qualification (Selbsthilfe-Coach Qualifizierung) Training program qualifying individuals to lead self-help groups; the only intervention recognized by AOK (a major German health insurer).
• Federal Congresses (Bundeskongresse) National educational congresses for cancer patients, families, and self-help group leaders featuring expert speakers and workshops.
• Clinic Search (Klinik-Suche) Online directory helping patients find partner rehabilitation clinics and other treatment facilities.
• Find Psycho-Oncologists (Psychoonkologen-Suche) Online directory helping cancer patients locate qualified psycho-oncology professionals.
• Rehabilitation Clinic Partnership Program Exclusive self-help partnership program with selected rehabilitation clinics that integrate FSH peer support into their rehabilitation offerings.

Quantifiable outcome

• Serving thousands of people with cancer through free support services

Named customers3 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Four partnerships are on record, tiered core and minor.

• Haus der Krebs-Selbsthilfe – Bundesverband e.V. (HKSH-BV)coreStrategic or Co-development PartnerFSH is a member of the House of Cancer Self-Help, which was founded in 2015 and unites twelve nationwide cancer self-help associations with approximately 1,500 self-help groups covering 85% of cancer patients in Germany.
• Der Paritätische WohlfahrtsverbandminorStrategic or Co-development PartnerPartner organization shown in the partnerships and cooperation section of the website.
• Deutsche Arbeitsgemeinschaft Selbsthilfegruppen e.V. (DAG SHG)minorStrategic or Co-development PartnerPartner organization in the self-help network.
• Bundesarbeitsgemeinschaft für Rehabilitation e.V. (BAR)minorStrategic or Co-development PartnerPartnership for rehabilitation facility search and referral services for cancer patients.

Scale indicators3 records

Recent moves5 records

Expansion highlights4 records

Direct peers

• Brustkrebs Deutschland e.V. Patient-led advocacy organization for breast cancer patients in Germany. Comparable peer-support, awareness, and patient-empowerment focus with a younger-patient orientation similar to FSH's Junge Selbsthilfe segment.
• Deutsche Leukämie- & Lymphom-Hilfe (DLH): National umbrella association for leukemia and lymphoma self-help groups in Germany. Closely comparable operating model—local self-help groups, information services, conferences, and federal coordination under a single staffed office.
• Haus der Krebs-Selbsthilfe – Bundesverband e.V. (HKSH-BV): Umbrella organization of twelve nationwide cancer self-help associations covering ~85% of cancer patients in Germany, of which FSH is a member. Operates a federation model closely matching FSH's mission of peer support for cancer patients across Germany.
• Mamazone – Frauen und Forschung gegen Brustkrebs e.V. German breast cancer self-help organization focused on patient empowerment and research advocacy. Directly comparable as a female-cancer-focused peer-support nonprofit operating in Germany with similar information and advocacy offerings.
• BRCA-Netzwerk e.V. – Hilfe bei familiärem Brust- und Eierstockkrebs: German self-help network for hereditary breast and ovarian cancer patients. Comparable peer-support, counseling, and information model for a specific sub-segment of the same cancer patient population FSH serves.

Broad incumbents

• Macmillan Cancer Support: UK's largest cancer support charity providing information, peer support, financial guidance, and healthcare professional services. A close international comparable on mission and service mix, though at materially larger scale and with a paid workforce.
• Deutsche Krebsgesellschaft (DKG): Germany's largest scientific oncology society. Operates certification programs for cancer centers and patient information platforms overlapping with FSH's clinic search and guideline resources, though from a professional-society rather than patient-led perspective.
• Stiftung Deutsche Krebshilfe: Germany's largest cancer charity and FSH's primary patron since 1978. Operates across research funding, patient information, and policy advocacy at a much larger scale, but addresses overlapping patient populations and information needs.
• Krebsinformationsdienst (KID) – Deutsches Krebsforschungszentrum: Government-funded cancer information service operated by the German Cancer Research Center (DKFZ). Provides evidence-based cancer information comparable to FSH's Wiki and resource library, but at a national institutional scale.
• American Cancer Society: The largest US cancer support organization offering peer support, information resources, research funding, and a 24/7 helpline. Comparable as a national-scope cancer support nonprofit, though operating at fundamentally larger scale and with broader service delivery.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/frauenselbsthilfe-krebs

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Frauenselbsthilfe Krebs Bundesverband e.V.