Meniere’s Society

What Meniere’s Society does

Ménière's & Vestibular UK (formerly the Ménière's Society) is a registered UK charity (number 297246) dedicated to supporting people affected by vestibular (inner ear) disorders causing dizziness and imbalance. The organisation is headquartered in Dorking, Surrey, and operates with three office staff supported by a board of trustees and a network of volunteers. It is self-described as the UK's leading charity in the vestibular disorders space, serving individuals with conditions such as Ménière's disease, BPPV, vestibular migraine, and broader balance disorders, as well as the health professionals who treat them.

The organisation's core offering is a membership-based support and information platform. Individual members and organisational (health professional) members receive the quarterly Mé&Ve magazine, exclusive downloadable resources, access to the Vestibular Insights educational webinar series, and entry to local and online peer support groups. The charity funds research into vestibular conditions through a research programme established in 1998 that has deployed over £1.5 million to date, supplemented by tiered Research Supporter donations and the 200+ Club lottery. Awareness programmes include the Dizziness & Me art project (launched 2020) and the Vestibular Voice Champions volunteer advocacy network. Fundraising is diversified through merchandise, Christmas cards, the London Marathon team, corporate partnerships, and the National Lottery Community Fund. The organisation does not disclose revenue and receives no government or statutory funding, relying on memberships, donations, and fundraising events.

Name

Meniere’s Society

Legal name

Ménière's & Vestibular UK

Website

https://menieres.org.uk

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

Ménière's & Vestibular UK is a registered UK charity supporting individuals with vestibular disorders through membership, peer support groups, educational webinars, awareness campaigns, and a research programme that has invested over £1.5 million since 1998.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Vestibular Disorder Charity Services

NAICS

Professional Organizations (81392)

SIC

Services-Educational Services (8200)

akta.pro primary industry

Vestibular & Balance Disorders (ENT) (HLAKAMAJ)

akta.pro secondary industry

Vestibular Rehabilitation & Balance Therapy (HSADAIAF)

Keywords

• Vestibular disorder support
• Dizziness and balance charity
• Patient information resources
• Peer support groups
• Health research funding

Headquarters

HQ city

Dorking

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership subscriptions: Annual membership fees providing access to magazine, information resources, support sessions, and member discounts. Organisation membership for health professionals at £64 per year.
2. Donations: Individual donations and corporate donations to support the charity's work in supporting those affected by vestibular conditions and funding research.
3. Merchandise sales: Sale of branded merchandise including t-shirts, badges, wristbands, lanyards, Christmas cards, and sports vests through the online shop.
4. Event tickets: Revenue from Vestibular Insights Day in-person events (£30-45) and online sessions for non-members (£6).
5. The 200+ Club: Annual lottery-style fundraising programme where shares cost £10 per year with monthly prize draws.
6. Research Supporter donations: One-off or regular donations at various tiers (£25, £50, £100, £250) to support ongoing research programme.

Pricing tiers

Go-to-market motion3 records

Distribution channels5 records

Marketing channels9 records

Core offering

Ménière's & Vestibular UK is a UK-registered charity that supports people affected by vestibular (inner ear) disorders causing dizziness and imbalance. Its core offering includes individual and organisation membership with access to the Mé&Ve Magazine, monthly Vestibular Insights webinars, an annual in-person Insights Day in London, volunteer-led local peer support groups, online support sessions, and a research funding programme. The charity sells branded merchandise and Christmas cards to raise funds and runs awareness initiatives such as Dizziness & Me and Vestibular Voice Champions.

Product overview

Ménière's & Vestibular UK is a UK-based vestibular disorders charity offering a comprehensive portfolio of membership-based services, publications, events, merchandise, and fundraising programmes. The core offering centres on individual and organisational membership providing the Mé&Ve Magazine, exclusive downloads, and access to support services. The charity delivers the annual Vestibular Insights Day in-person event and monthly Vestibular Insights - Online webinars featuring expert speakers. Its research programme is supported through the Research Supporter donation programme and The 200+ Club lottery. Awareness is raised through the Dizziness & Me art project and Vestibular Voice Champions programme. Local and online peer support groups provide community connections. Merchandise including pin badges, lanyards, wristbands, clothing, and Christmas cards supports fundraising efforts.

Differentiator

Problem solved

Functional benefit

Brands

• Mé&Ve Magazine: The organization's magazine publication delivered to members containing information about vestibular conditions, research updates, and member stories.

Products and services

• Mé&Ve Magazine

Quantifiable outcome

• Over £1.5 million invested in vestibular research to-date
• +2 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration5 records

Partnerships

Three partnerships are on record, tiered minor, supportive and core.

• Debbie Cane (Withington Community Hospital)minorStrategic or Co-development Partner · 1 January 2020Collaboration with Debbie Cane, Senior Clinical Scientist, on the Dizziness & Me art project. Originally launched during Balance Awareness Week 2020, the project enables people to express how dizziness affects them through artwork and poetry.
• Corporate supporterssupportiveGTM or Marketing PartnerVarious UK organisations support the charity through employee fundraising, Charity of the Year partnerships, payroll giving, volunteering, and sponsorship of events and publications. The charity actively seeks corporate partners to help raise awareness and funds.
• Health professionals and specialistscoreStrategic or Co-development PartnerNetwork of healthcare professionals specialising in vestibular conditions including audiologists, ENT specialists, and vestibular rehabilitation therapists. The charity maintains a professionals list for referral purposes and health professionals can join as organisation members.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Ataxia UK: UK charity supporting people with ataxia, a neurological condition affecting balance and coordination. Strong operational parallels: small staff, volunteer-led local groups, research funding, member magazine, and specialist health professional network.
• Vestibular Disorders Association (VeDA): US-based patient advocacy nonprofit dedicated to vestibular disorders. Directly comparable mission: education, support, and research funding for people with dizziness and balance disorders. Largest international counterpart to Ménière's & Vestibular UK.
• Migraine Trust: UK charity for migraine, including vestibular migraine which is a major vestibular condition. Comparable in funding research, providing patient information, hosting events, and engaging health professionals — directly overlapping on the vestibular migraine patient segment.
• British Tinnitus Association: UK charity providing information, support, and research funding for tinnitus, which frequently co-occurs with vestibular conditions. Directly comparable operating model: small staff, member-driven, magazine, online communities, health professional outreach, and donation-based funding.

Broad incumbents

• RNID (Royal National Institute for Deaf People): Large UK charity addressing hearing loss, tinnitus, and related balance/ear conditions. Comparable in serving overlapping patient populations (especially Ménière's patients with hearing loss), but operates at much greater scale with broader scope across all hearing-related conditions.
• ENT UK: Professional membership body for UK ear, nose and throat specialists. The charity partners with its member clinicians; comparable in serving the ENT ecosystem but operates as a clinical professional association rather than a patient charity.

Others

• National Lottery Community Fund: A core institutional funder of the charity. Not a direct peer, but as the UK's largest community funder, it shapes the operating environment for thousands of small UK charities including Ménière's & Vestibular UK.

Emerging players

• Brain & Spine Foundation: UK charity providing information and support for neurological conditions affecting balance, including vestibular disorders. Broader scope than Ménière's & Vestibular UK but comparable in member services, helpline, and information resources.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/meandveuk
• Facebookfacebook.com/meandveuk
• LinkedInlinkedin.com/company/meniere-society
• Instagraminstagram.com/meandveuk

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Meniere’s Society