Deutsche Leukämie- & Lymphom-Hilfe e.V.

What Deutsche Leukämie- & Lymphom-Hilfe e.V. does

Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH), founded in 1995 and headquartered in Bonn, Germany, is the registered national federation (Bundesverband) of self-help organizations supporting adults with leukemia and lymphoma. The organization serves adult patients diagnosed with 25+ blood cancer subtypes (ALL, AML, CLL, CML, Hodgkin lymphoma, DLBCL, multiple myeloma, MDS, MPNs, etc.), their families, and a network of affiliated regional and local self-help organizations across Germany, with additional reach into German-speaking Austria and Switzerland. Its product portfolio is organized around three pillars: Information (free brochures, info sheets, DLH-INFO newspaper, and the Infothek), Community (over 100 regional self-help groups and online forums such as forum.leukaemie-hilfe.de and Leukämie-Online), and Advocacy (annual national patient congresses and regional patient days, plus healthcare policy representation).

The underlying technology is a conventional web platform: a public website (www.leukaemie-hilfe.de), a member portal, a separate online forum, and video hosting for recorded congress sessions. There is no proprietary AI/ML capability; the platform functions as a content distribution and community coordination layer. Service delivery is heavily event-driven, anchored by the annual national patient congress (29th edition in Bad Wildungen, July 2026, co-organized with Universitätsklinikum Gießen und Marburg) and supplemental regional patient days.

Revenue is non-commercial and comes almost entirely from institutional grants and membership fees. Based on 2024 figures, Deutsche Krebshilfe provided approximately €300,000 (63% of income), GKV statutory health insurance funds approximately €76,000 (16%), DKMS €25,000, Aktion Mensch €1,000, donations ~€32,900, plus membership fees (6.66 EUR per self-help group member, minimum 60 EUR for natural-person supporting members, 250 EUR for legal-entity supporting members) and conference fees (€15/€10 per day). DLH has formally committed to not accepting pharmaceutical industry funding since January 2012. The organization is governed by a volunteer executive board chaired by Rainer Göbel, with six full-time staff at the Bonn office.

Name

Deutsche Leukämie- & Lymphom-Hilfe e.V.

Legal name

Deutsche Leukämie- & Lymphom-Hilfe e.V.

Website

https://leukaemie-hilfe.de

Company type

Private

Founded year

1995

Operating status

Operating

Headcount range

1–10 employees

Short description

Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH) is the German national federation of self-help organizations supporting adults with leukemia and lymphoma, providing free information, peer-support networks, and advocacy through publications, an online forum, and annual patient congresses.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Self-Help Support Services

NAICS

Emergency and Other Relief Services (62423)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Health Services (8000)

akta.pro primary industry

Home & Community-Based Services (HCBS) Coordination & Case Management (HSABAIAM)

Keywords

• Patient advocacy services
• Leukemia lymphoma support
• Self-help organization federation
• Patient education materials
• Blood cancer information

Headquarters

HQ city

Bonn

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Public Funding - Deutsche Krebshilfe: Primary funding source from Deutsche Krebshilfe (German Cancer Aid), receiving approximately 300,000 EUR annually (63% of 2024 revenue). This government-aligned cancer charity provides core operational support.
2. Health Insurance Contributions: GKV-Gemeinschaftsförderung Selbsthilfe funding from statutory health insurance providers, receiving approximately 76,000 EUR annually (16% of 2024 revenue).
3. Membership Fees: Self-help groups pay 6.66 EUR per member (minimum 66.66 EUR, maximum 333 EUR). Supporting members (natural persons) pay minimum 60 EUR annually. Legal entity supporting members pay minimum 250 EUR annually.
4. Donations: Individual donations, institutional donations, condolence donations, bequests, and legacies from supporters. Total donations in 2024 approximately 32,900 EUR.
5. Project Funding: Project-specific funding from organizations like DKMS (25,000 EUR in 2024), Aktion Mensch, and Jose Carreras Foundation for designated initiatives.
6. Other Revenue Sources: Conference revenues and miscellaneous other income sources.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels6 records

Core offering

Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH) is the national federation of self-help organizations supporting adults with leukemia and lymphoma in Germany. It provides free information materials (brochures, info sheets, the DLH-INFO newspaper) covering more than 25 blood cancer types, operates a nationwide network of regional and online self-help groups, runs an annual national patient congress and regional patient days, and offers patient advocacy and peer support services.

Product overview

Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH) is a national federation (Bundesverband) providing support services for adults with leukemias and lymphomas. The organization operates a coordinated portfolio of information products (brochures, newsletters, information sheets) and support services (self-help group network, patient advocacy, online forums). Major activities include annual national patient congresses and regional patient days that combine education, networking, and peer exchange. The offerings center on three pillars: Information (publications and website), Community (self-help groups and forums), and Advocacy (patient representation).

Differentiator

Problem solved

Functional benefit

Products and services

• DLH-INFO-Zeitung (DLH-INFO Newspaper)
• Informationsbroschüren (Information Brochures)
• Infoblätter (Information Sheets)
• Patientenkongresse (Annual National Patient Congress)
• Patiententage (Regional Patient Days)
• Selbsthilfegruppen-Netzwerk (Self-Help Group Network)
• Patientenbeistand (Patient Advocacy)
• DLH-Foren (Online Patient Forums)

Quantifiable outcome

• Over 270 participants at annual national patient congresses, with high satisfaction ratings from attendees
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered core and minor.

• Stiftung Deutsche Krebshilfe (Mildred Scheel Foundation)coreStrategic or Co-development PartnerCo-organizes patient events and provides the INFONETZ KREBS service in collaboration with DLH. The Dr. Mildred Scheel Academy provides training and education programs.
• Der Paritätische GesamtverbandcoreStrategic or Co-development PartnerNational welfare association representing charitable organizations in Germany. DLH is a member of this umbrella organization.
• BAG SELBSTHILFE (Federal Association of Self-Help)coreStrategic or Co-development PartnerNational federation representing self-help organizations in Germany. DLH is a member and participates in collaborative initiatives.
• Kompetenznetz Maligne LymphomeminorStrategic or Co-development PartnerCompetence network for malignant lymphomas that collaborates with DLH on patient education and information dissemination.
• Deutsche Gesellschaft für Hämatologie und Medizinische Onkologie (DGHO)minorStrategic or Co-development PartnerProfessional medical society for hematology and oncology that provides medical expertise and guidance for DLH patient materials.
• Haus der Krebs-Selbsthilfe BundesverbandcoreStrategic or Co-development PartnerNational federation of cancer self-help organizations. DLH participates as a member organization in this umbrella body.
• Universitätsklinikum Gießen und MarburgcoreStrategic or Co-development PartnerAcademic medical center that co-organizes the annual DLH patient congress. Scientific director Prof. Dr. Andreas Burchert provides medical leadership for congress programs.
• Comprehesive Cancer Center München (CCC München)minorStrategic or Co-development PartnerMunich Cancer Center co-hosts virtual patient education events with DLH through the Patientenhaus patient education program.
• Stiftung Deutsche Leukämie- & Lymphom-HilfeminorOthersDLH founded this foundation which provides additional patient support services. Note: The foundation has been in insolvency proceedings since January 31, 2025.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• DKMS (Deutsche Knochenmarkspenderdatei): Bone marrow donor registry providing project funding (€25K in 2024) and exhibiting at DLH congresses. Directly comparable as a German non-profit focused on hematological disease patient support and stem cell transplantation resources.
• Aplastische Anämie & PNH e.V. Patient organization for aplastic anemia and paroxysmal nocturnal hemoglobinuria, listed as an affiliated group in DLH's network. Directly comparable as a German blood disease-specific patient self-help organization.
• mpn-netzwerk e.V. Self-help initiative for patients with myeloproliferative neoplasms (MPN) and their relatives, with multiple regional and language-specific subgroups. Directly comparable as a disease-specific German patient self-help organization in the same blood cancer space.
• Leukämie-Online / LeukaNET e.V. Online self-help community for leukemia patients in Germany. Directly comparable as a digital-first patient support organization targeting the same leukemia patient population as DLH.
• Haus der Krebs-Selbsthilfe Bundesverband: National federation of cancer self-help organizations in which DLH is a member. Directly comparable as a German umbrella organization coordinating disease-specific cancer patient advocacy groups.
• Deutsche José Carreras Leukämie-Stiftung: Charitable foundation focused on leukemia research and patient support, providing occasional project funding to DLH. Directly comparable as a German leukemia-focused foundation offering patient services and funding.

Broad incumbents

• Deutsche Krebshilfe (Stiftung Deutsche Krebshilfe / Mildred Scheel Foundation): Germany's largest cancer charity and DLH's primary institutional funder (~€300K / 63% of 2024 revenue). Operates across all cancer types with broader scope; directly comparable as a German cancer-focused non-profit providing patient support, information, and advocacy.
• BAG SELBSTHILFE: Federal association representing self-help organizations across all disease areas in Germany. Comparable as a larger umbrella advocacy body in which DLH participates, with broader scope across conditions.
• Leukemia & Lymphoma Society (LLS): Largest US-based voluntary health organization dedicated to blood cancer research, patient support, and advocacy. Comparable as a much larger, established incumbent in the same leukemia/lymphoma patient advocacy category.

Emerging players

• Lymphoma Coalition: Global non-profit network of lymphoma patient organizations. Comparable as an international umbrella for lymphoma patient advocacy, providing DLH a potential partnership/affiliation counterpart at global scale.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Facebookfacebook.com/dlhbonn
• LinkedInlinkedin.com/company/dlhbonn

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Subsidiaries1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Deutsche Leukämie- & Lymphom-Hilfe e.V.