Kindernetzwerk e.V.

What Kindernetzwerk e.V. does

Kindernetzwerk e.V. is a German charitable umbrella association (eingetragener Verein, registered at Amtsgericht Aschaffenburg under VR 921) founded in 1993 and headquartered in Aschaffenburg, with a Berlin Hauptstadtb\u00fcro relocated in June 2026. Operating as the Dachverband of family-oriented self-help, it represents more than 250 member organizations \u2014 self-help groups, clinics, and centers \u2014 serving families with chronically ill and disabled children, adolescents, and young adults across Germany. The organization is led by chairperson Susann Schr\u00f6del, with managing directors Dr. Henriette H\u00f6gl and Kathrin Jackel-Neusser, and operates with a 14-person staff supported by a scientific advisory board.

The organization's product and service surface combines direct counseling (telephone, peer and transition counseling, family management), educational content (Familienselbsthilfe videos), and digital tools \u2014 most notably the unrare.me social media app for people with rare and chronic diseases and the Werkzeugkoffer Selbsthilfe digital toolkit for member organizations. Political advocacy is a core function: the organization is registered in the Bundestag Lobby Register and maintains the Berliner Appell demands catalog, recently refreshed on its 30th anniversary in 2023. Active thematic projects include KoCon, PedSupport, PHArMKid, SafeMed-Kids, Gemeinsam AKTIV, and an international self-help structures initiative.

Revenue is generated through three streams: modest annual membership dues (EUR 26 individuals, EUR 52 practices, EUR 90 organizations), private donations and bequests, and project-based funding from statutory health insurance funds (GKV), federal ministries, foundations, and the Innovationsfonds. The organization is tax-exempt under a Freistellungsbescheid and does not publicly disclose financial figures. No proprietary technology platforms are developed; the technology stack consists of the website, the unrare.me app, third-party hosting (Mittwald CM Service) and accessibility tooling (Web Inclusion / Eye-Able).

Name

Kindernetzwerk e.V.

Legal name

Kindernetzwerk e.V.

Website

https://kindernetzwerk.de

Company type

Private

Founded year

1993

Operating status

Operating

Headcount range

11–50 employees

Short description

Kindernetzwerk e.V. is a German nonprofit umbrella association serving families with chronically ill and disabled children through 250+ member organizations, providing counseling, advocacy, the unrare.me app, and project-based support funded by health insurers and foundations.

Ownership category

akta.pro rank

Product category

Family disability and chronic illness advocacy services

NAICS

Individual and Family Services (6241), Services for the Elderly and Persons with Disabilities (624120), Services for the Elderly and Persons with Disabilities (62412), Human Rights Organizations (813311)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Disability Rights & Accessibility Advocacy (BPAGAFAF), Family & Parenting Support Services (BPAGAEAC), Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Family self-help support
• Disability advocacy services
• Chronic illness counseling
• Patient advocacy organization
• Nonprofit health support

Headquarters

HQ city

Aschaffenburg

HQ country

Germany

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Infrastructure, Technology or R&D, Others

Revenue model

1. Membership dues: Annual membership fees from individual members, practices, and self-help organizations. Individual membership minimum: 26 EUR/year. Practice membership: 52 EUR/year. Self-help organizations/institutions: 90 EUR/year.
2. Donations: The organization accepts donations from individuals, including birthday or condolence donations. Also receives bequests and assigns fine proceeds.
3. Project funding: Project-based financing from health insurance funds (GKV), foundations, public sector (federal ministries, innovation funds), and members of the support circle.

Pricing tiers

Distribution channels3 records

Marketing channels6 records

Core offering

Kindernetzwerk e.V. operates as the German umbrella association (Dachverband) for family-oriented self-help, providing free confidential counseling, peer and transition support, political advocacy, and educational resources to families with chronically ill and disabled children, adolescents, and young adults. The organization delivers these through its own offices, the unrare.me social media app, the Werkzeugkoffer Selbsthilfe digital resource toolkit, publications, and a nationwide network of more than 250 member organizations.

Product overview

Kindernetzwerk e.V. is a German umbrella organization for family-oriented self-help supporting children, adolescents, and young adults with chronic illnesses or disabilities and their families. The organization offers the unrare.me social media app as its primary digital product for community connection, complemented by the Werkzeugkoffer Selbsthilfe digital resource platform containing practical materials for self-help organizations on topics including financing, project management, participation, and legal rights. Additional offerings include counseling services, educational videos, publications, and political advocacy work.

Differentiator

Problem solved

Functional benefit

Brands

• unrare.me: The first social media app for people with rare and chronic diseases or disabilities, their relatives, and experts. Developed as a peer support and communication platform.

Products and services

• unrare.me Mobile social media application designed as a peer support and communication platform for people with rare and chronic diseases or disabilities, their relatives, and experts, enabling community connection across borders.
• Werkzeugkoffer Selbsthilfe (Self-Help Toolkit) Digital resource toolkit providing modular, practical materials for self-help organizations, covering financing, project management, participation, family accompaniment, and legal rights topics.
• Beratung (Counseling Services) Free, confidential counseling services offered on equal footing, including telephone counseling, peer and transition counseling, and family management support for affected families.

Segments1 record

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

One partnership is on record.

• Member organizations (250+)coreStrategic or Co-development PartnerNetwork of self-help organizations, clinics, and centers that are part of the Kindernetzwerk umbrella association.

Scale indicators3 records

Recent moves7 records

Expansion highlights6 records

Regional players

• Eurordis - Rare Diseases Europe: European-level umbrella alliance for rare disease patient organizations. Comparable to Kindernetzwerk's unrare.me and rare-chronic-disease patient support themes, but operates at EU/pan-European level rather than Germany-only and is structurally an alliance of national alliances.

Broad incumbents

• Sozialverband Deutschland (SoVD): Major German welfare and social advocacy association with member-based structure. Comparable as a socially-focused membership organization engaged in political advocacy for vulnerable groups, though its scope is broader than Kindernetzwerk's pediatric/family focus.
• Caritas Deutschland: Largest German welfare confederation with extensive social services, family counseling, and disability support programs. Much larger and broader than Kindernetzwerk, but serves overlapping beneficiary populations and operates in the same family/child social-support space.
• Aktion Mensch e.V. Germany's largest private social organization funding inclusion and disability projects. Broader and larger than Kindernetzwerk, but operates in the same disability/inclusion space with overlapping beneficiaries, advocacy themes, and project-grantmaking activity.
• Sozialverband VdK Deutschland e.V. Large German social advocacy organization with millions of members representing disability, pension, and social policy interests. Overlaps in disability advocacy and policy influence but serves broader (predominantly elderly) beneficiaries.

Direct peers

• ACHSE e.V. (Allianz Chronischer Seltener Erkrankungen): German umbrella alliance of around 130 patient organizations for people with rare chronic diseases. Highly comparable as a Dachverband model for chronic/rare disease advocacy with similar member-network, advocacy, and counseling functions targeted at similar beneficiaries.
• Bundesvereinigung Lebenshilfe: Major German advocacy and service organization for people with intellectual disabilities and their families. Comparable as a parent-led family association model with political advocacy and member-organization network serving disabled children and families.
• Deutscher Kinderschutzbund Bundesverband e.V. Germany's leading NGO for children's rights and child protection with state-level member associations. Comparable as a national nonprofit umbrella focused on children and families, providing counseling, advocacy, and member-network coordination.
• Deutsche Kinderhilfe e.V. German nonprofit focused on children's rights and welfare with comparable advocacy, family-support, and policy-influence orientation. Operates at smaller scale than Kindernetzwerk's member-network model but addresses overlapping family/child chronic-illness themes.
• BAG SELBSTHILFE: Bundesarbeitsgemeinschaft Selbsthilfe is the umbrella organization of disability and self-help associations in Germany with a comparable member-organization structure, political advocacy role, and self-help promotion mandate.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UC3IS2JT1p1ntUVJR7IvJpHg
• Facebookfacebook.com/kindernetzwerk_ev
• LinkedInlinkedin.com/company/kindernetzwerk
• Instagraminstagram.com/kindernetzwerk_ev

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Kindernetzwerk e.V.