Lyme Disease UK
Lyme Disease UK is a Poole-based registered charity (No. 1182212) that provides free patient support, educational resources, and awareness campaigns for people affected by Lyme disease and tick-borne illness across the United Kingdom.
- Company typePrivate
- Founded2013
- HeadquartersPoole, Dorset, United Kingdom
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Lyme Disease UK does
Lyme Disease UK (LDUK) is a UK-registered patient advocacy charity (Charity No. 1182212), founded in 2013 and headquartered in Poole, Dorset, that supports individuals affected by Lyme disease and tick-borne illness through education, awareness, and direct patient services. The organization provides free downloadable awareness materials, patient information guides covering acute and late-stage Lyme disease, on-demand webinars, animated educational videos, and structured LDUK Connect patient support sessions on Zoom funded by the National Lottery Community Fund. It also runs a dedicated Clinicians Hub aligned with the RCGP Lyme Disease Toolkit, school-targeted resources, and an MPs information hub for policy advocacy, alongside a Patient Ambassador programme that includes an elected MSP.
The organization's technology stack is modest and non-proprietary: a WordPress website (lymediseaseuk.com) distributing free content, a Shopify-style e-commerce shop (lymediseaseuk.shop), a PayPal donation portal, an Easyfundraising affiliate integration with 2,700+ UK retailers, and active social channels on Facebook, Bluesky, Instagram, and TikTok. There is no bespoke software product, mobile app, or API; technical capability is oriented around content distribution and community engagement rather than product development.
LDUK's revenue model is that of a typical small UK charity: individual donations (one-time and recurring "Key Lyme Supporter" monthly giving), merchandise sales (hoodies, t-shirts, mugs, tote bags, vests, lapel pins), tick-prevention product resales with charity discounts (Tick Twister tools and THEYE repellent), affiliate income via Easyfundraising, corporate fundraising partnerships, and targeted grants such as the National Lottery Community Fund award. The charity does not charge for its core services — patient support, educational resources, webinars, and support sessions are all free — so its financial trajectory is tightly linked to donor sentiment, grant cycles, and campaign-driven merchandise demand rather than to a commercial pricing model.
Lyme Disease UK firmographics
Firmographics- Name
- Lyme Disease UK
- Legal name
- Lyme Disease UK
- Website
- https://lymediseaseuk.com
- Company type
- Private
- Founded year
- 2013
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Lyme Disease UK is a Poole-based registered charity (No. 1182212) that provides free patient support, educational resources, and awareness campaigns for people affected by Lyme disease and tick-borne illness across the United Kingdom.
- Ownership category
- akta.pro rank
Lyme Disease UK industry classification
Industry- Product category
- Patient Advocacy and Disease Awareness Charity
- NAICS
- Voluntary Health Organizations (813212)
- SIC
- Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industries
- Tick-Borne & Vector-Borne Diseases (HLAKAGAL), Vector-Borne Disease Surveillance & Control (HLAJABAG), Disease-Specific Global Initiatives (HIV/TB/Malaria/NTDs) (HLAJAOAE)
Keywords
Where Lyme Disease UK is headquartered
LocationHeadquarters
- HQ city
- Poole, Dorset
- HQ country
- United Kingdom
- HQ region
- Europe
Offices1 record
Markets served
Lyme Disease UK business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Donations: Lyme Disease UK operates as a registered charity (Number: 1182212) and relies on donations from individuals. Monthly giving programs are available where supporters can become Key Lyme Supporters. One-time and recurring donation options are offered through their website, PayPal, bank transfer, and cheque.
- Merchandise Sales: The organization operates an e-commerce shop (lymediseaseuk.shop) selling branded merchandise including hoodies, t-shirts, mugs, tote bags, vests, and lapel pins. Additionally, they sell tick removal tools (Tick Twister) and insect repellent (THEYE) with proceeds supporting the charity.
- Corporate Fundraising: The charity offers corporate fundraising opportunities for businesses looking to support Lyme disease awareness and patient support initiatives.
- Easyfundraising: Partnership with Easyfundraising enables the charity to receive donations when supporters shop online with over 2,700 retailers including Amazon, John Lewis, Next, and Argos.
Distribution channels4 records
Marketing channels7 records
Lyme Disease UK product offering
Product offeringCore offering
Lyme Disease UK is a registered charity (Number: 1182212) that provides free patient support, educational resources, and disease awareness services for people affected by Lyme disease in the UK. It aggregates authoritative medical guidance (NICE, RCGP, NHS), delivers downloadable awareness materials, runs patient support sessions, and sells tick prevention products and branded merchandise to raise funds for its mission.
Product overview
Lyme Disease UK is a patient support charity offering a comprehensive suite of educational resources and support services for those affected by Lyme disease. The organization provides free downloadable awareness materials (posters, leaflets, tick awareness cards), patient information guides covering acute and chronic Lyme disease, on-demand webinars, and informative animations on prevention and management. Their support offerings include LDUK Connect patient support sessions and a Clinicians Hub with resources for healthcare professionals. The organization also operates a shop selling tick removal tools (Tick Twister), insect repellent (THEYE), and branded merchandise, with proceeds supporting their charitable mission. An annual Be Tick Aware campaign provides structured education and resources for schools, healthcare providers, and the general public.
Differentiator
Problem solved
Functional benefit
Products and services
- Awareness Materials Downloadable awareness posters, leaflets, and tick awareness cards for raising public awareness about Lyme disease prevention and symptoms.
- Patient Information Guides Downloadable PDF guides covering tick bites, EM rash, diagnosis, and treatment for both acute and late-stage Lyme disease patients.
- On Demand Lyme Disease Prevention Webinar Free educational prevention webinar raising awareness of Lyme disease and tick bite prevention tips, plus video on tick life stages by Dr Eoin Healy.
- Informative Animations Animated educational videos covering tick bite prevention, recognizing the EM rash, diagnosis, testing, treatment, and living with late Lyme disease.
- LDUK Connect Patient Support Sessions Zoom-based patient support sessions featuring expert presentations and Q&A, funded by the National Lottery Community Fund, providing emotional and practical support for those affected by Lyme disease.
- Clinicians Hub Resources for healthcare professionals including current research, RCGP Lyme Disease Toolkit and course, recognition and treatment guidance, pharmacy resources, and patient case studies.
- School Resources Free educational resources for schools including KS1/KS2 presentations, lesson plans, activity packs, school trip risk assessments, and poster competitions for the Be Tick Aware campaign.
- Tick Twister Tick Removal Tools Tick removal tools available for purchase with charity discounts; part of the 2026 Awareness Campaign partnership with Tick Twister.
- THEYE Repellent Insect repellent products available for purchase with charity discount codes; part of the 2026 Awareness Campaign partnership with THEYE.
- LDUK Branded Merchandise Branded merchandise including hoodies, t-shirts, mugs, tote bags, vests, and lapel pins sold through the LDUK shop to raise funds for the charity.
Companies that use Lyme Disease UK
Customer profileSegments5 records
Ideal customer profiles5 records
Lyme Disease UK technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Lyme Disease UK partnerships and signals
Strategic signalPartnerships
Six partnerships are on record, tiered core and minor.
- Tick TwistercoreTick Twister is the 2026 Awareness Campaign partner of Lyme Disease UK. The organization recommends Tick Twister tick removal tools and offers an exclusive 25% charity discount on single units and 35% discount on orders of 100+ units with free next day delivery. For every unit sold, 25p is donated to Lyme Disease UK.
- THEYEcoreTHEYE is the 2026 Awareness Campaign partner providing insect repellent products. LDUK offers an exclusive 15% charity discount on THEYE products using code LYME-DISEASE-UK. The partnership supports Lyme disease prevention efforts.
- EasyfundraisingminorEasyfundraising is a free service that enables Lyme Disease UK to raise money when supporters shop online. The platform has over 2,700 participating retailers including Amazon, John Lewis, Next, and Argos. Supporters can set up accounts and use the reminder service to generate donations while shopping.
- Patient AmbassadorscoreLDUK has patient ambassadors who volunteer to support the organization, including Morven-May MacCallum who serves as both a Patient Ambassador and elected MSP (Member of Scottish Parliament). Ambassadors help raise awareness and advocate for Lyme disease policy changes.
- RCGP (Royal College of General Practitioners)coreLDUK works with the RCGP on the Lyme Disease Toolkit and e-learning course for healthcare professionals. The organization facilitates access to these resources for patients and healthcare providers, supporting improved clinical recognition of Lyme disease.
- UK Health Security Agency (UKHSA)minorLDUK references UKHSA tick surveillance data and information on their website. UKHSA's Tick Surveillance Scheme enables the public to submit tick samples for species identification.
Scale indicators3 records
Recent moves6 records
Expansion highlights6 records
Lyme Disease UK competitors and assessment
Company assessmentBroad incumbents
- Mind: Leading UK mental health charity offering patient information, helpline support, and policy advocacy. Comparable operating model in UK disease-specific charity space with strong digital content and political engagement, though serving a much larger addressable population.
- MS Society UK: Large UK disease-specific charity providing information, support, research funding, and policy advocacy for multiple sclerosis. Comparable structure (donor-funded, multi-channel content, clinician resources, political engagement) but at materially larger scale and in a more prevalent condition.
- ME Association: UK charity supporting people with ME/CFS through information resources, clinician engagement, and research funding. Comparable small UK disease-specific nonprofit model, particularly in the contested-illness space where patient experience diverges from mainstream clinical guidance.
- Allergy UK: UK charity providing patient support, clinical resources, and awareness for allergy conditions. Similar structure and scale to LDUK as a small UK condition-specific charity focused on awareness, clinician education, and patient information resources.
- Versus Arthritis: Major UK charity formed from the merger of Arthritis Research UK and Arthritis Care, funding research and providing patient support. Comparable as a UK disease-focused nonprofit with awareness campaigns and clinician resources, though operating at significantly greater scale and a more prevalent condition.
Regional players
- Bay Area Lyme Foundation: US-based Lyme disease foundation funding research and driving awareness. Comparable cause and revenue model (donor-funded, awareness campaigns) but operates in a different geography and with a research-grantmaking orientation rather than direct patient support.
Direct peers
- Caudwell LymeCo Charity: UK-registered charity focused specifically on Lyme disease research, awareness, and patient support. Directly comparable to LDUK in disease focus, geography, and patient-advocacy model, and a natural peer in the small UK Lyme-charity space.
- Lyme Disease Association: US-based national nonprofit providing patient support, education, and research funding for Lyme disease. Closely comparable mission and operating model to LDUK, scaled to the US market.
- International Lyme and Associated Diseases Society (ILADS): International medical society advancing evidence-based diagnosis and treatment of Lyme and tick-borne diseases. Comparable to LDUK in disease focus and clinician-education remit, operating at the provider-and-policy layer rather than purely patient advocacy.
Others
- UK Health Security Agency (UKHSA): Government health agency whose tick surveillance data and public-health guidance LDUK references and promotes to patients. Functions as an adjacent authority in the Lyme ecosystem rather than a competitor; LDUK effectively translates and extends UKHSA outputs for patient and clinician audiences.
Market position
Strengths5 records
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights7 records
Customer concentration
Lyme Disease UK social profiles
Digital presenceLyme Disease UK financial estimates
Financial estimateRevenue estimate
Valuation estimate
Lyme Disease UK leadership team
Management profileNumber of profiles
Profiles1 record
Lyme Disease UK funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Lyme Disease UK M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Lyme Disease UK
What does Lyme Disease UK do?
Lyme Disease UK is a registered charity (Number: 1182212) that provides free patient support, educational resources, and disease awareness services for people affected by Lyme disease in the UK. It aggregates authoritative medical guidance (NICE, RCGP, NHS), delivers downloadable awareness materials, runs patient support sessions, and sells tick prevention products and branded merchandise to raise funds for its mission.
Is Lyme Disease UK a public or private company?
Lyme Disease UK is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Lyme Disease UK founded?
Lyme Disease UK was founded in 2013. It employs 1 to 10 people.
Where is Lyme Disease UK based?
Lyme Disease UK is headquartered in Poole, Dorset, United Kingdom, in the Europe region.
How does Lyme Disease UK make money?
Four revenue lines are on record. Donations are the primary driver. The others are merchandise Sales, corporate Fundraising and easyfundraising.
Who are Lyme Disease UK's main competitors?
Broad incumbents on record are Mind, MS Society UK, ME Association, Allergy UK and Versus Arthritis. Bay Area Lyme Foundation is listed as a regional player. Direct peers are Caudwell LymeCo Charity, Lyme Disease Association and International Lyme and Associated Diseases Society (ILADS). UK Health Security Agency (UKHSA) is listed as an others.
Does Lyme Disease UK have an API?
No public API is recorded for Lyme Disease UK.
What industry is Lyme Disease UK in?
Lyme Disease UK's product category is Patient Advocacy and Disease Awareness Charity. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of HLAKAGAL, Tick-Borne & Vector-Borne Diseases. Its NAICS code is 813212 and its SIC code is 8090.