Associazione Italiana per la Lotta al Neuroblastoma

What Associazione Italiana per la Lotta al Neuroblastoma does

Associazione Italiana per la Lotta al Neuroblastoma is an Italian non-profit organization (ETS - Ente del Terzo Settore) founded on July 23, 1993 at the Istituto Giannina Gaslini pediatric hospital in Genova, dedicated to funding research against neuroblastoma and other pediatric solid tumors. It was established by parents who had experienced their children's illness and by oncologists seeking better therapeutic outcomes; founding member Sara Costa has served as president since 1996. The association operates with a small core team of 13 employees and an annual fundraising target in the low single-digit million euros, with €1.2M raised in the first 10 months of 2024 and €2M of project value committed for 2024-2025.

Its core "products" are solidarity fundraising mechanisms rather than technology: the ANB Store e-commerce platform selling bomboniere, Easter eggs, Christmas panettoni, scarves, and personalized certificates priced from €2 to €12; recurring seasonal campaigns such as "Cerco un uovo amico" (Easter) and "Dono Ricerca. RiDono la vita" (Christmas); the 5x1000 Italian tax-designation program; and corporate partnership programs. The association's scientific arm, the Fondazione Italiana per la Lotta al Neuroblastoma (established 1998), selects and funds approved research projects across a network of Italian hospitals and universities (CEINGE Napoli, Università di Bologna, Università La Sapienza Roma, Università di Trento-CIBIO, Istituto di Ricerca Pediatrica Città della Speranza Padova) and international collaborators in the UK, Canada, Spain, Germany, and Australia.

Revenue is generated entirely through donations, charity campaigns, the ANB Store, and the 5x1000 tax program. The go-to-market is community-led: grassroots fundraising, volunteer networks, corporate CSR partnerships, and direct public engagement. The strategic plan 2024-2028 anchors current research investments in the VAMOLAA project (MYCN gene inhibition, launched January 2025 with 8 research groups) and the AlterAction project (CRISPR/Cas9 and third-generation sequencing, launched November 2025), alongside CAR-T cell therapy research at Ospedale Bambino Gesù. The association is recognized by the Italian State (D.M. 26/04/1994), registered in RUNTS (Rep. N° 161061), and holds the IID "Donare con fiducia" certification.

Name

Associazione Italiana per la Lotta al Neuroblastoma

Legal name

Associazione Italiana per la Lotta al Neuroblastoma ETS

Website

https://neuroblastoma.org

Company type

Private

Founded year

1993

Operating status

Operating

Headcount range

11–50 employees

Short description

Associazione Italiana per la Lotta al Neuroblastoma is a 1993-founded Italian nonprofit (ETS) that funds research against neuroblastoma and pediatric solid tumors through donations, seasonal campaigns, the ANB Store, and the 5x1000 tax program, supporting hospitals and universities across Italy.

Ownership category

akta.pro rank

Product category

Pediatric Cancer Research Nonprofit

NAICS

Voluntary Health Organizations (813212), Grantmaking and Giving Services (8132)

SIC

Services-Social Services (8300)

akta.pro industry

PRIMARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Pediatric cancer research
• Charity fundraising
• Solidarity gifts store
• Cancer research funding
• Nonprofit donations

Headquarters

HQ city

Genova

HQ country

Italy

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Supply Chain, Infrastructure

Revenue model

1. Donations and Charitable Contributions: Primary revenue stream from individual donors, corporate sponsors, and supporters. Donations are collected through the website, direct appeals, and campaign-specific initiatives. Includes 5x1000 tax designation (Italian tax contribution mechanism).
2. ANB Store Sales: Solidarity store selling symbolic gifts including chocolate eggs, panettoni, personalized certificates, and other merchandise. Proceeds support research projects.
3. Campaign Fundraising: Seasonal campaigns (Easter 'Cerco un uovo amico', Christmas 'Dono Ricerca. RiDono la vita') that mobilize supporters through events, corporate partnerships, and direct appeals.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

The Associazione Italiana per la Lotta al Neuroblastoma is an Italian non-profit (ETS) that funds pediatric neuroblastoma and solid tumor research through individual donations, corporate partnerships, the 5x1000 tax mechanism, and proceeds from the ANB STORE online solidarity gift shop. It operates an affiliated scientific foundation (Fondazione Italiana per la Lotta al Neuroblastoma, est. 1998) that selects and funds approved research projects at Italian and international institutions, and it runs annual Easter ('Cerco un uovo amico') and Christmas ('Dono Ricerca. RiDono la vita') campaigns.

Product overview

Associazione Italiana per la Lotta al Neuroblastoma operates primarily as a charitable foundation and research funding organization, not a technology company. Its main offerings include: (1) the ANB STORE e-commerce platform selling solidarity gifts (bomboniere, Easter eggs, Christmas panettoni, scarves, books) to fund research; (2) annual fundraising campaigns including 'Cerco un uovo amico' (Easter), 'Dono Ricerca. RiDono la vita' (Christmas), and 5x1000 tax donation campaigns; and (3) the Fondazione Italiana per la Lotta al Neuroblastoma scientific arm which selects and funds approved research projects. The association's key research initiatives include the VAMOLAA multicentric project targeting MYCN gene inhibition and the AlterAction project using third-generation DNA/RNA sequencing and CRISPR/Cas9 technology.

Differentiator

Problem solved

Functional benefit

Products and services

• ANB STORE Online e-commerce platform selling solidarity gifts (bomboniere, chocolate eggs, holiday items, certificates, books) where proceeds fund neuroblastoma and pediatric solid tumor research. For Italian individual donors, families, and corporate partners.
• BIS VASETTI SOLIDALI Solidarity jars priced at €12.00, sold through the ANB Store to fund research; part of the gift collection supporting neuroblastoma research.
• BOMBONIERA SOLIDALE IN CARTA SEMI Paper seed bomboniera priced at €7.00, a commemorative solidarity gift sold to fund research; typically used for weddings and other personal occasions.
• PERGAMENA SOLIDALE Customizable solidarity parchment certificate priced at €2.00, a commemorative document sold to support research and personalize acknowledgments for donations or special occasions.
• BOMBONIERA SOLIDALE CON NASTRINO Solidarity bomboniera with ribbon priced at €5.00, available in multiple variants for different occasions. Sold through the ANB Store to fund research.
• Campagna 'Cerco un uovo amico' Annual Easter campaign selling solidarity chocolate eggs through the ANB Store to fund the VAMOLAA research project targeting the MYCN gene in neuroblastoma.
• Campagna 'Per il tuo magico Natale' Christmas campaign selling panettoni, pandori and holiday solidarity gifts through the ANB Store to fund the AlterAction project and other research projects.
• 5x1000 Donation Campaign Italian tax donation channel allowing Italian taxpayers to direct 5x1000 (0.5%) of their IRPEF tax liability to support the association's neuroblastoma research funding.
• Fondazione Italiana per la Lotta al Neuroblastoma Scientific foundation affiliated with the association, responsible for evaluating and funding approved neuroblastoma and pediatric solid tumor research projects carried out at Italian and international institutions.
• Foulard Mon Trésor Silk scarf from AERIAL COSTUME's LIAISON collection, designed by illustrator Aldo Sacchetti, with a portion of proceeds supporting ANB research as part of a Valentine's Day solidarity initiative.

Quantifiable outcome

• €1.2 million raised in first 10 months of 2024
• +2 more outcomes

Named customers5 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration3 records

Partnerships

20 partnerships are on record, tiered core, major and minor.

• OPEN (Oncologia Pediatrica e Neuroblastoma Odv)coreStrategic or Co-development Partner · 1 January 2025Co-promoter of the VAMOLAA project alongside Fondazione Italiana per la Lotta al Neuroblastoma. Represents pediatric oncology and neuroblastoma patient advocacy.
• Fondazione Italiana per la Lotta al NeuroblastomacoreStrategic or Co-development Partner · 1 January 1998Scientific arm of the association established in 1998 with headquarters at Istituto Gaslini. Responsible for selecting and funding approved research projects. Operates with separate governance but intimately connected to the association.
• CEINGE-Biotecnologie Avanzate di NapolicoreStrategic or Co-development PartnerResearch center coordinating AlterAction project and VAMOLAA. Led by Professor Mario Capasso, conducts genetic research on neuroblastoma.
• Università di Trento-CIBIOcoreStrategic or Co-development PartnerCo-coordinator of AlterAction project with Professor Alessandro Quattrone as lead researcher.
• Università di BolognacoreStrategic or Co-development PartnerResearch partner in VAMOLAA project. Professor Roberto Tonelli leads work on MYCN gene inhibition using BGA002 molecule developed by Biogenera.
• Università La Sapienza di RomacoreStrategic or Co-development PartnerResearch partner in VAMOLAA project with researchers Alessandro Paiardini and Giuseppe Giannini involved.
• Brunel University London / Università di ChietimajorStrategic or Co-development PartnerInternational research partner in VAMOLAA project with Arturo Sala as lead researcher.
• Istituto di Ricerca Pediatrica Città della Speranza di PadovacoreStrategic or Co-development PartnerResearch partner in AlterAction project with researcher Sanja Aveic.
• AERIAL COSTUMEminorGTM or Marketing PartnerFashion company collaborating on the Mon Trésor solidarity scarf project. Part of LIAISON project linking fashion design with charitable causes.
• Aldo Sacchetti (Fashion Illustrator)minorGTM or Marketing PartnerFashion illustrator collaborating with AERIAL COSTUME on the Mon Trésor scarf supporting the association.
• University of British Columbia (Canada)majorStrategic or Co-development PartnerInternational collaborator in VAMOLAA project with Pieter Cullis as contact.
• Cambridge University (UK)majorStrategic or Co-development PartnerInternational collaborator in VAMOLAA project with Laura Itzhaki as contact.
• Vall d'Hebron Institute of Oncology, BarcelonamajorStrategic or Co-development PartnerInternational collaborator in VAMOLAA project with Laura Soucek as contact.
• Deutsches Krebsforschungszentrum, HeidelbergmajorStrategic or Co-development PartnerInternational collaborator in VAMOLAA project with Frank Westermann as contact.
• Children's Cancer Institute Australia, SydneymajorStrategic or Co-development PartnerInternational collaborator in VAMOLAA project with Michelle Haber as contact.
• Biogenera SpAcoreTechnology or IntegrationPharmaceutical biotechnology company developing BGA002 molecule for MYCN gene inhibition in neuroblastoma treatment.
• Ospedale Pediatrico Bambino Gesù di RomacoreStrategic or Co-development PartnerLeading pediatric hospital conducting CAR-T cell therapy research for neuroblastoma. Study supported by the foundation published in New England Journal of Medicine.
• Ediltur s.r.l.minorGTM or Marketing PartnerCompany that organized donation of solidarity Easter eggs to Bari pediatric hospital. Example of corporate social responsibility partnership.
• Associazione BerardiminorGTM or Marketing PartnerMilitary association that distributes solidarity Easter eggs to children in Avellino region. Partners with local institutions.
• Associazione Polizia Locale d'Italia (A-PL)minorGTM or Marketing PartnerLocal police association providing moral patronage for 'Cerco un uovo amico' Easter campaign.

Scale indicators4 records

Recent moves7 records

Expansion highlights10 records

Broad incumbents

• AIRC - Fondazione AIRC per la ricerca sul cancro: Italy's largest cancer research nonprofit, funding peer-reviewed oncology research across all cancer types. Comparable as an Italian nonprofit that channels donations into research grants and runs an analogous 5x1000 + donation + branded-products fundraising model, but operates at vastly greater scale across all cancer types rather than specializing in neuroblastoma.
• Cancer Research UK: The UK's largest cancer research charity. Comparable as a donation-funded research grantmaker with retail and volunteer fundraising channels, but covers all cancer types at a multibillion-pound scale versus ANB's narrow neuroblastoma focus. ANB collaborates with Cambridge researchers who are also funded by CRUK.
• St. Jude Children's Research Hospital / ALSAC: The largest U.S. pediatric cancer research and treatment nonprofit. Comparable mission (funding pediatric oncology research, family support) and analogous donation + retail (ALSAC) + cause-marketing revenue model, but at far greater scale and with in-house research operations versus ANB's grantmaking-only model.

Others

• Fondazione Italiana per la Lotta al Neuroblastoma: ANB's own scientific arm, established in 1998 to select and fund approved research projects. Not a competitor but a structurally related entity sharing the same registered address at Gaslini Institute — included because it is the most directly comparable governance and research-grantmaking vehicle, and often co-funds with international foundations.

Direct peers

• Solving Kids' Cancer: U.S./UK charity focused on childhood cancer research funding with an emphasis on hard-to-treat pediatric cancers including neuroblastoma. Direct comparable as a disease-focused pediatric cancer research funder with similar grantmaking model.
• Rally Foundation for Childhood Cancer Research: U.S. nonprofit funding childhood cancer research through community-led events and grassroots fundraising. Closely analogous operating model (volunteer-driven, community events, research grants) and similar scale profile, illustrating the typical operational template ANB follows.
• National Pediatric Cancer Foundation: U.S. nonprofit dedicated to pediatric cancer research funding and clinical trial collaboration. Comparable mission focus, donor-funded grantmaking model, and research network approach, though operating primarily in the U.S. pediatric oncology ecosystem.
• Fondazione Telethon: Italian nonprofit that funds rare-disease research through donations and televised campaigns. Highly comparable operating model (community-led fundraising, donor-funded research grants, Italian 5x1000 channel) and similar scale, though Telethon covers a broader portfolio of rare genetic diseases rather than a single pediatric oncology indication.
• Children's Cancer Research Fund (CCRF): U.S. nonprofit funding children's cancer research through donations and community fundraising. Direct comparable on mission (pediatric cancer research grantmaking) and operating model (community-led events, donor-driven funding).
• Alex's Lemonade Stand Foundation: U.S. nonprofit dedicated exclusively to childhood cancer research funding. Closely comparable mission focus (pediatric cancer research grantmaking) and community-led fundraising approach, but operates at substantially larger scale in the U.S. donor market.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/ANB_onlus
• YouTubeyoutube.com/channel/UCRCClCBylnFuATKVTvEhZGA/videos
• Facebookfacebook.com/AssociazioneNeuroblastoma
• LinkedInlinkedin.com/company/associazione-italiana-lotta-al-neuroblastoma
• Instagraminstagram.com/anb_neuroblastoma/?hl=it

Compliance4 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Associazione Italiana per la Lotta al Neuroblastoma