KEKS e.V.
- Company typePrivate
- Founded1984
- HeadquartersStuttgart, Germany
- Headcount1–10
- GTM typeB2C
- OfferingServices
KEKS e.V. firmographics
Firmographics- Name
- KEKS e.V.
- Legal name
- KEKS e.V.
- Website
- https://keks.org
- Company type
- Private
- Founded year
- 1984
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Ownership category
- akta.pro rank
Where KEKS e.V. is headquartered
LocationHeadquarters
- HQ city
- Stuttgart
- HQ country
- Germany
- HQ region
- Europe
Offices1 record
Markets served
KEKS e.V. business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Membership Fees: Annual membership fees provide recurring revenue. Family membership is priced at 75 EUR per year, providing members with access to the member area, downloads, informational materials, and the association's journal 'Krümelchen'.
- Donations and Sponsorships: The organization receives donations from individuals, companies, and institutional supporters. Major supporters include health insurance funds (AOK, TK, BARMER, DAK, KKH), the GKV Gemeinschaftsförderung Selbsthilfe (funded 85,000 EUR in 2026), and foundations including Peter Maffay Stiftung and Erika-Reinhardt-Stiftung.
- Funding from GKV Gemeinschaftsförderung: Annual federal-level self-help funding from the GKV – Gemeinschaftsförderung Selbsthilfe auf Bundesebene, which provided 85,000 EUR in 2026.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Family Membership: 75 EUR per year |
| Subscription | Annual | Single/Fördermitglied (Supporting Member): Starting at 75 EUR per year |
| Freemium | Pay-as-you-go | Free Services: Hotline and Online Beratung |
Go-to-market motion1 record
Distribution channels5 records
Marketing channels6 records
KEKS e.V. product offering
Product offeringCore offering
KEKS e.V. is a registered German non-profit patient organization that supports children, adolescents, and adults with esophageal atresia and related congenital conditions of the esophagus and airways. The organization delivers its support through a free medical hotline (0800 03 10 584), online expert consultations (KEKS-ONLINE), regional and national support groups, parent seminars, teen camps, an EA Best Cert certified clinic network, and a digital member portal including the KEKS-Gesundheitsordner health folder. Members pay an annual fee of 75 EUR to access the member area, semi-annual journal 'Krümelchen', and member-only events, while non-members can use the free hotline and online advisory services.
Product overview
KEKS e.V. is a patient and self-help organization for children and adults with congenital conditions of the esophagus and windpipe, primarily esophageal atresie. The organization operates as a unified service offering rather than a platform architecture, providing direct support services including a free medical hotline (KEKS-MEDIZIN-TEAM), online expert consultations (KEKS-ONLINE), and the KEKS-Gesundheitsordner with a digital member portal. The core offerings include a nationwide certified clinic network (KEKS Kliniknetzwerk with EA Best Cert certification), regional support groups across Germany, and the dedicated adult network NEKS. The organization runs regular educational programs including annual national meetings, parent seminars (Elternseminar), teen camps (KEKS Teenie-Freizeit), eating skills workshops (ESS-LERN-Workshop), and monthly online expert sessions (KEKS-Experten Online). KEKS also provides a resource library, family center services, psychological counseling (Sprechstunde Spezial), and emergency financial assistance (Sofort-Hilfe-Fonds). The NEKS sub-brand specifically serves adult members through its own network and website.
Differentiator
Problem solved
Functional benefit
Brands
- NEKS: Network for adult KEKS members - a specialized program for adults affected by esophageal atresie
- KEKS-NEXT
- EA Best Cert
Products and services
- KEKS Membership (Family and Single/Fördermitglied) Annual membership program priced at 75 EUR per year for families with children affected by esophageal atresia or for single members and supporters; includes access to the member area, downloads, information materials, and the semi-annual journal 'Krümelchen'. Need-based fee reductions or exemptions are available for members facing financial hardship.
- KEKS Medical Hotline (KEKS-MEDIZIN-TEAM) Free medical hotline (0800 03 10 584) staffed by the KEKS medical team, available Monday 16-19h and Wednesday 9-12h, providing medical guidance to both members and non-members affected by esophageal atresia and related conditions.
- KEKS Online-Beratung (KEKS-ONLINE)
- KEKS-Gesundheitsordner & KEKS-Portal
- KEKS Kliniknetzwerk with EA Best Cert Certification
- Regionalgruppen (Regional Support Groups)
- NEKS (Netzwerk für Erwachsene)
- KEKS-Familienzentrum (Family Center)
- KEKS-Bibliothek (Resource Library)
- Elternseminar (Parent Seminar)
- KEKS Teenie-Freizeit (Teen Camp)
- Bundesweites Treffen (National Meeting)
Quantifiable outcome
- Approximately 200 children born with esophageal atresie receive support each year in Germany
- +3 more outcomes
Companies that use KEKS e.V.
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles3 records
KEKS e.V. technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration3 records
KEKS e.V. partnerships and signals
Strategic signalPartnerships
One partnership is on record.
- EAT (Global Self-Help Organization for Esophageal Atresie)coreInternational umbrella organization for esophageal atresie patient groups. KEKS collaborates with EAT on the worldwide survey for esophageal atresie, conducted in 14 languages. This partnership enables international data comparison and benchmarking of patient experiences.
Scale indicators4 records
Recent moves6 records
Expansion highlights6 records
KEKS e.V. competitors and assessment
Company assessmentBroad incumbents
- ACHSE e.V. (Allianz Chronischer Seltener Erkrankungen): ACHSE is the German umbrella organization for approximately 130 rare disease patient organizations. It is comparable to KEKS as a fellow non-profit patient advocacy body operating in the German rare disease space, with broader scope across many conditions.
- EURORDIS – Rare Diseases Europe: EURORDIS is a European-level alliance of over 1,000 rare disease patient organizations. It is comparable to KEKS in its patient-organization model and is a direct partner through the EAT international network.
- NORD – National Organization for Rare Disorders: NORD is the leading US-based rare disease patient advocacy organization, providing patient support, education, and research funding. It is comparable to KEKS as a national-level non-profit dedicated to rare disease patient communities.
- Kindernetzwerk e.V. Kindernetzwerk is a German umbrella organization for parents of children with chronic illnesses and disabilities. It is comparable to KEKS as a German non-profit providing family support, information, and advocacy for children with rare and chronic conditions.
- Deutsche Stiftung für chronisch Kranke: A German foundation supporting individuals with chronic illnesses. It is comparable to KEKS in its non-profit, chronic-disease focus and German operating base, though its scope is broader across multiple conditions.
Regional players
- Children's Heart Federation (CHF): CHF is a UK-based national charity for children with congenital heart conditions. It is comparable to KEKS as a national-level patient organization serving a defined pediatric congenital condition population with peer support, family services, and information resources.
Direct peers
- Bundesverband Herzkranke Kinder e.V. (BVHK): BVHK is a German non-profit supporting families of children with congenital heart disease. It is comparable to KEKS in its German domestic focus, pediatric congenital condition base, and member-led self-help structure.
- EAT – Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups: EAT is the global umbrella organization for esophageal atresia patient groups, of which KEKS is a member. It is the most direct peer, operating in the same rare disease with a similar organizational model focused on awareness, research, and patient support.
- SoMA e.V. (Selbsthilfeorganisation für Menschen mit Anorektalfehlbildungen): SoMA is a German patient self-help organization for people with anorectal malformations, structurally similar to KEKS in serving a small, defined congenital condition population with peer support, medical information, and clinic certification activities.
- Selbsthilfegruppe Skoliose: A German self-help group for scoliosis patients, listed among KEKS's 'other topics' on its own medical information pages. Direct comparison is limited but the model is structurally similar, serving a defined chronic condition population with peer support and information.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
KEKS e.V. social profiles
Digital presenceKEKS e.V. compliance and trust
Trust signalCompliance1 record
KEKS e.V. financial estimates
Financial estimateRevenue estimate
Valuation estimate
KEKS e.V. leadership team
Management profileNumber of profiles
Profiles3 records
KEKS e.V. funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
KEKS e.V. M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about KEKS e.V.
What does KEKS e.V. do?
KEKS e.V. is a registered German non-profit patient organization that supports children, adolescents, and adults with esophageal atresia and related congenital conditions of the esophagus and airways. The organization delivers its support through a free medical hotline (0800 03 10 584), online expert consultations (KEKS-ONLINE), regional and national support groups, parent seminars, teen camps, an EA Best Cert certified clinic network, and a digital member portal including the KEKS-Gesundheitsordner health folder. Members pay an annual fee of 75 EUR to access the member area, semi-annual journal 'Krümelchen', and member-only events, while non-members can use the free hotline and online advisory services.
Is KEKS e.V. a public or private company?
KEKS e.V. is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was KEKS e.V. founded?
KEKS e.V. was founded in 1984. It employs 1 to 10 people.
Where is KEKS e.V. based?
KEKS e.V. is headquartered in Stuttgart, Germany, in the Europe region.
How does KEKS e.V. make money?
Three revenue lines are on record. Membership Fees are the primary driver. The others are donations and Sponsorships and funding from GKV Gemeinschaftsförderung.
Who are KEKS e.V.'s main competitors?
Broad incumbents on record are ACHSE e.V. (Allianz Chronischer Seltener Erkrankungen), EURORDIS – Rare Diseases Europe, NORD – National Organization for Rare Disorders, Kindernetzwerk e.V. and Deutsche Stiftung für chronisch Kranke. Children's Heart Federation (CHF) is listed as a regional player. Direct peers are Bundesverband Herzkranke Kinder e.V. (BVHK), EAT – Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, SoMA e.V. (Selbsthilfeorganisation für Menschen mit Anorektalfehlbildungen) and Selbsthilfegruppe Skoliose.
Does KEKS e.V. have an API?
No public API is recorded for KEKS e.V..