中国能源建设集团广东火电工程有限公司

What 中国能源建设集团广东火电工程有限公司 does

Gpec.cn 罕见病关爱平台 is a Guangzhou-headquartered online rare disease care platform that operates as an informational and community hub for rare disease patients, families, medical professionals, and the general public. Its core offering is a rare disease encyclopedia covering 254 conditions with structured medical detail (definitions, genetics, symptoms, diagnosis, and treatment guidelines), supplemented by a news section that spans rare disease developments and broader public health topics including COVID-19, Nipah virus, and Chikungunya updates. The platform is staffed by a small core team of four professionals — a medical advisor, nursing consultant, social worker, and volunteer coordinator — consistent with an NGO-style operating model rather than a technology venture. (Note: the source data describes this platform; the entity named in the query, 中国能源建设集团广东火电工程有限公司, a thermal power engineering firm, does not appear anywhere in the supplied evidence.)

The platform delivers six core services: the rare disease encyclopedia, patient registration, donation processing via Yeepay, news and public health updates, patient story sharing, and a volunteer recruitment program spanning emotional support, content editing, event organization, technical maintenance, community service, and translation. There is no proprietary technology disclosed — no API, SDK, AI/ML modalities, patents, or trademarks — only a standard web-based content platform with self-serve registration, content submission, and online donation forms.

Gpec.cn's commercial model is donation-based: all informational and community services are provided free of charge, and the sole disclosed revenue stream is voluntary public donations. No pricing is published, no paying customers are named, no funding rounds or investors are disclosed, and the company is privately held. Distribution is community-led via direct website access, content marketing through the encyclopedia and news feed, a Weibo presence, and a directory of 28 partner organizations across 23 public welfare groups, 27 medical institutions, 8 government agencies, 10 patient communities, and a global roster of research and clinical-trial resources including Orphanet, EURORDIS, NIH/NCATS, Mayo Clinic, Cleveland Clinic, Boston Children's Hospital, and ClinicalTrials.gov. Geographic reach aggregates international resources while the user base and partner roster skew toward China.

Name

中国能源建设集团广东火电工程有限公司

Legal name

Gpec.cn 罕见病关爱平台

Website

https://gpec.cn

Company type

Private

Operating status

Operating

Headcount range

101–250 employees

Short description

Gpec.cn is a Guangzhou-based online rare disease care platform providing a 254-disease encyclopedia, patient registration, Yeepay-integrated donations, volunteer recruitment, and public health news, serving rare disease patients, families, and partner organizations primarily in China.

Ownership category

akta.pro rank

Product category

Rare Disease Patient Support Platform

NAICS

Individual and Family Services (6241)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Rare disease information
• Patient community platform
• Medical knowledge base
• Charitable donation services
• Patient registration services

Headquarters

HQ city

Guangzhou

HQ country

China

HQ region

Asia

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations, Marketing or Sales

Revenue model

1. Public Donations: The platform accepts public donations to support rare disease patients and causes. Donations are voluntary and used for designated charitable purposes.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels5 records

Core offering

Gpec.cn operates an online rare disease care platform providing a 254-disease medical encyclopedia, patient registration, donation channels, news and patient stories, and volunteer recruitment. The platform connects rare disease patients and families with public welfare organizations, medical institutions, and society at large. It serves as a bridge for raising public awareness of rare diseases, delivering emotional support, and matching medical resources.

Product overview

Gpec.cn is a unified rare disease care platform providing comprehensive services including a rare disease encyclopedia (254 diseases), patient registration, donation services, news information, patient story sharing, and volunteer recruitment. The platform serves as a bridge connecting rare disease patients, families, and society.

Differentiator

Problem solved

Functional benefit

Products and services

• 罕见病百科 (Rare Disease Encyclopedia)
• 患者登记 (Patient Registration)
• 爱心捐助 (Donation Service)
• 新闻资讯 (News and Information)
• 患者故事 (Patient Story Sharing)
• 志愿者招募 (Volunteer Recruitment)

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

16 partnerships are on record, tiered core and minor.

• Rare Diseases InternationalcoreStrategic or Co-development PartnerGlobal rare disease patient organization alliance providing international rare disease resources and advocacy coordination.
• EURORDIS (European Rare Disease Organization)coreStrategic or Co-development PartnerEuropean rare disease organization alliance aggregating rare disease patient organizations across Europe.
• Orphanet (Europe)coreStrategic or Co-development PartnerEuropean rare disease information portal providing authoritative disease classification and resources.
• 中国罕见病发展中心 (CORD)coreStrategic or Co-development PartnerChina rare disease development center, the primary domestic rare disease advocacy organization in China.
• 北京协和医院罕见病中心coreStrategic or Co-development PartnerNational rare disease diagnosis and treatment center, providing authoritative medical guidance.
• 中国红十字基金会coreStrategic or Co-development PartnerHumanitarian rescue and health services organization providing donation and assistance programs.
• 中国初级卫生保健基金会coreStrategic or Co-development PartnerHealth welfare public projects foundation supporting rare disease patients.
• 瓷娃娃罕见病关爱中心coreStrategic or Co-development PartnerOsteogenesis imperfecta and rare disease care center supporting patients withOI and other rare diseases.
• 蔲德罕见病中心coreStrategic or Co-development PartnerComprehensive rare disease service platform providing multi-dimensional support for rare disease community.
• Mayo ClinicminorStrategic or Co-development PartnerUS-based medical institution providing international medical resources and expertise.
• Cleveland ClinicminorStrategic or Co-development PartnerUS-based medical institution providing international medical expertise.
• Boston Children's HospitalminorStrategic or Co-development PartnerUS-based children's hospital specializing in pediatric rare diseases.
• 上海交大医学院罕见病研究所coreStrategic or Co-development PartnerRare disease basic and clinical research institute at Shanghai Jiao Tong University School of Medicine.
• 浙江大学医学院附属儿童医院coreStrategic or Co-development PartnerChildren's hospital specializing in rare disease diagnosis and treatment for pediatric patients.
• 中国临床试验注册中心 (ChiCTR)coreStrategic or Co-development PartnerChina clinical trial registry providing information on rare disease clinical studies.
• ClinicalTrials.govcoreStrategic or Co-development PartnerGlobal clinical trials database enabling access to international rare disease research.

Scale indicators5 records

Recent moves5 records

Expansion highlights4 records

Market position

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/%E4%B8%AD%E5%9B%BD%E8%83%BD%E6%BA%90%E5%BB%BA%E8%AE%BE%E9%9B%86%E5%9B%A2%E5%B9%BF%E4%B8%9C%E7%81%AB%E7%94%B5%E5%B7%A5%E7%A8%8B%E6%9C%89%E9%99%90%E5%85%AC%E5%8F%B8

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

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