Kenniscentrum Kinderpalliatieve Zorg

What Kenniscentrum Kinderpalliatieve Zorg does

Kenniscentrum Kinderpalliatieve Zorg (legal name: Stichting Kenniscentrum Kinderpalliatieve Zorg) is a Dutch non-profit foundation headquartered at Mercatorlaan 1200 in Utrecht that operates as the national knowledge center for pediatric palliative care. The organization serves two primary constituencies: families of children with serious, life-threatening, or life-limiting conditions, and healthcare professionals (pediatricians, nurses, caregivers) who support them. Its core functions are knowledge dissemination, care coordination, and training across the Dutch pediatric palliative care ecosystem.

The organization's product portfolio centers on interconnected digital tools and frameworks: the IMPACT toolkit for pediatric advance care planning (developed with UMC Utrecht and Erasmus MC, first training delivered in 2019), the Individueel Zorgplan (IZP) 3.0 — an individual care plan tool integrated with the Medische Kindzorg Samenwerking (MKS) framework, the Ervaringsmeter (an experience meter applying Sensemaker narrative methodology), the Richtlijn Kinderpalliatieve Zorg clinical guidelines, and awareness initiatives such as the 'Een Stukje Mij' traveling photo exhibition. Underpinning delivery is a network of 7 regional Netwerken Integrale Kindzorg (NIK) covering all of the Netherlands, plus Kinder Comfort Teams embedded in children's hospitals.

The business model is non-commercial: the foundation provides all tools, training, and resources free of charge and is funded primarily through government subsidies and project grants, most notably from ZonMW (Dutch organization for health research and development), which financed both the original 2016 IMPACT research and the four-year Co-IMPACT follow-up starting in September 2023. The go-to-market is community-led and event-driven, combining digital content distribution through kinderpalliatief.nl, professional training programs, regional network coordination, and participation in national forums such as NPPZ II.

Name

Kenniscentrum Kinderpalliatieve Zorg

Legal name

Stichting Kenniscentrum Kinderpalliatieve Zorg

Website

https://kinderpalliatief.nl

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Kenniscentrum Kinderpalliatieve Zorg is a Dutch non-profit foundation that serves as the national knowledge center for pediatric palliative care, providing free tools, guidelines, and training to families of seriously ill children and healthcare professionals across 7 regional networks in the Netherlands.

Ownership category

akta.pro rank

Product category

Pediatric Palliative Care Knowledge Services

NAICS

Individual and Family Services (6241), Services for the Elderly and Persons with Disabilities (624120), Home Health Care Services (62161), Social Assistance (624)

SIC

Services-Social Services (8300), Services-Home Health Care Services (8082), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Pediatric Hospice & Palliative Care (HLADAHAI)

akta.pro secondary industries

Hospice & Palliative Care Care Coordination / Navigation (HLADAHAK), Non-Hospice Serious-Illness / Community-Based Palliative Care (In-Home) (HSABAFAF)

Keywords

• Pediatric palliative care
• Advance care planning
• Healthcare knowledge center
• Individual care planning
• Integrated child care networks

Headquarters

HQ city

Utrecht

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Subsidies and Grants: As a knowledge center foundation (Stichting Kenniscentrum Kinderpalliatieve Zorg), the organization appears to be funded primarily through government subsidies and project grants such as from ZonMW for research and implementation projects.

Go-to-market motion2 records

Distribution channels3 records

Marketing channels7 records

Core offering

Kenniscentrum Kinderpalliatieve Zorg is a Dutch national knowledge center that develops and disseminates evidence-based tools, guidelines, training and regional networks for pediatric palliative care. Its core offerings include the IMPACT toolkit for advance care planning conversations, the IZP 3.0 individual care plan, the Sensemaker-based Ervaringsmeter for capturing parent experiences, and coordination of seven regional Netwerken Integrale Kindzorg (NIK) networks across the Netherlands. Services and resources are provided free of charge to families of seriously ill children and to healthcare professionals.

Product overview

Kenniscentrum Kinderpalliatieve Zorg is a Dutch knowledge center for pediatric palliative care serving both families and healthcare professionals. The organization offers a portfolio of interconnected products and services centered around care coordination, planning tools, and knowledge sharing. Core offerings include the IMPACT toolkit for proactive care planning conversations, the Individueel Zorgplan (IZP) 3.0 for documenting care agreements, the Ervaringsmeter for capturing parent experiences, and the regional Netwerken Integrale Kindzorg (NIK) networks. Additional resources include professional training, clinical guidelines, Children's Comfort Teams, and awareness initiatives like the 'Een Stukje Mij' photo exhibition. The portfolio is designed to support the entire pediatric palliative care journey from diagnosis through end-of-life care and bereavement support.

Differentiator

Problem solved

Functional benefit

Brands

• IMPACT: Advance Care Planning toolkit for pediatric palliative care, providing materials for children, parents, and healthcare professionals to facilitate proactive care planning conversations.
• IZP (Individueel Zorgplan)
• Netwerk Integrale Kindzorg (NIK)
• Ervaringsmeter
• Een Stukje Mij

Products and services

• IMPACT (Implementing Pediatric Advance Care Planning Toolkit) A toolkit that provides children, parents and healthcare professionals with conversation guides, preparation cards and forms to implement proactive advance care planning in pediatrics.
• Individueel Zorgplan (IZP) 3.0 Downloadable individual care plan (DOCX/PDF) that documents agreements, goals and responsibilities around care, treatment and quality of life for seriously ill children, integrated with the Medische Kindzorgsysteem (MKS).
• Proactieve Zorgplanning (Proactive Care Planning) A structured methodology and accompanying tools that help professionals conduct timely conversations about values, wishes and preferences with children and families to align care with what matters most.
• Ervaringsmeter (Experience Meter) A narrative-based questionnaire using the Sensemaker methodology that allows parents to share their experiences with pediatric palliative care support, generating qualitative insights used to improve care policy.
• Netwerken Integrale Kindzorg (NIK) Regional networks that coordinate and connect care organizations and professionals involved in care for children with life-threatening or life-limiting conditions across seven regions in the Netherlands.
• Richtlijn Kinderpalliatieve Zorg (Pediatric Palliative Care Guidelines) General medical guideline covering all children with life-limiting or life-threatening conditions, providing recommendations for treating symptoms, signs or complaints based on medical-scientific research.
• Kinder Comfort Teams (Children's Comfort Teams) Multidisciplinary hospital-based teams that provide specialized support for children with life-limiting conditions and their families, coordinating care within children's hospitals and using tools such as IZP.
• Een Stukje Mij (Photo Exhibition) A nationwide traveling exhibition of mosaic portraits of children with life-threatening or life-limiting conditions and their families, developed under National Program Palliative Care II to raise public awareness about pediatric palliative care.

Quantifiable outcome

• Pilot phase: 17 experience stories received, 15 themes identified, leading to three main themes: recognition, communication, organization of care
• +2 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Eight partnerships are on record, tiered core, major and minor.

• Netwerken Integrale Kindzorg (NIK) - Regional NetworkscoreStrategic or Co-development PartnerThe NIK networks are the organizational backbone of pediatric palliative care coordination in the Netherlands. Seven regional networks (Noordoost, Zuidoost, Utrecht, Noord-Holland & Flevoland, Holland Rijnland, Zuidwest, Limburg & Zuidoost-Brabant) connect care organizations and professionals to share knowledge and coordinate care around children and families.
• UMC UtrechtcoreStrategic or Co-development PartnerCollaboration in the development of IMPACT toolkit for advance care planning. The Julius Centre at UMC Utrecht was the lead research institution.
• Erasmus MCcoreStrategic or Co-development PartnerCollaborated in IMPACT development alongside UMC Utrecht and Kenniscentrum, contributing research expertise in pediatric palliative care.
• Stichting Kind en ZiekenhuismajorStrategic or Co-development PartnerFoundation involved in the development of IZP 3.0 research, contributing expertise on child and hospital care integration.
• UMC Groningen, UMC Utrecht, UMC AmsterdamcoreStrategic or Co-development PartnerAcademic medical centers that conducted scientific research to develop the IZP 3.0 tool for individual care planning in pediatric palliative care.
• Integraal Kankercentrum Nederland (IKNL)minorStrategic or Co-development PartnerIndependent knowledge institute for oncological and palliative care mentioned as a related organization in the pediatric palliative care field.
• Kinder Comfort TeamsmajorStrategic or Co-development PartnerHospital-based teams providing comfort care for children, involved in IZP implementation and coordination of pediatric palliative care within healthcare institutions.
• Medische Kindzorg Samenwerking (MKS)majorStrategic or Co-development PartnerFramework for medical child care collaboration developed to enable integral child care, with NIK networks promoting its importance for seamless transition from hospital to home.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Together for Short Lives: UK-based charity and national voice for children's palliative care, comparable in function as a knowledge and advocacy body for seriously ill children and their families.
• International Children's Palliative Care Network (ICPCN): Global network dedicated to children's palliative care, sharing the same mission of knowledge dissemination, advocacy, and capacity building among professionals serving children with life-limiting conditions.
• Stichting Kind en Ziekenhuis: Dutch foundation that collaborates on IZP 3.0 and supports children's healthcare experience; a closely aligned partner and peer in pediatric care coordination.
• Stichting PAL: Dutch foundation supporting children with life-threatening or life-shortening conditions and their families, operating in the same pediatric palliative care space within the Netherlands.

Broad incumbents

• Zorginstituut Nederland: Dutch national institute that defines healthcare quality standards and benefit packages; relevant as a comparable Dutch knowledge/standards body that influences the regulatory environment in which the center operates.
• Stichting Agora: Dutch national center of expertise for palliative care with a broader (adult-inclusive) scope, complementary to the pediatric focus and operating in the same palliative care ecosystem.
• Integraal Kankercentrum Nederland (IKNL): Dutch independent knowledge institute for oncological and palliative care; broader in scope than the pediatric center but explicitly referenced as a peer knowledge body in the palliative care domain.
• European Association for Palliative Care (EAPC): European umbrella body for palliative care where the pediatric Taskforce operates; a peer institution in setting standards and advancing knowledge in the palliative care field.

Others

• Stichting Fier!: Dutch foundation providing specialized care and shelter; thematically comparable as a non-profit knowledge-and-care service organization serving vulnerable populations in the Netherlands.

Regional players

• Children's Hospice UK: UK membership organization supporting children's hospice services; comparable in mission to enable and connect pediatric palliative care provision, though more service-delivery focused than knowledge-focused.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/kenniscentrumkinderpalliatievezorg

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Kenniscentrum Kinderpalliatieve Zorg