GNCHR (Groupement National de Coopération Handicaps Rares)

What GNCHR (Groupement National de Coopération Handicaps Rares) does

GNCHR (Groupement National de Coopération Handicaps Rares) is the French national coordination body for rare disabilities, established to orchestrate the Dispositif Intégré Handicaps Rares (DIHR) network comprising 4 National Resource Centers (CNRHR) and 13 Regional Relay Teams (ERHR) that cover metropolitan France plus the overseas territories of Réunion-Mayotte and Antilles-Guyane. It serves people with rare disabilities — including deafblindness, severe epilepsy, visual deficiencies with associated disorders, hearing deficiencies with associated disorders, and complex language disorders — along with their families and the professionals supporting them, providing information, training, sensitization and coordination across the medico-social sector.

Its core offerings include Mon Carnet Parcours de Vie (MCPV), a digital Alternative and Augmented Communication (AAC/CAA) tool delivered on the Clicker, TD Snap and LifeCompanion software platforms that enables users to communicate and preserve memories via text, photos and videos; L'Archipel des Rares®, an educational board game for sensitization; the AAC4ALL collaborative platform; Handiconnect fact sheets co-developed with Coactis Santé; and FALC-formatted pedagogical kits, including a 2024 MCPV kit released under a Creative Commons license. A leadership transition was announced in April 2025, and the organization runs the rotating national JNHR event (Lyon 2023, Strasbourg 2025, Bordeaux 2027).

GNCHR operates as a publicly funded non-profit coordination body. Its resources flow from French institutional mechanisms, primarily CNSA and ARS, and all tools, training, fact sheets and events are provided free of charge as part of public service. There are no disclosed commercial revenue streams, pricing tiers, or customer transactions; distribution occurs through the territorial network of CNRHR and ERHR, the Entre Aidants portal, the GNCHR website, and national events such as JNHR.

Name

GNCHR (Groupement National de Coopération Handicaps Rares)

Legal name

GNCHR, Groupement National de Coopération Handicap Rare

Website

https://gnchr.fr

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

GNCHR is the French national coordination body for rare disabilities, orchestrating 4 national resource centers (CNRHR) and 13 regional relay teams (ERHR) across France and overseas territories to serve people with rare disabilities, their families, and professionals via digital AAC tools, training and sensitization resources.

Ownership category

akta.pro rank

Product category

Disability Services Coordination

NAICS

Services for the Elderly and Persons with Disabilities (624120), Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Health Services (8000), Services-Educational Services (8200)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

akta.pro secondary industries

Disability Services & Independent Living Support (BPAGACAG), Disability Services & Independent Living Support (BPAGAEAG), Disability Services & Assistive Solutions (Accessibility, Assistive Tech) (BPAGALAM)

Keywords

• Rare disability coordination
• Disability resource centers
• Augmentative communication tools
• Professional disability training
• Medico-social coordination

Headquarters

HQ city

Clichy

HQ country

France

HQ region

Europe

Offices18 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales

Revenue model

1. Public funding and institutional support: GNCHR operates as a national cooperation group under the French medico-social sector, funded through public institutional mechanisms including CNSA (Caisse Nationale de Solidarité pour l'Autonomie) and regional health agencies (ARS). As a non-profit coordination body, it does not generate commercial revenue.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels8 records

Core offering

GNCHR coordinates France's national rare disability network (Dispositif Intégré Handicaps Rares – DIHR), uniting 4 National Resource Centers (CNRHR) and 13 Regional Relay Teams (ERHR). It develops and deploys digital tools (Mon Carnet Parcours de Vie, Plateforme AAC4ALL), pedagogical resources (L'Archipel des Rares®), training programs, and expert support for people with rare disabilities, their families, and the professionals who accompany them.

Product overview

GNCHR operates as a coordination body for France's rare disability network, providing a portfolio of digital tools, pedagogical resources, and collaborative platforms. The core offering includes Mon Carnet Parcours de Vie (MCPV), a digital AAC (Communication Alternative and Améliorée) tool for people with rare disabilities to share memories and communicate; Archipel des Rares®, a ludic educational game for sensitizing professionals and families to rare disabilities; the collaborative HR platform for network coordination; various technical sheets and resource guides; and the CAA+ sensitization kit for territorial deployment of AAC approaches. These offerings are designed to work together within the broader Dispositif Intégré Handicaps Rares (DIHR) network, with MCPV requiring compatible AAC software platforms (Clicker, TD Snap, LifeCompanion) as user-facing interfaces.

Differentiator

Problem solved

Functional benefit

Brands

• Mon Carnet Parcours de Vie (MCPV): A digital tool using Communication Alternative et Améliorée (CAA) software enabling persons with rare disabilities to communicate, share thoughts, and build a memory of their life. Available on Clicker, TD Snap, and LifeCompanion.
• L'Archipel des Rares®
• Dispositif Intégré Handicaps Rares (DIHR)

Products and services

• Mon Carnet Parcours de Vie (MCPV) Digital memory and communication tool designed for people with rare disabilities who cannot communicate easily through speech or French Sign Language. The tool allows users to share thoughts, memories, and personal information using text, photos, and videos organized in 7 sections, supporting self-determination and improved communication with their environment.
• L'Archipel des Rares®

Quantifiable outcome

• 91% of families (11 out of 12) intended to continue using Mon Carnet Parcours de Vie after the experimentation phase
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration3 records

Feature4 records

Partnerships

13 partnerships are on record, tiered core, moderate and minor.

• CNRHR CRESAM (Centre National de Ressources Handicaps Rares – Surdicécité)coreOthersCNRHR CRESAM is one of the 4 National Resource Centers for Rare Disabilities within the DIHR, specializing in deafblindness (surdicécité). Located in Saint-Benoît, it contributes expertise, research, and resources to the national rare disability network coordinated by GNCHR.
• CNRHR FAHRES (Centre national de ressources handicaps rares – épilépsies sévères)coreOthersCNRHR FAHRES is one of the 4 National Resource Centers for Rare Disabilities within the DIHR, specializing in severe epilepsy. It operates from Tain l'Hermitage and provides national expertise and resources.
• CNRHR La PépinièrecoreOthersCNRHR La Pépinière is one of the 4 National Resource Centers for Rare Disabilities within the DIHR, specializing in visual deficiencies and associated disorders. Located in Loos, it provides national-level expertise.
• CNRHR Robert LaplanecoreOthersCNRHR Robert Laplane is one of the 4 National Resource Centers for Rare Disabilities within the DIHR, specializing in hearing deficiencies with associated disorders and complex language disorders. Located in Paris.
• ERHR (Équipes Relais Handicaps Rares) – 13 regional teamscoreOthers13 ERHR teams cover all of metropolitan France plus Réunion-Mayotte and Antilles-Guyane. Each ERHR provides territorial proximity support, advising and backing professionals to develop comprehensive intervention strategies adapted to the person's needs and orienting them toward appropriate resources.
• Associations of persons and families (associations de personnes et de familles)coreOthersMember associations representing people with rare disabilities and their families participate in the GNCHR network, contributing lived experience and advocacy to the national rare disability coordination.
• Coactis SantémoderateStrategic or Co-development PartnerCoactis Santé partnered with GNCHR to co-develop 5 Handiconnect advisory fact sheets on deafblindness for healthcare professionals, covering clinical vigilance, definitions, prevalence, screening, and communication.
• ANPSA (Association Nationale des Personnes avec Surdicécité)moderateOthersANPSA collaborated with GNCHR, CRESAM, and ERHR Nord-Est to co-develop the Handiconnect fact sheets on deafblindness. ANPSA also hosted the World Deafblindness Day 2026 event attended by GNCHR.
• Cabinet AlezziminorImplementation/ SI/ Consulting PartnerCabinet Alezzi supported GNCHR in developing the MCPV pedagogical kit for the Mon Carnet Parcours de Vie tool.
• Entre Aidants platformmoderateOthersThe Entre Aidants (entreaidants.handicapsrares.fr) platform hosts the MCPV pedagogical kit and community for families and professionals to access CAA resources.
• Centre de KerpapemoderateStrategic or Co-development PartnerCentre de Kerpape animates the AAC4ALL platform (platform dedicated to CAA resources) and collaborated on the platform's development, accelerated by CoWork'HIT.
• CoWork'HITminorOthersCoWork'HIT accelerated the development of the AAC4ALL platform dedicated to Alternative and Augmented Communication (CAA) resources.
• ERHR Nord-EstcoreOthersERHR Nord-Est participated in the co-development of the Handiconnect fact sheets on deafblindness with GNCHR, CRESAM, and ANPSA.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Market position

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/channel/UCOcQCuhLY1n-hUzOU8IeNzA
• Facebookfacebook.com/Handicaps-Rares-120367079361272
• LinkedInlinkedin.com/company/gnchr

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about GNCHR (Groupement National de Coopération Handicaps Rares)