What Neuroförbundet does

Neuroförbundet is a Swedish non-profit patient organization (ideell förening) founded in 1957, headquartered in Sundbyberg with postal operations in Solna, dedicated to representing individuals affected by neurological diagnoses including MS, ALS, epilepsy, Parkinson's, myasthenia gravis, narcolepsy, polyneuropathy, neuromuscular diseases, spinal cord injury, stroke, and migraine. The organization serves approximately 13,000 members through a national network of more than 20 local associations spanning Swedish cities from Malmö to Norrköping, and operates with roughly 47 staff. Core service offerings include the quarterly member magazine Reflex, the Neuroaktuellt and diagnosis-specific Diagnosnytt newsletters, the "Diagnoser på djupet" podcast, member support services (Diagnosstöd peer support, Juridiskt stöd legal advice, Anhörigstöd for caregivers), annual events (Neurodagen, Neuropromenaden, ALS Forum), and research funding via Neurofonden. The organization also publishes Neurorapporten and Neurobarometern, which document healthcare quality and advocate for policy reform.

The underlying technology stack is modest and member-services oriented: a website (neuro.se), an online member portal (Mina sidor), a donation/fundraising platform, email newsletter distribution, podcast hosting on Libsyn, and standard social media presence (Facebook, YouTube, Instagram). There is no proprietary software product or technology platform — Neuroförbundet is a community-and-advocacy organization rather than a technology company.

The revenue model is a hybrid of recurring membership fees, individual donations (including monthly giving, memorial gifts, gift certificates, and stock dividend donations), and institutional grants — most notably approximately 7 million SEK annually from Svenska Postkodlotteriet (totaling roughly 93 million SEK historically), plus smaller grants from Humanfonden and similar bodies. In 2025, the organization distributed 7.2 million SEK to neurological research through Neurofonden. The GTM motion is community-led: Neuroförbundet acquires and retains members through local associations, content marketing (Reflex magazine, newsletters, podcasts), events, and partnerships with healthcare institutions and patient organizations, including membership in Funktionsrät Sverige and collaborations with Karolinska Institutet on research and education.

Name

Neuroförbundet

Legal name

Neuroförbundet

Website

https://neuro.se

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Neuroförbundet is a Swedish non-profit patient organization founded in 1957, serving approximately 13,000 members with neurological diagnoses through local associations, advocacy, member services, research funding, and publications, operating domestically with membership fees, donations, and Postkodlotteriet grants.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Neurological Disease Support Services

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Cognitive Stimulation & Reminiscence Therapy (Non-Clinical) (HSABAEAH)

Keywords

• Neurological patient advocacy
• Patient organization services
• Neurological research funding
• Member support services
• Disability rights advocacy

Headquarters

HQ city

Sundbyberg

HQ country

Sweden

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others, Supply Chain

Revenue model

1. Membership fees: Annual membership fees provide core operational funding. Members receive the Reflex magazine, newsletters, access to legal advice, support from diagnosis advisors, and community support.
2. Donations and fundraising: Direct donations, monthly giving (månadsgivare), memorial gifts (minnesgåva), and gift certificates (gåvobevis). Active fundraising campaigns including individual donations and campaign-based appeals.
3. Postkodlotteriet grants: Annual grants from the Swedish Postcode Lottery. Received 7 million SEK in 2025, 7 million SEK in 2024, and historically received approximately 93 million SEK total through the years.
4. Research funding: Distributed 7.2 million SEK to neurological research in 2025. Funds research through Neurofonden and various research grants.
5. Stock dividend donations: Accepts stock dividend donations (skänk din aktieutdelning) as a form of charitable giving.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels10 records

Core offering

Neuroförbundet is a Swedish non-profit patient organization (ideell förening) that provides advocacy, information, support, and community services for people with neurological diagnoses and their families. Its offerings include the Reflex member magazine, diagnosis-specific newsletters (Diagnosnytt), the 'Diagnoser på djupet' podcast, legal advice, peer diagnosis support, a relatives support program (Anhörigstöd), family camps, and a research grant program (Neurofonden), all funded by membership fees, donations, and grants such as those from Postkodlotteriet.

Product overview

Neuroförbundet is a Swedish patient organization for people with neurological diagnoses, offering a comprehensive range of member services. The core offerings include the member magazine Reflex, specialized diagnosis newsletters (Diagnosnytt), the podcast 'Diagnoser på djupet', and annual events like Neurodagen and Neuropromenaden. Member support services include diagnosis support from peers with lived experience, legal advice, and a dedicated relatives support program (Anhörigstöd). The organization funds neurological research through Neurofonden and publishes annual reports (Neurorapporten, Neurobarometern) to advocate for improved healthcare. The membership portal Mina sidor provides personalized access to member benefits.

Differentiator

Problem solved

Functional benefit

Products and services

• Reflex (Member Magazine) Quarterly member magazine delivered to all 13,000 members, featuring member stories, research updates, and topics related to living with neurological diagnoses. Available to members of Neuroförbundet.
• Diagnosnytt (Diagnosis-Specific Newsletters) Specialized newsletters covering specific neurological diagnoses, sent to members who have registered their diagnosis interests with Neuroförbundet.
• Diagnoser på djupet (Podcast) Podcast series with in-depth conversations with people living with neurological diagnoses, exploring their experiences and stories. Distributed via Libsyn and major podcast platforms.
• Neuropromenaden (Annual Walking Event) Annual inclusive walking event for people with neurological diagnoses, their families, and supporters, with local groups organizing walks across Sweden.
• Anhörigstöd (Relatives Support Program) Comprehensive support program for relatives and caregivers of people with neurological diagnoses, including digital meetings, counseling, support groups, and educational resources.
• Juridiskt stöd (Legal Support) Legal advice and guidance provided to Neuroförbundet members regarding rights, disability legislation, LSS (disability assistance), and other legal matters related to neurological conditions.
• Diagnosstöd (Diagnosis Support) Peer support service provided by trained individuals with lived experience of specific neurological diagnoses, offering support and information to newly diagnosed Neuroförbundet members.
• Neurofonden (Research Foundation / Research Grants) Foundation that awards research grants to advance understanding and treatment of neurological conditions, with an annual application process. 7.2 million SEK was distributed to neurological research in 2025.
• Neurorapporten (Annual Research/Policy Report) Annual report presenting research findings and member experiences, used to inform policy and advocate for healthcare improvements for people with neurological diagnoses.
• Neurobarometern (Annual Member Survey) Annual survey measuring Neuroförbundet members' experiences of neurological healthcare, with findings presented during Neurologiveckan to highlight challenges and improvements needed.
• Familjeläger och familjevecka (Family Camps) Family camps at Valjeviken for families where a parent has a neurological injury or diagnosis, providing recreation, peer connection, and support.
• Mina sidor (Member Portal) Online member portal where Neuroförbundet members can manage their profile, update diagnosis interests, access exclusive content, and communicate with the organization.

Quantifiable outcome

• 13,000 members served with support and information
• +3 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• Ulla-Carin Lindquists stiftelse för ALS-forskningcoreStrategic or Co-development PartnerCollaborative partner for ALS research and ALS Forum events. Jointly organizes ALS webinars with researchers from Karolinska Institutet and Umeå university.
• FSHD EuropecoreStrategic or Co-development PartnerNeuroförbundet is a member of FSHD Europe, participating in European webinars and collaboration on facioscapulohumeral muscular dystrophy research and advocacy.
• Funktionsrätt SverigecoreStrategic or Co-development PartnerNeuroförbundet is a member of Funktionsrätt Sverige (Functioning Rights Sweden), the national council for disability organizations, participating in joint advocacy campaigns and policy influence.
• Karolinska InstitutetcoreStrategic or Co-development PartnerCollaborates on research projects, World MS Day events, ALS webinars, and hosts joint educational events for people with neurological diagnoses.
• SpinalisminorStrategic or Co-development PartnerCollaboration on health course leader training program. Neuroförbundet offers 10 members the opportunity to become health course leaders through this partnership.

Scale indicators6 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Cancerfonden (Swedish Cancer Society): Sweden's largest health-focused non-profit, raising billions of SEK annually for cancer research. Much larger and broader in scale than Neuroförbundet, but operates a similar research-funding and public-awareness model and competes for the same lottery grants and donor attention.
• Hjärt-Lungfonden (Swedish Heart-Lung Foundation): Large Swedish health non-profit funding cardiovascular and respiratory research with significant lottery and donation revenue. Established incumbent in the Swedish health non-profit space, operating a similar research-funding and advocacy model at a much larger scale.

Others

• Funktionsrätt Sverige: National council for Swedish disability organizations of which Neuroförbundet is a member. Not a direct competitor but an umbrella organization that coordinates joint advocacy campaigns and represents the collective interests of disability groups, including neurological patients.

Direct peers

• Parkinson's UK: UK-based non-profit dedicated to Parkinson's disease, providing research funding, support services, and advocacy. International peer in the neurological patient organization space, particularly relevant as Neuroförbundet has specific Parkinson's programs and content.
• Astma- och Allergiförbundet: Swedish non-profit patient organization for people with asthma, allergy, and related conditions. Operates a comparable member-based model with local associations, advocacy, and member support services in the Swedish chronic-disease non-profit ecosystem.
• MS Society UK: UK-based non-profit for people with multiple sclerosis, funding research and providing support services. International disease-specific peer directly comparable to Neuroförbundet's MS programs and content within its broader neurological mandate.
• Diabetesförbundet (Swedish Diabetes Association): Swedish non-profit patient organization for people with diabetes, operating with similar membership, local associations, advocacy, member services, and research funding model. Direct structural peer in the Swedish chronic-disease non-profit landscape.
• Hjärnfonden (Swedish Brain Foundation): Swedish non-profit funding brain and neurology research and providing public education about neurological conditions. Direct peer in the neurological advocacy and research funding space, overlapping on several disease areas (ALS, MS, Parkinson's) and competing for the same donors and lottery grants.
• Reumatikerförbundet (Swedish Rheumatism Association): Swedish non-profit membership organization for people with rheumatic diseases, structurally similar to Neuroförbundet as a chronic-disease patient organization with local associations, member magazine, advocacy work, and research funding through a national foundation.

Regional players

• Norges Parkinsonforbund (Norwegian Parkinson's Association): Norwegian patient organization for Parkinson's disease with comparable membership, local chapter, and advocacy model. Nordic regional peer operating in a similar healthcare system context, providing a useful geographic benchmark.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/c/NeuroYoutube1
• Facebookfacebook.com/neurosweden
• Instagraminstagram.com/neurosweden
• LinkedInlinkedin.com/company/neurof%C3%B6rbundet

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Neuroförbundet