ERHR IDF

What ERHR IDF does

ERHR Île-de-France (Equipe Relais Handicaps Rares Île-de-France) is a non-profit regional relay team created in December 2014 under authorization of the Agence Régionale de Santé (ARS) Île-de-France and carried by the CESAP association. It operates within the national Dispositif Intégré Handicaps Rares (DIHR) network, which spans 13 regional relay teams (ERHR), 4 national resource centers (CNRHR: CRESAM, Robert Laplane, La Pépinière, FAHRES), and the GNCHR coordination body. The organization provides free information, guidance, evaluation, and accompaniment to persons with rare disabilities (defined under Décret n°2005-1135 as configurations of deficiencies affecting fewer than 1 in 10,000 inhabitants), their families, and professionals in the health, social, and medico-social sectors across the Île-de-France region.

The organization delivers its services through a small pluridisciplinary team of approximately five staff members (pilot, antenna managers, doctor, psychologist, activity monitoring officer, mission officers, pathway advisors, communications) operating from its headquarters at 22 Boulevard de Stalingrad, Châtillon (92320). Its technical stack consists of a WordPress-based public website hosting downloadable tools, a Google Maps-based resource cartography tool mapping social, medical-social, and health actors across Île-de-France, and internal case management software. Accessibility is core to its tooling: intake forms, consent forms, protocols, and administrative documents are produced in French Sign Language (LSF) video and Facile à Lire et à Comprendre (FALC) formats. Notable proprietary resources include the CAA+ sensibilisation kit, the Protocole Gestion Comportement Défi, the FALC version of the MDPH complementary document, and Diagnostic Territorial Partagé (DTP) reports.

ERHR IDF operates an entirely public funding model: ARS Île-de-France finances the service through the medico-social budget, and all services — individual accompaniment, professional training, sensibilisation, and coordination with MDPH (Maisons Départementales des Personnes Handicapées) and ESMS (Établissements et Services Médico-Sociaux) — are provided free of charge to users. The organization conducts community-led go-to-market, with outreach via its website, LinkedIn, YouTube ("Dans les coulisses de l'ERHR" series), webinars, public events, and earned media partnerships (e.g., France 5 documentary series "Aidants, il est temps de les aider"). Customer segments split between (a) persons with rare disabilities and their families (primary persona), (b) health/social/medico-social professionals (primary persona), (c) institutions and public health authorities such as ARS and MDPH (institutional), and (d) people with specific rare disability profiles across five recognized categories (deaf-blindness, severe visual/hearing impairment with associated disorders, severe dysphasia, severe disability with chronic conditions). The organization leads applied research-actions such as COORD+PRADER, which accompanied 15 adults with Prader-Willi syndrome over two years.

Name

ERHR IDF

Legal name

ERHR Île-de-France

Website

https://iledefrance.erhr.fr

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

ERHR Île-de-France is a publicly funded non-profit regional relay team providing free information, guidance, evaluation, and coordination services to persons with rare disabilities, their families, and professionals across the Île-de-France region, operating within France's national DIHR network.

Ownership category

akta.pro rank

Headquarters

HQ city

Châtillon

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Infrastructure, Others

Revenue model

1. Public Institutional Funding: ERHR Île-de-France is a publicly funded service authorized by the ARS Île-de-France (Regional Health Agency) and carried by the association CESAP. As a medico-social service, it operates entirely through public funding and provides its services free of charge to all users.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels7 records

Core offering

ERHR Île-de-France (Equipe Relais Handicaps Rares) is a free, publicly funded regional relay team that provides information, guidance, evaluation, and accompaniment to persons with rare disabilities, their families, and the professionals who support them. It also delivers professional training, sensitization, territorial diagnostics, and a regional resource mapping for the Île-de-France area, operating within the national Dispositif Intégré Handicaps Rares (DIHR) network under the CESAP association.

Product overview

ERHR Île-de-France est une équipe relais régionale pour les handicaps rares, offrant des services d'information, de conseil, d'orientation et de coordination. Elle ne propose pas de produit logiciel mais met à disposition des outils pratiques et protocoles : le kit CAA+ pour la sensibilisation à la Communication Alternative et Améliorée, le Protocole Gestion comportement défi, et des documents administratifs accessibles (FALC). Ces ressources sont diffusées via téléchargement PDF et visent à accompagner les personnes en situation de handicap rare, leurs familles et les professionnels.

Differentiator

Problem solved

Functional benefit

Products and services

• Service d'information, conseil et orientation Free frontline service that receives requests from persons with rare disabilities, families, professionals, associations, and institutions, providing information, advice, and orientation toward adapted resources across the Île-de-France region.
• Service d'évaluation et d'accompagnement Pluridisciplinary evaluation and long-term accompaniment service that assesses rare disability situations and builds tailored support plans, ensuring continuity of care across life stages and transitions.
• Formation et sensibilisation des professionnels Training and sensitization sessions delivered to health, social, and medico-social professionals across Île-de-France to improve expertise in recognizing and accompanying rare disability combinations.
• Cartographie des acteurs en Île-de-France Interactive Google Maps-based directory of social, medical-social, and health actors active in rare disabilities across Île-de-France, including ESMS, home care services, and specialized structures.
• Kit CAA+ de sensibilisation Sensitization and training kit on Alternative and Augmentative Communication (CAA) developed to accompany the upskilling of professionals and deploy the approach across territories of the rare disabilities network.
• Protocole Gestion comportement défi Fillable PDF protocol co-constructed with a family to centralize essential information about an accompanied person, identify triggers and behaviors, and define appropriate responses.
• Document complémentaire MDPH version FALC FALC (Easy to Read) prototype of the MDPH complementary document for rare disabilities and rare diseases, designed to improve accessibility of administrative procedures for persons with cognitive or communication difficulties.

Named customers4 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature6 records

Partnerships

13 partnerships are on record, tiered core and minor.

• CESAP (Comportement, Education, Soins, Accompagnement, Prévention)coreOthers · 1 December 2014CESAP is the association that carries ERHR Île-de-France. It authorized the creation of the relay team in December 2014 under the ARS Île-de-France mandate. CESAP is a significant association in the medico-social sector supporting persons with disabilities.
• GNCHR (Groupement National de Coopération Handicaps Rares)coreStrategic or Co-development PartnerGNCHR is the national coordination body of the DIHR, composed of 16 family associations and 18 managing associations of establishments. It animates the national network, provides support, and organizes collective missions. ERHR IDF is one of 13 regional relay teams under the GNCHR umbrella.
• CNRHR CRESAM (Centre National de Ressources Handicaps Rares – Surdicécité)coreStrategic or Co-development PartnerNational resource center specialized in deaf-blindness (surdicécité), located in Saint-Benoît (86280). CRESAM provides expertise, training, and resources that ERHR IDF draws upon for deaf-blindness cases and awareness content.
• CNRHR Robert Laplane (Centre National de Ressources Handicaps Rares – Surdités et troubles associés)coreStrategic or Co-development PartnerNational resource center specialized in hearing impairments and associated disorders, located at 33 rue Daviel, 75013 Paris. ERHR IDF coordinates with Robert Laplane for hearing-related rare disability cases.
• CNRHR La Pépinière (Centre National de Ressources Handicaps Rares – Déficiences visuelles et troubles associés)coreStrategic or Co-development PartnerNational resource center specialized in visual impairments and associated disorders, located in Loos (59120). ERHR IDF collaborates with La Pépinière for visual rare disability cases.
• CNRHR FAHRES (Centre National de Ressources Handicaps Rares – Epilepsies sévères)coreStrategic or Co-development PartnerNational resource center specialized in severe epilepsy, located in Tain l'Hermitage (26602). ERHR IDF partners with FAHRES on the NEXTHEP research-action for the Fonction Appui-Ressources and severe epilepsy cases.
• ANPSA (Association Nationale pour les Personnes SourdAveugles)minorStrategic or Co-development PartnerANPSA is the national association for deaf-blind persons. It organized a Surdicécité Awareness Day on 13 June 2026 at Le Moulin à Café in Paris, in which ERHR IDF participated and contributed an information stand.
• France 5minorGTM or Marketing PartnerFrance 5 produces the documentary series 'Aidants, il est temps de les aider' hosted by Théo Curin. ERHR IDF is promoting participation in the show's new season, which focuses on caregivers of persons with disabilities.
• ARS Île-de-FrancecoreOthersThe Regional Health Agency of Île-de-France is the public authority that authorized and funds ERHR Île-de-France. It also launched the AMI for Unités Handicaps Rares and the DTP DA HR study, in which ERHR participates.
• Unités Handicaps Rares (AJAE, PAP Prader Willi, MEMO, En route vers l'autonomie)coreStrategic or Co-development PartnerFour specialized Units selected by ARS IDF to deploy the Fonction Appui-Ressources across the region, supported by ERHR IDF coordination and the CNRHR FAHRES.
• Prader-Willi FranceminorStrategic or Co-development PartnerAssociation that initiated the COORD+PRADER research-action, partnering with ERHR Île-de-France, CRMR PRADORT, CRMR Psy Rares, CERMES, and Francilian professionals to improve accompaniment for persons with Prader-Willi syndrome.
• UnapeiminorGTM or Marketing PartnerUnapei is a major French advocacy organization for persons with intellectual disabilities. Its magazine 'Vivre Ensemble' published a double-page feature on the COORD+PRADER research-action in its January–February 2025 issue.
• OVHminorOthersOVH SAS (based in Roubaix, France) is the web hosting provider for the ERHR Île-de-France website (iledefrance.erhr.fr).

Scale indicators5 records

Recent moves7 records

Expansion highlights6 records

Market position

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/erhr-idf

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ERHR IDF