Landeskrebsregister NRW gGmbH

What Landeskrebsregister NRW gGmbH does

Landeskrebsregister NRW gGmbH is the official state cancer registry for North Rhine-Westphalia (NRW), Germany's most populous federal state, operating under a legal mandate pursuant to §65c SGB V and overseen by the Ministry for Work, Health and Social Affairs of NRW (MAGS NRW). It systematically captures cancer diagnoses, therapies (systemic therapy, radiotherapy, surgery), and disease courses from hospitals, clinics, and physicians across the state, pseudonymizes the records, and feeds back aggregated and facility-specific quality indicators to reporting institutions. The organization traces its origins to the Epidemiologisches Krebsregister für den Regierungsbezirk Münster (1986–2005) and was reconstituted in its current gGmbH form around 2016, with annual corporate governance and performance reports published since 2017.

The core technology stack consists of the Melderportal (electronic reporting portal) used by healthcare providers to submit mandatory cancer notifications, supported by pseudonymization infrastructure, data quality indicators, and epidemiological methods for cancer occurrence, survival, and trend analyses. Downstream outputs include the Online-Jahresbericht reporting system, Datenrückmeldungen (facility-level quality evaluations), Qualitätskonferenzen (interdisciplinary quality conferences), Forschungsdaten und Drittmittelprojekte (research data and third-party projects), and the PEAK Patienten-Experten-Akademie patient engagement program, alongside an annual Landesqualitätskonferenz NRW (the 6th edition scheduled for September 23, 2026 in Cologne). The organization is headquartered in Bochum on the Gesundheitscampus NRW, hosts roughly 20 staff, and is a member of the German Network of Cancer Registries (GEKID).

The business model is non-commercial: operating funding flows from MAGS NRW and Deutsche Krebshilfe, and the registry does not charge healthcare providers, patients, or researchers for its services. Customers in the conventional sense comprise reporting healthcare providers (mandatory), patients (data subjects with rights to information and objection), research institutions (data users), and health authorities (population-level data users). Leadership comprises Managing Director Dr. Andres Schützendübel and Medical Director Univ.-Professor Dr. med. Andreas Stang, MPH. There are no subsidiaries, no equity investors, and no API or developer-facing integrations publicly disclosed.

Name

Landeskrebsregister NRW gGmbH

Legal name

Landeskrebsregister Nordrhein-Westfalen gGmbH

Website

https://landeskrebsregister.nrw

Company type

Private

Founded year

2016

Operating status

Operating

Headcount range

11–50 employees

Short description

Landeskrebsregister NRW gGmbH operates the state-mandated clinical cancer registry for North Rhine-Westphalia, systematically collecting pseudonymized cancer diagnoses, treatments, and outcomes from in-state healthcare providers under §65c SGB V and feeding back quality indicators, research datasets, and annual reports to providers, patients, researchers, and health authorities.

Ownership category

akta.pro rank

NAICS

Medical and Diagnostic Laboratories (6215), Research and Development in the Physical, Engineering, and Life Sciences (54171)

SIC

Services-Medical Laboratories (8071)

akta.pro industry

PRIMARYHLACAMAJ

Pathology Reporting, Synoptic Templates & Cancer Registry Interfaces

Healthcare & Life Sciences/Digital Health & Health IT/Laboratory Information Systems (LIS/LIMS) & Pathology Informatics

SECONDARYHLACAIAJ

Real-World Data (RWD) Platforms & Clinical Data Curation

Healthcare & Life Sciences/Digital Health & Health IT/Healthcare Data Platforms, Warehousing & Governance

SECONDARYHLACAOAM

Real-World Data (RWD) / Real-World Evidence (RWE) & Observational Research Platforms

Healthcare & Life Sciences/Digital Health & Health IT/Clinical Trials & Research Informatics (eCOA/ePRO/EDC)

SECONDARYHLAGAJAF

Clinical & Translational Informatics (Clinical Data Integration/Real-World Data for R&D)

Healthcare & Life Sciences/Life Science Tools & Services (CRO/CDMO/Lab Services)/Life Science Software & Informatics (LIMS/ELN/Bioinformatics)

Keywords

• Clinical cancer registry
• Oncology data reporting
• Cancer epidemiology
• Oncology quality assurance
• Health data management

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations, Infrastructure, Others

Distribution channels1 record

Marketing channels4 records

Core offering

Landeskrebsregister NRW gGmbH operates the legally mandated state cancer registry for North Rhine-Westphalia, systematically collecting, processing, and analyzing cancer diagnoses, therapies, and disease courses from healthcare providers. It delivers an electronic reporting portal (Melderportal), facility-specific quality feedback (Datenrückmeldungen), annual quality conferences, and curated research data for epidemiological studies and healthcare planning.

Product overview

Landeskrebsregister NRW gGmbH operates a clinical cancer registry (klinische Krebsregistrierung) as a unified platform for North Rhine-Westphalia. The core offerings include the Melderportal for healthcare providers to submit diagnosis, therapy, and follow-up notifications; Online-Jahresbericht systems for aggregated annual cancer data reporting; and Datenrückmeldungen providing facility-specific quality evaluations. Supporting modules encompass Qualitätskonferenzen (entity-specific quality conferences), Forschungsdaten services (research data access and third-party projects), comprehensive Jahresberichte und Publikationen (annual reports and scientific publications), the PEAK Patienten-Experten-Akademie (patient academy), and the Landesqualitätskonferenz NRW (state quality conference). The registry serves both clinical quality assurance purposes for healthcare providers and epidemiological research objectives for the broader scientific community.

Differentiator

Problem solved

Functional benefit

Brands

• PEAK Patienten-Experten-Akademie: Patient expert academy initiative under the LKR NRW patient services

Quantifiable outcome

• 10 years of clinical cancer registration in NRW marked by the 6. Landesqualitätskonferenz (2026)
• +2 more outcomes

Segments4 records

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Three partnerships are on record, tiered core.

• Ministerium für Arbeit, Gesundheit und Soziales des Landes Nordrhein-Westfalen (MAGS NRW)coreStrategic or Co-development PartnerThe Ministry for Work, Health and Social Affairs of North Rhine-Westfalen is the overseeing government body that funds and regulates the state cancer registry, establishing its legal mandate under LKRG NRW.
• Gesundheitscampus Nordrhein-WestfalencoreStrategic or Co-development PartnerThe North Rhine-Westphalia Health Campus in Bochum serves as the institutional host location for the cancer registry, fostering collaboration with other health research institutions.
• German Network of Cancer Registries (GEKID)coreStrategic or Co-development PartnerThe registry participates in the German Network of Cancer Registries (Gesellschaft der epidemiologischen Krebsregister in Deutschland e.V.) for data harmonization and collaborative national research.

Recent moves4 records

Expansion highlights4 records

Direct peers

• Krebsregister Baden-Württemberg: Clinical-epidemiological cancer registry for Baden-Württemberg operating under §65c SGB V. Directly analogous to LKR NRW in mandate, registration model, and stakeholder services.
• Epidemiologisches Krebsregister Niedersachsen (EKN): Lower Saxony's cancer registry performing clinical-epidemiological cancer registration under §65c SGB V. Functions as a German state-level peer with matching regulatory mandate and data products.
• Bayerisches Landesamt für Gesundheit und Lebensmittelsicherheit – Bayerisches Krebsregister: State cancer registry for Bavaria operating under the same §65c SGB V mandate. Directly comparable in scope, regulatory basis, and function to Landeskrebsregister NRW; serves Bavaria's population-based cancer registration needs.
• Hessisches Krebsregister: State cancer registry for Hesse under §65c SGB V. Performs the same clinical and epidemiological cancer registration activities as LKR NRW, with a comparable operating model and data offerings.

Emerging players

• Flatiron Health: US-based RWD/RWE oncology platform now part of Roche. Comparable as a sophisticated operator of curated oncology clinical datasets and analytics, though commercial where LKR NRW is a public registry.

Others

• Gesellschaft der epidemiologischen Krebsregister in Deutschland (GEKID): National network of German epidemiological cancer registries in which LKR NRW participates. Comparable as the umbrella coordination body for population-based cancer registration in Germany.

Broad incumbents

• National Cancer Registration and Analysis Service (NCRAS) – NHS England: England's national cancer registration and analysis service. Comparable as a publicly mandated population-level cancer registry with similar epidemiological, reporting, and research-data functions; not a direct competitor but a natural international benchmark.
• Zentrum für Krebsregisterdaten (ZfKD) am RKI: Federal cancer registry data center at the Robert Koch Institute that aggregates state registry data for national reporting. Comparable as a higher-level aggregator that depends on state registries like LKR NRW for its data.
• Institut national du cancer (INCa) – France: France's national cancer agency that coordinates cancer registries and oncology data. Comparable as a public-sector body performing population-level cancer data coordination and research enablement.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/landeskrebsregister-nrw

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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