Hemophilia Foundation Southern California

What Hemophilia Foundation Southern California does

The Hemophilia Foundation Southern California is a 501(c)(3) nonprofit founded in 1954 and headquartered in Pasadena, California, dedicated to serving individuals and families affected by hemophilia, von Willebrand disease, and other inherited bleeding disorders across nine Southern California counties. Its core service offerings include community education, advocacy on access and reimbursement issues, emergency financial assistance (including disaster-relief response such as wildfire support), scholarships, and recurring community programs including family retreats, the annual Familia de Sangre Spanish-language gathering, and industry-sponsored conferences.

The foundation operates a donor- and grant-funded nonprofit business model, generating revenue through pharmaceutical manufacturer sponsorships (Sanofi, Takeda, Genentech, Octapharma, Amgen), national advocacy coalition partnerships (NBDF, HFA, EveryLife Foundation, NORD), retail-cause partnerships (Kendra Scott), and individual donations. It does not sell products or services in a commercial sense. Its "technology stack" is conventional nonprofit infrastructure (events, scholarship administration, peer support) with no disclosed digital platforms or AI/ML components.

The organization is led by Executive Director Rigo Garcia (appointed July 2022) and Board President Rick Kelly, with 11-50 employees. Strategic priorities under current leadership include expanding rare-disease coalition engagement (Amgen/EveryLife #RAREis Scholarship Fund), federal regulatory advocacy on Medicaid/Medicare data privacy, and broadening the funding base through consumer-cause partnerships.

Name

Hemophilia Foundation Southern California

Legal name

Hemophilia Foundation of Southern California

Website

https://hemosocal.org

Company type

Private

Founded year

1954

Operating status

Operating

Headcount range

11–50 employees

Short description

The Hemophilia Foundation Southern California is a Pasadena-based 501(c)(3) nonprofit founded in 1954 that serves individuals and families affected by bleeding disorders across nine Southern California counties through education, advocacy, emergency financial assistance, scholarships, and community programs.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Community Health Services

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241), Grantmaking and Giving Services (81321), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Social Services (8300), Services-Membership Organizations (8600), Services-Health Services (8000)

akta.pro industry

PRIMARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYEDAAAFAG

Health Promotion & Public Health Education (Community Workshops)

Education/Adult & Continuing Education/Community & Public Education Programs (Libraries, Community Centers)

SECONDARYBPAGACAL

Public Health & Health Equity Organizations

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Bleeding disorders support
• Patient advocacy services
• Community health education
• Emergency financial assistance
• Nonprofit healthcare foundation

Headquarters

HQ city

Pasadena, CA

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Fundraising: The foundation relies on charitable donations from individuals, corporations, and community members to fund programs, scholarships, and emergency assistance. Annual giving campaigns include Giving Tuesday and ongoing fundraising efforts.
2. Event-Based Fundraising: Partnership fundraising through events like Kendra Scott Shop for Good where 20% of sales are donated, and the annual Unite for Bleeding Disorders Walk to support scholarship programs.
3. Emergency Financial Assistance Program: Provides temporary financial relief to families facing crisis for needs such as housing, transportation, food, and utility bills, funded through donations and fundraising.

Go-to-market motion2 records

Distribution channels3 records

Marketing channels6 records

Core offering

The Hemophilia Foundation of Southern California is a 501(c)(3) nonprofit patient advocacy foundation that delivers free education, advocacy, support services, scholarships, and emergency financial assistance to individuals and families affected by inherited bleeding disorders (hemophilia A, hemophilia B, von Willebrand disease, inhibitors, rare factor deficiencies, platelet disorders). It runs annual educational conferences and family retreats, funds scholarships, distributes medical alert IDs, and provides emergency relief across nine Southern California counties.

Product overview

Hemophilia Foundation of Southern California is a non-profit organization (founded in 1954) that serves as the leading resource for those affected by bleeding disorders in Southern California. The organization offers a portfolio of community support programs including education, advocacy, support services, scholarships, and emergency financial assistance. Its programmatic offerings include educational conferences (Family Information Day, Bleeding Disorders Conference, Familia de Sangre), family retreats (Hemochella, Women's Retreat, Men's Retreat), and an annual Back to School Event. Additional services include a Medical Alert ID Program, Community Groups, and a monthly Newsletter Subscription. The organization operates across 9 counties: Kern, Los Angeles, Ventura, Santa Barbara, San Luis Obispo, Orange, Riverside, San Bernardino, and Inyo.

Differentiator

Problem solved

Functional benefit

Products and services

• Education Programs Programs, conferences, workshops and events designed to increase awareness and share knowledge about bleeding disorders with patients, families, and medical professionals in Southern California.
• Advocacy Services Advocacy on behalf of the bleeding disorders community to amplify their voice on policy, healthcare access, and related matters, delivered in partnership with NBDF and HFA at the national level.
• Scholarship Program Multi-scholarship program (Christopher Mark Pitkin Memorial, Joshua Kim Advocacy is in Your Blood, Victoria Mendoza Perez Healthcare) awarding funds to members of the bleeding disorders community pursuing education. Over $115,000 awarded during the last decade.
• Emergency Financial Assistance (EFA) Program Temporary financial relief for families in crisis, covering housing, transportation, food, and utility bills for individuals and families affected by bleeding disorders in Southern California.
• Medical Alert ID Program Distributes medical alert identification tools to individuals with bleeding disorders to support their safety and emergency care.
• Family Information Day Annual educational event bringing together families affected by bleeding disorders for information sharing and networking.
• Family Retreat (Hemochella) Annual family retreat offering opportunities for families facing bleeding disorders to create memories and strengthen community connections. The 2023 'Hemochella' event drew 33 families (114 attendees).
• Women's Retreat Annual retreat specifically for women affected by bleeding disorders, providing education and community support. The 2024 Women's Retreat drew 90 women.
• Men's Retreat Event for boys, men, or those who identify as male with a bleeding disorder, or who are male parents, caregivers, spouses, or siblings of someone with a bleeding disorder.
• Familia de Sangre Conference Annual Spanish-language conference for the bleeding disorders community, described as the country's largest Spanish-speaking conference for bleeding disorders.
• Bleeding Disorders Conference Annual conference organized by the National Bleeding Disorders Foundation (NBDF) that HFSC participates in and promotes to Southern California community members.
• Back to School Event Annual event helping families of children with bleeding disorders navigate returning to the classroom, including understanding educational rights (IEP/504 plans) and creating individualized health and academic plans.
• Community Groups Facilitated community groups connecting individuals and families affected by bleeding disorders in Southern California.
• Monthly Newsletter Subscription Monthly newsletter delivered online or by mail to subscribers, providing news, events, and updates for the bleeding disorders community.

Quantifiable outcome

• Over $115,000 in scholarship funds awarded during last decade
• +1 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered major, important, core and notable.

• Hemophilia Federation Alliance (HFA)majorStrategic or Co-development Partner · 6 August 2025HFA is a national organization representing the bleeding disorders community. HFSC partners with HFA on advocacy, education, and policy issues affecting patients including Medicaid/Medicare data privacy concerns.
• Kendra ScottimportantGTM or Marketing Partner · 3 February 2025Shop for Good partnership where 20% of purchases during designated periods support HFSC programs including Wildfire Relief Fund, Emergency Financial Assistance program, Medical Alert ID program, and educational scholarships.
• EveryLife Foundation for Rare DiseasesimportantGTM or Marketing Partner · 3 February 2025Partners with HFSC to promote the #RAREis Scholarship Fund providing $5,000 scholarships to 104 rare disease recipients in 2025.
• National Bleeding Disorders Foundation (NBDF)majorStrategic or Co-development Partner · 5 June 2024NBDF is a national organization working to bleeding disorders community. HFSC works in partnership with NBDF on conferences, advocacy efforts, and policy initiatives at the national level.
• SanoficoreGTM or Marketing Partner · 9 June 2023Platinum sponsor of HFSC 2023 Family Retreat 'Hemochella'. Sanofi is a pharmaceutical company developing treatments for bleeding disorders.
• TakedacoreGTM or Marketing Partner · 9 June 2023Platinum sponsor of HFSC 2023 Family Retreat 'Hemochella'. Takeda is a pharmaceutical company developing treatments for bleeding disorders.
• GenentechimportantGTM or Marketing Partner · 9 June 2023Gold sponsor of HFSC 2023 Family Retreat 'Hemochella'. Genentech develops treatments for rare diseases including bleeding disorders.
• Hemophilia Federation of America (HFA)coreGTM or Marketing Partner · 9 June 2023Gold sponsor of HFSC 2023 Family Retreat 'Hemochella'. HFA is a national advocacy organization for the bleeding disorders community.
• OctapharmaimportantGTM or Marketing Partner · 9 June 2023Silver sponsor of HFSC 2023 Family Retreat 'Hemochella'. Octapharma develops and produces human proteins for bleeding disorders treatments.
• Venice Family ClinicnotableStrategic or Co-development Partner · 28 July 2022Former employer of current Executive Director Rigo Garcia, who served as Director of Health Education providing healthcare access to underserved communities.
• Hemophilia Treatment Centers Western States RegionalcoreStrategic or Co-development Partner · 8 July 2021HFSC participates in the HTC Western States Regional conference to discuss best practices and care for the bleeding disorders community. Supports HTC sustainability.

Scale indicators5 records

Recent moves6 records

Expansion highlights4 records

Market position

Competitive moat3 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xtwitter.com/HemoSoCal
• Facebookfacebook.com/hemophiliasocal
• Instagraminstagram.com/hemosocal
• LinkedInlinkedin.com/company/hemosocal

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Hemophilia Foundation Southern California