Neuroliitto ry

What Neuroliitto ry does

Neuroliitto ry is a Finnish non-profit patient organisation originally founded in 1979 (firmographic data also references 1971) as an association for people with multiple sclerosis (MS) and their loved ones, headquartered in Masku, West and Inner Finland. It operates as a federated umbrella of approximately 27 member associations serving roughly 110,000 Finns with neurological conditions, including the approximately 14,000 people with MS, 6,000 with rare neurological diseases (across 50+ diagnoses and 1,700 rare disease members), and people with essential tremor. The federation is supported by five regional offices (Masku, Kuopio, Tampere, Seinäjoki, Oulu) and 46 employees led by CEO Helena Ylikylä-Leiva. Its core services include the Masku Neurological Rehabilitation Centre, adaptation courses (sopeutumista tukevat kurssit), advisory services (Harnes-neuvonta, neuro, legal, exercise advice), peer support networks (vertaistukijat and kokemustoimijat), supported holidays (tuetut lomat) in partnership with Loma ja Terveys ry, an online shop (Verkkokauppa), and the Avain-lehti member magazine. Sub-brands include Neuropodi podcast and Harnes-neuvonta counseling.

The business model is a non-profit membership- and grant-funded structure with negligible commercial revenue. Annual membership fees are nominal: €15 for patient members, €10 for family members, €20 for individual supporting members, and a minimum €150 for organisational supporting members. The organisation is not VAT-registered under Finnish non-profit law. Funding is derived from membership fees, Finnish government grants (STEA), Interreg Baltic Sea Region project funding (notably the €1,242,785 HybReDe project running 2025–2028), donations, and partner contributions (e.g., Novartis Oy supporting a Neuropodi episode). GTM is non-commercial: awareness is built through awareness day campaigns (World MS Day, Rare Disease Day, disease-specific months), email newsletters, social media, podcasts, and the Neuroliitto.fi website. Distribution is via member associations, the central office telephone/email advisory service, a web shop with Paytrail payment processing, and a member mobile app.

The technology stack is light and externally sourced: the website at neuroliitto.fi is the primary content surface, with Liana Technologies for newsletter distribution, Webropol for advocacy panel surveys, and Paytrail for e-commerce payments. The only AI/ML work is participation in the HybReDe project, where a text-based AI virtual assistant for MS fatigue management is being piloted through the Masku Rehabilitation Centre as a co-coordinator with Turku University of Applied Sciences. There is no proprietary AI product, no in-house ML team, and no disclosed training data or benchmarks. Strategic ecosystem partners include SOSTE (240+ NGO umbrella), Vammaisfoorumi, Harvinaiset-verkosto, International Mito Patients, and Suomen MS-säätiö (Finnish MS Foundation), which awarded €30,000 in research grants in 2026.

Name

Neuroliitto ry

Legal name

Neuroliitto ry

Website

https://neuroliitto.fi

Company type

Private

Founded year

1979

Operating status

Operating

Headcount range

11–50 employees

Short description

Neuroliitto ry is a Finnish non-profit patient organization serving people with MS, rare neurological diseases, and essential tremor. It federates 27 member associations representing roughly 110,000 Finns, operating rehabilitation services, courses, advisory, and peer support funded by membership fees and government grants.

Ownership category

akta.pro rank

Headquarters

HQ city

Masku

HQ country

Finland

HQ region

Europe

Offices5 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Infrastructure, Marketing or Sales, Technology or R&D, Others

Pricing tiers

Distribution channels6 records

Marketing channels10 records

Core offering

Neuroliitto ry is a Finnish non-profit patient organization that provides membership-based services, rehabilitation, peer support, adaptation courses, and advisory services to people with MS, rare neurological diseases, and essential tremor, along with their families. Its core offerings include the Masku Neurological Rehabilitation Centre, adaptation courses, advisory services (Harnes, neuro, legal, exercise), the Avain member magazine, supported holidays, and a digital ecosystem spanning an online shop, mobile member service, and the Neuropodi podcast. The organization operates as a federation of 27 member associations representing over 50 rare neurological diagnoses in Finland.

Product overview

Neuroliitto ry is a patient organization for people with MS (multiple sclerosis), rare neurological diseases, and essential tremor, as well as their relatives. The organization operates a federated structure with approximately 27 member associations representing about 50 rare diagnoses. The core offering consists of member services including the Avain magazine and peer support networks, rehabilitation services at Maskun neurological rehabilitation centre, adaptation courses supporting functional capacity, advisory services (Harnes, exercise, neuro, legal advice), and supported holidays. Additional services include an online shop, the Neuropodi podcast, and experience expert presentations. The organization is piloting AI-based virtual assistant technology through the HybReDe project for MS fatigue management support within hybrid e-rehabilitation solutions.

Differentiator

Problem solved

Functional benefit

Brands

• Avain-lehti: Neurologinen aikakauslehti (neurological magazine) - a magazine for members containing expert information and peer stories.
• Neuropodi
• Maskun neurologinen kuntoutuskeskus
• Harnes-neuvonta

Products and services

• Jäsenpalvelut (Member Services) Membership program offering benefits including the Avain magazine, peer support networks, member discounts, and access to adaptation courses and supported holidays. Available to patients (€15/year), family members (€10/year), individual supporting members (€20/year), and organization supporting members (€150+/year).
• Maskun Neurologinen Kuntoutuskeskus (Masku Neurological Rehabilitation Centre) Rehabilitation centre located in Masku providing neurological rehabilitation services to patients. Functions as one of three pilot environments for the HybReDe hybrid e-rehabilitation project developing AI-based virtual assistants.
• Sopeutumista tukevat kurssit (Adaptation Courses) Courses supporting functional capacity and quality of life for people with neurological diseases and their relatives. Organized by life situation and disease-related challenges, held at Masku Neurological Rehabilitation Centre and other locations.
• Neuvontapalvelut (Advisory Services) Multi-disciplinary advisory services including Harnes-neuvonta (rare neurological disease counseling), exercise advice, neuro advice, and legal advice. Expert consultants provide guidance on neurological diseases, social services, and rights.
• Tuetut lomat (Supported Holidays) Economically supported 4-5 day full-board holidays including accommodation, meals, and holiday programs. Organized in partnership with Loma ja Terveys ry at Spa Hotel Vesileppis (Leppävirta) and Pajulahti sports institute (Nastola) for low-income families where a family member has a neurological condition.
• Verkkokauppa (Online Shop) Own online store selling publications, guides, and materials related to neurological diseases. Orders shipped within Finland with minimum order €8, free shipping over €75, payment via Paytrail (bank payments, credit cards) or invoice. Products priced without VAT as the organization is non-profit.
• Avain-lehti (Avain Magazine) Neurological magazine (Neurologinen aikakauslehti) published by Neuroliitto containing expert information and peer stories. Included as a member benefit with membership.
• Neuropodi Podcast Podcast series featuring discussions about living with neurological conditions, treatment decisions, and patient experiences. Available on Spotify and the Neuroliitto website. Episodes feature patient stories and expert interviews.
• Exercise Video Series Four-part video series with exercise tips for people with MS, rare neurological diseases, and essential tremor. Includes exercises adapted for wheelchair users and those using mobility aids.
• Kokemustoimijat (Experience Experts) Trained individuals who share their experiences to educate and support others. Available for visits, lectures, and media appearances to healthcare professionals, schools, and organizations.
• Vertaistukijat (Peer Supporters) Trained peer supporters who provide confidential, anonymous support via phone or email based on their own experiences with neurological conditions.

Quantifiable outcome

• Over 5,000 contacts per year from people needing guidance and advice
• +1 more outcomes

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration3 records

AI capability2 records

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Suomen MS-säätiö (Finnish MS Foundation)coreStrategic or Co-development Partner · 1 June 2026Suomen MS-säätiö was established in 1995 and distributes annual research grants to researchers or research groups focused on multiple sclerosis or rare neurological diseases such as spinal cord and cerebellar diseases. In 2026, the foundation granted 30,000 € to five research projects. Neuroliitto and Suomen MS-säätiö jointly conduct the annual World MS Day campaign #FaktatKuntoon to counter MS misconceptions.
• Turun ammattikorkeakoulu (Turku University of Applied Sciences)coreStrategic or Co-development Partner · 1 March 2025Turku University of Applied Sciences coordinates the HybReDe project (2025-2028), a European Interreg Baltic Sea Region initiative with total funding of 1,242,785 €. The project develops AI-based virtual assistant prototypes for public sector rehabilitation processes. Neuroliitto's Masku Neurological Rehabilitation Center is one of three pilot environments. Finland develops a virtual assistant prototype for MS-related fatigue management.
• Viro, Ruotsi ja Puola (Estonia, Sweden, Poland partners)minorStrategic or Co-development PartnerHybReDe project includes partners from Estonia, Sweden, and Poland alongside Finland, contributing different rehabilitation practices and patient group pilots to the project.
• Loma ja Terveys rycoreStrategic or Co-development PartnerLoma ja Terveys ry organizes supported vacations (tuetut lomat) for Neuroliitto members and families. These are subsidized 4-5 day all-inclusive holidays including accommodation, meals, and programs for families where a family member has a neurological condition.
• SOSTE Suomen sosiaali ja terveys rycoreStrategic or Co-development PartnerSOSTE is the national umbrella organization for social and health NGOs, representing over 240 national social and health organizations and over 60 other actors. Neuroliitto participates in SOSTE's activities, including the annual Järjestöbarometri survey. SOSTE advocates for NGO funding and social policy.
• Vammaisfoorumi ry (Finnish Disability Forum)coreStrategic or Co-development PartnerVammaisfoorumi ry is an umbrella organization for disability NGOs. It conducted a survey in 2026 on the experiences of people with disabilities and chronic illnesses with employment services. Neuroliitto shared information about the survey with its members.
• Harvinaiset-verkosto (Rare Diseases Network)coreStrategic or Co-development PartnerHarvinaiset-verkosto is a Finnish rare diseases network. It organizes the annual Rare Disease Day event (Feb 28), including an online-streamed event on Feb 27 and local events across Finland.
• International Mito PatientscoreStrategic or Co-development PartnerInternational Mito Patients is a global mitochondrial disease patient network. Mitokondrioyhdistys (Mitochondrial Association), a member of Neuroliitto, joined the network in September 2020.
• Lakitoimisto Kumpuvuori OyminorImplementation/ SI/ Consulting PartnerLakitoimisto Kumpuvuori Oy co-organized the Vammaisoikeuden Ajokortti — Henkilökohtaisen avun spesiaali remote event with Mitokondrioyhdistys and Avustajaklinikka on disability rights and personal assistance.
• AvustajaklinikkaminorImplementation/ SI/ Consulting PartnerAvustajaklinikka co-organized the Vammaisoikeuden Ajokortti event with Mitokondrioyhdistys and Lakitoimisto Kumpuvuori Oy, focusing on disability rights and personal assistance under the new disability services law.
• Novartis OyminorGTM or Marketing PartnerNovartis Oy supported the production of the Neuropodi podcast episode on shared decision-making in long-term illness treatment.

Scale indicators10 records

Recent moves8 records

Expansion highlights6 records

Direct peers

• Harvinaiset-verkosto (Finnish Rare Diseases Network): Finnish national rare disease network organizing Rare Disease Day. Sister organization to Neuroliitto providing umbrella coordination and visibility for the rare disease community.
• MS Society UK: UK-based MS patient organization providing peer support, information, grants, and advocacy. Closest direct model-comparable to Neuroliitto's MS-focused founding mission and federated service mix.
• International Essential Tremor Foundation: US-based non-profit dedicated to essential tremor awareness, research funding, and patient education. Directly comparable to how Neuroliitto now serves essential tremor patients in Finland through Essentiaalinen vapina ry.
• Lihastautiliitto ry (Finnish Muscular Disease Association): Finnish patient organization for muscular diseases, co-recipient of the 5,000+ annual guidance contacts with Neuroliitto. Closest domestic peer organization with overlapping patient population and service offerings.
• Invalidiliitto ry (Finnish Disability Association): Finland's largest national disability NGO, providing peer support, advocacy, rehabilitation services, and member benefits. Direct domestic peer of Neuroliitto with overlapping service portfolio and policy ecosystem.

Broad incumbents

• EURORDIS – Rare Diseases Europe: European-level federation of rare disease patient organizations. Analogous to the federation role Neuroliitto plays for ~50 rare neurological diagnoses in Finland, including policy advocacy and umbrella coordination.
• SOSTE Suomen sosiaali ja terveys ry: National umbrella organization covering 240+ Finnish social and health NGOs. Comparable as ecosystem coordinator and policy advocate; participates in Järjestöbarometri and represents Neuroliitto's interests at the policy level.
• Parkinson's UK: UK-based Parkinson's movement disorder organization providing peer support, research funding, and advocacy. Comparable to Neuroliitto's movement-disorder service line (essential tremor, Huntington's).
• National Multiple Sclerosis Society (U.S.): Largest national MS patient advocacy organization globally. Comparable to Neuroliitto in core mission (MS patient support, advocacy, research funding) though far larger in scale and operating in a different (fee-for-service) healthcare system.

Emerging players

• International Mito Patients: Global mitochondrial disease patient network including Mitokondrioyhdistys (Neuroliitto member). Represents the international rare-disease coordination layer that Neuroliitto's rare disease members plug into.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/playlist?list=PLJw2MfVTu_WbVwGDaFblil7yNL1bA3bCK
• Facebookfacebook.com/Mitokonrioyhdistys
• Instagraminstagram.com/Mitofin
• LinkedInlinkedin.com/company/neuroliitto

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Neuroliitto ry