North East & North Cumbria Congenital Heart Disease Network

What North East & North Cumbria Congenital Heart Disease Network does

The North East & North Cumbria Congenital Heart Disease Network (NENC-CHD Network) is an NHS England commissioned operational delivery network hosted at the Freeman Hospital in Newcastle upon Tyne. Founded in 2020, it coordinates congenital heart disease (CHD) services across the lifetime patient pathway, spanning fetal, paediatric, and adult congenital cardiac care. The network comprises seven NHS hospital trusts covering the North East and North Cumbria geography: Newcastle Hospitals, Northumbria, County Durham and Darlington, Gateshead Health, North Cumbria Integrated Care, North Tees and Hartlepool, and South Tees Hospitals.

The network delivers its mandate through clinical guidelines, professional education, outreach clinics, and patient engagement programs including a Patient Engagement Group, Young Persons Group, and the Chuf Wellbeing Project. It partners with three named charities (CHUF, Poppy's Light Foundation, and Children's Heart Federation) to provide family support services. The organization's core technology and infrastructure consist of NHS operational delivery network coordination mechanisms rather than proprietary software or AI systems.

The entity is publicly funded through NHS England commissioning, not commercial revenue, with a six-person coordination team. There is no fee-for-service pricing, no disclosed revenue, and no private equity or venture capital involvement. The network's strategic purpose is to ensure equitable access to high-quality CHD services, seamless transitions across life stages, and standardized clinical governance across the regional trust footprint.

Name

North East & North Cumbria Congenital Heart Disease Network

Legal name

North East and North Cumbria Congenital Heart Disease Network

Website

https://nenc-chdn.uk

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

The NENC-CHD Network is an NHS England commissioned operational delivery network coordinating congenital heart disease services across fetal, paediatric, and adult pathways for patients in the North East and North Cumbria region, working with seven NHS hospital trusts led by the Freeman Hospital in Newcastle.

Ownership category

akta.pro rank

Product category

Specialist Healthcare Network Services

NAICS

General Medical and Surgical Hospitals (622110)

SIC

Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYHLAFAJAE

Neonatal Intensive Care & Special Care Nurseries (NICU/SCN)

Healthcare & Life Sciences/Healthcare Providers & Systems/Women’s & Children’s Health Providers

Keywords

• Congenital heart disease care
• Paediatric cardiology services
• Adult congenital cardiology
• Fetal cardiac monitoring
• NHS clinical network

Headquarters

HQ city

Newcastle upon Tyne

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Infrastructure, Technology or R&D, Others

Revenue model

1. NHS England Commissioned Funding: The network is NHS England funded as an operational delivery network commissioned to provide impartial clinical advice and expertise to stakeholders within the North East and North Cumbria region.

Distribution channels2 records

Marketing channels3 records

Core offering

The NENC-CHD Network is an NHS England commissioned operational delivery network that coordinates equitable, high-standard congenital heart disease services across the North East and North Cumbria region. Hosted at the Freeman Hospital in Newcastle, it delivers and integrates care across the full lifetime pathway, encompassing fetal, paediatric, and adult CHD services, supported by clinical guidelines, outreach clinics, education programmes, research, and patient engagement initiatives spanning seven NHS hospital trusts.

Product overview

The North East and North Cumbria Congenital Heart Disease (CHD) Network is a single, unified NHS service offering. It is an operational delivery network hosted at the Freeman Hospital in Newcastle, commissioned by NHS England to provide impartial clinical advice and expertise. The network delivers equitable, high-standard services for the complete lifetime pathway of CHD patients, encompassing fetal, paediatric, and adult services. The service includes patient engagement programs (Patient Stories, Patient Engagement Group, Young Persons Group), clinical guidelines for professionals across multiple specialties (General, Paediatric, Adult CHD, ICC Guidelines), outreach clinics, research initiatives, education programs, and partnerships with charitable organizations including Chuf, Poppy's Light Foundation, and Children's Heart Fed. The network coordinates care across seven NHS trusts in the region.

Differentiator

Problem solved

Functional benefit

Products and services

• North East and North Cumbria CHD Network Services

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core and supporting.

• Newcastle Hospitals NHS Foundation TrustcoreStrategic or Co-development PartnerNewcastle Hospitals NHS Foundation Trust hosts the NENC-CHD Network at the Freeman Hospital. As the host organization and a specialist cardiac centre, it provides the primary infrastructure and clinical leadership for the network operations across the North East and North Cumbria region.
• Northumbria NHS Foundation TrustcoreStrategic or Co-development PartnerOne of seven NHS hospital trusts within the NENC-CHD Network. Provides NHS acute services and contributes to the regional delivery of congenital heart disease services within the network framework.
• County Durham and Darlington NHS Foundation TrustcoreStrategic or Co-development PartnerOne of seven NHS hospital trusts within the NENC-CHD Network. Contributes to the regional delivery of congenital heart disease services as part of the network's coordinated care approach.
• Gateshead Health NHS Foundation TrustcoreStrategic or Co-development PartnerOne of seven NHS hospital trusts within the NENC-CHD Network. Provides NHS acute services and participates in the network's delivery of congenital heart disease services.
• North Cumbria Integrated Care NHS Foundation TrustcoreStrategic or Co-development PartnerOne of seven NHS hospital trusts within the NENC-CHD Network. Covers the North Cumbria area and contributes to equitable CHD service delivery across the network's geographic footprint.
• North Tees and Hartlepool NHS Foundation TrustcoreStrategic or Co-development PartnerOne of seven NHS hospital trusts within the NENC-CHD Network. Participates in the network's coordinated approach to delivering congenital heart disease services in the Tees Valley area.
• South Tees Hospitals NHS Foundation TrustcoreStrategic or Co-development PartnerOne of seven NHS hospital trusts within the NENC-CHD Network. Contributes to the regional network providing congenital heart disease services in the South Tees area.
• CHUF (Children's Heart Unit Fund) CharitysupportingOthersCHUF is a partner charity supporting the network through the Chuf Wellbeing Project. The charity provides additional support services for children with heart conditions and their families within the network.
• Poppy's Light FoundationsupportingOthersPartner charity listed within the network's charity section, providing support to families affected by congenital heart disease.
• Children's Heart FederationsupportingOthersPartner charity listed within the network's charity section, providing support and resources for families affected by congenital heart disease.
• NHS EnglandcoreOthersNHS England is the commissioning body that funds and oversees the NENC-CHD Network as an operational delivery network. The network is commissioned to provide impartial clinical advice and expertise within the North East and North Cumbria region.

Scale indicators2 records

Recent moves4 records

Expansion highlights4 records

Direct peers

• Alder Hey Children's NHS Foundation Trust: Specialist pediatric cardiac surgery centre serving the North West of England and beyond. Operates as another NHS commissioned CHD service provider with a comparable specialist centre role, analogous to the Freeman Hospital's role within the NENC-CHD network.
• Leeds Teaching Hospitals NHS Trust: Regional NHS trust providing pediatric and adult congenital heart disease services. Operates as a specialist cardiac centre in Yorkshire, comparable in role to the Freeman Hospital within the NENC-CHD network.
• Guy's and St Thomas' NHS Foundation Trust: Houses the Evelina London Children's Hospital, which provides specialist pediatric CHD services. Operates as a London-based specialist cardiac centre with an NHS commissioned service model comparable to NENC-CHD's specialist centre arrangement.
• Birmingham Women's and Children's NHS Foundation Trust: Houses one of the UK's specialist pediatric cardiac surgery units. Operates as a level 1 specialist CHD centre with NHS commissioned services directly comparable in function to the host specialist centre model.
• Royal Brompton & Harefield NHS Foundation Trust: Specialist NHS trust for heart and lung disease, including adult congenital heart disease services. Provides comparable specialist cardiac services and operates as an NHS commissioned specialist centre with overlapping adult CHD scope.
• Great Ormond Street Hospital for Children NHS Foundation Trust: UK specialist children's hospital providing pediatric cardiac surgery and CHD services. Operates as a level 1 NHS specialist centre for children's congenital heart disease, directly comparable to the specialist centre concept within the NENC-CHD network.

Broad incumbents

• NHS England: The commissioning body that funds and oversees the NENC-CHD Network. Operates the broader operational delivery network framework across England, of which NENC-CHD is one regional example; the umbrella body for all similar commissioned networks.

Emerging players

• The Somerville Foundation: UK charity supporting adults with congenital heart disease. While not an NHS network, it operates in the same patient domain (adult CHD) and complements NHS commissioned services with patient support, overlapping with the network's adult CHD segment.
• Children's Heart Federation: National UK charity for children with congenital heart disease and their families. Already a listed supporting partner of the NENC-CHD network; comparable as a peer in the patient and family support space.

Others

• CHUF (Children's Heart Unit Fund): Charity supporting children's cardiac services, including the Chuf Wellbeing Project in partnership with the NENC-CHD Network. Functions as a charitable ecosystem partner rather than a direct service competitor.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/nenc-chdn

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about North East & North Cumbria Congenital Heart Disease Network