Neuromuscular WA

What Neuromuscular WA does

Neuromuscular WA Inc. (previously Muscular Dystrophy WA) is a nonprofit charitable organization founded in 1967 and headquartered in Nedlands, Western Australia. The organization delivers a portfolio of community support services — branded Support for Life — to approximately 700-800 individuals in Western Australia living with neuromuscular conditions (NMCs), a category spanning more than 75 conditions affecting muscles and the nervous system. Core programs include counselling, advocacy, NDIS support and system navigation, bereavement support, social programs and events (Family Day, Community Day, School Holiday Programs), youth mentoring via the Hale Mates program, financial grants through the Empower Fund, and a statewide equipment lending program that distributes 43 cough assist machines across metropolitan and remote WA. Services are delivered in-person from the Nedlands office and through partnerships with Perth Children's Hospital and online formats such as Conversations & Connections.

The underlying technology stack is modest: a Squarespace-hosted website, downloadable resource packages, and clinical hardware rather than software products. The organization supports neuromuscular research via the Community Engagement & Research Advisory Committee (CERAC), PhD scholarships, and partnerships with researchers including those tied to the $900,000 research fund received from the winding-up of the Neurodegenerative Disorder Center Inc in July 2022. Neuromuscular WA also contributes content to The Loop, a national platform built collaboratively with the Muscular Dystrophy Foundation and other Australian MD associations, and supports the Australian Neuromuscular Disease Registry (ANMDR).

Revenue is derived from donations, corporate partnerships, community fundraising events (Toyota Golf Classic, Kailis Club Charity Auction, Rhythm & Views, Carols at Scarborough, Dwellingup 100), and NDIS-related service funding. Services are provided free of charge to community members; no public pricing exists. Major institutional supporters include Stan Perron Charitable Foundation, Toyota WA, Perron Group, Telethon (since 1968), Rotary Club of West Perth (founding partner), Kailis Bros (since the early 1970s), TEAM Spencer, Myattsfield Vineyards, and the Rowell Scholarship Fund. The organization employs 14 staff and is governed by a Board of Directors with no parent entity.

Name

Neuromuscular WA

Legal name

Neuromuscular WA Inc.

Website

https://neuromuscularwa.org.au

Company type

Private

Founded year

1967

Operating status

Operating

Headcount range

11–50 employees

Short description

Neuromuscular WA is a nonprofit founded in 1967 that delivers Support for Life services — including counselling, NDIS navigation, equipment loans, youth mentoring, and bereavement support — to approximately 700-800 people living with neuromuscular conditions across Western Australia, funded through donations, corporate partnerships, and NDIS.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAD

Mental Health & Crisis Support Services

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Neuromuscular support
• Disability services
• Nonprofit healthcare
• Community support programs
• Charitable services

Headquarters

HQ city

Nedlands

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales

Revenue model

1. Donations and Fundraising: The organization raises funds through various fundraising events including Toyota Golf Classic, Kailis Club Charity Auction, Rhythm & Views, Carols at Scarborough, Dwellingup 100, and other community events. Major donors and corporate partners contribute significant funding.
2. NDIS Funding: Services are partially funded through the National Disability Insurance Scheme (NDIS), with the organization providing NDIS support and navigation services to help community members access scheme funding.
3. Corporate Partnerships: Long-term partnerships with corporations like Stan Perron Charitable Foundation, Toyota WA, Perron Group, and others provide annual donations and targeted grants.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

Nonprofit charitable organization that provides Support for Life services to individuals with neuromuscular conditions in Western Australia. The organization supports approximately 700-800 people with neuromuscular conditions through direct client services and community-based programs, employing a team of 14 staff based in Nedlands.

Product overview

Neuromuscular WA is a nonprofit charitable organization providing Support for Life to individuals with neuromuscular conditions and their families in Western Australia. Rather than a unified software product, the organization offers a portfolio of service programs including support coordination, equipment loans (Cough Assist Program), youth mentorship (Hale Mates), social and respite programs, counselling, advocacy, and bereavement support. These services are complemented by research initiatives, community education events (Research Insights, Conversations & Connections), and online resources including The Loop website national platform and the Australian Neuromuscular Disease Registry. The Empower Fund provides financial grants, while NDIS Support and System Navigation help families access and coordinate care. The organization's services are delivered through a small team supporting approximately 700-800 people across WA.

Differentiator

Problem solved

Functional benefit

Products and services

• Support for Life services Comprehensive support services for individuals with neuromuscular conditions and their families in Western Australia, including direct client services and community-based programs. The service supports approximately 700-800 people with neuromuscular conditions through a team of 14 staff based in Nedlands.

Quantifiable outcome

• Significant reduction in hospital and ICU admissions, Emergency Department presentations, chest infections and doctor visits for cough assist machine users

Named customers1 record

Segments3 records

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Six partnerships are on record, tiered minor, major and core.

• Scarborough Beach AssociationminorGTM or Marketing Partner · 1 January 2018The Scarborough Beach Association has been a valued partner since 2018, proudly naming Neuromuscular WA their charity partner for the annual Carols at Scarborough event. They help secure vital support from the City of Stirling to make the event possible.
• Toyota WA (Perron Group)majorGTM or Marketing Partner · 1 January 2007Toyota WA, part of the Perron Group, has been a valued partner for over 18 years. As the long-time naming partner of the Toyota WA Golf Classic fundraiser and hosts of Busselton golf days, they raise vital funds and awareness. They provide a co-branded, fully serviced vehicle for Neuromuscular WA's use and are active supporters at every event.
• MyattsField VineyardscoreGTM or Marketing Partner · 1 January 2006Josh & Rachael Davenport of MyattsField Vineyards have been supporting Neuromuscular WA since 2006 and are part of the Neuromuscular WA family. They host the Rhythm & Views event, donate wine for community and fundraising events. Row 38 at Kailis Club has raised $160,000, giving the winning bidder the chance to produce 15 cases of wine from their own vine. They are Honorary Life Members.
• Kailis BroscoreGTM or Marketing Partner · 1 January 1970A partner since the early 1970s, the Kailis Bros family have stood beside Neuromuscular WA for over five decades. The relationship began when Michael George Kailis held the first charity auction at the fish markets. Honorary Life Member Theo Kailis played a key role in launching the Kailis Club Charity Auction. Michael Kailis continues this generous partnership.
• Rotary Club of West PerthcoreGTM or Marketing Partner · 1 January 1967The Rotary Club of West Perth has been a loyal and generous partner for over 50 years, playing a pivotal role in the founding of Neuromuscular WA in 1967. Many staff, board members, and supporters are proud Rotary members. Each year the club hosts a magic show with Neuromuscular WA as the major beneficiary.
• SeaLinkminorGTM or Marketing PartnerSeaLink has been a generous supporter, providing ferry tickets to Rottnest Island for community events and as auction prizes. This holds special significance as Rottnest Island is home to the quokka that played a pivotal role in groundbreaking muscle regeneration research that laid the foundation for Neuromuscular WA's formation.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Muscular Dystrophy UK: Larger, established UK neuromuscular charity offering research funding, information, advocacy, and equipment support. Comparable service portfolio and disease-specific focus, but operating at national scale with substantially larger resourcing than Neuromuscular WA.
• Muscular Dystrophy Canada: National Canadian neuromuscular charity providing research funding, equipment, advocacy, and system navigation. Comparable model with regional chapters, paralleling Neuromuscular WA's role as the WA state-level specialist.
• Multiple Sclerosis Australia: Larger Australian neurological condition nonprofit providing service navigation, NDIS support, research, and counselling. Comparable service model (Support for Life-style portfolio, NDIS navigation) for a related but distinct neurological condition population.

Direct peers

• Muscular Dystrophy Foundation Australia: National peak body for neuromuscular conditions in Australia, partnering with Neuromuscular WA via The Loop platform. Directly comparable as a disease-specific nonprofit serving the same patient population, though operating at national rather than state level.
• Parent Project Muscular Dystrophy (PPMD): US nonprofit focused on Duchenne muscular dystrophy, funding research and providing family support services. Comparable given Neuromuscular WA's historical DMD research involvement (1968 Telethon grant) and family-centred programming.
• MND Australia (Motor Neurone Disease Association): Australian national nonprofit focused on motor neurone disease (ALS), offering equipment, counselling, advocacy, and research funding. Highly comparable service model (Support for Life-style portfolio) to Neuromuscular WA, including statewide member associations in each jurisdiction.
• FSHD Global Research Foundation: Australia-based nonprofit focused on facioscapulohumeral muscular dystrophy, funding research and supporting patients. Comparable as a disease-specific neuromuscular charity with research funding, advocacy, and community support components.
• Spinal Muscular Atrophy Association of Australia: Australian SMA-focused nonprofit providing advocacy, support, and research funding. Directly comparable given Neuromuscular WA's specific SMA programming including Team Spencer partnership and Spinraza pathway at Perth Children's Hospital.

Emerging players

• Charcot-Marie-Tooth Association of Australia (CMTAA): Australian nonprofit supporting people with CMT, a peripheral neuromuscular condition covered under Neuromuscular WA's 75+ condition scope. Comparable niche-disease nonprofit model, though smaller in scale and reach.

Others

• The Loop Community: National online resource platform for neuromuscular conditions developed collaboratively by Australian MD associations including Neuromuscular WA. Adjacent ecosystem partner rather than competitor, representing collaborative infrastructure for the neuromuscular nonprofit sector.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/neuromuscular-wa

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Neuromuscular WA