Fundacion Isabel Gemio
Fundación Isabel Gemio is a Madrid-based Spanish non-profit founded in 2008 that funds biomedical research on muscular dystrophies and rare diseases, primarily through donations and EU Erasmus+ grants, serving affected patients, families, and partnered research institutions.
- Company typePrivate
- Founded2008
- HeadquartersMadrid, Spain
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Fundacion Isabel Gemio does
Fundación Isabel Gemio is a Spanish non-profit foundation established in 2008 and headquartered in Madrid, dedicated to promoting and financing scientific, clinical, and basic research on muscular dystrophies and rare diseases. Founded by journalist Isabel Gemio, whose son lives with Duchenne muscular dystrophy, the foundation operates a dual mission of funding biomedical research lines and raising social awareness for affected patients and families. Its core activity consists of grantmaking to Spanish and European research institutions, complemented by European Union co-funded Erasmus+ projects focused on educational inclusion for people with rare diseases.
The foundation's operational offerings include a research funding program (cumulative contributions of €2,872,200 reported), an online donation platform supporting Bizum, PayPal, bank transfer, and phone-based giving with an 80% Spanish tax deduction, and three active Erasmus+ projects (VET for Inclusion, Educational Kits for Rare Diseases, and youth mentorship). It disseminates scientific publications from funded research lines and operates a multi-channel media presence (Facebook, Twitter/X, YouTube, LinkedIn, Instagram) to drive donations and awareness.
Revenue is generated exclusively through donations (individual and corporate), charity events, solidarity restaurant partnerships, and EU grant co-funding. The organization runs with approximately 5 employees and partners with a dense ecosystem that includes CSIC, IIS La Fe, Federación ASEM, Fundación ONCE, Fundación La Caixa, Telefónica, and Alexion. As a registered Spanish foundation (CIF G 85451433, Registry Nº1059), it does not sell commercial products; its 'customers' are beneficiaries (patients and families) and donors, with research institutions acting as funded grantees rather than paying clients.
Fundacion Isabel Gemio firmographics
Firmographics- Name
- Fundacion Isabel Gemio
- Legal name
- FUNDACIÓN ISABEL GEMIO
- Website
- https://fundacionisabelgemio.com
- Company type
- Private
- Founded year
- 2008
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Fundación Isabel Gemio is a Madrid-based Spanish non-profit founded in 2008 that funds biomedical research on muscular dystrophies and rare diseases, primarily through donations and EU Erasmus+ grants, serving affected patients, families, and partnered research institutions.
- Ownership category
- akta.pro rank
Fundacion Isabel Gemio industry classification
Industry- Product category
- Rare Disease Research Foundation
- NAICS
- Grantmaking Foundations (813211), Voluntary Health Organizations (813212), Grantmaking and Giving Services (81321)
- SIC
- Services-Social Services (8300)
- akta.pro primary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
- akta.pro secondary industries
- Private Foundations (BPAGAKAA), Grantmaking & Philanthropic Funds (Institutional Donors) (BPADAOAB)
Keywords
Where Fundacion Isabel Gemio is headquartered
LocationHeadquarters
- HQ city
- Madrid
- HQ country
- Spain
- HQ region
- Europe
Offices1 record
Markets served
Fundacion Isabel Gemio business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Donations and Fundraising: The foundation generates revenue primarily through donations from individuals and corporations. Donors receive 80% tax deduction on their contributions. The foundation also organizes charity events, solidarity restaurants, and fundraising campaigns such as Bizum donations.
- Erasmus+ Project Funding: European Union co-funded projects through the Erasmus+ program that support educational inclusion for people with rare diseases.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Monthly | One-time or recurring monetary donations from individuals and organizations |
Go-to-market motion1 record
Distribution channels6 records
Marketing channels8 records
Fundacion Isabel Gemio product offering
Product offeringCore offering
Fundación Isabel Gemio is a non-profit foundation that funds biomedical research into muscular dystrophies and rare diseases, raises public awareness through campaigns such as "Todos Somos Raros," and supports affected families. It redistributes donations collected via website, bank transfer, PayPal, Bizum, and phone to accredited research projects, and runs complementary programs including an Erasmus+ educational exchange and scientific publications.
Product overview
Fundación Isabel Gemio is a non-profit foundation that operates as a research funding organization rather than a traditional technology product company. The organization offers research project funding services, manages European educational programs (Erasmus+), provides a newsletter subscription service, and maintains a donation platform for supporting rare disease research. Key offerings include the Todos Somos Raros public research call initiative, VET for Inclusion and other Erasmus+ educational programs for people with rare diseases, and scientific publication dissemination. The foundation's core mission centers on financing muscular dystrophy and rare disease research rather than developing commercial software products.
Differentiator
Problem solved
Functional benefit
Products and services
- Research Grant Program for Muscular Dystrophies and Rare Diseases Distributes donated funds to biomedical research projects on muscular dystrophies and rare diseases, in support of accredited researchers seeking to advance understanding and treatment of these conditions.
- Todos Somos Raros awareness campaign Public awareness initiative that increases visibility of rare diseases and the patients and families affected, designed to mobilize supporters and educate the broader Spanish public.
- Erasmus+ educational exchange program Educational exchange program associated with the foundation's research mission, supporting training and international collaboration among researchers and stakeholders in the rare disease field.
- Newsletter and scientific publications Newsletter and scientific publication series that communicates research progress, foundation activities, and rare disease information to donors, patients, families, and the broader public.
Quantifiable outcome
- 2,872,200 € contributed to research lines
- +1 more outcomes
Companies that use Fundacion Isabel Gemio
Customer profileNamed customers3 records
Segments3 records
Ideal customer profiles3 records
Fundacion Isabel Gemio technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Fundacion Isabel Gemio partnerships and signals
Strategic signalPartnerships
14 partnerships are on record, tiered core and minor.
- Fundación Escuela de los OficioscorePartner in Erasmus+ VET for Inclusion project for vocational training development.
- Universidade de ÉvoracoreEuropean academic partner in Erasmus+ VET for Inclusion project.
- Cyprus Alliance for Rare DisorderscoreEuropean partner in Erasmus+ project for rare disease inclusion in vocational training.
- Rare Diseases CroatiacoreEuropean partner in Erasmus+ project for rare disease inclusion in vocational training.
- Consejo Superior de Investigaciones Científicas (CSIC)coreCollaboration through CSIC's Itinerario Cicerón program, participating in jornadas on rare diseases. CSIC researchers present ongoing rare disease research projects.
- CSICcoreResearch collaboration with CSIC institutions including CNB, CIB, and IIS La Fe for rare disease research.
- Fundación ONCEminorCollaborating entity supporting disability and rare disease initiatives.
- Fundación Bancaria La CaixaminorMajor Spanish banking foundation supporting social causes and research.
- Federación ASEMcoreSpanish Federation of Neuromuscular Diseases - key patient organization partner.
- TelefónicaminorTelecommunications company supporting foundation activities.
- Fundación StarliteminorFoundation supporting charitable initiatives.
- AlexionminorPharmaceutical company specializing in rare diseases.
- IIS La FecoreHealth Research Institute La Fe in Valencia - key research collaborator. Research projects on Duchenne and Becker muscular dystrophies conducted here.
- Grupo Park / CIBERNEDcoreResearch group studying molecular mechanisms in neurodegenerative diseases, part of CIBERNED network. Published study on myotonic dystrophy type I in Cells journal.
Scale indicators3 records
Recent moves6 records
Expansion highlights6 records
Fundacion Isabel Gemio competitors and assessment
Company assessmentDirect peers
- Federación Española de Enfermedades Raras (FEDER): National Spanish federation representing the rare disease patient community. Operates with the same donation and grantmaking model, addresses overlapping beneficiaries, and competes for the same Spanish rare disease donor pool.
- Duchenne Parent Project España: Spanish patient association specifically focused on Duchenne and Becker muscular dystrophies — the same conditions highlighted in Fundación Isabel Gemio's funded research lines. Direct overlap in mission and beneficiary base.
- Fundación ONCE: Spanish disability foundation supporting people with disabilities including rare diseases. Listed as a collaborating entity with Fundación Isabel Gemio and competes for Spanish corporate and institutional disability funding.
- Federación ASEM: Spanish Federation of Neuromuscular Diseases, a national patient umbrella organization. Listed as a core partner of Fundación Isabel Gemio and addresses the same patient population (muscular dystrophies and rare neuromuscular diseases) in Spain.
Broad incumbents
- Muscular Dystrophy Association (MDA): Large US-based nonprofit funding neuromuscular disease research and patient services. Comparable mission across muscular dystrophies but much larger scale and primarily US-focused.
- Fundación Bancaria La Caixa: One of Spain's largest philanthropic foundations, a major banking-related foundation supporting social causes and research. Listed as a supporting partner and operates as a much larger incumbent in the same Spanish grantmaking landscape.
Emerging players
- EURORDIS - Rare Diseases Europe: European non-governmental alliance of rare disease patient organizations. Comparable European rare disease advocacy and grantmaking scope, operating at a federated level overlapping with FIG's Erasmus+ rare disease work.
- CIBERER (Centro de Investigación Biomédica en Red de Enfermedades Raras): Spanish biomedical research network on rare diseases funded by Instituto de Salud Carlos III. Comparable focus on rare disease research in Spain and an indirect recipient/partner of foundation-funded research lines.
Others
- Alexion (AstraZeneca Rare Disease): Pharmaceutical company specializing in rare diseases, listed as a corporate sponsor of the foundation. Comparable focus on rare neuromuscular diseases but as a commercial drug developer rather than a grantmaking foundation.
Regional players
- Parent Project Muscular Dystrophy (PPMD): Leading US-based nonprofit focused on Duchenne muscular dystrophy research and advocacy. Comparable mission and grantmaking model, but operates primarily in the United States rather than Spain.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Fundacion Isabel Gemio social profiles
Digital presenceFundacion Isabel Gemio financial estimates
Financial estimateRevenue estimate
Valuation estimate
Fundacion Isabel Gemio leadership team
Management profileNumber of profiles
Profiles1 record
Fundacion Isabel Gemio funding detail
Funding detailFunding overview
Funding rounds
Investors
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Fundacion Isabel Gemio M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Fundacion Isabel Gemio
What does Fundacion Isabel Gemio do?
Fundación Isabel Gemio is a non-profit foundation that funds biomedical research into muscular dystrophies and rare diseases, raises public awareness through campaigns such as "Todos Somos Raros," and supports affected families. It redistributes donations collected via website, bank transfer, PayPal, Bizum, and phone to accredited research projects, and runs complementary programs including an Erasmus+ educational exchange and scientific publications.
Is Fundacion Isabel Gemio a public or private company?
Fundacion Isabel Gemio is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Fundacion Isabel Gemio founded?
Fundacion Isabel Gemio was founded in 2008. It employs 1 to 10 people.
Where is Fundacion Isabel Gemio based?
Fundacion Isabel Gemio is headquartered in Madrid, Spain, in the Europe region.
How does Fundacion Isabel Gemio make money?
Two revenue lines are on record. Donations and Fundraising is the primary driver. The others are erasmus+ Project Funding.
Who are Fundacion Isabel Gemio's main competitors?
Direct peers on record are Federación Española de Enfermedades Raras (FEDER), Duchenne Parent Project España, Fundación ONCE and Federación ASEM. Broad incumbents are Muscular Dystrophy Association (MDA) and Fundación Bancaria La Caixa. Emerging players are EURORDIS - Rare Diseases Europe and CIBERER (Centro de Investigación Biomédica en Red de Enfermedades Raras). Alexion (AstraZeneca Rare Disease) is listed as an others. Parent Project Muscular Dystrophy (PPMD) is listed as a regional player.
Does Fundacion Isabel Gemio have an API?
No public API is recorded for Fundacion Isabel Gemio.
What industry is Fundacion Isabel Gemio in?
Fundacion Isabel Gemio's product category is Rare Disease Research Foundation. Its primary akta.pro industry code is BPAGAKAL, Health & Medical Research Grantmaking Foundations, with a secondary code of BPAGAKAA, Private Foundations. Its NAICS code is 813211 and its SIC code is 8300.