Association Les Liens du Coeur

What Association Les Liens du Coeur does

Association Les Liens du Coeur is a French non-profit association (loi 1901), recognized as being of general interest, founded in 1994 and headquartered within the Congenital Cardiology service of CHU de Bordeaux's Hôpital Haut-Lévêque in Pessac, Nouvelle-Aquitaine. The association supports children with congenital heart disease (cardiopathies congénitales) and their families across the Nouvelle Aquitaine region — approximately 600 families per year — through an integrated portfolio of free services including the Navette des Familles (a free 365-day shuttle from three Bordeaux guest houses to the hospital), adapted physical activity via the Muscle Ton Coeur sport-health programme (deployed with SIEL Bleu and partner sports clubs), psycho-socio-esthetic scar care (CICABELLA), weekly dog therapy, art therapy, daily Café Rencontres social gatherings, and well-being workshops. Technology footprint is minimal: a WordPress website built by SARL La Boîte à Re, hosted on Infomaniak, with Canva for design, Google Analytics for measurement, and HelloAsso for donation processing.

Name

Association Les Liens du Coeur

Legal name

Association Les Liens du Coeur

Website

https://lesliensducoeur.org

Company type

Private

Founded year

1994

Operating status

Operating

Short description

Association Les Liens du Coeur is a French non-profit, founded in 1994 and based at CHU de Bordeaux's Hôpital Haut-Lévêque, that delivers free integrated support — transport, adapted sport, scar care, therapy, and accommodation coordination — to children with congenital heart disease and their families across Nouvelle Aquitaine.

Ownership category

akta.pro rank

Product category

Patient and Family Support Services

NAICS

Voluntary Health Organizations (813212), Child and Youth Services (62411), Educational Support Services (611710), Civic and Social Organizations (8134)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Membership Organizations (8600)

akta.pro primary industry

Family Engagement & Caregiver Support Programs (SEL/Mental Health) (EDAKAMAK)

akta.pro secondary industries

Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK), Sports Fundraising & Development Services (Foundations, NIL Collectives Support) (MPAKAKAK), Cause, Community & CSR-Linked Sports Partnerships (Foundations, Youth Programs) (MPAKALAJ)

Keywords

• Congenital heart disease support
• Patient family services
• Therapeutic care programs
• Charitable fundraising events
• Nonprofit healthcare association

Headquarters

HQ city

Pessac

HQ country

France

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Individual Donations and Memberships: Individual donors can become annual members and/or make one-time or recurring donations. Donors receive a 66% income tax reduction on donations (up to 20% of taxable income). Membership grants access to association commissions, volunteer missions, and events.
2. Corporate Partnerships and Sponsorship: Companies can become patrons or partners through financial, skills-based, product donation, or merchandise sponsorship. Corporate donors receive a 60% corporate tax deduction (up to 0.5% of annual revenue, with a 10,000 euro cap applicable since 2019). Corporate partners also engage employees through team-building actions linked to association projects.
3. Event-Driven Fundraising: Charity events including the 'Super Madeleine' immersive show (Bordeaux and Cognac editions), annual 'Muscle Ton Coeur' sport days, gala football matches, badminton tournaments, and egg hunts. Revenue is generated through ticket sales, donations collected during events, and partner-sponsored fundraising challenges.
4. Public and Institutional Support: The association receives support from the CHU de Bordeaux and benefits from institutional recognition as a public interest association, which enables tax-deductible donations.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels9 records

Core offering

Association Les Liens du Coeur is a French non-profit association that provides free logistical, therapeutic, emotional, and practical support services to children with congenital heart disease and their families, primarily delivered within the Congenital Cardiology service of Hôpital Haut-Lévêque (CHU de Bordeaux) in Pessac. Its programs include a free family shuttle service, adapted physical activity, art therapy, dog-assisted therapy, psycho-socio-esthetic scar care, social gatherings, and large-scale fundraising events. Funding comes entirely from individual donations, corporate sponsorships, and event-driven fundraising.

Product overview

Association Les Liens du Coeur operates as a charitable organization offering a portfolio of support programs and services for children with congenital heart disease and their families. The core offerings include practical services (family shuttle, accommodation support), therapeutic programs (art therapy, dog therapy, CICABELLA scar care), wellness activities (reiki, pilates, osteopathy, reflexology), social support (Café Rencontres), and large-scale fundraising events (Super Madeleine). The Muscle Ton Cœur sport-health program provides adapted physical activity support. A major upcoming initiative is the Maison des Liens du Cœur, a dedicated patient and family accommodation facility scheduled for 2028. These programs collectively form a holistic support ecosystem rather than a unified technology product.

Differentiator

Problem solved

Functional benefit

Brands

• Muscle Ton Coeur: Sport health program supporting children operated on for congenital heart conditions to resume physical activity, deployed in the congenital cardiology department of Hôpital Haut-Lévêque.
• Super Madeleine
• CICABELLA

Products and services

• Navette des Familles (Family Shuttle) Free daily shuttle transport service for families staying at Bordeaux guest houses (La Pelouse, Ronald McDonald, Saint-Jean) traveling to Hôpital Haut-Lévêque in Pessac; operates 365 days per year with one round trip per day, reserved by phone on the day of travel.
• Super Madeleine Immersive theatrical charity show performed by the Décalez troupe that depicts life in the congenital cardiology service and presents six major association projects; donations are collected during performances.
• Muscle Ton Coeur Sport-health programme providing adapted physical activity (APA) for children operated on for congenital heart malformations, comprising hospital-room workshops, home visits (in-person or by video), sessions at partner sports clubs with APA-trained educators, and a weekly cardio-sport consultation with a cardiopediatrician, therapeutic education nurse, and APA coach.
• CICABELLA Psycho-socio-esthetic care programme for cardiac surgery scars, providing 'care bubbles' where patients learn to look at, care for, and massage their scars, including corrective makeup techniques, animated by a socio-esthetician.
• Café Rencontres Daily social gatherings held in the cardiology service from Monday to Friday, offering parents and caregivers moments of conviviality and exchange with medical teams.
• Médiation canine (Dog-Assisted Therapy) Weekly dog therapy sessions held on Wednesdays in the congenital cardiology service, providing therapeutic benefits including stress reduction, emotional release, and family reconnection for hospitalized children.
• Ateliers d'art-thérapie (Art Therapy Workshops) Art therapy workshops using creative activities such as music therapy, painting, and drawing to help children express emotions and develop self-confidence during hospitalization.

Quantifiable outcome

• 40,000+ euros raised at the Cognac Super Madeleine event on 23 June 2026
• +6 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

25 partnerships are on record, tiered core and minor.

• AXA FrancecoreGTM or Marketing Partner · 16 June 2026AXA France renewed its support for Les Liens du Coeur at the 2026 Muscle Ton Coeur event. Their partnership contributes to funding the sport-health programme and other association actions.
• Rusher RaceminorGTM or Marketing Partner · 2 April 2026Rusher Race engaged alongside Les Liens du Coeur in a two-part sporting event to raise funds and awareness for the association.
• AÉSIO MutuellecoreGTM or Marketing Partner · 28 March 2026AÉSIO Mutuelle joined the association's partner club ('Club des partenaires'). Their commitment enables the association to pursue its missions supporting children with congenital heart disease and their families.
• CEMOIminorGTM or Marketing Partner · 25 March 2026A faithful partner since the previous year, CEMOI regularly supports the association at key moments in the year, notably through donations during festive events (Easter egg hunt).
• Fondation ORPEAcoreGTM or Marketing PartnerFondation ORPEA is one of the financial supporters of the Muscle Ton Coeur sport-health programme, helping to fund adapted physical activity for children operated on for congenital heart disease.
• CépagesminorGTM or Marketing PartnerCépages contributes to financing the Muscle Ton Coeur sport-health programme for children operated on for congenital heart disease.
• SIEL BleucoreStrategic or Co-development PartnerSIEL Bleu is the association relied upon by Les Liens du Coeur to deploy the Muscle Ton Coeur sport-health programme. Present throughout France since 1997, SIEL Bleu has 700 employees, the majority trained in adapted physical activity (APA) and from STAPS university programmes. The association signs partnership conventions with sports clubs that have SIEL Bleu-trained educators.
• DiMedCareminorStrategic or Co-development PartnerDiMedCare facilitated the partnership between navigator Noémie Catalano and Les Liens du Coeur, enabling the ambassador's sponsorship arrangement.
• La Fondation de la MerminorGTM or Marketing PartnerPartner of navigator Noémie Catalano's sailing project, which carries the Les Liens du Coeur logo on her new Figaro-class racing boat.
• JSD GroupeminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing programme, contributing to the boat carrying Les Liens du Coeur branding.
• U'WeiniminorGTM or Marketing PartnerPartner of Noémie Catalano's Figaro sailing programme, displaying Les Liens du Coeur's logo on the boat.
• Simone à BordeauxminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• Slash IntérimminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• AragominorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• Little balanceminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• LagolightminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• OpticodminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• RECCO Réseau d'expertise comptable et de conseilsminorGTM or Marketing PartnerPartner of Noémie Catalano's sailing project.
• Club de Badminton de Saint-MédardminorGTM or Marketing PartnerOrganized a badminton tournament that mobilized participants to support Les Liens du Coeur's mission.
• Tennis Club de Villenave-d'OrnonminorStrategic or Co-development PartnerPartner sports club for the Muscle Ton Coeur adapted physical activity programme, with APA-trained educators.
• Rugby Club de PessacminorStrategic or Co-development PartnerPartner sports club for the Muscle Ton Coeur adapted physical activity programme, with APA-trained educators.
• Ville de CognacminorGTM or Marketing PartnerThe City of Cognac immediately agreed to host the Super Madeleine show and made its La Salamandre venue available for the charity event on 23 June 2026.
• Troupe DécalezcoreStrategic or Co-development PartnerProfessional theater troupe that writes and performs 'Super Madeleine,' an immersive show depicting life in the congenital cardiology service and the association's mission. Has performed at multiple charity evenings for Les Liens du Coeur.
• Maison Histoire de RecevoirminorGTM or Marketing PartnerFully designed and donated the cocktail dinner for the Cognac Super Madeleine event.
• MP Son et LumièreminorGTM or Marketing PartnerTechnical service provider supporting the Super Madeleine charity event in Cognac.

Scale indicators11 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• Mécénat Chirurgie Cardiaque: French non-profit association that supports children with congenital heart disease by funding cardiac surgery and family logistics. Highly comparable mission (pediatric cardiac support, family accommodation), French geography, and donation-driven model make it the closest peer.
• La Chaîne de l'Espoir: French non-profit focused on providing surgical and medical care to children with cardiac and other pathologies in low-resource settings. Directly comparable in terms of pediatric cardiac mission, hospital partnerships, and family-centred support, though with a broader international footprint.
• Petits Princes: French association that fulfills the dreams of seriously ill children, including those with cardiac conditions. Comparable as a French pediatric-illness charity with strong corporate partnerships, volunteer engagement, and event-driven fundraising.
• À Chacun Son Everest: French association supporting children and adolescents affected by cancer and leukemia through rehabilitation stays and adapted physical activity. Directly comparable in the 'therapeutic adapted physical activity for children recovering from serious illness' niche, with similar programme design philosophy.

Broad incumbents

• AFM-Téléthon: France's largest rare-disease charity, funding neuromuscular disease research and patient support. Comparable as a French disease-focused non-profit with major televised fundraising events, large volunteer base, and corporate sponsorship; significantly larger scale and broader disease scope.
• Croix-Rouge française: Major French humanitarian organization providing health, social, and emergency relief services. Comparable as a French non-profit delivering health-adjacent support to vulnerable populations with a regional branch network, but with a far broader mission and substantially larger operational scale.
• Fondation de France: France's leading grantmaking foundation, distributing philanthropic funds across health, social, and research causes. Comparable as a French non-profit operating in the same donor/granting ecosystem, though at a substantially larger scale and with a fund-distribution rather than direct-service model.
• Fondation Hôpitaux: French foundation dedicated to improving the hospital experience for children, the elderly, and vulnerable patients. Highly comparable in the pediatric hospital-family support niche, with similar donor base, corporate partnership model, and hospital-anchored programme delivery.
• Ligue contre le Cancer: France's leading cancer charity, funding research, prevention, and patient support across all French departments. Comparable as a large French disease-focused non-profit with strong departmental presence, volunteer-driven model, and event-led fundraising — but at materially larger scale.
• Fondation pour la Recherche Médicale: French foundation funding medical research across all pathologies. Comparable as a French health-focused non-profit leveraging public-interest tax status, major corporate partners, and individual donations, though operating in research-funding rather than direct patient support.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks7 records

Key highlights7 records

Customer concentration

• Xtwitter.com/lesliensducoeur
• YouTubeyoutube.com/channel/UCRQ9l3XTU16BjgSOS-36w8g
• Facebookfacebook.com/aveclesliensducoeur
• LinkedInlinkedin.com/in/association-les-liens-du-coeur-6487bb151/?originalSubdomain=fr
• Instagraminstagram.com/les_liens_du_coeur

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Association Les Liens du Coeur