Filière de santé maladies rares MHEMO

What Filière de santé maladies rares MHEMO does

MHEMO (Filière de santé maladies hémorragiques rares) is a French national healthcare coordination network established in 2014 under the French Ministry of Health's national rare disease plans, dedicated to rare constitutional hemorrhagic diseases. The organization coordinates care for approximately 9,500+ patients across France and French overseas territories, linking three national reference centers (CRH for hemophilia, CRMW for von Willebrand disease, CRPP for platelet disorders), 47+ competence centers, and a nationwide network of treatment centers and hospital pharmacies. MHEMO is hosted by Hospices Civils de Lyon at Hôpital Louis Pradel in Bron, France, and operates through a small team of 5 employees under a publicly-funded, non-commercial governance model with no equity, funding rounds, or external investors.

The network's core offerings include the FranceCoag national patient cohort registry, patient therapeutic education programs (ETP), phenotypic and genotypic diagnostic support, emergency care protocols and ORPHANET emergency fact sheets, multidisciplinary consultation meetings (RCP), and standardized care protocols (PNDS). Underlying infrastructure is a WordPress-based website platform with Matomo analytics for audience measurement; the organization holds no patents or proprietary technology assets and is GDPR/RGPD compliant. Strategic partnerships include AFH (patient association), SFTH (French Society of Thrombosis and Hemostasis), EuroBloodNet (European Reference Network), BNDMR (national rare disease data bank), and PFMG 2025 (national genomic platform).

MHEMO has no commercial revenue model and operates as a managed public health coordination service funded through the French Ministry of Health (DGOS) budget allocations channeled via Hospices Civils de Lyon. Its go-to-market is community-led, reaching patients and healthcare professionals through the official website (mhemo.fr), Twitter (@filiereMHEMO), email newsletters, annual Journées MHEMO conferences, patient-researcher meetings, and the AFH partnership. Customer segments are organized vertically by disease (hemophilia/coagulation factor deficiencies, von Willebrand disease, platelet disorders, rare thrombophilia) and include healthcare professionals and hospitals as a secondary business unit served through training, RCPs, and best-practice guidelines.

Name

Filière de santé maladies rares MHEMO

Legal name

Filière de santé maladies hémorragiques rares MHEMO

Website

https://mhemo.fr

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

MHEMO is a French national public healthcare coordination network (Filière de Santé) established in 2014 under the Ministry of Health to coordinate care, research, and patient education for approximately 9,500+ patients with rare hemorrhagic diseases across France and its overseas territories, hosted by Hospices Civils de Lyon.

Ownership category

akta.pro rank

Product category

Rare Disease Healthcare Coordination

NAICS

Health Care and Social Assistance (62)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

National Public Health Reference Laboratories (HLAJAIAA)

Keywords

• Rare disease networks
• Hemophilia care coordination
• Patient cohort registry
• Therapeutic patient education
• Rare hemorrhagic diseases

Headquarters

HQ city

Bron

HQ country

France

HQ region

Europe

Offices2 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Infrastructure, Marketing or Sales

Revenue model

1. Public Healthcare Funding: MHEMO is a publicly-funded healthcare coordination network under the French Ministry of Health. The organization operates as part of the French rare disease healthcare infrastructure (Filières de Santé Maladies Rares) and is hosted by Hospices Civils de Lyon. No commercial revenue model exists; operations are funded through government healthcare budgets.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

MHEMO is a French national healthcare coordination network (Filière de Santé Maladies Rares) for rare hemorrhagic constitutional diseases, linking 3 reference centers, 47+ competence centers, treatment centers, and hospital pharmacies across France. It coordinates patient pathways from diagnosis through treatment, operates the FranceCoag patient cohort registry, delivers therapeutic education programs (ETP), supports multidisciplinary consultation meetings (RCP), and disseminates clinical guidelines for hemophilia, von Willebrand disease, platelet disorders, and rare thrombophilia.

Product overview

MHEMO is a national healthcare coordination network (Filière de Santé) for rare hemorrhagic constitutional bleeding diseases, not a traditional software product company. The organization provides an integrated care coordination ecosystem that connects 3 reference centers (CRH for Hemophilia, CRMW for von Willebrand Disease, CRPP for Platelet Disorders), competence centers, and a national pharmacy network. Key offerings include the FranceCoag patient cohort registry, patient therapeutic education programs (ETP), phenotypic and genotypic diagnostic support, emergency care resources, clinical research coordination, and multidisciplinary consultation meetings. The network serves approximately 9,500+ patients across France and French overseas territories.

Differentiator

Problem solved

Functional benefit

Products and services

• MHEMO Healthcare Network Coordination National healthcare coordination network connecting 3 reference centers, 47+ competence centers, healthcare providers, and hospital pharmacies across France to ensure coordinated patient care, diagnosis, treatment, and research for rare hemorrhagic diseases.
• FranceCoag Patient Cohort Registry National patient cohort registry collecting and maintaining clinical and biological data on patients with rare hemorrhagic diseases to support clinical research, treatment monitoring, and epidemiological studies across participating French centers.
• Patient Therapeutic Education Programs (ETP) Structured therapeutic education programs and resources for patients with rare hemorrhagic diseases, including workshops, training materials, competency frameworks, and tools for self-management of bleeding disorders.
• Multidisciplinary Consultation Meetings (RCP) Planned multidisciplinary consultation meetings for complex case discussions among healthcare professionals, including urgent RCP sessions for hemophilia and rare bleeding disorders.
• Emergency Care Resources for Rare Bleeding Disorders Emergency protocols, urgent care cards, and ORPHANET emergency fact sheets designed to guide healthcare providers and patients in managing hemorrhagic crises for rare bleeding disorders.

Named customers4 records

Segments5 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Seven partnerships are on record, tiered core and minor.

• FranceCoagcoreStrategic or Co-development PartnerFranceCoag is the national patient cohort network coordinated by MHEMO, collecting clinical and biological data from patients with rare hemorrhagic diseases. It facilitates clinical research, treatment monitoring, and epidemiological studies across participating centers throughout France.
• Association Française des Hémophiles (AFH)coreStrategic or Co-development PartnerAFH is the French Hemophilia Association, a patient organization that collaborates with MHEMO on patient support, education, advocacy, and research initiatives. Joint activities include patient-researcher meetings and therapeutic education programs.
• Hospices Civils de LyoncoreStrategic or Co-development PartnerThe Hospices Civils de Lyon is the public hospital system hosting MHEMO as the owning and administrative entity. Provides institutional support, infrastructure, and administrative services for the coordination network.
• EuroBloodNet (European Reference Network)coreTechnology or IntegrationEuroBloodNet is the European Reference Network for Rare Hematological Diseases, of which MHEMO is an active participant. This affiliation enables cross-border healthcare coordination, knowledge exchange, and participation in European clinical initiatives for rare hemorrhagic diseases.
• SFTH (Société Française de Thrombose et d'Hémostase)minorStrategic or Co-development PartnerSFTH is the French Society of Thrombosis and Hemostasis. Collaborates with MHEMO on research projects, joint research calls for proposals (AAP collaboratifs), and professional education initiatives.
• PFMG 2025 (Filière Maladies Rares)minorStrategic or Co-development PartnerPFMG 2025 is the national rare disease cohort platform. MHEMO participates in this initiative for genomic data collection and research coordination in alignment with the French rare disease strategy.
• BNDMR (Banque Nationale de Données Maladies Rares)minorStrategic or Co-development PartnerBNDMR is the National Bank of Rare Disease Data. MHEMO contributes patient data through the BaMaRa system to support national rare disease surveillance and research.

Scale indicators3 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• Filère FIRENDO: French Filière de Santé for rare endocrine diseases. Directly comparable to MHEMO as another nationally designated rare disease network under the same French national plan framework.
• Filère SENSGENE: French Filière de Santé for rare sensory genetic diseases. Identical institutional template to MHEMO with the same Ministry of Health designation and national rare disease coordination model.
• Orphanet: INSERM-hosted international reference portal for rare diseases and orphan drugs. Closely comparable to MHEMO's role in providing standardized information, nomenclature, and emergency guidance (ORPHANET emergency fact sheets are referenced by MHEMO itself).
• FILNEMUS (Filère de santé des maladies neuromusculaires): Another French national Filière de Santé Maladies Rares, structurally identical to MHEMO with the same Ministry of Health designation, governance model, and coordination mandate, but focused on neuromuscular diseases. Directly comparable as a same-template peer organization.
• Filère DéfiScience: French Filière de Santé Maladies Rares for rare neurodevelopmental disorders. Same organizational structure, Ministry of Health mandate, and nationwide coordination role as MHEMO, applied to a different disease grouping.
• FAI2R (Filère de santé des maladies auto-immunes et auto-inflammatoires): A French national Filière de Santé with the same organizational template as MHEMO — Ministry-designated rare disease coordination network — but focused on autoimmune and auto-inflammatory diseases.

Others

• BNDMR (Banque Nationale de Données Maladies Rares): The French National Rare Disease Data Bank to which MHEMO contributes patient data through the BaMaRa system. Functions as an enabling infrastructure provider that MHEMO depends on for national rare disease surveillance.

Broad incumbents

• EuroBloodNet (European Reference Network): The European Reference Network for rare hematological diseases, of which MHEMO is an active participant. Operates at a pan-European level above national Filières, providing cross-border coordination that overlaps with and extends MHEMO's national scope.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/filiereMHEMO
• LinkedInlinkedin.com/company/fili%C3%A8re-de-sant%C3%A9-maladies-rares-mhemo

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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